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Erika Franzi
เข้าร่วมเมื่อ 5 ก.ย. 2011
I Love My Hero
This is my Hero pill dispenser. I want people to know about it because I think it's a game changer.
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วีดีโอ
Diana on the Farm
มุมมอง 1277 ปีที่แล้ว
Chicken Chaser extraordinaire, Diana Franzi, shows off her mad skills.
Living with Trigeminal Neuralgia
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Trigeminal Neuralgia (TN) is a chronic and progressive neuropathic pain syndrome. It causes excruciating pain to the face. TN is said to be the most painful condition known to medical science. Episodes of pain increase in frequency and duration until, for some, there are no periods of remission at all. Treatments include anti seizure and opiate medications, nerve destroying, through the cheek p...
Trigeminal Neuralgia Awareness
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Trigeminal Neuralgia Awareness Day is 10/7 Please share this video to help spread awareness of this hideous condition. DONATE TO RESEARCH www.facingfacialpain.org
Gracie draws a face
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This is how Gracie draws a cartoon face on her phone using Art Studio Lite
Gracie as Baloo
มุมมอง 4110 ปีที่แล้ว
Summer weeklong drama and music camp. Production: The Jungle Book Kids!
River Rats at Lake Lure Tiki Bar
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River Rats playing their original tune "My Love"
Tooth Pulling
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Giorgio tries to pull his tooth by tying it to a shoe and throwing it down the stairs.
Gabriel on the Spring Horse
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Two year old Gabriel getting down on the spring horse. Hup, hup, hup...
Try going no carb and eat fat and protein. Heals many nerve issues including ms etc.
I've been living with TN for 8 years. And as awful as it is, it is even more awful to see these kids in this video dealing with it. I truly breaks my heart.
What about Trigeminal Neuralgia in the scalp
To continue question. I'm asking, because I was told this is what I had, but it was rare that it happens in the scalp. Does anyone else share this diagnosis? It was like someone stood behind with an electric rod & kept poking me every few moments. It lasted a couple of weeks & took a month be for I had complete relief other than complete exhaustion. I could barely speak, could not function & only sleep offered relief. Had anyone else had this in the scalp is my question.
I have trigiminal neuralgia now iam free from this pain by way of touch therapy my friends also relive from this pain
I hate this disease, But I try my best to keep my off of it.. because if I think this going to take me down, It Won't get away with out a good old fight.. I had This disease sense I was 16 Years Old.. at one time my head and my whole face was in agony I had a little stabbing, I had the Constant fire.. fire fire fire.. day in day out.. and one day it stopped but the older Ii get It Coming Back. I have it again... and I am in my 60's... I couldn't sleep the other night, I went to bed at 4am in the morning, This is a disease where you Can't have structure, Because It Dictates to you,.. I won't let this Nast Keep Me Down... I get up any way and do the things I have to do.. This Nasty is just what it is A BIG NASTY..
I have TN on both sides of my face for the past 10 years now. I had the surgery (on both sides) and they fixed compressions on both sides but it still hurts massively every day. I don't think I have had a day off, or an hour off, in 10 years. I also have fibromyalgia, and occipital neuralgia. I think there needs to be more support for people in chronic pain. It is an extremely challenging life.
Y’all just described my life for the past 7 years, GOD bless y’all all I pray for all of y’all. There is no words is described the PAIN !!! I’m 61 years old man . You are not a wimp I’ve had a lot of pains in my life nothing like this nothing . Mya GOD have mercy on us all !!!!
Sometimes there can be other approaches to treatment. The pain is horrendous for all patients with these issues. th-cam.com/video/rmCfKWprTgE/w-d-xo.html
I started having severe, stabbing ear pain 5 years ago. I read an article about research done on Vitamin B12 during the 1940s. The basic premise was that the myelin sheath surrounding the effected nerve is being rubbed off by an impinging blood vessel, at the site where both the nerve and the blood vessel enter the brain. The use of B12 was supposed to help rebuild the myelin sheath. I tried using a 3000 mg B12 daily. It worked! For 5 years. Now the pain is returning and I am investigating more invasive surgical procedures. Still taking B12 just in case. Ibuprophren works best the pain for me. Good luck to everyone.
