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Living Proof - Stories of Hope
United Kingdom
เข้าร่วมเมื่อ 13 ม.ค. 2021
Sharing stories of people that have experienced full recoveries from 'incurable' chronic pain and illness, through science-based mindbody techniques.
A free resource for both mindbody practitioners and patients.
For more information contact us at hello@livingproof.org.uk
A free resource for both mindbody practitioners and patients.
For more information contact us at hello@livingproof.org.uk
GP Education Series: Medicine & the Mind-Brain-Body Connection - Intro
In summer 2024, Living Proof launched our first accredited course for healthcare professionals: 'Medicine & the Mind-Brain-Body Connection - a GP Education Series'.
This course provides a comprehensive introduction to the neuroscience behind chronic neurophysiological (or 'mind-body') symptoms - and the neuroplastic approach to recovery.
The course is accredited by the British Society of Lifestyle Medicine - and is written and presented by Dr Sarah Hadfield (GP and Mind-body Practitioner).
To find out more about the course, visit our website: www.livingproof.org.uk/practitioners
To preview the course - and meet the course author and presenter, Dr Hadfield, take a look at this short preview video.
This course provides a comprehensive introduction to the neuroscience behind chronic neurophysiological (or 'mind-body') symptoms - and the neuroplastic approach to recovery.
The course is accredited by the British Society of Lifestyle Medicine - and is written and presented by Dr Sarah Hadfield (GP and Mind-body Practitioner).
To find out more about the course, visit our website: www.livingproof.org.uk/practitioners
To preview the course - and meet the course author and presenter, Dr Hadfield, take a look at this short preview video.
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Living Proof - Stories of Hope - Recovery from ME Chronic Fatigue Syndrome
มุมมอง 21K2 ปีที่แล้ว
Fiona lived with ME for 14 years, until finally discovering a route to recovery through science which taught her that her symptoms were caused by her brain and nervous system. By employing a range of mindbody tools and techniques she was able to fully reverse all her symptoms and regain a healthy and active life. Many thousands of people are now recovering from 'misunderstood' health conditions...
Living Proof - Stories of Hope - Recovery from Chronic Pain
มุมมอง 9K3 ปีที่แล้ว
Meet Charli, a 24-year-old biochemistry student from London, who shares her moving story of recovery from over two years of chronic pain. She describes the science behind the ‘mindbody’ approach to calming her nervous system, and her hopes that medical practitioners will start to bring the vital link between emotions and physical symptoms more into their practice. This is our first in an antici...
Sarah Hadfield (GP)
มุมมอง 3193 ปีที่แล้ว
Sarah discusses the Mindbody approach from the perspective of a GP
Liz Hardy Phsyiotherapist
มุมมอง 1363 ปีที่แล้ว
Hear Liz (Phsyiotherapist) talk about how incorporating Mindbody work into her practice has made an impact on patients and their recovery.
Irralee (Phsyiotherapist) talking about the Mindbody connection
มุมมอง 1524 ปีที่แล้ว
Hear Irralee (Phsyiotherapist) talk about how incorporating Mindbody work into her practice has made an impact on patients and their recovery.
Practitioner Testimonial From Pippa (Osteopath)
มุมมอง 1484 ปีที่แล้ว
Hear Pippa explain how they adopt the mindbody approach in her Osteopathy practice.
This is making me so happy 😀 glad I found this, it's very encouraging 🤍
Thank you
Thank you
Thank you, Dr Hadfield, for creating such valuable resources to educate health professionals about mind-body conditions. This initiative is essential to help patients get the recognition and support they need. Looking forward to seeing more of it!
Great to see this work gaining ground - it makes so much sense to look at these conditions through the perspective of the nervous system and our threat / safety physiology, and in the light of advances in neuroscience to understand concepts such as the role of predictive coding by the brain. It took centuries for the medical establishment to move away from blood letting - I'm hopeful that the mounting evidence for this approach will accelerate understanding and it will be taught in our medical schools to transform patient care.
