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AdvoSci Health
Canada
เข้าร่วมเมื่อ 14 มิ.ย. 2021
We strive to address challenges faced by individuals and families who are affected by rare diseases that are undermined due to a lack of awareness, resources, and treatments.
GBS Podcast Episode #3 - Donna Hartlen
Donna is a GBS survivor who is now the Executive Director of the GBS/CIDP Foundation of Canada. This non-profit organization works to support patients with rare disorders such as Guillain-Barre Syndrome, Chronic Inflammatory Demyenlinating Polyneuropathy, Multi-Focal Motor Neuropathy, and variants.
All of us at ASH would like to thank Holly for letting us share her inspirational story
If you want to learn more about Donna or the GBS/CIDP Foundation at Canada please click the link below and see how you can help others:
www.gbscidp.ca
#inspiration #advocay #GBS #Guillain-Barré Syndrome #podcast #learnmore #helpother #helpspreadawareness #spreadtheword
All of us at ASH would like to thank Holly for letting us share her inspirational story
If you want to learn more about Donna or the GBS/CIDP Foundation at Canada please click the link below and see how you can help others:
www.gbscidp.ca
#inspiration #advocay #GBS #Guillain-Barré Syndrome #podcast #learnmore #helpother #helpspreadawareness #spreadtheword
มุมมอง: 35
วีดีโอ
GBS Podcast Episode #2 - Holly Frances
มุมมอง 512 ปีที่แล้ว
In 2011, less than a month after giving birth to her first child, Holly was diagnosed with GBS. She spent 3 months paralyzed from the neck down. After months of hard work and rehabilitation, Holly wrote her book, “Happily Ever After”, to share with others what she went through. Now years later, she is a certified fitness trainer and in the best shape of her life. All of us at ASH would like to ...
GBS Podcast Episode #1 - Sara Ganem
มุมมอง 1062 ปีที่แล้ว
Sara Ganem is a 3rd year university student whose life changed forever on August 30, 2019 when she woke up that morning and suddenly was unable to walk. All of us at ASH would like to thank Sara for letting us share her story If you want to learn more about Sara check out her story here: www.gbs-cidp.org/patient-stories/sara-ganem/ #inspiration #advocay #GBS #Guillain-Barré Syndrome #podcast #l...
Learn about Torbjorn Zetterlund's journey with Guillain-Barré Syndrome
มุมมอง 362 ปีที่แล้ว
"In my professional life a technologist currently specializing in planning Data engineering solutions for organizations. In my private life, I am a keen cyclist that uses my holidays for cycle tourism and to write about my professional and private experiences on my blog" - Torbjorn Zetterlund We at ASH would like to thank Torbjorn for meeting with us and letting us share his story. He is truly ...
ASH Info Session - Winter 2022
มุมมอง 182 ปีที่แล้ว
Welcome to the AdvoSci Health Winter 2022 Info Session! In this meeting you'll get the opportunity to learn about AdvoSci Health's plans for the upcoming winter term and the updates we have made to our team. General Member Form: docs.google.com/forms/d/e/1FAIpQLSdWkSmVGp8hDQpbtep6n82H2PB38OtMq_6xBBbqanu1H0-HlA/viewform?usp=sf_link Discord Invite: discord.gg/MqY83tnFxt More Links: linktr.ee/Advo...
ASH Triple C Event Overview
มุมมอง 542 ปีที่แล้ว
Hey everyone! Are you interested in showcasing some advocacy work for a non-profit organization that focuses on a rare disease? Looking to build your science communication skills outside of school? Well we have an opportunity for you! In partnership with the Cystinosis Research Foundation (CRN) , our student-led club AdvoSci Health (ASH) is giving students a chance to create an infographic/broc...
Intro Meeting [2021-09-24]
มุมมอง 183 ปีที่แล้ว
Welcome to the first AdvoSci Health event! This is an intro meeting where you'll get the opportunity to learn more about AdvoSci Health and what we're planning for the fall term. General Member Form: docs.google.com/forms/d/e/1FAIpQLSdWkSmVGp8hDQpbtep6n82H2PB38OtMq_6xBBbqanu1H0-HlA/viewform?usp=sf_link Discord Invite: discord.gg/MqY83tnFxt More Links: linktr.ee/AdvoSciHealth
Super insightful! Thank you for sharing Sara.
Thank you!🤍