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Please comment with any questions you may have. If you are watching this, your child may be recently diagnosed and you are desperately seeking answers and support. There is hope! For more information on Polymicrogyria, visit www.pmgawareness.org For more information on Infantile Spasms, visit www.epilepsy.com/what-is-epilepsy/syndromes/infantile-spasms-west-syndrome For more information on the ...

Isaac took his first independent steps in his gait trainer today 12/6/23! He is 3 years, 4 months, 8 days old. He was diagnosed with Polymicrogyria and Infantile Spasms at 3 months old. He battled Infantile Spasms for 6 months before we found the right med/diet combination for his treatment. He is currently on 1 seizure medication and the ketogenic diet for epilepsy. His seizures are well contr...

Sweet Baby Giggles

AMT Mini-One G Button 1) Twist 60ml Syringe into Extension Tube Connector (the other connector should be closed) 2) Make sure clamp is not locked 3) Slowly pour a small amount (2-3ml) into the syringe, just enough to fill the Extension Tube, then lock the clamp. 4) Open the valve on the G-Button, Match the line on the connector to the line on the G-Button, Insert and twist right to lock 5) Unlo...

This is the beginning of our journey with Bilateral Polymicrogyria, Infantile Spasms, and Epilepsy. Isaac was diagnosed at 3.5 months and has since been on various treatments to control the seizures. Isaac is enrolled with Early Intervention through our local school district, has Physical and Occupational Therapy twice weekly, and is closely monitored by his medical team. If you would like to j...