- 4
- 59 790
Sean Pangs
เข้าร่วมเมื่อ 4 ก.ย. 2017
Theraspecs glasses review
Ever since my onset of Vestibular Neuritis in 2018, symptoms I struggled with were light sensitivity and eye strain due to too much computer work. I heard of theraspecs through my Vestibular Disorder support groups and ever since I purchased them, they’ve enabled me to work longer hours on the computer and reduce my eye strain by at least 30%. www.theraspecs.com
มุมมอง: 6 002
วีดีโอ
Vestibular Neuritis - The Struggle and Recovery Story pt. 2
มุมมอง 9K4 ปีที่แล้ว
My update and recovery 2 and a half years later after Vestibular Neuritis
Staying Positive With a Vestibular Disorder
มุมมอง 6K5 ปีที่แล้ว
What I did to stay positive while recovering with #VestibularNeuritis #VestibularDisorder #VestibularMigraines
Vestibular Neuritis - The Struggle and Recovery Story
มุมมอง 38K5 ปีที่แล้ว
The video is about my struggle with Vestibular Neuritis, a Vestibular Disorder. I talk about my onset, symptoms, my recovery story and I give advice on how I got better. My goal is to spread awareness and ins-till hope for those that are suffering from this illness. EDIT - I forgot to mention in the video that I've been seeing someone for Cranial Sacral Therapy the last few months, and I've see...
Thanks so much! Gives me more hope, were you ever told you might have a vestibular migraine? I know you mentioned you were sensitive to lights and screens too. My ENT thinks I have VN too but I heard the exercises can be different if it’s VM the central nervous system.
I wish I had found and trusted more comments of good recovery in the first few weeks when having Vestibular Neuritis myself. I didn’t have a cold before the dizziness hit me, making me doubt what is was. And while not being sick, I had some attacks of extreme vertigo closely after one another within an hour, which I had only ever had before once every few months. And from the first attack that day, a constant sensation of vertigo remained, while it usually went away after the attack of a few seconds. While many say online it improves after the first few days, and so did my GP, I only saw minor improvement the first 4/5 weeks, despite doing stability exercises for it which I found on TH-cam like crazy everyday. Those were some very scary, anxious weeks, while doubting if it was VN or an even more severe disease, making my patience and mind go crazy, and feeling very down and insecure while it affected my social relationships and studies, as any moment or position awake felt like an uncontrollable hell. Reading experiences of people who suffered of this for years, my hopes were very low. But believe me, it does get better. Once you see some improvement in the first few weeks, even the smallest, trust the recovery, and don’t expect a full recovery in a week, as hard as this may sound in the beginning. But there will come a point where it does not affect your daily life each day anymore. For me this took around 6/7 weeks, while trying to get back to my normal everyday activities, like studying, doing groceries, cycling to school, and other things after the first 2/3 weeks. Currently, about 2,5 months later, it only affects me after a very busy day or busy environments like Christmas markets where your head and eyes move a lot. Keep calm, try exercises online and find out what works best for you, change them up after a few days for variation and more improvement, talk about it with others, and trust your body ❤
I know this is 5 years old, but I’m crying because you’re explaining every single symptom I’ve been having for months. I had fluid in my ear and had that drained but I’m still dizzy and off balance!
The thing with staring at the computer and feeling off-balance.. I can totally relate!! It's frustrating!!
I’ve had this for 1 and a half years now. It does get better. Eating healthy and getting good sleep helps heaps. It’s a frustrating condition but you need to stay positive!!
Hi Sean, thank you so much for these videos. I'm 3 months into this hell. Did you find when recoving that you would frequently relapse/reset? I seem to get a bit better, then go back to square one again. I keep having this cycle of a little recovery, then reset. Very difficult mentally to deal with. Wondering if this was the case for you and others to? Very difficult to know if you're doing too much, too little, or just random fluctuation which could not have been avoided.
I have the same. 3 steps forward 2 steps back atm but if you look back to the first month and now the progress is there. I think that is the best way to approach this because using yesterday and today as reference for progress will wear you down.
What I wonder is , I walk into work after a good night's sleep, no caffeine , no anxiety ( at least yet ), and no computer ,but the first thing I do see is a florescent light . I am not sure . I feel I also have issues with long hallways ,like it throws my perception of, or the reflection of light into the tiled hallway. I will try these ,fingers crossed .edit ( I guess a phone in the morning could also play a small part but i wasn't staring at it that much
I saw this video on my 3rd day of vestibular neuritis, I was crying and miserable, and the comment section and recovery stories made me feel worse as it seemed the recovery time was months and even years, despite the doctor saying to me 4-6 weeks. I just came back to say I’m on my 12th day since the onset and I’m pretty much walking normal again! It was the longest 12 days of my life, my heart goes out to those who are still suffering, it’s truly horrible, but wanted to give some hope that there are quicker recoveries. This video was extremely helpful, I cancelled my $300+ vestibular clinic appointment after he said they just gave him a paper with an X in the middle. That exercise does help and I did do them everyday, I just used my own 😂
I am currently there is with you. I hope you got prescribed steroids. I heard it speeds up you recovery time. Anywho, I am 8 weeks in as of typing this. My eyes finally started working properly, I’ve had blurred vision for the last two months. Be prepared for 6-20 weeks of misery. This is what I was told by the therapist and ENT.
