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This is so good to hear as it literally sums up a huge amount of my struggles. The RSD and emotional disregulation has massively impacted me mainly in relationships with friendships and I often end up alone. It's hard to help myself with this and I wojld love a coach. Is there anywhere one can find and access one? I am a typical hit perimenopause and just diagnosed ADHDer and mid 40s and never felt so out of control. I would love more info around peri and hormones etc.

1.5 speed

There is also something uniquely cruel about having a “physical” condition that makes it absolutely essential to practice rigorous self-care to avoid injury and illness (hypermobility) paired with a “mental” condition that makes it extremely difficult to establish and stick to healthy habits (ADHD).

Love these deep dives - please can we have more - eating disorders would be great!

Great discussion. Really helpful

Same dr who diagnosed me ASD and ADHD in Sydney . I loved this guy and I hope he’s doing well

Interesting conversation and insights

Thank you so much ❤

Tasmania is terrible for getting ADHD support. My tassie GP told me it was useless here. Really hard to get ADHD meds here too. The Senate report still awaits a federal response too.

Thank you🙏🙏thank you for what you are doing 🙏 how can we get access to it ?

I disagree things haven’t got better in schools since the 80’s. My son was dx in 1997 and teachers were utterly ignorant. They are better now. A lot More awareness

I actually like to use an Outlook Calendar and I try to schedule my tasks in between meetings. It serves a dual purpose of minimising distractions from calls and impromptu messages, and receive a reminder to start engaging my brain to a specific task I can hyperfocus on. The time block in my calendar I assign it I treat like the time limit on a video game level as an element of gamification too.

A positive for me about people with ADHD is, they seem to be charming. I may be biased but there's something engaging, enthusiastic, kind..etc etc etc

Anj spoke of an app she had been using, what was it please?

I'm 48, I was diagnosed with Dyspraxia around 40-41 and ADHD at 45. This summer I went to the Dr about pain in muscles and joints, asking about hypermobility (i've had major issues since childhood). I scored 5/9 on Beignton(not hands); those system don't consider shoulders, hips and ankles - which are my biggest issues. I was just told it's very common, had lots of bloods done and not really given any help or solutions.

I am now diagnosed as hypermobile but only score 2. I'm not hypermobile all over. The arms, hands & feet. As I've got older it's gotten worse, especially during pregnancy & since then. Lots of pain & sciatica & random sprains. It never occurred to me as I was terrible at things like gymnastics & cannot do splits. Always felt stiff. Now also have fibromyalgia, so feeling stiff but actually being hypermobile is the theme.

Hi Oli. Great presentation - thank you for your openness and honesty throughout. As an older (61-year-old) woman with ADHD, dx'd in 2015, I would say that although the initial diagnosis was hugely helpful in being able to acknowledge my lifelong emotional and practical difficulties, stimulant meds proved futile (I trialled three different ones) and my struggles continue. I love your project title of 'Hiding or Thriving' - but nine years on I would say I am definitely still mostly hiding, and not thriving. I think ADHD is mostly an invisible disability for so many of us, because of lack of public understanding about how it presents in adulthood. So what IS visible is being scatty, being outspoken, careless, clumsy, unprepared, unprofessional (etc etc). In other words, I don't have a condition that excuses my mishaps (my differences), I'm simply a multiply flawed individual. I do mention my ADHD to others periodically - although I've found it's better received as a series of challenges (eg being outspoken because of my ADHD, struggling with time-keeping because of my ADHD, being clumsy because of my ADHD and so forth). But fundamentally I feel alone and isolated because I still cannot keep up with social norms. I often wish I had 'I've got ADHD!' tattooed on my forehead! Thanks for mentioning your podcast. I can get it here in the UK, I've discovered, so shall tune in and hopefully unearth more guidance on how to thrive rather than hide. Blessings to you and the team :)

I've experienced doctors blaming female hormones or ADHD for everything. It was actually an ovarian cyst, or side effects from ADHD meds, or actually brain fog, fatigue & chronic pain from a chronic illness. Being dismissed, misunderstood, medically gas lit, can also exacerbate that rage Samantha mentioned.

Assuming you're AuDHD, are you also 2e? The high IQ interferes with diagnosis, as there has to be a struggle in the income-generating/productivity capitalist value for the authorities to diagnose "a condition". Giftedness is also a type of neurodiversity with negative consequences similar to Autism & ADHD (also more prevalent in the gifted community than general population - along with autoimmune or chronic illnesses & even allergies & sensory issues). There's some common thread, maybe your research skills would find that key.

Is there a way of getting rid of Jacob Gilbert's spam comment about magic mushrooms from this slideshow. It's really disappointing, I was about to share your presentation with a school, but don't feel comfortable sharing it now due to the pop up. It also blocks the slides for 20 minutes :-(

SO interesting. A lot of the information shared I had some knowledge of, but found it particularly helpful to see how and where it fitted in with ADHD challanges. The high histamine intolerance was completely new to me, though (I have eczema, come from an asthma/eczema/hayfever family, and react badly to many/most fly bites and bee stings) - I definitely need to look more into that. Was going to make a donation regardless, but definitely making one now! :)

It's wonderful to hear that we have organisations like SquarePegs are out there. I've been with organisations that are incredibly accommodating and ones who had no interest in applying adjustments. I've found many places mean well but just don't have the knowledge of what to implement and how.

