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great explanation

If I had people in my family with this condition, I would never get tested. I think, in this case, doubt is better than certainty.

I’m fighting her Huntington and I have faith in all you that are doing the same

Keep your heart whole guys….same things going on here

Where is your blog, please?

I'm studying personal care course at the moment and we watched videos today on this

If I ever get into this I'll end up my life

I had to watch this video to understand the disease since I am studying psychology. Well, I cried the whole time watching this video! You are Becki Brave and I am sending you all my love to you 🥰🥰🥰

Thanks for sharing

If there is no cure, who is the specialist you are refferred to?

Stay healthy,stay positive,find the things in life you love and never let go

God bless this sweet intelligent beautiful lady. Protect her at all cost!❤❤

Thank you for this!

Bless her I'm being diagnosed for something could be HD or MS.

Praying for you, Becki. Jesus loves you and is holding you in the palm of His hands.

The best course of action is always to live life as best you can. You and your family are doing that. Take care. Love.

If the father is older, why is the daughter symptomatic so early? Is true that cats increase from father to child?

her blue eyes are mesmerizing.

ميگن علم پیشرفت کرده‌ کو اخه یه بیماری هانتینگتون درمان قطعی نداره همتون با رشوه دکتر شدين لعنت به این دنیا

Hello Katie, greetings from Northern California. Thank you for sharing this informative video. Take good care of yourself. Stay safe out there. 😊

Hello I have HD I tested positive at age 50 are 2 child ten tested negative for HD our daughter is expecting a baby in September X

Imagine having only 4 hrs a week to yourself.. !! That's about all you get.

Yes that's very true, it's a battle as doctor usually have had no prior experience with hd. You have to work it out for yourself.. 😢 It's 24 7 care.

I am a caregiver for 2people with Huntington disease,one is Autistic and the other just the Huntington,at times it becomes over whelming.when they are irritated.but I have been with them for 7yrs now.at times I want to leave.but they really need me when I think about them.God keeps my mind.

😢

Thank you, this was very interesting and informative. Although we have HD in our family Dr Lihari explained aspects of HD that previously I had not fully understood. It is very encouraging to see how much research and trials are ongoing. Like every family affected by HD we are in constant hope of a breakthrough that will stop HD in its tracks. Thank you for the work you are doing to help families affected by HD. ❤

You look just like your mother! God bless ❤

Praying for you Alison God bless you abundantly

I was a carer to HD clients for many years. It's one of the worst diseases to be diagnosed with. So many sad stories and it's really important to talk about it so decisions can be made. One of those decisions is to not have children and pass it on, that's the cure.

❤️🙏🙏 I can't imagine ! God Bless you!

🙏🏻

I hope you have the support you need I nursed my Dad through Alzheimers and my mum just six months after my Dad passed with terminal cancer. There are 4 of us kids but I was the main one funny really 2 had early retirements but I was working and providing care with careers I was exhausted and in the 6mnth period lost 3 stone I was little anyway so i looked terrible When my mum died I was ashamed If felt peace You should never be soul carer you stop being you Im so sorry this happened to your family My sister now has breast cancer and im waiting to see if I have it too strange coincidence If I do but I won't let loved ones take the strain I will go to hospice if that time comes don't lose sight of yourself your a wife and a mum first. x

I looked it up it's something about the brain

Oh I looked it up it's something about the brain

Retired immunologist with a friend with HD. Are you aware of any trials (or anecdotes) of diets or antioxidant therapy that may slow progression of the disease? I am particularly interested in ketosis and ketogenic diets used for epilepsy and whether it may apply to other neurological diseases.

May God help you find the cure!

Really good advice, thanks.

Becki, you are very strong and very brave. I wish all the good in the world on you.

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Thank you for sharing your story!💜

I’m currently my husband’s caregiver because of Huntington’s. It’s tough, but I want him to be as safe, happy, and healthy as possible for as long as possible. It’s a horrific disease.

🙏🙏🙏❤️. I love your perspective and serene energy.

See this was what I kept saying when people were being so hateful like it was our fault that families couldn't come in (those of us working in the care homes). Tried to say this to lots of people telling them come get a job and you can come in, we need the help too. But not one person did this even those who were griping that their employers had to close their jobs.

Having a diagnosis is important because even though you know that you keep seeing those job ads and you would love to be able to be a tree-climbing Arborist. You know that your father would have probably been able to work for longer if he wasn't a roofer. He didn't know that he was HD positive, though.

The absolute worst disease that can affect a human being. A cure is desperately needed

❤ I am in coastal Georgia, US ! My family members has been tormented with this HD disease. Really for 30 years We thought was Parkinson’s early on! I am just quoting my job thee years it took to get ssdi! My CAG is 42 and I am 57!

Steve, thank you for this. My wife is in stage 4. Retrospect is insightful to understand the impact the disease has on us as spouses and care-givers, but the personal aspects are nuanced and hard to make others understand. So, bravo to you for giving us a collective voice. -Scott, co-founder of Team2CureHD, US.

Thankyou for sharing, your message ❤❤

May God bless you all...

Thank you Poppy for all the help and support you gave me and my kids, words cannot describe my gratitude for the kindness and support you gave us.