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Spoon Shares
เข้าร่วมเมื่อ 8 ต.ค. 2014
A community of spoonies sharing their tips, secrets, and experiences living with chronic illness.
www.spoonshares.com
www.spoonshares.com
When Chronic Illness Gets in the Way of Being Productive
I've returned after...oh, two years, to continue vlogging about the professional patient. This video is going to give some advice about how to cope with the sadness and frustration that comes with not being able to do as much as you'd like because of uncooperative and otherwise broken bodies.
Read about coping with chronic illness through crafts: spoonshares.com/2015/06/spoonie-coping-tip-knitting-crochet-and-general-crafting/
Visit spoonshares.com for my tips and tales of chronic life, and the chance to tell your own story.
Follow me on twitter: spoonshares
Facebook: spoonshares
Read about coping with chronic illness through crafts: spoonshares.com/2015/06/spoonie-coping-tip-knitting-crochet-and-general-crafting/
Visit spoonshares.com for my tips and tales of chronic life, and the chance to tell your own story.
Follow me on twitter: spoonshares
Facebook: spoonshares
มุมมอง: 200
วีดีโอ
The Faces of Invisible Illness: An Awareness Plea
มุมมอง 7K8 ปีที่แล้ว
A few months ago Leah from spoonshares.com and Catherine from findingmymiracle.com had a late night conversation about the realities of chronic illness. That conversation turned into a poem, and now that poem has turned into a video involving many chronic illness bloggers. The goal of this video isn't self-pity, we simply want people to hear us. Because so often the struggles of the chronically...
Feeding Tube Vlogs 4: Coming Home With Your Brand New Tube!
มุมมอง 2679 ปีที่แล้ว
Congratulations! You have given birth to a feeding tube! ....now what. More tips and tales of chronic illness at spoonshares.com Share your own story at spoonshares.com/contribute/ Tweet me: spoonshares Like me: spoonshares Pin me: pinterest.com/spoonshares Everyday I'm tumblin: spoonshares.tumblr.com
Feeding Tube Vlogs: Getting the Tube Implanted
มุมมอง 2039 ปีที่แล้ว
My personal experience have the feeding tube surgically implanted. Check out more Spoonie Tips at spoonshares.com If you have any expertise of your own, I would love contributions! spoonshares.com/contribute/ Facebook spoonshares Twitter spoonshares Pinterest pinterest.com/spoonshares Tumblr spoonshares.tumblr.com
Feeding Vlogs 2: Deciding to Get the Tube
มุมมอง 2569 ปีที่แล้ว
Talking about dealing with the decision to get a feeding tube mentally and emotionally. Check out more tips for chronic illness and share your own expertise at spoonshares.com. You can also find my email there if you want personal advice. Tweet me: spoonshares Like me: spoonshares Pin me: pinterest.com/spoonshares Every day I'm tumblin: spoonshares.tumblr.com
The Feeding Tube Vlogs: General Information and About Me
มุมมอง 3419 ปีที่แล้ว
Do you have a feeding tube? Going to get a feeding tube? Thinking about a feeding tube? Have a loved one with a feeding tube? This is the vlog series for you! Today I'll start with my own story, as well as the basic information on different types of feeding tubes. Next week we'll talk about deciding to get the tube! Closed captions to come! Learn more and share your own stories at spoonshares.c...
Dining Out with Dietary Restrictions
มุมมอง 2499 ปีที่แล้ว
Have serious or complicated food allergies or dietary intolerances? Does it making dining out rather complicated? Here's my top 3 tips for you! Find more tips for people with chronic illnesses and share your own at www.spoonshares.com
"You will do what you will do, and whatever that looks like that'll be okay" - beautiful
Thank you for this video! ♥️ Needed to hear from other spoonies about their lives. We're not alone ♥️
Ok I’m seeing a gi doctor next week cause I can’t keep anything down I have been having problems eating for 2 months with pain and I’m getting sick from every thing
Glad to see you making videos again! We talked before on fb and i hope to meet you one day.