Amazing work that you're doing. So important to spread this message, especially to GPs who are at the front line of supporting people with these kind of issues.
what do i do when the source of fear that i've been dealing with my whole life is my father, who i have no choice but to live because otherwise i'd be homeless?
Hi - thank you for your question. We are really sorry to hear you are in such a difficult situation. We cannot provide one-to-one coaching or medical advice but if you'd like to email us we can offer some advice and pointers that may help support you. Our email address is hello@livingproof.org.uk
Thank you Sarah for sharing this video and insight into this evidence based mind-body approach for chronic pain and somatic symptoms. Also fantastic work educating other GP’s.
Thank you Dr. Hadfield and Living Proof for doing this important work. This information is life changing and in some cases, even life saving. Having recovered from chronic pain many years ago using this approach, I know how valuable your work is. It requires a paradigm shift but that can be when real progress is made. Good luck in all of your efforts.
Great work Sarah. You and all of us have such a huge task to educate the medical system. If we can change our mindset about Neuroplasticity then all or most Health care practitioners can change their minds as well. Just think to all the flack (not sure that's the right word) Dr. Sarno got when he was saying it to all his colleagues. We will get this work out there. People need us.
This is such important work and congratulations to Dr Sarah Hadfield and Living Proof for making a stand to raise awareness of the considerable amount of scientific evidence for this concept and approach. I wholeheartedly believe that we should be moving away from a pathogenesis approach which focuses on factors that cause diseases, and focus on salutogenesis which studies the origins of health and well-being, and the factors that support them. This is where this work lies, demonstrated by the thousands of people worldwide who have recovered from longterm conditions after failing to find an answer from the medical world. GPs are usually the first medical person someone sees when they develop symptoms so this course is such an important introduction for GPs and other Doctors. Keep up the good work Sarah and everyone at Living Proof.
Years ago my GP was so kind and respectful but she had no idea how to help me through the hell of my condition Now years later, I have another GP who has no idea why I’m recovering because she has little understanding of the cutting edge science which is guiding me and so many others Wonderful to see you are reaching out to GPs and maybe then we can explore ways forwards with our GPs rather than having to pay for support privately . Thank you !
Thank you Sarah for putting this out there. I myself found this work when I had long covid. I found that I was able to reduce these symptoms by understanding the nervous system and used a neuroplastic approach to enable me to fully recover. Ive seen your GP course and I wish that my doctor had seen this when I called them full of fear as to what was happening to me. It would have made a huge difference. Thank you
Top video
There is no evidence for many of the claims you make. Also "Chronic fatigue" is not Myalgic Encephalomyelitis.
Hi Portia -- David Putrino and Amy Proal the biggest pathogen focused people just published a study today proving that heart-rate variability and HR could fully predict an ME/CFS crash. However the paper doesn't talk about solutions. Neuroplastic programs/methods and lifestyle changes/programs are valid solutions for many people. Reconnecting the mind and body and helping the body's nervous system be calmer and also more resilient to stress, vs high HRV fight-or-flight is key. I'd like to see more research on these methods, too -- because solutions is very important, getting at the root.
I’m lost for words. What has happened to medicine. I’m embarrassed for you.
Fiona, your story on Curable convinced my son to try it and he recovered from "Long Covid" or post covid sequale after many months of being bed bound. We will forever be grateful for you sharing your story. I know your mother's pain and am grateful for not having to have as suffered as she had to. He's back at college, he's traveled, he is back to weight training and running and he's back to being the wonderful loving boy that he once was.
Wow this is very much the kind of story that we love to hear! We are so happy that your son has recovered his life, this will help inspire many others on similar paths. I'm not sure how old your son is, but if he might be willing to share his story further, to help others also towards recovery, we are currently inviting UK-based 'recoverees' to feature on our forthcoming 'Recovery Wall' on our website: www.livingproof.org.uk. He can contact us on hello@livingproof.org.uk if he might be interested - he can offer as much or as little detail as he'd be happy with. Very best of luck to him going forward!
