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What was the size of your tumour?

I am on my 4th bout with Cushing's. I adrenalectomy, 2 Pit surgeries and now its back so Im testing after getting positive blood test. I can relate to everything. . I am happy all is going great for you. It gives us all hope.

Thank you for everything you said thank you for staying strong and getting over this You made me feel that i can do it too ...i have cushing but we delayed the surgery now and I'll do it like four months later now I'm kinda struggling with the disease but yesss i know I'll be proud one day 🩷🩷

Thank you for sharing. I am now after 20 plus years of sufferings and drs not listening to my cry being tested. Thus far only the dexomethosone test and my cortisol level was 360. Your video has given great insights as to questions and i ask or even procedures. Bless u and your journey.

I’m watching this and I have alarm bells ringing up and down… I got an abnormal hormone result on a test when I was 21 and its just flown under the radar, but like, the second you mentioned hair loss and change of hair texture… my god. I thought I just had low testosterone. I’m waiting on bloodwork right now before they do more tests.

u r hot

Thanks for sharing your story. Another way a person can develop cushing's is if you have been dealing with stress for a long period of time. I believe a lot of the emotional and eating problems people we are having these days are due to a hormonal imbalance of some kind. I also feel most are due to the foods we are taking in that are contributing to these imbalances. Relationships play a part in imbalances, but that can,most of the time, be easily remedied. Our food is a bit harder unless you are able to eat healthier, which is more expensive or time consuming if you can provide your own. Exercise, working in a field you love, good relationships, eating as healthy as you can, and most of all putting God first are things we all can do to improve our life.

My God My Mom has suffered for 2 yrs undiagnosed. Have a wonderful endocrinologist and he chased and chased until diagnosed. Thankyou so very much for sharing your story. This had been so frustrating so glad we had the Lord to lead us in the right path!!! God bless you young lady. Very informative

Just got a results from my cortisol test…. It came back high. Now they are doing a saliva test. Insomnia is top on mine. I cant sleep. Hair is another issue. Cracked and unhealed skin too. Waiting to see whats next.

No one talks about all the shaking and trembling! People just think you’re “over-reacting” when these things happen, or “getting yourself all worked up for nothing” when you really have no control on when these things occur in the first place. Thank you for sharing 🙏

Omg tysm for sharing visual images!! I’ve heard of the symptoms, but I didn’t relate it until seeing the before-during photos and thinking “this is it!! I know what she’s talking about!” I’ve had symptoms getting worse for years with no diagnosis from many different doctors, but never saw a visual progression to really comprehend this as it manifests in reality. You can clearly see from the images how much the face changed, how the hair changed color, texture and density and that blushing/tan without going in the sun. I thought these were all just symptoms of aging!! I still can’t get a diagnosis, but seeing this, I am going to pull out pictures from the past 8 years or so to compare and show my doctor just like you did. Yes, it’s been going on this long, my QoL is in the dumps. Gonna look for parts 2 and 3.

Thank you so much for these videos. I have been diagnose with Cushion very recently and this gives me hope ❤❤❤

I want to thank you. Because of your video, I am going to get up the courage to ask my doctor to test me for Cushing's. I have had this personal physician for 3 years. I have been misdiagnosed with Idiopathic Intracranial Hypertension then re-diagnosed with chronic daily migraines (both from the Cleveland Clinic). I am still seeing a neurologist at CC in Weston Florida. However, my symptoms strongly overlap with Cushing's. I also have rheumatoid arthritis....I just want help with the pain. Anyway, thank you for this and my hope is in Christ alone.

thank you so much for sharing your story. i was diagnosed in 2020 as well, but for some reason my endo never mentioned a tumor or surgery. just kept me on mifepristone. i started seeing a new endo and she mentioned the possibility of a tumor. she’s rerunning all the tests to make sure it wasn’t a previous misdiagnosis. naturally, i’m terrified. i’m also in my senior year of college, and away from home. your story sounds similar to mine, and this series was super informative. thanks again 💛

Hi!! Thank you so much for sharing your story!! I’ve been having many of these symptoms for a few years now. I’m going to talk to my doctor and ask to get tested for Cushing’s. For me, it started with the fatigue and the acne. I then started to experience the itching and other symptoms. I have a question though. Did you have itching on your face? My doctors have tried to treat the itch and nothing works. Also, every time I go to the doctor, they tell me that they don’t see a rash, so they can’t figure out where it’s coming from. But now that I’m learning about Cushing’s, I’m thinking that it could be an invisible symptom.

