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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna als...

Trigger warning This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. A Speech-Language Pathology graduate student (Paige Wikman) and her professor (Dr. Therese O’Neil-Pirozzi) at Northeastern University in Boston are doing an IRB-approved study to explore perspectives of individuals with...

Trigger warning This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes a...

Acceptance speech from our 2022 Champion for HD Caregiver, Amy Abbott.

Join us to learn about how PicnicHealth can help you keep your medical records organized while contributing to research! If you are living with HD and are looking for tools to help access & organize your medical records and ways you can contribute to your community, join us for PicnicHealth's informational session and Q&A! PicnicHealth is a health tech company that understands how challenging i...

Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, she continues to hold on to her favorite memories of him while also creating new ones. Her story will definitely make your heart warm. Follow Loren: lorenholifield Follow Champions: www.championsforhd.org/ instagram....

Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her battle against HD. Follow Champions: www.championsforhd.org/ championsfor...

I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disease. We talk about overcoming trauma with forgiveness, and grieving the loss of someone from HD, as we lost our 14-year old sister to it last year, and the afterlife. Follow Laney: laney.lentz Follow Champions: www....

Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living their lives to the fullest despite having HD In the family. Please share this episode and leave us a review. Follow Britney and her blog: @bebravewithbarb_hdawareness bebravewithbarb_hdawareness Ourjourneythroughhd...

Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative diagnosis, and battling mental health, Ashley has overcome them all while being open with the community about her struggles. Follow Champions: www.championsforhd.org/ championsforhd championsforhd/ Fol...

Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supporter, cheerleader, and advocate. Together they have been able to raise awareness and Impact so many lives through participating In clinical trials, speaking at events, and sharing their journey with HD anywhere and everywhere th...

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Champions for HD- The Fight Against Huntington’s Disease//Rocky Balboa Inspired