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Destroy Duchenne
United States
เข้าร่วมเมื่อ 24 ก.ค. 2017
The official TH-cam of the Destroy Duchenne organization.Our mission is: to bring awareness, educate and ultimately cure Duchenne Muscular Dystrophy to save young lives.
Project Ryan
Project Ryan showcases Ryan Gómez and his story and why we decided to honor his legacy.
มุมมอง: 286
วีดีโอ
Shaping the Future: Leadership and Vision at Satellos
มุมมอง 2233 หลายเดือนก่อน
Elijah Stacy, founder of Destroy Duchenne, sits down with Frank Gleeson, co-founder and CEO of Satellos Bioscience, to explore the vision and leadership that have driven Satellos to the forefront of regenerative medicine. In this episode, we dive into Frank’s personal journey, the foundational ideas behind Satellos, and the pivotal moments that shaped the company’s mission to revolutionize trea...
Pioneering Duchenne Muscular Dystrophy Treatment with Satellos | Elijah Stacy & Dr. Rudnicki
มุมมอง 3217 หลายเดือนก่อน
Elijah Stacy, founder of Destroy Duchenne, and Dr. Michael Rudnicki, co-founder of Satellos Bioscience and Royal Society inductee, discuss Satellos' novel approach to muscle regeneration, focusing on stimulating the body's internal stem cells rather than using external transplants. This pioneering work has the potential to transform the future of treatment for Duchenne Muscular Dystrophy. Learn...
Elijah Stacy Announces DMD Newborn Screening Bill Introduced in California -- AB 2563
มุมมอง 669 หลายเดือนก่อน
In light of Rare Disease Day, Elijah Stacy is proud to announce that AB 2563 was introduced which would mandate newborns to be screened for Duchenne in California. Special thank you to Assemblyman Bill Essayli for introducing this. The Assemblyman and Elijah go back as he was his high school’s Mock Trial coach as an accomplished attorney. This is a video of Elijah’s written statement on this is...
Destroy Duchenne's First Annual Fall Gala 2023
มุมมอง 296ปีที่แล้ว
Destroy Duchenne's First Annual Fall Gala 2023 Recap video. Including members from Satellos Bioscience, Capricor Therapeutics, and Elijah Stacy Website: www.destroyduchenne.org Social Media: @destroyduchenne Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technolog...
Nancy and Rick share their experiences with us about Kal, their son with Duchenne. (DD Podcast)
มุมมอง 862 ปีที่แล้ว
Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social Media: Facebook: DestroyDuche... Instagram: destroyduch... Twitter: destroydisease?la... LinkedIn: www.linkedin.com/company/dest... ABOUT DESTROY DUCHENNE PODCAST...
Hunter Bradfield discusses his experiences with Duchenne and positive influences in his life.
มุมมอง 782 ปีที่แล้ว
Hunter Bradfield discusses his experiences with Duchenne and positive influences in his life that helps him to cope, with Elijah Stacy on The Destroy Duchenne Podcast. Hunter Bradfield is currently 26 years old and has his family’s strong support to thank for thriving to this day. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podca...
John Morrison talks about Warrior mindsets he uses to deal with the challenges of Duchenne!
มุมมอง 3163 ปีที่แล้ว
John Morrison talks about warrior mindsets he uses to deal with the challenges of Duchenne Muscular Dystrophy with Elijah Stacy on The Destroy Duchenne Podcast. John Morrison is 18 years old and grew up in a military family that places on a strong emphasis on resilience. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: w...
Nathan talks about what it's like being a father to a child with Duchenne (Destroy Duchenne Podcast)
มุมมอง 2013 ปีที่แล้ว
Check out Nathan's website to learn more about his experience with Duchenne: natebettger.com/category/duchenne/ Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social Media: Facebook: DestroyDuche... Instagram: destroyduch... Twi...
TWINS talk about their unique experience living with Duchenne (Destroy Duchenne Podcast)
มุมมอง 2023 ปีที่แล้ว
Twins, Troy and Andrew, talk about their unique experience living with Duchenne muscular dystrophy. Learn about their positive mindset and attitude living with Duchenne! Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social Media: Facebook: D...
What it's like living with Duchenne muscular dystrophy with Jared Pohle (Destroy Duchenne Podcast)
มุมมอง 1113 ปีที่แล้ว
Elijah Stacy and Jared Pohle talk about what it’s like living with Duchenne muscular dystrophy and their plans for their futures. Get to know Jared and his experience with Duchenne on this latest episode of the Destroy Duchenne Podcast. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Webs...
Elijah Stacy interviews Deniz Eskisan from the United Kingdom: discussion on having Duchenne.
มุมมอง 2513 ปีที่แล้ว
Elijah and Deniz discuss the hardships of living with Duchenne, their attitudes towards overcoming the adversity of Duchenne, and why we need to Complete The Cure™ for Duchenne. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social Media: Facebook: facebo...
26 year old, Colin Werth, talks about living with Duchenne and how he's overcoming it.