Thank you for writing this here, it means a lot (and I hope will give some a nudge to try the same techniques). I'm so pleased for your son.
Total rubbish
Ever consider that you did not have chronic pain, you were just suffering from stress? It took in excess of 10 years to have a diagnosis of chronic pain and that was only given by a pain specialist and only after attending stress and lifestyle management courses and 6 months full time group therapy. I have lived with this condition for over 30 years, following a spinal injury, and well this podcast is an insult to those living with this condor, but a rather sad reflection of a failing NHS. It's only popular because the NHS is currently sponsoring a rather poor attempt at pain, sorry stress management course and brain washing of already traumatized patients who actually have underlying conditions., and in an attempt to reduce their prescription bill. Let's not talk about the GP pushing this or her true motivation for this destructive work. The NHS is a disgrace at the moment, as it's assets are syphoned off for corporate interests. This podcast is featured alongside a sketch from the American Office joking at Pavlov's experiments on dogs, and presented as researched human behaviour.
Is there a place where the mind body program you practiced is referenced?
Hi there, yes Fiona used the Curable app. You can find out more about it on our website: www.livingproof.org.uk/list-of-resources
I have been doing this mind/body approach for about six months. After eight brutal years of chronic pain I am finally getting relief. This s stuff really works and although I am still a work in progress I am about 40% better and it’s wonderful!
Hi - really pleased to hear you are making progress. It really does work! :)
Over 30 years with this condition and the first treatment given was therapy and stress lifestyle management. I'm glad to hear that your appear to have addressed the psychological overlay, but true chronic pain is constant, as in every day, the only thing that changes is the level of pain, which does however need the use of various pain management techniques.
I'm in it. And there's a way out. Working on the mind/body approach and pain reprocessing therapy. Hope.
Hi - you are on the right track now that you have found this approach. There is indeed hope. Good luck and keep going.
❤❤❤❤❤❤ I am happy for her. I look forward to recovering my health too. I want to feel good in my body again and go on adventures like she is doing too.
Thank you, this is an inspiring story of recovery! You describe the science behind your recovery so simply and well, and the suffering you and your family went through was heartbreaking. But isn't it wonderful so many of us are recovering - even those of us disabled by MEFM for decades! I DO understand - I was disabled by ME/CFS and Fibromyalgia myself for 20 years, mostly housebound and bedridden. Then thankfully I got OFF benzos and elavil, both prescribed for the pain and insomnia of MEFM. To my astonishment, 6 months after I tapered off those and quit 3 other equally useless prescriptions, I began to recovery my health. By facing the griefs and trauma that let to my becoming dependent, I released emotions trapped in the body and healed even further. Eventually, by listening to mind and body and learning new ways to cope like creativity, community, counseling, Chi Gong, and communication skills - I healed by 80%, mostly on my own. Through stories such as these, I learned about neuroplasticity and began doing brain rewiring and somatic tracking work with videos found on TH-cam, and by reading books like Alan Gordon's The Way Out. I discovered I could recover completely - even after over half a century! It's a slow process when you've believed you were disabled by an illness for this long, but I've seen huge results. Long Covid symptoms like being unable to sing without coughing are gone and I'm singing like a canary. I dance, perform, exercise and socialize. Not bad for a senior once bedridden for 2 decades! I still have symptoms to deal with and am learning to create safety so my crocodile brain doesn't see danger in normal stresses, and turn on the Fight or Flight state. It's taking a while, as I've been hypervigilant since birth, when I was born early as a result of a major car accident and was later bullied. Thankfully I learned to fight back, which kept me from depression - but the trauma resides in the body. Now I'm learning ways to release old trauma with Peter Levine techniques from books and videos, and somatic work. What a revelation all this is! I'm thrilled to hear you are completely well now, and look forward to joining you in that wondrous place in the future. Thank you for the video, Fiona and Living Proof - you ARE living proof we can ALL recover if we empower ourselves and take action.
This was very empowering, thank you so much Fiona and the Living Proof team.💕 I am struggling now and am excited to look into the Curable app and find other motivational stories like these.
