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The Importance of HD-CAB - Operational and Management Team

Clinical Trial Updates - EHDN & Enroll-HD 2024

🎶 Music Therapy with Marlies Brandt 🥁 During the EHA Conference 2023 in Belgium, Marlies gave some Music Therapy classes, where the participants had the opportunity to play with some instruments and share their stories. 💬 "Music therapy is good for your brain because, when given assignments, the patients have to think, concentrate, memorize, take initiative, which stimulates their brain", expla...

🙌 The Many Faces of Huntington's Disease (HD). During the EHA Conference 2023 in Belgium, we had a dedicated session to learn about the different perspectives of living with HD. 🗣️ This was one of the highlights of the conference, as the attendees had the privilege to listen to the real-life experiences of brave HD advocates about being gene-positive, gene-negative, dealing with HD symptoms, ca...

Last day of May Awareness Month 2023 🙌 During the month of May, the International Huntington Association and the European Huntington Association started the social media takeover days! A safe space for the HD community to raise their voices about important topics, such as participating in HD initiatives, some coping strategies, and their own accomplishments 💪 We want to thank to everyone involv...

The European Huntington Association, in close collaboration with the International Huntington Association, created this common booth to connect with the youth at the HDYO (Huntington's Disease Youth Organisation) Congress some weeks ago. If you wonder where you can see the photos of the #HDYO Congress, you can find them here ➡️ bit.ly/EHAphotosglasgow 💜 We are pleased to have met all of you in ...

Rare Disease Day 2023

Svein Olaf Olsen, President of the International Huntington Association, interviews Maaike, an example of strength and hope, with a moving story.

There are several pharmaceutical companies working tirelessly to find a cure for Huntington's Disease. Here's a video from SOM Biotech, explaining SOM3355 used for chorea treatment, a common symptom of HD.

Have you heard of the Joyvest by Lyckna? It's an activity vest that plays music when you move! Carina, from the Huntington's Disease Association (RHS) in Sweden makes a demonstration. This is a physical therapy, highly recomended for working and training your muscles, while also having fun, just like Dina at the end of the video! You can acquire yours here: lyckna.com/

Svein Olaf Olsen, President of the International Huntington Association, interviews Dr. Blair R. Leavitt, CEO of Incisive Genetics, at the EHDN Plenary Meeting 2022. Incisive Genetics is trying to discover and develop novel and potentially curative therapies for serious genetic diseases. Dr. Blair explains what genome editing is and how it can be helpful in the prevention of Huntington's Disease

Svein Olaf Olsen, President of the International Huntington Association, interviews Robert Pacifici, the Chief Scientific Officer in CHDI, at the EHDN Plenary Meeting 2022. They had a great conversation about new updates in clinical trials and the importance of participating in them.

EHDN Plenary Meeting 2022 took place in Bologna, Italy, giving the opportunity for people to reconnect after COVID hit and made in-person meetings impossible. In 2024, the meeting will be in Strasbourg, so don't forget to join us! "The journey of the Huntington gene" clip kindly granted by Gionata #internationalhuntingtonassociation #HD #HDcommunity #huntingtonsdisease #EHDN

Huntington's Disease May Awareness

Motor Impairment in Huntington's Disease

Huntington's Disease Therapeutics

An Overview of Huntington's Disease

Mental Health and Huntington's Disease

Huntington's Disease in the Gulf Region

Genetics in Huntington's Disease

PROOF-HD Trial for Huntington's Disease

Huntington's Disease - Caregiver Experience