วีดีโอ

Wow this is very much the kind of story that we love to hear! We are so happy that your son has recovered his life, this will help inspire many others on similar paths. I'm not sure how old your son is, but if he might be willing to share his story further, to help others also towards recovery, we are currently inviting UK-based 'recoverees' to feature on our forthcoming 'Recovery Wall' on our website: www.livingproof.org.uk. He can contact us on hello@livingproof.org.uk if he might be interested - he can offer as much or as little detail as he'd be happy with. Very best of luck to him going forward!

Thank you for writing this here, it means a lot (and I hope will give some a nudge to try the same techniques). I'm so pleased for your son.

Hi there, yes Fiona used the Curable app. You can find out more about it on our website: www.livingproof.org.uk/list-of-resources

Hi - really pleased to hear you are making progress. It really does work! :)

Over 30 years with this condition and the first treatment given was therapy and stress lifestyle management. I'm glad to hear that your appear to have addressed the psychological overlay, but true chronic pain is constant, as in every day, the only thing that changes is the level of pain, which does however need the use of various pain management techniques.

Hi - you are on the right track now that you have found this approach. There is indeed hope. Good luck and keep going.

Thank you for your comments - we are delighted you found the film empowering. Lots of resources and recovery stories linked on our website (including a 6-week free trial to the Curable app): www.livingproof.org.uk/list-of-resources. We wish you all the best with your recovery, you can do this.

Hi Rachelle, sorry to hear you have been unwell for so long. The specific programme that Fiona followed was the Curable app. It is a fantastic app with a clear programme to follow, but it does have a cost attached. There are also many other resources available, many of them at a lower cost. More info on our website: www.livingproof.org.uk/list-of-resources. Very best of luck - thousands are now recovering with this science.

Hi there - the specific programme that Fiona followed was the Curable app. It's a great app but there are also lots of other resources available, many at a lower cost. More info here: www.livingproof.org.uk/list-of-resources

Thank you ❤

Hi there, we are sorry to hear your son is struggling with such symptoms. Please feel free to contact us at Living Proof with any queries: www.livingproof.org.uk/contact

Hi Johnathan, thank you for your comment. We do hear you. Our organisation Living Proof has been established as a social enterprise in order to try and bring this science to everyone, regardless of their background or financial circumstances. Our colleagues at Flippin' Pain are also doing great work in bringing this science to people of all backgrounds: www.flippinpain.co.uk/. Anyone can see improvement from this approach - but it is an uphill struggle getting the word out to all communities when there is not yet widespread buy-in from the NHS. It is coming though and over time, more GPs and other healthcare practitioners will start to learn about this and be able to support their patients towards improvement or recovery. We are doing what we can - all on a voluntary basis, so please bear with us.

I'm sorry but one person's story of discovering stress management is not science. Just a poor reflection of a failing NHS and inflated Ego's. And Johnathan, I am inclined to agree with you.

@@angelm6497 The Effects of Racial/Ethnic Minority Status on Sleep, Mood Disturbance, and Depression in People with Fibromyalgia Fibromyalgia syndrome (FMS) is a musculoskeletal disorder that is characterized by persistent and widespread pain.1-5 It is most commonly diagnosed among middle-aged White women.

Thank you so much. I love what you're doing with your channel so it's great to see your name pop up here (Fiona)

I think the really sad thing is the ME community doesn't realise how comments like these make them look. When I was ill I never wanted people saying things like this in my name. It's a terrible comment to write and actually inaccurate in that the NICE guidelines haven't considered what helped me actually recover

Being gaslighted by someone who mistakenly thought they had ME for 14 years is the cherry on top for my experience with ME. I personally don’t believe that childhood trauma can give you a post infection associated disease. You’re the one I feel sorry for. It must be difficult to make sense of why and what led you to this state for so many years. Mistakenly believing that you had ME and then buying into this nonsense is a kind of extreme form of self punishment/revenge on your former self. I can tell you that having REAL ME is infinitely worse than you can imagine.

And btw insisted that Brain Training or CBT have not been reviewed by NICE is utterly false but I’m not surprised that you would say something like that. Just because it is packaged differently doesn’t make the principles any different. Curable £100 per annum 500k subscribers = £50,000000 per annum!

You have no idea how badly you're coming across. This is only harming the community 😔

Ah I realised you are the man who spent over 24hrs being aggressive on my Twitter. Funny to claim to have M.E then have the energy to relentlessly attack someone over the course of a couple of days. You are a bully and that is all there is to this.