Thank you for your comments - we are delighted you found the film empowering. Lots of resources and recovery stories linked on our website (including a 6-week free trial to the Curable app): www.livingproof.org.uk/list-of-resources. We wish you all the best with your recovery, you can do this.
What an inspirational young lady you are. Your story will hopefully help others to look outside of medication and try and find what is right for them. You have given everyone a great start to helping them find their way through the fog.
Not here for it
What is the programme though? What are the steps? The work involved is so abstract in a way. If its got clear and concrete steps, even if the process for an individual is as varied as eaxh mind is... It may seem possible if you still hold hope, even if its only a glimmer, as i do. I have been living with ME CFS for at least 22 years... Starting the decent sometime shortly after being 10 years of age... I have known for a while that i can probably find a way out through a mindbody approach. Its hard to do without concrete attainable clear steps when your existence is complete and utter exhaustion, even if you believe its possible, even if you have hope. So... HOW?
Hi Rachelle, sorry to hear you have been unwell for so long. The specific programme that Fiona followed was the Curable app. It is a fantastic app with a clear programme to follow, but it does have a cost attached. There are also many other resources available, many of them at a lower cost. More info on our website: www.livingproof.org.uk/list-of-resources. Very best of luck - thousands are now recovering with this science.
Hello! What program did Fiona do to get better? Please share. Thank you so much!
Hi there - the specific programme that Fiona followed was the Curable app. It's a great app but there are also lots of other resources available, many at a lower cost. More info here: www.livingproof.org.uk/list-of-resources
This is so wonderful to read & so promising! 😢❤ Thank you for sharing!
I cried watching this, god bless you Fiona x
Thank you ❤
Hi Charli Thank you so much for sharing your story! My son is dealing with TMS (widespread pain and tension) and he has a question about something you said in the video. Can we contact you directly?
Hi there, we are sorry to hear your son is struggling with such symptoms. Please feel free to contact us at Living Proof with any queries: www.livingproof.org.uk/contact
Bless you - good news.
Rich, first world, privileged pain is not the same as persistent pain
Hi Johnathan, thank you for your comment. We do hear you. Our organisation Living Proof has been established as a social enterprise in order to try and bring this science to everyone, regardless of their background or financial circumstances. Our colleagues at Flippin' Pain are also doing great work in bringing this science to people of all backgrounds: www.flippinpain.co.uk/. Anyone can see improvement from this approach - but it is an uphill struggle getting the word out to all communities when there is not yet widespread buy-in from the NHS. It is coming though and over time, more GPs and other healthcare practitioners will start to learn about this and be able to support their patients towards improvement or recovery. We are doing what we can - all on a voluntary basis, so please bear with us.
I'm sorry but one person's story of discovering stress management is not science. Just a poor reflection of a failing NHS and inflated Ego's. And Johnathan, I am inclined to agree with you.
@@angelm6497 The Effects of Racial/Ethnic Minority Status on Sleep, Mood Disturbance, and Depression in People with Fibromyalgia Fibromyalgia syndrome (FMS) is a musculoskeletal disorder that is characterized by persistent and widespread pain.1-5 It is most commonly diagnosed among middle-aged White women.
Watching again!!! This has been very helpful for me . I perform a little better at work. I go for walks in the Forest. SHINRIN YOKU ❤❤❤❤❤❤
This is incredible! Thank you for this beautifully inspiring and informative video ❤
Thank you so much. I love what you're doing with your channel so it's great to see your name pop up here (Fiona)
The problem is that this kind of stuff isn’t replicated in any observable or clinical setting. All of the evidence for this kind of stuff was reviewed by the National Institute for Clinical Excellence and was found to be of very low quality. The problem we have as group of patients is that people who are sadly mentally ill do find their way into our ranks. Because we don’t currently have an easily reproductive biomarker we are the disease that these people end up mistakenly thinking they have. Being cured of our often lifelong and real issues by an app is just a good way of discovering that you never did have ME/CFS in the first place. I’m glad that Fiona is feeling better but assuming that her story means we are all similarly mentally ill just doesn’t make sense. Like I say I’m glad she is better but suggesting that she has found the answer to a disease that has confounded medicine is just not a productive thing to do.