U dont live with Trigeminal Neuralgia, u just survive it. I hate my life.
I have it on both sides and omg it hurts soooooooo much, l cry cause of the pain, l hope everyone who has it ,l truly hope that you all get the help you need, this is something you don't wish upon anyone, it's truly painful
I have TN type 1 and 2 since 6/2008; had an MVD procedure and it left me with Anesthesia Dolorosa since 2008. Facial pain is the worst pain ever. I chose to not let it get the best of me, it’s so hard, most days I just want to sleep the pain away. I smile through the pain but inside I am screaming in pain all the time. Prayers for you all. Know you’re not alone.
I have TN1 & TN2 one , the other or both is attacking me 24/7 I feel it in all 3 branches of the nerve including the base I only get relief while I'm sleeping and I still wake up in agony most nights It began November 2019 days after my 40th birthday I was diagnosed in February 2020 I'm still waiting to see a neurologist that's never treated a trigeminal Neuralgia patient I had a life before TN With TN i don't I'm practically disabled Before I was placed on any medication I had the severe dizziness so I have difficulty walking The eye on that side is super sensitive to light and has a blurry spot that gets worse with pain I drool and my face droops Clear liquid comes out of my ear My ear always seems itchy or like someone's stabbing it with an ice pick The nausea is horrible between the dizziness and pain Even the skin itself hurts I need scarves, sunglasses, water and a human to help me leave my house even for a ride Often my husband has to talk to doctors for me because my brain can't function properly through the pain When I was finally diagnosed via MRI confirmation In February The meds didn't seem to even knock the edge off . Trigeminal Neuralgia is a horrible nightmare no one should have to suffer from What makes it worse is doctors don't know how to treat TN or TN patients Friends and family don't understand either All they know is that they suffer alongside us I can't drive, its no longer safe. I am struggling to complete my degree program We're online due to covid but honestly one week in and im positive ill not continue my degree as an honors student if I complete it this semester at all I'm miserable and in horrible pain Trigeminal Neuralgia ruined my life
Me too.
Before TN, I was a Process Engineer for 7 years. I quit because of TN.
@Ron Krikorian Thanks Ron, it comes and goes. I work in a quiet place and don't have to talk but GA min wage. I am a Chemical Engineer by training and work experience.
@Ron Krikorian Hey Ron, don't give up. There are several experimental treatments we can try. I have decided to try these experimental treatments until I run of money. This TN has really stolen our life. Last December I went to see Dr Sprinkle in Arlington TX. He is a dentist and also he helps people with TN using his experimental "Omura Protocol". He testes you for a variety of viruses and heavy metals. He said that herpes zoster and other viruses spreads throughout the body and they hide in heavy metals. Once he does the test and if he finds out you have the virus(es) and/or heavy metals, he will give you a special fish oil with acupuncture roller you can roll it on your hand/fingers for 5 minutes every time you take the fish oil and also he may recommend you to take cilantro tea or supplement. The fish oil helps fight the virus while the cilantro removes heavy metals. You are also not supposed to eat sugar, garlic, onions, caffeine, Vitamin C, and chocolate and to not wear any jewelry as these are not a good combination with his system. I heard he has 50% success rate. He charged me a total of $590. My result: My TN condition is on my left face. After I saw Dr Sprinkle, I got a good improvement on my lips and jaws. The pain on my lips and jaw was unexplainably brutal! When it comes, it stays for several days no matter how many pills I take. I used to take liquid food once a day using a straw so that the dedication doesn't hurt me. Because of that I lost about 50 lbs. Now my pain starts under my ear and spreads to my cheek, near my eye and goes to my head. It is still painful but I can manage to chew/eat solid food on my right side only and drink water without straw. I am still taking Gabapentin 200 mg 3x a day and 600mg Trileptal 2x a day. My pain level was 10 and now is about 7, still painful but way better than a 10. So many people talk about Low Level Laser Treatment (LLLT). I am debating whether to go to treatment clinic or buy the laser device and do it home. You buy, the provide instruction and support. They claim that it reduces the pain starting the 2nd week of treatment. At carmen care in Boca Raton, FL, cost at the clinic for 3 week treatment is $5,800 but if you just purchase the laser device is I think a little above $2,000. They claim that it reduces the pain starting the 1st or 2nd week of treatment and more than 80% pain reduction after the treatment. But this is if you are a good candidate, you have to go through some examination. The downside of all of these treatments (for me), insurance don't cover them since these treatments are not FDA approved. Please check the following links. Also check other LLLT researches if you haven't done so. You can email me andre.degefa@gmail.com. Wish you healings in 2021! carmencarelaser.com/laser-therapy/trigeminal-neuralgia/ www.drsprinkle.com/ shop.comra-delta.com/product/comra-delta-980nm-soft-set/ Also, it is a good idea to join the Facial Pain Association if you are not a member yet. I get a lot of good information from the members there. fpa-support.org/support-fpa/find-a-doctor/
@Ron Krikorian Ok, I hope they come up with some help. Good luck my friend!
