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I hope you make more videos and tell us how youre doing and life with microtia ❤

Very nice.

Thanks for sharing your story

Don't you love being asked to put your mask on the bus but not wanting the driver to see you with your head band mouthpeice

Hi

My name's Rebecca. I have a beautiful little boy with microtia. Had a pretty rough day yesterday at the ENT. He made me feel bad for not wanting to give my child a cosmetic ear so that he looks more "normal" despite not having an ear canal. It made it seem since I don't want that that I should consider getting a CT scan to see if it's inner Bones would allow them to make a canal. Or even putting a screw into his bone so he doesn't have to wear a band for his hearing aid. It all just seems so crazy to me when he is so beautiful there's no reason to do with crazy procedure on his skull if it's not going to improve his hearing. Because of our talk yesterday I've taken to TH-cam though looking for information on what's right for him.

Hello :) I'm a 17 year old girl from India and I have microtia too. (It is unilateral tho) I could relate so hard when you said that you hated it and wanted to be be "normal". I always got teased because of it and absolutely hated (and still hate, sometimes) being born this way. I never found anyone else with my condition. Made me feel alone. So glad to find people like me here! Also, can microtia be passed on to your children? I had that question. Lots of love to you from India 🇮🇳❤️

Way to go, Camilla! Proud of you. 💛💙👍🏾

Hi, I want to know how do you hear.are u using any machine for hearing or u can hear normally and ur its just that your ear is small. M asking as i have my baby having similar ears.pls reply

Hello camilla.. Can I message you in private?

Thanks for sharing! Awareness is needed

Thank you for sharing your personal story. You are inspiring and are going to help a lot of people move through their personal challenges by learning from you by what you shared on your own journey. THANK YOU!

My daughter is mixed with bilateral microtia and atresia! I’m so glad I found your page and am looking forward to watching your videos 🥰

How can I contact you ? I had a microtia I have done a surgery recently !

Thank you for speaking out. It was beautiful. I have a question though, did you ever use a BAHA going to school? Or anything to help with hearing?

Great video camilla..I have microtia also #3 on my right ear...I'm 39yrs old I'm from philippines but move here in Middletown ohio..just like everyone I'm experience being bullied too or feel Uneasy when people staring at me growing up that why I kept a long hair to hide it..but now as getting older I noticed my hair is thinning out so my fear is starting to surface again because one day I can't hide my ear anymore lol..I'm thinking about getting a prosthetics ear I was wondering if you have any knowledge about prosthetics ear that you can share me..thank you so much

Hello, I am Jina and 19 years old. I also have microtia and after watching your video, I almost cried! I really cant tie my hair back and still scared of people eyes. My left ear and wounds near my neck(Because of microtia surgeries) can be my weakness to someone and sometimes people use it when they wanna tease, ignore, be sarcastic, drift apart. I have still remembered that a tall guy shouted 'the ear handicapped' to me. And his friends and him were laughing looking at me. But... we know, having microtia cant be fault of no one. My parents have said 'this is a special gift from God' Unfortunately, I fucking hated the word. I couldn't believe that is my gift(I wanted another gift if that is real gift for me) Anyway... All I wann say to you is that I am so proud and love you. Thank you for making the video and I will tie my hair and not hide mine starting from now! :)

This is a great presentation made by Camilla!

please keep making videos like these, these really help me. im 14 and i have microtia on my left ear grade 2 and i get constant looks at my ear and people always ask me what happened. i feel so self conscious and i don't want anybody to see my left ear. im completely deaf in my left ear and its hard to hear and i get picked on at school. these videos make me feel better.

Watching this has made me understand more.

My baby boy has bilateral mictotia and he is 7 weeks old. I am finding it hard to deal with because he also has a heart condition.

I have microtia too , we are in the same position i'm 19 years old i have long hair because my ear not normal. It is not easy to live with this ear. yes my ear microtia but i'm just enjoying my life .i suggest you try it . thank you !

I have microtia too and I would feel alone and sad because I couldn't have my hair up because I would feel embarrassed.

thank you ! for sharing I too have microtia

do you wear a baha

I have never worn my hair up in public and I'm 32 now. I'm afraid of the looks and hurtful comments that I got like in grade school. When people comment or the usual "what happened to your ears????" How do you respond? I don't want to call it a deformity and also there really is no reason it happens. I would like to have more of a general no big deal reply to avoid more questions. :( If anyone else has microtia and is an adult still struggling with hiding it please message me. I have never ever met anyone else with it. I just look at all the normal eared people in the world wishing I was too. :( To just throw my hair up embarrasses me. I'll wear it up cleaning house but the moment people come over or I step out I let it down. :(

that really inspired me im a 16 years old tennager with microtia grade III and i really needed this cause i had a really tough time but im gonna do everthing i can to overcome this and become stronger!

Love the video. My son who will be 6 years old on April 1st was born with bilateral Microtia had his 1st reconstruction 1 stage surgery done last August. Thanks to Dr. Griffiths in Boise ID. His work is amazing.

Hey! I loved your video, I too have microtia, I'm a 25 year old woman that has dealt with bullying as well. At the age of 13, my parents approved of me having reconstructive surgery to make my ears look more like a normal ear. But I still have no hole in my head tho, and my hearing has not improved at all. I love watching videos about people who also have microtia because like you said it shows me that I'm not alone in dealing with the daily hassles of being able to hear people and the looks I get when I have my hair up. I love you, and you're SO beautiful. If you live in California close to San Diego or even farther away, if you ever want to meet up I think we would be really good friends. All the best, Julie

our son is 3 days old and has microtia on both sides. Thanks for this information. I choose to believe that God sent him like this to make us stronger and a better world. my son will be great!

Congratulations! You are an inspiration to my almost nine year old BMA daughter who watches your videos very intently!

hi thanks for your words :) we are new parent our son only three months and has microtia on both sides. we hardly notice anymore :) but we will take advice from your words :)

Oops...one more thing... Just food for thought...maybe down the road would you consider putting together some sort of empowering overview that could be played for our children's classmates in school? My daughter is not ready, or yet willing to do this herself for her grade three class. In primary the teacher showed the "Bobs Story" put out by Cochlear. This did pretty good for four and five year olds, but I doubt it would be a hit with eight year olds:)

Before I the procedure I wore a Bone Conductor Hearing Aid on a metal band (not cool or stylish) On that aid I had a processor only on my right side for 30 years. If your child feels ol with just one then I would leave it alone. However there is a HUGE difference being implanted on both sides.

Sorry....I am bombarding you. I am wondering if you have any experience with using FM and what are/were your feelings about using it?

I am curious if you just got your implants in 2014, did you have sound processors before this and how did you wear them? Could you describe your experience with how you heard differently with processor on abutments versus how you previously wore the processors. My daughter currently only is implanted on one side and uses only one processor. She thinks she hears just fine and does not want the other side aided. What is your experience with one versus two processors? Thank-you:)

lol That's ok. You can ask away. I can be found on fb and my email is microtialife@gmail.com I plan to do more videos for parents. Topic surrounded by common questions I get asked :) Don't forget to subscribe :)

Hi. As a parent, it is great to hear from an adult with Microtia! I feel like I just want to "pick your brain" about everything, but I will contain myself! Haha I think I will have my nine year old daughter (bilateral microtia) listen to your videos also. She, along with myself, I'm sure can learn a lot from you. Again, thank-you!

Not a problem at all! Please subscribe to get notifications of new videos that I upload.

Thank-you! This is great!!

Nicely done Camilla. Thanks. Melissa