I think the really sad thing is the ME community doesn't realise how comments like these make them look. When I was ill I never wanted people saying things like this in my name. It's a terrible comment to write and actually inaccurate in that the NICE guidelines haven't considered what helped me actually recover
Being gaslighted by someone who mistakenly thought they had ME for 14 years is the cherry on top for my experience with ME. I personally don’t believe that childhood trauma can give you a post infection associated disease. You’re the one I feel sorry for. It must be difficult to make sense of why and what led you to this state for so many years. Mistakenly believing that you had ME and then buying into this nonsense is a kind of extreme form of self punishment/revenge on your former self. I can tell you that having REAL ME is infinitely worse than you can imagine.
And btw insisted that Brain Training or CBT have not been reviewed by NICE is utterly false but I’m not surprised that you would say something like that. Just because it is packaged differently doesn’t make the principles any different. Curable £100 per annum 500k subscribers = £50,000000 per annum!
You have no idea how badly you're coming across. This is only harming the community 😔
Ah I realised you are the man who spent over 24hrs being aggressive on my Twitter. Funny to claim to have M.E then have the energy to relentlessly attack someone over the course of a couple of days. You are a bully and that is all there is to this.
I did the curable app and ANS rewire and Im still sick. I got covid 3.5 years ago and have been totally housebound this whole time. Ive read enough neurorplasticity stuff and done the whole mindset thing which only caused me to overexert myself and have terrible crashes. Seems to me that there is a group of people who perhaps only have the dysregulated ANS part and maybe that can be alleviated by positive thinking, meditation and calming thoughts, stopping negative thoughts, elevating emotions etc. But for those of us with elevated inflammatory markers and more complex pathophysiology going on this approach just does not work. Hopefully in the future there will be better phenotyping to figure out all these different subsets as this illness clearly exists on a giant spectrum.
Hi - sorry to hear you are so sick. For information, a dysregulated ANS can cause all of the biological/physical issues you mention; those are examples of how the dysregulation manifests. We wish you all the best for finding a resolution soon 🙏🏻
@@livingproof-storiesofhope6314 Maybe? but also a lot of other things could such as viral reactivation/persistence, endothelial issues, mitochondrial problems, microclots, autoimmunity etc, there is still lots of research going on finding various pathologies. That is why it is so important we get the phenotyping right with biomarkers so we can get individualised treatment. I think for some of us our underlying pathology is more complex so simply calming down the nervous system to feel safe is just not sufficient. If someone can recover from these dreadful symptoms using these simple practises then good for them, certainly no harm in trying!
@@livingproof-storiesofhope6314 @wildgardens post has valid points. If Fiona (in the video) tried this approach five or ten years earlier, it probably would not have helped much, as her body may not have recovered enough from the prolonged resting period. Also, her caring and supportive parents, have no doubt made a big difference (in helping her recover).
Also, you can see from / in the photos at the beginning of the video, the terrible state that Fiona was in years earlier. Years of rest, has allowed this mind-body approach to help. It was Fiona’s time to recover considerably.
I'm also someone having done lots including ANS rewire, Curable, reading many books, podcasts etc.... 20 years of illness!! ANS rewire, started to give me hope 5 years ago with it's mind body techniques. I still believe it will work, but the healing environment needs to be set and mine has never been good enough to recover. But it will. I've seem glimbses. I continue to adjust new bits and pieces. There is so much involved! Changing your personality traits and rewiring all those fearful thoughts, behaviours and attention to symptoms...and true rest, not lying down and ruminating... It is really a huge job for most with CFS or Fibromyalgia. But it has worked for many and why not for me. And you?
I have healed too after 10 years of suffering. It’s absolutely possible. I healed with natural therapies, meditation and brain retraining. My testimonial is on my channel. Thank you for sharing so happy for you ❤
Such joy!