@Ron Krikorian Wow! That is great! U are lucky those vitamins worked for you. I did that when it started first in late 2018, no luck. I wish you the best in 2021.
@Ron Krikorian 👍👍👍
I have have had TN for over20 years I wont do surgery because I read it could get worse I cant deal with worse so I deal with it best I can I do it with a smile most of the time if I cant I go and hide in my bed I dont make others suffer because I suffer I hated winning people so I dont wine to others and make them miserable to. Its really hard to do sometimes. My husband can look at me and know I am in pain he can hear in my voice that I'm in pain I thank GOD for him that he knows what I'm going through and is compassionate about me! I pray for me and everyone else that has this condition! Love u all! Hang in there!
There are surgeries that can be done on the nerve ends for TN2, and it’s outside the skull. It helped me some, but not enough. At least now pain meds can help me.
I have TN and for the past 20 years it's been hard and gets harder every day! I pray for a cure! My problem is allergic to most of the medications that treats TN and my life is hard I look normal to most people they have no idea what I go through my husband understands and is very caring and that's all that matters really. I pray for us all! Especially you young ones.
Can anyone tell me if I have TN? A few months ago I was waking up in the middle of the night with the same symptoms almost very night on the right side of my face. NO pain medication would work I explained it to my neurologist and he said it could be dental but I don't think so. Right now I'm taking Trokendi Xr because I would get migraines as well. Now I have the pain on the right side of my face two or three days in a row every month.
That sounds very suspicious to me. Please check out Facebook support groups for answers to these questions. There are several large FB groups about TN. Best of luck to you!
Do you grind your teeth? It's possible to break a tooth under the gum line. Won't hurt to go to the dentist. What do you have to lose?
Hey do you get electric jolts from your ear to your jaw into your teeth the best way to tell is get a mri done
You can be reach me on Facebook [Jose L Marzo]. TN is something to share with others as to build a support team. Thank you!
I have both types of TN on both sides of my face. I'm not a surgical candidate.
I have had TN since the early '90's, I play this video loud so my mate can hear what I have gone through. I need understanding that my life and who I am now ARE different because of this disease.
My dad suffers from this. He’s among all TN patients as some of the bravest, most enduring people on the planet. I find it terrible how this disease/condition is not widely known. It needs to be made completely aware of, to the point where almost everyone knows what it is. People with TN aren’t understood at all it seems. A client today rang my dad, I had to pick up the phone for him as he couldn’t speak, yet she continued to say “I need to speak with him” “you need to get it (TN) sorted”. Everyone needs to be aware of it so we can try our best to understand the people who are suffering from some of the worst pain known to man. If you’re suffering from this, just know, I commend you. Please keep fighting for your loved ones, hopefully one day the society we live in will fully recognise the reality TN patients face and support them as best we can. More importantly, hopefully someday soon, we find a cure.