มุมมอง 1253 ปีที่แล้ว
26 year old, Colin Werth, talks about living with Duchenne and how he's overcoming it. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social Media: Facebook: DestroyDuche... Instagram: destroyduch... Twitter: de...
Paul An talks about living with purpose despite having Duchenne and other amazing life advice.
มุมมอง 1684 ปีที่แล้ว
26 year old from Southern California, Paul An, talks about all things relating to Duchenne, including advice on how to deal with the disease and what matters most in life. Paul An tells his story and shares a powerful message about living a positive life despite encountering great hardship. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duch...
Zach Tebb talks about the hardships of Duchenne, what matters in life, and his future life plans.
มุมมอง 1024 ปีที่แล้ว
20 year old from California, Zach Tebb, talks about the hardships of Duchenne, what matters in life, and his future life plans. Zach gets raw about the reality of Duchenne and why we need to cure it. Want to be on the podcast? Click here: www.destroyduchenne.org/podca... Learn more about the Destroy Duchenne Podcast here: www.destroyduchenne.org/podcast Website: www.destroyduchenne.org Social M...
15-year-old Bradon Coy talks living with Duchenne, his business he founded, and more!
มุมมอง 2144 ปีที่แล้ว
15-year-old Bradon Coy talks living with Duchenne, his business he founded, and more!
Max Jaques talks about Duchenne, empathy, and his amazing philosophy for dealing with adversity.
มุมมอง 744 ปีที่แล้ว
Max Jaques talks about Duchenne, empathy, and his amazing philosophy for dealing with adversity.
Brett Boettcher's interests and hobbies in life (Destroy Duchenne Podcast)
มุมมอง 994 ปีที่แล้ว
Brett Boettcher's interests and hobbies in life (Destroy Duchenne Podcast)
Brett Boettcher talks Power Soccer, hardships living with Duchenne, and more.
มุมมอง 974 ปีที่แล้ว
Brett Boettcher talks Power Soccer, hardships living with Duchenne, and more.
Jordan Reidenberg gets raw about what it’s like having Duchenne.
มุมมอง 1224 ปีที่แล้ว
Jordan Reidenberg gets raw about what it’s like having Duchenne.
Ryan Gomez talks about his story of living with Duchenne and how he paints to Destroy Duchenne.
มุมมอง 2684 ปีที่แล้ว
Ryan Gomez talks about his story of living with Duchenne and how he paints to Destroy Duchenne.
Elijah Stacy interviews his little 12 year old brother, Kai Stacy, about having Duchenne.
มุมมอง 4574 ปีที่แล้ว
Elijah Stacy interviews his little 12 year old brother, Kai Stacy, about having Duchenne.
WE ARE GOING TO USE CRISPR TO CURE DISEASES
มุมมอง 1365 ปีที่แล้ว
WE ARE GOING TO USE CRISPR TO CURE DISEASES
He is creating ART to cure his own disease
มุมมอง 1055 ปีที่แล้ว
He is creating ART to cure his own disease
So awesome to see Ryan’s artwork on the clothes 🎉🎉❤❤RIP Ryan, we miss you buddy! Great job Elijah, Jeff & Linda & all involved.
❤
Such a sweet feloow
Share this I love this Elijah
Hi Bro
❤🍀❤
Hey Elijah how are you
Good Job Elijah
You got this bro
You go Elijah!
Such a sweet and positive interview!
It is good to see you again, Elijah! Thank you for this interview!
Sweet video you all made. I rather see vids like this that dumb videos on TikTok. This should have MANY more views. Merry Christmas to all of you and my best wishes for the next year!
Great podcast
Great podcast!
Amazing young men
Yeah your a great role model Elijah
I have twin boys with Duchenne! You guys are such great role models. Let’s keep fighting this disease.
I thig we really need to know how you feel about this disease. yes I agree some question difficult but this is real life and your questions show us what exactly do you feel. good job Elijah. congrast. I hope one day you will talk to my son too. greetings from Turkey. 👐
Agree with bboy Difficult questions, but we need to get the word out about this disease It sucks ! Find a cure.
Some difficult questions, but some enlightening conversation and interesting responses. Sending some love from Australia!
Great interview I found it very interesting.
Super inspiring stuff, love the message that Destroy Duchenne is putting out. Super proud to be able to call Troy one of my good friends ❤️
Very good interview. Thank you. 👍👏👏
Thank you Kai for sharing your life with us!! May the Lord bless you guys!!
i hope crispr changes everyone's lives and cures all diseases
Hell yeah
Way to go bro I also go to centennial high. I give you mad respects bro. I recently found out that I have a stomach disease called Crohn’s disease it’s pretty bad and hurts a lot but you know what when I look at you man and how you go through so much more I give u mad props I’m all ears when it comes to people like you I hope you read this and we can talk more at school. Ps I’m in the the same grade as you.
Now there is trials we can live longer that to my nurse micheal he is great nurse and the trial is help me and my brother Jake please people ask your parent to donate please so will can STOP DUCHENNE
Such a hopeful kid! You are so strong I hope you get on the show ❤️❤️❤️
Keep up the amazing work, Elijah!!!
Nice