I love this 💜
Thanks for your video! I have chronic illness and will be getting a feeding tube soon and just started a vlog too!
I don't want to say you are lucky you had a choice in getting tube, but to an extent you are. I got my first NJ tube in January after being admitted for dehydration, symptom management and malnutrition I had that first tube for 5 months and we tried a pyloroplasty it didn't worked, triggered my GI system further, and I was sent home being able to keep literally nothing now. I was discharged 5 days post op and was admitted again two days later for what turned into a 17 day stay because I again dehydrated, malnourished ( I went 10 days with no food and survived the first 5 days on IV fluids, sent home r . two days and then back on IV fluids), and symptomatic. I could no longer tolerate NJ feeds fully so I had to be put on TPN. I have been on TPN ifor just under 12 weeks now. I was told inpatient in June you need to start pursuing a GJ tube or J tube and G tube. My parents at the time were not satisfied with that idea, they had been resistant since it was mentioned the first time in February. When I went into the hospital again in July for a line infection is was stated yet again. I could also no longer keep the NJ tube down due to the antifungals and the severe irriation from having a tube in my nose for 7 months so we left it out and now I am just doing TPN. My parents were so unsatisfied with this idea that they flew me to Tampa to see a motility specialist and also because the fact I had been told by a colorectal surgeon and Ileostomy is the only option for your colon. The motility specialist literally told them that a GJ tube or J tube and G tube as soon as possible is my only option in hopes of getting me off TPN (she had no desired to do another NJ on me) and hopefully the venting aspect will relive the dysmotility symptoms and the fact we had also discovered I have pancreatic insuffiencey and I would tolerate feeds better, and to start with getting the tube then do the ileostomy. My parent's finally heard what they needed and now they are at least more open these options. So this Friday I see the doctor who does adult TPN management (I am transitioning from children's to adult care since I am 18 ) and feeding tube placements. It is pretty much certain I am doing the tube the matter is how fast it can be done and what type of tube(s)
Thank u SOOO much for putting our daily struggle with chronic pain in words. 🤗I can't even get out of bed in the morning before the pain starts. 😣It is the frustrating how no one "really" understands unless it you yourself😑. Not even those who are trying their hardest to support and help u on this journey- it really does make u feel like a liability .😔 This is definitely NOT living.
you made me cry because I know how everyone of you feel. thank you
Hi, Brilliant video.:) Any chance of doing some more please?
I had mine endoscoply and it was supposed to be outpatient but I ended up in the hospital for three weeks because of pain and my gi tract shut down because of it all.
I always say "I'm not living, I'm just existing."
Something I've noticed is that women get hit with more acute symptoms of various immune deficencies, and other chronic diseases. It would be interesting to see if there is a statistical skew between female and male population groups. Personally, I have Celiac Disease, but my symptoms were more classic in nature compared to what I've seen with female Celiacs. Of course I'm waiting for the next autoimmune shoe to drop, but hopefully it won't be too serious.
Cool video girls
Yes to everything here! I'd love to be involved in a video if I could be. I was born with a heart/lung defect TAPVR type 3. 1 working lung. asthma. RA. TMJ. autoimmune issues and a low immune system.
That was fantastically!!!
Thanks for the video, just discovered your blog, hope you keep writing
Great video for awareness. Thank you for making this! :)
+Chronically Hopeful Thank you for watching!
love your blogs!! I have GP too.
+Shankenia Dunn Thank you! (that thumbs up was for you liking my blogs, not for having gp, which is always thumbs down. but always glad to meet a fellow gper! :D)
love your blogs!! I have GP too.
love your blogs!! I have GP too.
love your blogs!! I have GP too.
your awesome
I love your vlogs
+Shankenia Dunn Thank you so much! That's so encouraging to hear! I've fallen quite behind on them...0:-)
I love your vlogs
Great video! your awesome my GP sister..thanks for sharing your story with us all...<3