I had a doctor say it was likely psychosomatic without looking at any test at all. My ENT got me confused when she asked me "Why do you find it so hard, is it emotionally challenging?" I thought... I mean everything is spinning when I go to the supermarket and I'm afraid I might fall and hit my head badly or never recover again since it's been months and still though I get progress sometimes it get substantially worse (although not as bad as originally) and you feel like you're back to 0 even though you're not. I find I often struggle when I visit those specialists and make questions like that, I rarely have a clear answer to advocate for my health because you just don't expect them to be that ignorant to be honest. I mean, of course it's emotionally challenging but that's not the root cause of my issue. I'm glad the Neurologist didn't just dismiss my symptoms, I don't quite agree with everything but at least I knowing that one specialists believes your symptoms exist helps.
Hi, how are you? One quuestion did you have hyperacusis or ringings in your ears?
Psychosomatic? I find doctor’s can swing between two extremes, arrogance and ignorance. Rarely do they ever land in the middle, which is sensibility. I am glad that you chose to advocate for yourself. I am a fellow VNer, I stand in solidarity with you. I am currently 8 weeks in and struggling a bit, but like Sean said, we have to fight to get our lives back. I wish you all the best on your road to recovery, take good care and be kind to yourself my friend.
I had a septoplasty surgery, i start whit this dissorder, is awful. Someone experimet hyperacusis?
Guys how are you now ? I am experiencing this now its terrible feeling
thank you for telling us your story...I have vestibular ocular disorder. I have had panic attacks and the inability to understand time. I could not figure how long it would take to get ready for an appt. I still feel overwhelmed, but I am taking vestibular ocular p.t.
Thank you for your video. I’ve been through it, took two years to recover, you feel very alone going through this.
Hi, did you have hypercusis? I'm glad your recovery.
This sounds exactly like my story and the worst part is really that people don't believe you. Still recovering from this its been a journey. I got mine from mono, and having that fatigue ontop of that wow miserable.
I’m so sorry for the ones dealing with this. I’ve gotten so many things tested and everything checks out “normal”. What’s helped me the most if following the advice of “The Steady Coach” here on TH-cam. She has many success stories as well that have given me so much hope and I’ve seen improvements within just one week!! I wish everyone a recovery. ❤
Hi, how a re you doing?
Did you have hyperacusis
I really appreciate how detailed this is. I'm learning about this condition for a class.
Don’t you think the root cause were stresses?
Check out Chiari malformation it has similar symptoms
Hey I have a diagnosis of vestibular migraine and sounds very similar to you.
I’m struggling with this very badly now what to do
Thank you so much for sharing your journey because no doubt it is inspiring so many men and women struggling with these symptoms. I have some of the symptoms you did and its tough while being single with a young child. I'm so inspired and so happy to hear how much you've improved! Please make more videos as you can! 💜💜💜
Hoe are you donig now? A question , did you have hypieracusis? Ronging in your ears or tinitus?
Thankyou so much. Needed to hear it again that it will get better.
Hi, how r y doing now? I hope you are better.
Your story matches my experience word for word, place for place, symptom by symptom. Thank you for posting this video. It’s nice to know im not alone.
Dr Liam Ogbebor herbal centre on TH-cam treatment is a great remedy for tinnitus and vertigo , i used his herbal ear treatment for my Tinnitus and it helped removed my tinnitus,😊--00😊
Dr Liam Ogbebor herbal centre on TH-cam treatment is a great remedy for tinnitus and vertigo , i used his herbal ear treatment for my Tinnitus and it helped removed my tinnitus,😊--00-00😊
Thanks for sharing this!
Thx for sharing!
I had a major brainstem stroke 0:28 that's my excuse wish they had a medical cure
thanks for your treasure info in fighting meniere, have you try any meds other than the rehab practises exercise?
No one is saying that they are throwing up -- & I am day two!! of vomiting, can't sleep! help.
There are multiple versions on the site. Do you have a link to these specifically
Oh! How did you drive. I’m finding it scary and difficult and have my fiance drive me everywhere
Thank you for this. You describe what I’m going through to a T. I hope that following these things it helps
th-cam.com/video/G1qFdwTh6vw/w-d-xo.htmlsi=vrOx5KCd1vry1tbA These exercises helped me
Yes. Very well described. What really helped me was quitting sugar and wheat items. Glutin is very inflammatory to the vestibular system. Best wishes.