I’d love to connect! Are you on Insta?

Are you a doctor ?

Thank you for posting this

I just found out i have cushings i had to take alot of test i have to meet the surgeon September 17th theres a tumor in my adrenal and i have been depressed want to sleep alot but im so scared to get the surgery and my age im 62

Did you have any kind of hypoglycaemia/ blood sugar issues? I've had all of these symptoms for so long ans have been to tbe doctors multiple times but they have never suggested this or tested my adrenals

Hi dear, hearing the medical trauma that you went through led me to think of TRE. I highly recommend looking into Trauma Release Exercises. There's practitioners all over the US, and it is super gentle, not mind-heavy, just helping the body recover from stored emotions/trauma. You are so strong love!

I feel that I have cushings because I have been taking prednisone for about 6 years. I have one symptom where I have an adrenaline rush everytime I urinate. Did you ever have this?

Subscribed because your content is great and you are a christian ❤️

This feeling is terrifying. I did not have it like that. My head was on a desk and I knew my husband was talking, but I could not respond. I could not lift my head. I was cortisol deficient and then made sure to always have my hydrocortisone meds on time.

The only thing i dint have is red purple stretch markss!!! And they dismiss it. I am so joeoless and frustrated. Please tell me if i have all the other symotims and not these and could still have cushings/pituitary tumor??

Apparently the US doctor are not able to do their work, same in france, what a shame. They didnt even try to find an answer of the problem, they try 5 minutes and after that they try to put it on "psychiatric", depression...

The tunnel vision thing sounds like when you're in fight or flight mode, which tracks with the constantly elevated stress hormones.

Im being tested for cushings my cortisol is 1450 nmol

How big was your tumor?

Thank you for posting this! They're nearly 100% that I have something on my pituitary but what or how big we'll have to find out in time. After this, though, makes me think that maybe it's cushing's because I have an almost identical symptom list! Going on 10 years from my first symptoms and I'm just glad we're getting somewhere because, as you showed, the depression and myriad of symptoms can be so devastating.

I’ve had X2 high boods and 1 high urine so far, just finished another 24hr urine and doing the Dex test tonight to get bloods drawn and hand both in tomrrow morning! Thank you so much for making this video. I couldn’t find many on this subject!

How big was your tumor ? I got diagnosed with a pituitary tumor but they believed it was a prolactinoma now they have seen my cortisol has been going crazy and I had the suppression test that is coming up with abnormal results...

What about taking melatonin in the evening?

I’m just going to flat out ask my doctor to test for this. I have almost all symptoms and have had them for quite a while now. Doctors seem to only want to treat the symptoms and not actually find out the cause.

That sounds horrendous 😢

My 20 yr old is doing saliva test tomorrow night to turn in Monday morning…. This is incredibly helpful ❤️❤️❤️ I will watch next videos

I'm less than a week out from my surgery and I cannot express just how grateful I am that these videos exist. I have a lot of death-related anxieties and worry at any slight symptoms, so knowing that these kinds of things are routine and doctors will know how to deal with them is very reassuring. Being 19, it's been really hard to cope with everything related to my diagnosis, but I'm hopeful for my path to recovery. These videos are so important, so my sincerest THANK YOU for making them a reality!

100% TMS, you can heal this with a mindbody approach.