Really interesting and thought-provoking. I trialled three stimulant meds when I was dx'd back in 2015, and none of them had any effect on me (other than some less-than-pleasant side effects). Interestingly, I used to be a wild swimmer, and I always found it incredibly centring and calming, although I feel really tired afterwards - but I think that may be a result of the everyday jitteriness of ADHD being allowed to slide away). I also used to find meditation enormously difficult (including when using the meditation CD that came with 'The Mindfulness Prescription for Adult ADHD'!). But I've found Headspace's daily meditation actually do-able. True, my mind still wanders off in an instant, but I'm getting better at pulling it back in - and am much more aware now when my brain is going it ten-to-the-dozen with unhelpful thinking. Still, I shall give 'I can handle this' a go; that sounds a real winner. As to the long exhale breath to calm the parasympathetic nervous system? Yes, absolutely! TL;DR 1) cold-water swimming: great for calming/centring, gives me focus but leaves me mentally exhausted, too! 2) meditation: *is* possible for us ADHDers, but love the 'I can handle this' mantra 3) breathwork: absolutely recommend! (From a 61-year-old female combined type)

Incredibly insightful, thank you

My mother is Malaysian Chinese, so this is interesting to see how they handle ADHD in Singapore. I have an aunt that lives there. Thankfully I was able to get an appointment quickly, but it is 200 with insurance.

Jessica Eccles talk seems to be missing - will it be added?

1 hour 13mins Lucinda Miller

Does anyone happen to have a list of the timestamps for the different presenters?

Spectacular work GlobalADHD & Henry Shelford for presenting the whole 27 (!!!) hour conference, together with all of the speakers who donated their knowledge and time to create much needed change. Bravo and what an absolute pleasure to be able to attend. Thank you!

I have thoroughly enjoyed listening to the global conference. First 7 hours live & I’ve been chipping away at recordings throughout the weekend! I’ve learnt so much, wish I’d learnt lots of it 20 years ago but hey ho. Grateful for you Henry and everyone involved in pulling this together. You’ve done an absolutely fantastic job! I’m now a nearly 42 year old with 1000000% more self awareness ❤ priceless ❤ Thank you so much ☺️

20.09 Joseph Pack

Well done, everyone! For all donations, especially. And... Well done, especially to Henry Shelford. What a star. We can't afford to let up pressure on the people with the power and position to help us. I'm a pensioner now (with no private pensions owing to patchy career path - late diagnosis at age 63, a tad late). So I'm poor with no WFA! But I'm happy enough. I can write till I die. :D We all have a right to speak and campaign for change to the recent/current damaging and dangerous approach so far to anyone struggling to be assessed, diagnosed, manage ND - and ADHD in particular. It's a whole lot easier with the care and support of organisations like yours, and the people within them who actually care and SHOW they care. Thank you so much again. Will be in touch! Heather :-)

This is me! Thank you so much for this information ❤

long conversations bore I zone out or walk …..😳 Heston you keep it real ………👌

Working my way towards gaining a diagnosis. Could take up to a year, but I’m thankful my GP is fully behind me

Excellent work, both.

42:17 look at this guy to the right lol

I agree. I cant listen to this. I'm ready to scream.

You can’t overcome adhd my adhd is not a part of me it is me I wish for it to be gone somedays but it makes me who I am and that the thing I hate

her voice and calmness is making my mind wander further, i need screaming to stay with you plz

this is really helpfull

Thank you for this information. I am taking my ex employer to a tribunral for all of your points. I have no representative, that is impacting getting my paperwork together.

So incredibly helpful and insightful. Really resonates for what I see for my young son and also found the research around women's mental health, menopause and ADHD very interesting

Excellent

How does one get adult diagnoses for adhd... In the public health sector? Please help and thank you for this clip

Thanks (hearing the reality)

Wow, thanks gentlemen. I’m with you Henry on how raw some of that was. That fundraising message really hit home as well. How difficult it must be where you don’t have a physically obvious and outwardly life limiting condition that shakes its own tin.

Is there a podcast / offline option for this that doesn’t require subscription?

I think he misunderstood when asked about BPD. He went on to talk about bipolar disorder instead. Borderline Personality Disorder or BPD also exhibits symptoms of emotional regulation problems. On another note, a lot of this is so relatable, especially regarding RSD and missed opportunities, perfectionistic tendencies. I was diagnosed last year and am on a waiting list for treatment. I was due to be seen this month but have been told the waiting lists have now been extended by 6 months. This has been hard to process. At times it feels like the government simply do not care. I know they now have an 'ADHD Task Force' assigned to remedying the wait times, medication supply issues, etc, but it's a bit too little too late, I feel. People need help now. Thanks Dr Shyamal and Henry for this video, and thanks to Henry and ADHD UK for all the work you do. I can relate to having to try harder to keep up with others. After years of working temp jobs, I worked hard and eventually qualified to be a music teacher, but found the environment too overwhelming to work in on a day to day basis. I would love to return to teaching one day. As a random aside, I heard a theory that people with ADHD would have been hunters in prehistoric times, as they are often found to be in indigenous tribes today. Easily distractibility and hyperfocus would have been an advantage, as it allows you to scan your environment for anything that moves. Society expects everyone to effectively be the 'farmers' of the world, while people with ADHD would have been adept hunters, reacting quickly to continuous stimuli and changing circumstances. This is also known as the hunter-farmer theory. www.additudemag.com/watchman-theory-adhd/

Thank you for this. It is very much my experience and I can majority of the time say exactly what triggered it. I am less than 4 years since diagnosis and I’m 48. I have a friend who has been treated for decades with SSRI’s for depression but is fighting for ADHD diagnosis now.