Hi - sorry to hear you are so sick. For information, a dysregulated ANS can cause all of the biological/physical issues you mention; those are examples of how the dysregulation manifests. We wish you all the best for finding a resolution soon 🙏🏻

@@livingproof-storiesofhope6314 Maybe? but also a lot of other things could such as viral reactivation/persistence, endothelial issues, mitochondrial problems, microclots, autoimmunity etc, there is still lots of research going on finding various pathologies. That is why it is so important we get the phenotyping right with biomarkers so we can get individualised treatment. I think for some of us our underlying pathology is more complex so simply calming down the nervous system to feel safe is just not sufficient. If someone can recover from these dreadful symptoms using these simple practises then good for them, certainly no harm in trying!

@@livingproof-storiesofhope6314 @wildgardens post has valid points. If Fiona (in the video) tried this approach five or ten years earlier, it probably would not have helped much, as her body may not have recovered enough from the prolonged resting period. Also, her caring and supportive parents, have no doubt made a big difference (in helping her recover).

Also, you can see from / in the photos at the beginning of the video, the terrible state that Fiona was in years earlier. Years of rest, has allowed this mind-body approach to help. It was Fiona’s time to recover considerably.

I'm also someone having done lots including ANS rewire, Curable, reading many books, podcasts etc.... 20 years of illness!! ANS rewire, started to give me hope 5 years ago with it's mind body techniques. I still believe it will work, but the healing environment needs to be set and mine has never been good enough to recover. But it will. I've seem glimbses. I continue to adjust new bits and pieces. There is so much involved! Changing your personality traits and rewiring all those fearful thoughts, behaviours and attention to symptoms...and true rest, not lying down and ruminating... It is really a huge job for most with CFS or Fibromyalgia. But it has worked for many and why not for me. And you?

Hi - sorry to hear you are struggling with CFS; it is indeed a miserable condition. Best of luck with it.

Hi, I just saw this comment and wanted to respond. I hope you know we think M.E is 100% real and absolutely it is physical. I also had consistently high inflammation markers (across years), crashed from things like sensory overstimulation and temperature extremes etc. My condition also started after a series of horrible viruses. I was ill enough that I was unable to have children. Did meditation cure me? Absolutely not. It is your choice but I would hope you'd look more closely at the techniques that helped me recover, even if just to rule them out. I started using them also thinking they were rubbish but they gave me back my life. It is absolutely up to you though, it has to be your choice. Anything about John Sarno's theories is worth looking into. Wishing you well as it's clear things are tough for you right now. I know both Penny and I are always happy to answer questions and there are so many free resources out there too. X

Actually no, did you ever consider that she never had chronic pain at all, she was just suffering from stress. Rather misleading actually, but I agree a very sad representation of a failing NHS, who misdiagnose conditions all the time she should be thankful they didn't kill.het!

How amazing, well done

In my case I used Curable

@@fionasstory6126 Thank you 🙂

Sorry not to see this until now. I did! I very much felt that the change had to happen from the outside in. I couldn't risk pushing myself and then crashing.

Glad you enjoyed the film Anne. Lots of other resources on our website too: www.livingproof.org.uk/list-of-resources

​@@livingproof-storiesofhope6314It is such an inspiration. I want to try what Fiona did. Where can I find the method? Where can I find the app to download? I'm hoping it will help me.

Which ones have you tried? (sorry for only seeing this comment now)

@@fionasstory6126 DNRS, CFS Unravelled, Gupta and another one that no longer exists. 😊

Hi Dorien, we are happy you have enjoyed our films. Yes, this approach can help you - you have already achieved the first step just in being open to it. We are a volunteer-led non-profit aiming to help people like you, have a look at our site for more info and resources: livingproof.org.uk. Good luck, you are on the right path now 🙏🏻

@@livingproof-storiesofhope6314 thank youuuuuuu very much ❤️🙏

Living Proof - Stories of Hope 5 days ago Thanks Cheryl and sorry to hear you are still struggling with ME symptoms. This approach is first and foremost about understanding the theory and the science, then applying the tools within that new context and mindset. The tools alone without the mindset shift will only take you so far. This science won't necessarily help everyone but many are recovering. It sounds like your chiropractor is on the right track which is great news. You may find some of the resources on our website helpful for understanding more about this theory: www.livingproof.org.uk/list-of-resources

Cheryl, my name is Cayla and I would love to correspond with you if possible. I live in Virginia but may be willing to travel to see practicioners like the ones you described. I've never heard of a couple of the therapies that you mentioned and am interested to learn more.

Hi there. Sorry to hear you are struggling with symptoms. This approach is first and foremost about understanding the theory and the science, then applying the tools within that new context and mindset. The tools alone without the mindset shift will only take you so far. You may find some of the resources listed on our website helpful for understanding more about the theory, if of interest: www.livingproof.org.uk/list-of-resources

@@livingproof-storiesofhope6314 thanks but I have a great mindset :) I was studying volunteering and travelling and living overseas. It isn't my mindset, it is physical exhaustion and autoimmune related with the cells literally attacking themselves. Do tell me how you think my mindset is stopping me from walking when I want to be exercising having children and meeting the man of my dreams?? I've lost 10 years to this illness. If it was mindset that is the issue many more people would recover.

