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PHighter Tess
United Kingdom
เข้าร่วมเมื่อ 23 มี.ค. 2014
In 2008, Tess Jewson was diagnosed with the rare and incurable heart and lung condition, Pulmonary Hypertension. She is currently under the Royal Brompton for ongoing treatment for her PH.
Tess has since continued to live life to the full and ever since diagnosed has helped to raise awareness for this condition. She is an ambassador for the PHA UK and represented them at conferences in Europe. She has also worked with the BHF.
Tess has decided to share a vlog that gives an insight into her life living with PH and sharing other people's PH life experiences and PH facts and statistics that she has received and researched through other PH accounts and the news.
Tune in from Wednesday 4th September 2019 at 13.00GMT and then every other Wednesday for a new video.
You can also follow Tess' PH journey -
Blog: www.phighter.co.uk
Facebook: PHighterTess
Instagram: PHighterTess
Twitter: maritess_mt
Tess has since continued to live life to the full and ever since diagnosed has helped to raise awareness for this condition. She is an ambassador for the PHA UK and represented them at conferences in Europe. She has also worked with the BHF.
Tess has decided to share a vlog that gives an insight into her life living with PH and sharing other people's PH life experiences and PH facts and statistics that she has received and researched through other PH accounts and the news.
Tune in from Wednesday 4th September 2019 at 13.00GMT and then every other Wednesday for a new video.
You can also follow Tess' PH journey -
Blog: www.phighter.co.uk
Facebook: PHighterTess
Instagram: PHighterTess
Twitter: maritess_mt
Signing Music Therapist Business Introduction
Even though I have Pulmonary Hypertension, I am very thankful that I am stable enough to work a few hours. It may not be much, but being able to do something helps with my mental health. I still have to use my oxygen before and after work. Having my own business and being my own boss means I can work around my health needs. It enables me to choose the hours and days that I work.
To find out more about my business:
Website: www.signingmusictherapist.co.uk
Instagram: signingmusictherapist
Facebook: signingmt/
To find out more about my business:
Website: www.signingmusictherapist.co.uk
Instagram: signingmusictherapist
Facebook: signingmt/
มุมมอง: 39
วีดีโอ
S1. Episode 10
มุมมอง 132 ปีที่แล้ว
In this episode we speak about how I learn to ride a bike again, with the help of electricity! E-Bike Blog www.phocusonlifestyle.org/my-bike-has-given-me-freedom/ Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt
S1. Episode 9
มุมมอง 52 ปีที่แล้ว
In this episode we speak about my thoughts and feelings of reaching another PH milestone. I am now 31 and 14 years post Pulmonary Hypertension diagnosis. I am so grateful and blessed to still be living life to the full since my diagnosis. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt
S1. Episode 8
มุมมอง 32 ปีที่แล้ว
It is PH Week 2021 in the UK (1-7 November) In this special "PH Week" episode we talk about why raising awareness for PH is so important. A give a huge thank you to the PHA UK for everything they continue to do for all those with Pulmonary Hypertension! Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess marites...
S1. Episode 7
มุมมอง 12 ปีที่แล้ว
In this episode we speak about making PH Friends and how they are important to us on our PH journeys. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt
S1. Episode 6
มุมมอง 52 ปีที่แล้ว
In this episode we speak about how PH is an invisible illness for many PH patients. Having an invisible disability can be difficult and sadly we have to deal with people who don't know and understand about invisible disabilities. Hopefully listening to this podcast, it will help to raise even more awareness. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: ph...
S1. Episode 5
มุมมอง 32 ปีที่แล้ว
In this episode we speak about how PH impacts us mentally and emotionally. We also let you know how you can get the help and support you need if you are struggling to deal with your PH journey. Anxiety UK - www.phocusonlifestyle.org/video-with-anxiety-uk PHA UK Support Line - www.phauk.org/living-with-pulmonary-hypertension/emotional-support-via-our-listening-line Email: phightertesspodcast@gma...
S1. Episode 4
มุมมอง 12 ปีที่แล้ว
In this episode we speak about how PH affects the working lifestyle and the financial impacts it brings to everyday life. And my recent visit to A&E at the end of the episode! True Financial Impact of PH survey: www.phauk.org/app/uploads/2019/07/Key-evidence-final.pdf Benefits Help: www.phauk.org/living-with-pulmonary-hypertension/benefits-and-financial-help Email: phightertesspodcast@gmail.com...
S1: Episode 3
มุมมอง 43 ปีที่แล้ว
In this episode we speak about how I coped with dating despite having a chronic illness and how I went about it. Also, my relationship with Terry and how PH has impacted our relationship . Terry's carers blog: www.phocusonlifestyle.org/together-we-can-do-this Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess m...
S1: Episode 2
มุมมอง 413 ปีที่แล้ว
In this episode we speak about my actual diagnosis of PH and how it changed my lifestyle. Also, how I coped with important decisions that were happening around that time. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt
S1: Episode 1
มุมมอง 93 ปีที่แล้ว
In this episode we speak about my life from child to adult and how I struggled with symptoms of what I thought was asthma, but turned out to be Pulmonary Hypertension. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt You can also Listen on: phightertesspodcast.buzzsprout.com podcasts.apple.com/us/...