@Ron Krikorian still suffers from it with no end in sight. The recession periods don’t last long. He’s constantly on loads of medication, even more when the active periods start n he can’t really eat any actual food in those periods. Luckily my dad has an exceptionally high pain tolerance and although it’s still enough to immobilise him, he can force his way through active periods but he hates them nonetheless. Luckily this year he had a recession period over Christmas for a couple weeks so that was nice.
@Ron Krikorian keep going man even it doesn’t work🙏🏻 Keep going for yourself n the ppl who love you. I can’t even begin to understand the pain you guys face but the way my dad fights through it shows me how important life is. My sister had her first child last year, my dad became a grandad. If he had let the pain consume n beat him he may have never got to meet his granddaughter. You ppl with TN are truly brave, good luck!! I hope the injection works, pls tell me if it does. If it doesn’t, carry on fighting n carry on living!
@Ron Krikorian Back in 2017? They can test for radiation saturation. There are MRI's with/without contrast. MRA's w/without contrast. MRA is to check the arteries.
Can it be on both sides of face at the same exact time ?? Or the whole face
I experience TN on both sides...and I believe it is the cause of many other problems. Like bowel, ovaries, and gut imbalances.
I had microvascular decompression surgery in December of 2017. I'm still pain free. I still have some numbness and tightness at the surgery site, but I'm more than happy to live with that ! My surgeon said that I should be pain free from TN for around 10 yrs. I seriously hope that I pass away before it ever comes back. I'm 55 yrs old.
I hate TN! I thought living with stage 4 Endometriosis was bad till I got TN. Cyberknife radiation has helped me some but I'm pretty sure MVD will be done shortly cause the pain is still there and getting worse. Praying for everyone else that suffers from this debilitating disorder
Omg I also have both Stage 3 endo This is a nightmare Facial pain keeps me from thinking straight I’m sooo suffering
Everyday I feel like an ice-pick is being stabbed into my face in one of a few places (tear duct, center of eye, peak of eyebrow, temple, nostril). I started with this condition after a stroke in my brain stem. I'm nervous for the future. I'm already getting a tolerance to my medications again (third medication at this point). I guess I can count on it getting worse my whole life :( Oh well, life is pain and suffering, the reward for dealing with it is life.
I have these exact symptoms but no diagnosis yet. Guess it's a brain stem problem. Awesome.
Try different meds when they stop working or if side effects are to bad try different things acupuncture helped me but was to expensive. I take antidepressants they help with the pain when I am stressed and pain is a stresser my pain is and gets worse so that helps. When I'm busy my mind dosnt notice pain as much. It's a bad deal for us all and we just have to keep trying anything and everything. I wont do surgery because I am afraid to make it worse then it is already.
@@prettymessedup7644 it can be caused by damag to the nerve itself too. From dental work sometimes or other such procedures. Mine was from a stroke, but that's not common. Talk to a neurologist.
@Ron Krikorian Doing alright. Still deal with pain, but I don't let it stop me. I'm actually growing a business right now, had a child in 2020, and overall I'm doing really good. Thanks for asking.
@Ron Krikorian don't say that! Have you tried botox? I hear that really helps. Also, I got this vibration brush-face-massager-thing in Japan that helps make the pain subside when it fairs up bad. Neck and scalp message also helps I've found. Also, there is meditation. This is helpful for learning to tune out the pain when needed. I hope you can find something that helps, but please don't lose hope. We only get one life, we just have to do our best with what we are given. Best of luck.
I've had it ever since I was 6 so almost 10 years now and personally I go to an uppercervicle chiropractor and it's helped a ton I highly recommend it
No medicine can relieve their pain? so doctors pls.do something to help them.pls study😟😟😟
Cannabis oil is the only pain med with no terrible side effects.
No disability for this in Australia. For being such a rare disorder, you would think it would be covered, but it isn't.
Hang in there, champions. My partner has it and she's at her wits end. The extra knife in the heart for her is that she also has severe MS. The body can be so damn cruel. I sincerely hope anyone who has this finds relief and a cure be around the corner soon.