@@lightofall You are right. It’s not the mindset for many of us. I am calm, happy for the majority of the time. Still declining slowly over the years. I do some nervous system exercises to activate the parasympathetic nerve. Because I believe the illness itself is a stressor for the body, but we cannot remove it unfortunately. But the exercises slightly reduce stress and give me better / deeper sleep. But that doesn’t have resulted in more energy unfortunately.

Thanks Lizzie and sorry to hear you are still struggling with ME symptoms. This approach is first and foremost about understanding the theory and the science, then applying the tools within that new context and mindset. The tools alone without the mindset shift will only take you so far. This science won't necessarily help everyone but many are recovering. Age isn't relevant :)

I would echo this. What helped me recover looks simple on the outside and it is but you need an understanding of the science along with the tools. It sounds like you're doing so well but it's really worth diving into Sarno's theories fully. They might well help you further

Without doubt, you are right, Lizzie, about your traumatic childhood causing your symptoms, as your nervous system goes into Fight or Flight, which floods you with stress chemicals and hormones helpful when you're running from a bear - but harmful when it becomes long term. I too had a traumatic birth and was bullied as a child. A trauma counselor told me that trauma gets trapped in the body. Using Peter Levine's pioneering techniques for trauma release has helped me hugely, and then discovering somatic and neuroplastic work has helped me recover enormously, even after suffering with it for 54 years. It can take longer for those of us who had it for decades, particularly if you have a lot of major stresses in your life. But I'm learning new ways to manage them, and my pain has reduced MASSIVELY, and my energy increased. As someone who was mostly housebound and bedridden for years, I'm thrilled to be dancing, writing, performing and socializing again. And I AM in my late 60s - so you don't have to be young to recovery from ME/CFS -- even if you've had it for over half a century, as I have. I wish you the best of luck, and DO understand - I thought for years I would never recovery any further myself. But I kept at it, kept learning, changing, and growing - and it's finally paying off. Thanks, Fiona - what a wonderful story and SO inspiring on days when I feel like the fibro is kicking my butt! But I keep creating safety and doing somatic tracking, telling my overactive crocodile brain I call "Croco Pops" - 'We're fine and perfectly safe. This is all harmless, and I WILL heal." And it's working. I hope one day to be on top of that mountain with you, fully recovered! But I'm still thrilled I've recovered by 80%, and got my life back.

@@fionasstory6126 Dr Howard Schubiner's videos and book and Alan Gordon's book The Way Out are also helpful. For me, they had new research that added onto Dr. Sarno's work I found particularly helpful for ME/CFS and Fibro pain.

@@thedancingdivaofdaviestree2320 thank you so much for telling how you have managed your ME/CFS and how your life has chhanged for the better. It is so inspiring to hear of an older person whose health has improved. It gives me hope. 😊

Hi Catherine, thanks for your comments, we're delighted you are finding the film helpful. And yes we love the music too :) Good luck as you continue on your recovery journey.

Thank you! The mind-body approach is awesome.

did you make a full recovery ?

It is!! Well spotted

Yes that’s right, same Fiona 👍🏻

Hi Sarah, thanks for your comment. Hope this can help you on your road to recovery ❤️‍🩹🙏🏻

Hi - the specific programme Fiona used was the Curable app. But there are lots of different options and resources listed on our website: www.livingproof.org.uk/list-of-resources, you can see what might suit you best.

Hi Jessica, thanks for your message. Please have a look at our website www.livingproof.org.uk for more information and resources on how you can try this approach yourself. Good luck, you can do this :)

Hi Aneesa, thanks for messaging. Feel free to have a look at our website www.livingproof.org.uk in the first instance, there is lots of information and resources there on how you can try this approach yourself. Best of luck, now you know it is possible.

I dramatically improved my symptoms (but eventually hit a ceiling) with an essentially Paleo diet, tailored to my needs over a long period of experimentation. Overnight I quit all potential problem foods, including sugar, casein, gluten, and processed food. Within a couple weeks my brain fog lifted dramatically, my daily crashes got less severe, my headaches and sore throats lessened in frequency and severity, and my energy picked up a little. After about six weeks, the improvements stopped coming, but I was happy enough with the results that I've never in 9 years gone back to eating the way I used to. I eventually figured out that I am intolerant to nightshades and high-FODMAP foods. (I was able to reintroduce FODMAPs after successfully eliminating a harmful bacterial overgrowth in my guts.) Quitting sugar was very difficult for the first few weeks, but 10000% worth it and eventually the cravings went away completely. I am very happy eating the way I do. www.drmyhill.co.uk/wiki/Category:Your_very_good_health!