- 15
- 523
ComplicatedME
United Kingdom
เข้าร่วมเมื่อ 5 เม.ย. 2018
Hi, I'm Harri! I'm 23, and I have an illness called myalgic encephalomyelitis. I want to share with you what it's really like living with ME. I also love books, movies, TV, games and anime, so expect me to talk about those topics at some point as well.
Borderlands 2 Axton playthrough | Part 3 | the mic died
Follow me on instagram!
chronicallyharri
johzenjii
Or tumblr!
mordithehunter.tumblr.com/
chronicallyharri
johzenjii
Or tumblr!
mordithehunter.tumblr.com/
มุมมอง: 5
วีดีโอ
What I Read | MAY 2018
มุมมอง 126 ปีที่แล้ว
The books I read in May 2018. Follow me on instagram! chronicallyharri johzenjii Or tumblr! mordithehunter.tumblr.com/ My goodreads shelf is here! www.goodreads.com/review/list/11951021?shelf=currently-reading
Borderlands 2 Axton playthrough part 2 - shopping for shields
มุมมอง 56 ปีที่แล้ว
Solo playthrough using Axton the Commando. Part one here: th-cam.com/video/Tw8MTR4GMoI/w-d-xo.html Follow me on social media! chronicallyharri johzenjii mordithehunter.tumblr.com/ Like and subscribe!
ME Awareness Month - Days 16 to 22
มุมมอง 186 ปีที่แล้ว
This video covers the ME awareness month prompts from day 16 through to day 22. I was supposed to post this yesterday but I ran out of spoons, sorry! This challenge is from @spoonie_village on instagram: spoonie_village My instagram is chronicallyharri #meandmyME
Borderlands 2 Axton playthrough part 1 - we got blown off
มุมมอง 66 ปีที่แล้ว
Solo playthrough using Axton the Commando. Follow me on instagram chronicallyharri johzenjii Like and subscribe!
ME Awareness Month - Day 14 - Small Wins
มุมมอง 126 ปีที่แล้ว
It’s day 14 of ME Awareness Month and today’s video is about small wins. This challenge comes from @spoonie_village on instagram : spoonie_village My instagram is chronicallyharri
ME Awareness Month - Day 6 - Myths
มุมมอง 466 ปีที่แล้ว
It’s day six of ME awareness month and the prompt is ‘myths’. This video covers a few of the common misconceptions people have about ME, and why they’re wrong. This challenge is from @spoonie_village on instagram: spoonie_village My instagram is chronicallyharri #meandmyME
ME Awareness Month - Day 5 - Statistics
มุมมอง 116 ปีที่แล้ว
Day 5 of ME awareness month. Today’s prompt is statistics. This video is rambly because I am low on spoons, sorry! Challenge from @spoonie_village on instagram: spoonie_village My instagram is chronicallyharri #meandmyME
Me Awareness Month - Day 4 - An Average Day
มุมมอง 206 ปีที่แล้ว
It’s day four of ME awareness month. I don’t really have average days. My illness fluctuates on a daily basis. Some days I’m this ill, other times I’m able to go out and do a short shift volunteering. The fluctuating nature of the condition makes it hard to deal with, hard to plan your life. This challenge is from @spoonie_village on instagram: spoonie_village My instagram is inst...
ME Awareness Month - Day 3 - I am (despite my illness)
มุมมอง 286 ปีที่แล้ว
It's day 3 of ME awareness month! The prompt today is 'I am (despite my illness)'. My identity is made up of more than my illness, even though it is a big part of me. My instagram: chronicallyharri This challenge is from @spoonie_village on instagram: spoonie_village #meandmyME
ME Awareness Month - Day 2 - ME Symptoms
มุมมอง 376 ปีที่แล้ว
It's day 2 of ME awareness month! This video is about the symptoms that I deal with on a daily basis. I haven't covered every single symptom, because then the video would have gone on forever... A more comprehensive symptom list: phoenixrising.me/mecfs-basics/dr-bernes-chronic-fatigue-syndrome-mecfsfibromyalgia-symptom-checklist-2 My instagram: chronicallyharri This challenge is ...
ME Awareness Month - Day 1 - My Background
มุมมอง 566 ปีที่แล้ว
May is ME awareness month! Day 1 prompt: My background and ME/CFS This challenge is from @spoonie_village on instagram: spoonie_village My instagram is chronicallyharri Check out #meandmyME on instagram
Why do I call it ME, not CFS?
มุมมอง 1596 ปีที่แล้ว
Why do I call my illness ME, instead of chronic fatigue syndrome? Sorry this video was quite a bit longer than I promised, apparently I had quite a bit to say! PACE trial: www.meassociation.org.uk/2017/07/the-pace-trial-the-making-of-a-medical-scandal-29-july-2017/ www.meassociation.org.uk/2018/02/government-funded-me-cfs-trial-one-of-greatest-medical-scandals-of-21st-century-20-february-2018/ ...
Introducing Harri
มุมมอง 916 ปีที่แล้ว
Hi, I'm Harri, and I have ME. I want to bring awareness to the realities of living with this condition, as well as sharing some of my interests with you as well. Hit me up on instagram: chronicallyharri
Clearly because they are not the same thing. They are not the same thing. Epidemic M.E. is an acute onset demyelinating encephalomyelitis by an enterovirus. Hence the name. CFS is based upon a fatigue definition. Its a misdiagnosed pathology. It can encapsulate milder patients. Its not an appropriate term. Chronic fatigue is not even essential symptom in M.E. M.E. is named after the severe patients who have an acute onset encephalomyelitis. Merryn Crofts for instance. The confusion has lead to harm.
Good to hear from you! Was starting to get a bit concerned. I also feel strangely comforted by the thought that I don't matter in the grand scale of things. Cheerful nihilism, perhaps.//Clara