Ranxamus you seem like a really caring spouse. She's lucky to have you.
Please try L-Lysine, I take up to 6000mg a day. I also take lion's mane mushroom, please try these supplements
I've been living with this for four years. My diagnose came a few weeks ago, although I already knew. You warriors out there are all in my prayers, we have to support each other because people won't understand. Please, be strong!
Right people won't understand 😐😔
I wish I had known someone who had this when I was suffering from it, I felt so alone in the world and no one only me had this pain, I hoped that I would die in my sleep, the suicide disease is the perfect description for this curse...Thankyou for making people aware of this before they have good teeth extracted like I did.It made me so crazy I banged my head off the kitchen wall.
ballinacrossrose 😳💕😢😭😭😭
I remember punching myself in the face out of sheer desperation. Thank God for groups on FB. That people know how you feel and have been able to share tips and tricks with each other
@Ron Krikorian Thank you for asking, I am pain-free today after having surgery.
@Ron Krikorian..I really feel for you suffering that horrendous pain..the surgery I had can be seen here on TH-cam, if you watch it you will get a better idea of the procedure..The surgeon goes into the bottom of the brain about two inches over from the back of the ear..I’m left with partial feeling on that side of my face which I’ve got used to. I wish you good luck with the procedure your going for..I hope it will give you some peace.
@Ron Krikorian Many blessings to you..I wish you well.
Idk what to do anymore so I’ve found myself on TH-cam looking up videos on tn while in between attacks... Along with feeling like a horrible mom/wife.
Just does bestyou can and educate you kids and husband they hopefully will learn and understand!
I have. I've had nerve decompression and excision surgery. No go. Next is pain pump.
I just got DX after so many years of pain in my left side of my face.
Love all you warriors out there. Got diagnosed in 2014. On disibility now. Life is full of depression and constant pain. Remissions getting shorter. The only thing that helps is booze. So now I'm also a drunk. Future is bleek. I would have ended my time on this planet 2 years ago if not for my daughter.
Peyton Randolph CBD OIL will HELP
You just explained my life. I'm crying watching this video with that 11 year old girl! People don't understand the pain that we endure everyday because you cannot see it
I have been dealing with this for 6 months. i do not understand how anyone can live with this longterm. I just stopped my meds. i will try "natural" cures. if that does not work i give up.
Wilde one try charlottes web
After all else failed for me, I went before Jesus exposed in the blessed sacrament on the altar and to my and my whole family's utter delight he cured me, I got off my fentanyl patch in 2 weeks and no more opiates or gabapentin or any TN pain, I've been free since January 23rd, 2018! I will be praying for you, don't ever give up!
Don’t give up prayer will help I know I’ve had it for the past 7 years GOD loves you cry out to him GOD BLESS YOU
TN is the worst thing I've ever experienced in my life. If it wasn't for God hearing me cry out to him I would of killed myself due to it in 2011.
Yes, i know very well that feeling of wanting die, but i remember i got a family that loves me and i encourage myself to keep on living praying to God.
I have TN also. Oh my God it just brought tears to my eyes just to see the small little girl, the children period but I didn't know some one as young as her could have it, so sad 😔. You all are in my prayers 🙏 take care.
I am Dr. Marzo and I have TN. It is very difficult to deal with, but I continue to believe and fight it. I also like to network with others that share this most painful disease know to man. Peace
@@drjosephlmarchsr7350 I am doing better. Thank you. How are you?
@Ron Krikorian I'm doing pretty good right now. Thanks for asking 😊
@Ron Krikorian I know the pain is horrible but please hang in there 😟
@Ron Krikorian wow... That's great!!
Does the pain last hours ?
Makoeyes Onme the pain is forever
My attacks last minutes however they occur every hour multiple times... showers, eating, brushing my teeth yawning, smiling, laughing, hair on my face etc. everything and anything it beyond sucks.
blizzard veritas I’ve even had it swallowing my own spit and you don’t realise how much you do that in a day until it becomes painful!
