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I feel your pain I had two open heart surgeries in 5 months.Had a valve changed in December of 22 then a repair in may of 23 from complication from the first surgery.its been a year now finally make working and somewhat normal life

Rest in peace. So sorry you dealt with this here. I experienced the same “treatment” for hEds, pots, MCAS and multiple autoimmune disease. I really like how you weren’t afraid to put people in their place. Now that you’re actually gone I hope the people that weren’t supportive to you while you were here have a lot of guilt over it. I hope you’re somewhere pain and illness free and surrounded by endless love. I hope the doctors that mishandled her case are brought to justice. Perhaps if they had diagnosed kassandra with the fatal genetic condition she had years earlier with a simple spit collection or cheek swab people might have actually believed her pain and suffering was real. Way to add so much unnecessary mental anguish to someone in so much physical distress already.

Thank you, "Karen," for your commentary. 😂

Life is suffering Death is not a bad thing Sometimes i wish I didn't existed Rest in peace

You are an inspiration and rock star! I just came out of surgery for constrictive peri carditis and that allready was worst for me. I also had severe pleural effusion where I had a drain (5 drains in 7 weeks) I am blessed to have walked out of hospital with no drains at all.... only things left is the scars of the drainage pipes and the huge open heart surgery but in the middle of my chest.... you are one tough cookie!

My pain was unbearable. Still is horrible

Wearing a belted watch to the heart equals time sky in there babie

You put time in to a heart from wearing a belted watch to the heart

Blood clought is time

Be careful to avoid Warfarin - it is deadly

What happened on you

love you kassandra 😍🥰

Relatable

So sad she is gone. RIP

a blood clot..? that's nothing

if your still alive pray to Jesus he can heal you from this

LA is the most retarted place to get back and neck problems doctors dont know shit

Ugh I hate echoes they are so uncomfortable. I've gotten multiple because on the first echo they found a hole in my heart. Getting open heart surgery tomorrow, wish me luck!

Do you like to wear oxygen tank

This is one of my biggest fears, my best friend, one i’ve known for years, passed away from complications. So grateful my heart is healthy 🙏 Edit: shit

So sad! People need to be more empathetic towards others...May she R.I.P.😢

Rest In Peace kassandra, i love you so much my hero my inspiration. Just love another love 🥺😢😭🤍

Rest in power fellow EDSer. I'm sorry your life was filled with fighting to be believed on top of fighting your body.

RIP beautiful Kassandra... 💐❤️

I’m with you. I was given a clean bill of health by 4 different emergency rooms and then had an unmistakable heart attack. They discovered that I needed quadruple bypass surgery. Before comming to in the recovery room I was sent back into surgery to repair some unanticipated leaks. Recovery has been painful and slow. I learned that otherwise good people can be cruel at times.they mistakenly think that others just have to suck it up no matter what.

you poor thing...what an ordeal!

Being intubated while awake is the worst!

Why don’t you try prolotherapy

Rest in peace.. my condolences to all the family and friends..

RIP my friend.... you will be so missed!

Rip Kassandra

RIP Beautiful Kassandra i just found this video deeply touched me. Your soul is free now ❤️💙

Can relate..😔💚 Im so sorry and sad for all the sufferers😞💚🥺🇸🇪

Rest in paradise Kassandra 🙏🏼♥️🕊

ive had versed prior to 6 surgeries and remember getting wheeled in everytime, and right up until they knocked me out.

RIP

I have many chronic illnesses one big one is epilepsy and it impacts my life everyday and poor mobility due to falling so many times because of epilepsy

How are you doing?

I’m so afraid of getting surgery 😖

I feel like you’re the only one i’ve seen with a mini thoracotomy incision! I have one too and I feel alone because people sometimes don’t believe i’ve had OHS because i don’t have the traditional scaring.

It’s your life your body people need to respect that soft hugs beautiful

Thank you for making this video. It is soooo needed. Your video will help support so many who have been through this as well as be a learning tool for those you are describing who don't understand. I'm watching you today because with POTS I get the same crap from doctors, friends and family who don't understand or don't believe. I'm currently having to get several new doctors because I'm getting really physically sick and the current doctors don't believe me and think I'm a hypochondriac. It's a fight for medical care that should never happen. I'm so sorry you were not believed and didn't get the help and support you needed when you started telling them. Wishing you all you need now.

Sorry you had to go through this. Love hearing about it but you talk really fast and it's hard to get it so.

Look up to christ and receive his mercy and Grace ...he is our only hope..theres more than this life...there's an different world..he offers eternal life... Take his hands ...open your heart to him

This had just happened to me, went in for surgery on a slipped disc and wham. Terrified does not come close

can someone tell me what those people are saying because there is so many comments that say sorry for hate when there is no hate

i think youre the person on facebook that my mom keeps on showing me sorry you have to go through this

Now everyone is wearing masks so..

My eyes have been getting really bad but I chalk it up to my Sjogren's syndrome dry eyes. I used to have he best vision 5 years ago and not its gone. But I cant go to the doctors with covid everywhere

Still Amazed you are driving. No Dysautonomia meds help me at all