Thank you for sharing, I've been in treatment for vestibular migraine disorder and vertigo for the last 5 years, it's extremely tough
I understand completely. I keep having set backs but I'm pushing forward with vestibular therapy. What are you doing for treatment? I also take migraine medication.
Man, I’ve had this for 6 weeks. Been to the ER twice. No medications helped. I’ve been in a very dark place. I’ve been a long time meditator but it feels like my mind is disconnected. The feeling is truly inexplainable. It has helped so much to know I’m not alone. Thankyou
have you try Betahistine Mesylate. it's very cheap medicine that works for me in my country
Keep head up! Will get better!
@@8benzinhi, hiw are you now, are ou healty? What are your principal symtomps?
Brother, I am on the same boat as you. Mine started in September 14th. I was rushed to the hospital. I am now 6 weeks out. How are you now 6 months out?
@ I’m much better. I still have episodes of dizziness or blurry vision but they’re far apart and not intense. That was one helluva ride though. Get well soon.
And Your Oscillopsia now is resolved?
Thank You Sean for the video which giving us hope! This is a most difficult challenge for my entire life. It came out of no where and I was diagnosed labyrinthitis . Dizziness and Imbalance and ear inflammation have been haunting me for 2 months. Which felt like a two years for me. I started feeling losing hope and got anxiety.
Keep positive!!
@8benzin how are you doing ?
@@vita6667I’m going great! You will get through . Just keep putting yourself out there and make your brain relax .
@@8benzin Thank you, my friend! How long did it take for you get back to normal? I am just so worried and concern since it has been several months that I haven't be able to drive and back to work yet.
@@vita6667hi, did you have hyperacusis? O ringing in your ears?
Hello, my name is Pablo and I suffer from this since I was 15 years old. I’m currently 35 and I don’t know what else to do a long time ago I was diagnosed with bestibular migraine and from there I never had stability again. Currently I’m going through a lot of dizziness and all the things you already know and I can’t do it anymore. There are times that I don’t want to live anymore but I look at my children and I can’t stand it anymore. I really need help
Thanks for sharing I’ve been dealing with dizziness since last October .
Did you ever get an MRI on your inner ear canal? I got one, and they found a small benign tumor that was pressing on the vestibular nerve, and it was the pressure that caused the imbalance. I had the tumor irradiated to shrink it and relieve the pressure.
I’m literally dealing with this now! Came out of no where. I was diagnosed with Vestibular Neuronitis and now almost a year later been diagnosed with Vestibular migraines because I’ve had a few episodes
What did you do about that have you found any exercises or what could help 🙄🤧 i have same problems 🤥
Will get better!!
I had a stroke, and that is what is stopping me
Thank you for this Video. It gives me hope. I‘m 32 and have it since 5 months. Thankfully, It gets better week by week.
Do you think key words for vestibular and dizziness have spiked since March 2020 versus before. We have at least 20 years of Google Searches and even AOL/Yahoo/Netscape to discover if this is a trend related to Covid 19. We are 5 years later, and I have heard the long covid symptoms are about 200 symptoms. I'm not joking it is 200 symptoms. However....I did get my first dizziness traumatic time in 2018 but i was able to drive and work normally. I have not worked in 2 months. It came out of nowheere, though I was taking new medication which I stopped within 4 days and that was February. So it is hard to pin down. Maybe a Physical and general labs are recommended for this condition and any unusual new condition especially after age 40.
Hi. I'm not sure if you'll see this comment, but if you can write something encouraging, I'd be really grateful. I've had unilateral vestibular hypofunction for 2 months. I do the exercises every day, and I've bought a balance ball too. There's a 24% decrease in one ear (vestibular nerve), and they don't know the exact cause. So far, my situation hasn't improved much, and I'm under a lot of stress because of it, struggling with university as well. I'm 22 years old. I experience oscillopsia, mild nystagmus, fatigue, and dizziness when I move my head, along with brain fog. It's really hard to stay persistent, and I don't know when I'll feel better. They haven't given me any medication. Your videos help me a lot, but right now, I feel really bad.
any tips with nystagmus? Like Vision Exercises?
I am convincec thatblong covidvid is the fault for a lot of the vestibular problem 5:08
Agreed.
I’ve had ear issues from the jab and from Covid. Some are more susceptible it seems. I was fine beforehand, but I have always had tinnitus.
I've seen a specialist for balance problems recently. He says there are a lot of people who are having balance problems after being sick with COVID. Myself is included with that
I had stroke at 60 my fault i did not take care of self,eyes and ear is gone to right no one to ended care of ended up in nursing home for rehab been here with crazy people because insurace purpose need good good doctor have not seen one yet 9:34 nerlogist
🙏🙏