It can last for weeks
I started to have healthy teeth removed and having antibiotics prescribed late teens/early'20's. Having seen my Father suffer, I more-or-less self-diagnosed with the input of a dentist. After Gamma Knife "Surgery" then an MVD which nearly cost me my life (the staples started popping out post-surgery). I was home just one day & woke up with 2 pillows soaked in ceribro-spinal fluid. The required another surgery to repair the mess, As the neurosurgeon slid my ICU door closed the "pain" which had only been unilateral started on the left side also. Now I not only have T.N. but Glossopharangeal Neuralgia but Occipital neuralgia too (& some horrible conditions to add to them. I really "feel your pain" (as B. Clinton would have said...........) you'll both be in my prayers. I'm almost catching up to +Joe Runyan as I'll soon be 50.
Hi, I am Myra Lawson and I have Trigeminal Neuralgia. My pain was very severe. I had the Gamma Knife radiation treatment in November right after Thanksgiving and I am happy to say I am now PAIN FREE. It was only one treatment and I have absolutely no regrets!!! I thank God I now have my life back which I had lost to this horrid disease. I pray that you can all find your way to a pain free life. Do a you tube search and check it out. It was really very simple and did not hurt one bit!! God bless ❤
hello good people .My name is Alina i'm from Romania,i have TN sense 17years.Now i'm mother of 2boys of 10 and 9years.I have 31 years.Six years i try to suicide because this hell that i'm living.I did last year MVD (janetta)and the situation is the same. The pains are killing me day by day.The people from bere don't care about.PLEASE HELP ME .I don't want to live enymore.I guvernul.It's very painful HELP ME PLEASE.Sorry for my english.I hope that somebody will see my message
Antonio geiming are you ok???
Don't give up. We are all with you, a lot of people in your situation
I have lots of raw videos on my channel about my tn this video is great to show others what we go through x
guided meditation can help, Sharon salzberg and eckhart tolle do some good ones.
Keppra and Vimpat along with many other meds keep it mild. I had so ma plans for the future ~It's gone. No suicide not an option. Some meds caused those thoughts. It's just like what these people spoke about. All of it.
@Ron Krikorian Thank you for asking. It's worse but it's a matter of accepting it is what it is.
@Ron Krikorian I hope you're not being sarcastic. I'm on near 8,000 mgs of a combo of meds. They test often to be sure my system isn't too near fatal. The problem is I have other illnesses that aren't curable. It's a no-win situation. Had ever test imaginable. Was in the hospital to cut in and have the mesh with probes places onto my brain. After 3 days of tests to be sure what they were working with and details, they found my seizure disorders, for the most part, were under control but something unrelated was going on and they couldn't figure it out. Surgery had to be canceled. They had no idea what to do next lesion's developed around the brainstem now etc etc.
@Ron Krikorian I've never heard of the term " trigemenial herpes zoster". Shingles are very painful from what I understand! If exposed to shingles a person can get TN. MRI's & MRA's are done to see the nerves and arteries. I've had tests of so many sorts I don't recall all the names. The one they put the probes on your head, I've had so many times it's ridiculous. They put me on meds to slow my brain it was too active to read the tests. The probes left me with 2nd & 3rd degree burns.
@Ron Krikorian Prayers are always appreciated :)
@Ron Krikorian Nonsense. Pray. Pray for strength and stop focusing on the pain. Cry when you want to. Yell to God asking for help. Ask for doctors to guide you. Look for one that specializes in pain control. Get second and third opinions if you have too. GO TO EMERGENCY hospital and they will help relieve that pain. They will give you ways to help you. Don't give up! It's Not an option! Angels Watch Over You ~ Be Blessed ~
I was diagnosed with right side Trigeminal neuralgia type 1 in 1982 (Tic Doulouroux then) Iwas 30 years old. I am now 65. Every treatment known tried and failed to include seven brain surgeries. I was diagnosed with left side TN in 2008. I have had TN more than half my life. It sucks!
Joe Runyan ..I too was diagnosed. Around 31. I have it on my left side. Knowing one day it could become bilateral is more than I can take or even think about.
Thats awesome!