Thank you for the video, it was really informative. I'm a 64 year old lady & in Sept 2023 had a large tumour removed from my 4th ventricle which was pressing on my brain stem, I have almost all of the physical symptoms listed, terrible anxiety for about 6 years diagnosed with PTSD, this would be my 6th winter I haven't felt the cold, but the last couple of weeks during the day I have the fan on me but at night I'm now feeling the cold. Sweating has also been a problem, my arms would glisten with sweat, I couldn't handle humidity. What isn't mentioned is fatigue, I start to feel better at night time. I have really bad low back pain, it's effecting me standing to make a cup of tea now. I saw a dr last week who said nothing wrong, he said lose weight, it's all around my torso, my neck is thick, this is the heaviest in my life, I will not have a picture anymore because of my thick looking almost no neck, now when I sweat around my neck I get these what looks like pimples on my neck & chest. The one thing that I have really noticed is my tan, I don't go in the sun, my arms are very brown, I drove to my dr 2 weeks ago other than that I don't go outside, I hate being in the sun, that night my face & shoulders were red & felt sunburnt. I went through at least 6 episodes of total voice loss lasting 6 to 15 weeks each time, it was awful & a single constant croop type of cough. AAn ENT put me on a course of steroids & I didn't want to stop them, I felt so well, this was 2021. I also noticed on the hospital letter I was sent home with under medical issues it said I had glottis??? I can't remember the medical term but it means my throat beneath my voice box is narrowed, I can only assume the anaesthetist diagnosed this, nothing recorded before despite having the camera down my throat. The brain surgery was my 3rd, the 2nd one in Jan 2019 was botched, they tried to remove the tumour I recently had removed & they couldn't find it, who knows what damage was done to my brain. Any advice is really welcome, I currently have no life at all.

These medical people are lunatics!

When I had my surgery I did a lot of research and guys warned I would feel like I had been hit by a train, but trust be it was even worse. Oh boy, I was glad I had a hint it was going to be really bad afterwards. No way of describing how you feel after the surgery. I spent 5 days in ICU and further 8 days in a private ward dedicated to Cushings patients. Family are encouraged to sleep in the ward. I fortunately had the best neurosurgeon in our country, 15 minutes from home.

Did u have those tell tale signs called striae? And can u describe a bit about that through the nasal surgery?

Did any male here ever have their face look the same again after it was all over? I'm dealing with the symptoms at the moment... I'm not sure if it's Cushing's and I have an appointment soon. But I am terrified that I will have a bloated round face forever unless I intervene with cosmetic surgery.

God bless you and thank you, Alli for having the courage to share your story! I also have Cushing's Syndrome (bilateral adrenal adenomas). It is a lonely and frustrating disease!I 100% have all the same symptoms, and have now recently progressed to type 2 diabetes (yet another delightful symptom of this disease). I am now at the stage of begging surgeons to remove my adrenal gland. It's been a progressive disease with symptoms starting about 20 years ago. It's a very frustrating journey for myself and many others, because it is so rare, doctors want to treat only symptoms or atribute symptoms to other causes. Pray for me as I am actually going to meet with a surgeon for the 2nd time to plead with him on June 12, 2024. I want my life back...😢

Thank you for opening up about such a wicked health issue. My spouse was recently diagnosed with cushings. She begins drug trestment in about two weeks. This is medication induced cushing from 30 years of dozens of depression meds. Her hair is 50% gone. Severe glaucoma both eyes. Round face. Bruises. Joint paint constipation. Foggy brain. my advice. Push your doctors into speading time to find the root causes of any health issues. God bless

Thank you for sharing. My spouse was recently diagnosed with cushing. We are waiting on the prescription. She was diagnosed with with bipolar drug resistant depression. A dozen meds. Hospitality three times for a month each in five years. Her cortisol is through the roof24/7. This has been going on for 30 years. Dozens of doctors and psychology doctor's. Glaucoma both eyes. Can't drive.

Is a big tummy caused due to this

What a smart smart girl

I’m going through the same thing!!! I have an mri on April 21. I need to find out!! I’m living with awful symptoms as well