CFS is not a thought and it's absolutely real. I'm glad emotional work was enough for you, but it's not enough for majority of people suffering with this condition. My CRP is usually 10 to 20, and I can't make it less with my willpower - my body is making an inflammatory reaction in itself. I have a cold intolerance, exercise intolerance, sensory overload can make me crash, and I can't meditate myself through it - it's something my body is choosing to do, when I'm the least prepared for it. I do write down symptoms etc. to not feel so helpless. But it is a physical condition, not a purely mental one, often caused by some virus or a major strain to body like that. I'm feeling very sad today and I was looking for a real recovery story to cheer myself up, instead I have to watch this mumbo jumbo narrated by a person who may not even have the same illness as me, who involuntarily gaslights all the people who can't get better with just some emotional work.
Hi - sorry to hear you are struggling with CFS; it is indeed a miserable condition. Best of luck with it.
Hi, I just saw this comment and wanted to respond. I hope you know we think M.E is 100% real and absolutely it is physical. I also had consistently high inflammation markers (across years), crashed from things like sensory overstimulation and temperature extremes etc. My condition also started after a series of horrible viruses. I was ill enough that I was unable to have children. Did meditation cure me? Absolutely not. It is your choice but I would hope you'd look more closely at the techniques that helped me recover, even if just to rule them out. I started using them also thinking they were rubbish but they gave me back my life. It is absolutely up to you though, it has to be your choice. Anything about John Sarno's theories is worth looking into. Wishing you well as it's clear things are tough for you right now. I know both Penny and I are always happy to answer questions and there are so many free resources out there too. X
You are the epitome of “if there is a will, there is a way.” You’re right, how could all of this pain be individual and not connected? I love that you know yourself enough to dig in and dive deeper. Your desire to understand the mind body connection in your body is only going to catapult your progress forward. Your story is helping people charli. I can’t wait to hear testimonials from the many people you have helped open there eyes! This is amazing.
Actually no, did you ever consider that she never had chronic pain at all, she was just suffering from stress. Rather misleading actually, but I agree a very sad representation of a failing NHS, who misdiagnose conditions all the time she should be thankful they didn't kill.het!
I refer back to Fiona. It's very helpful for me. I'm working part time, without restrictions. THANK YOU! I also can walk up Hills, now. 😊😊❤
How amazing, well done
What is the name of the Mind Body Programme used?
In my case I used Curable
@@fionasstory6126 Thank you 🙂
@Fiona, did you continue pacing while trying the app? Thanks.
Sorry not to see this until now. I did! I very much felt that the change had to happen from the outside in. I couldn't risk pushing myself and then crashing.
I have ME too, just dwl the app. But I'm very hopeful about this. 🤞 Thanks for the inspirational video. 😊
Glad you enjoyed the film Anne. Lots of other resources on our website too: www.livingproof.org.uk/list-of-resources
@@livingproof-storiesofhope6314It is such an inspiration. I want to try what Fiona did. Where can I find the method? Where can I find the app to download? I'm hoping it will help me.
To all of you suffering from this illness, you are not alone, you are strong, don't give up hope I pray for all of you 🙏 ❤️
7 years in and I would love to have remission. I ve tried 4 different mind body programs over the years too. 😕
Which ones have you tried? (sorry for only seeing this comment now)
@@fionasstory6126 DNRS, CFS Unravelled, Gupta and another one that no longer exists. 😊
That hill was her mountain. I’m still struggling after 22 years
Thank you very much, I am new with this approach and hope it will help me with the migraines for o er 40 years 🙏🙏
Hi Dorien, we are happy you have enjoyed our films. Yes, this approach can help you - you have already achieved the first step just in being open to it. We are a volunteer-led non-profit aiming to help people like you, have a look at our site for more info and resources: livingproof.org.uk. Good luck, you are on the right path now 🙏🏻
@@livingproof-storiesofhope6314 thank youuuuuuu very much ❤️🙏