Podcast Trailer
มุมมอง 143 ปีที่แล้ว
This trailer talks about who we are, what this podcast is about, when you can catch us each week and how the listeners can get involved in the show. Email: phightertesspodcast@gmail.com Blog: www.phighter.co.uk Socials: phightertess PHighterTess maritess_mt You can also Listen on: phightertesspodcast.buzzsprout.com podcasts.apple.com/us/podcast/phighter-te...
Don't Rush PHighters
มุมมอง 5054 ปีที่แล้ว
We hope you enjoy this Don't Rush Challenge featuring people diagnosed with Pulmonary Hypertension, known as PHighters. Thank you to all those who got involved! Pulmonary Hypertension (PH for short) is a serious condition that causes high blood pressure in the blood vessels connecting the heart and lungs (pulmonary arteries) PHA UK - www.phauk.org PHocus - www.phocusonlifestyle.org Social Media...
COVID 19 As A High-Risk Patient
มุมมอง 274 ปีที่แล้ว
I will be returning to this channel with new videos, but here is a quick video to let you know how I am coping and feeling about the Coronavirus pandemic. "Like many of you I’m regularly following the news regarding the Coronavirus. A lot of people think this is a big hype, but when you have a chronic illness, it is still very worrying. Before this pandemic, I worried about getting the flu or p...
Organ Donation
มุมมอง 465 ปีที่แล้ว
Season 2 Welcome to Vlog #1 - This week 2nd-8th September 2019 is Organ Donation Week, so as I need a double lung transplant one day, I decided to join in and help to raise awareness for Organ Donation. Register here: www.organdonation.nhs.uk/register-your-decision/register-your-details/ Please leave a comment below if you enjoyed watching this, or if you have any specific topics of PH you woul...
PH Awareness Week 2 - Help To Raise Awareness for PH
มุมมอง 335 ปีที่แล้ว
PH Awareness Week 2 - Help To Raise Awareness for PH
Yayy! I love it! Thank you for including me ♥️
Stay safe, all the best for the upcoming months.
Great 👍🎉
Hi tess I have re gently been diagnosed with pulmonary hypertention an heart failure I've always had congenital heart disease , I'm off to Sheffield ph clinic 6th of June, I've subbed to your channel sub bk if you wanna x best of luck with everything x
Totally agre with you, music is everthing! I was learning the clarinet but had to give it up too because of PH. I would love to play an instrument!
Hi there! Moved the tips. I love travelling too and it sure takes a lot of planning to get things right. I’am not from the EU, so I was windering, what is this badge you talk about?
I would love to connect with you on social media, do you have facebook or messenger so we can chat? Please find me on my facebook page, Tess and PH and send me a message :)
Loved this! It’s so true. Why use the word disabled at all? I hope I can find such a supportive partner who understands what life is like with PH someday. The two of you are #relationshipgoals!
Well done! As a PH'er myself I try and keep a PMA (Positive Mental Attitude) But not always as easy as it sounds.
Rebecca is my sister. Thank you for mentioning her in your video, she would have liked that. On the run up to her funeral, we will be setting up a donation page for the PH charity.
Thank you for commenting Calvin, I appreciate the comment so much! I will keep an eye out for the donation page, so I can share it. Thinking of you and all the family.
PHighter Tess www.justgiving.com/Tom-Nightingale1?Whatsapp Just giving page just been set up for PH in memory of Rebecca
Great vid, NHS staff are true hero's, Without them I would not be here now Thanks to The Golden Jubilee & Papworth staff over the past 5 years through diagnosis pre op tests and the excellent work of all Staff involved at Papworth Mallard ward and the Duchess ward and Annie Ponnaberanam and Mr C Y NG. If it wasn't for there care and professionalism I no doubt would not be able to write this today. Its the staff in such units who make the NHS everything good that it is. Sadly some Govs have let them down.
Fantastic video Tess 👍
Tess, keep up the good work. I love your videos and you are doing a great job for us PHers!
Cant thank you all enough at PHA.uk.org for the work raising awareness . The video quality is top drawer , unfortunately the volume levels where hard to hear at some points . I instantly tried to switch captions on, sadly only offered spanish lol . Im sure you will address these when you can. Keep up the good work PhighterTess .
Thank you for commenting! Yes we struggled with the voice levels on this video, as one of the camera's messed up during recording! However we're currently working on the volumes for the next video to make sure it's louder! I really appreciate your opinion and thank you for your the kind words!
PHighter Tess your more than welcome. I hope you manage to get the camera sound thing sorted without costing to much .
Thank you for watching today's video... I am so excited to be going the conference in Rome! I look forward to seeing you all again on Wednesday at 13:00GMT for the next video installment!
Fab video Tess! I loved the piano at the start. Can't wait for the big announcement on Friday!
Thank you! Thank you for watching my videos, I appreciate your support :) x
Loving the videos Tess. X
Thank you! I'm so pleased you're loving the videos! Thank you for watching my videos, I appreciate your support :) x
Thank you so much for watching my video! I hope you enjoyed it! As I said, any suggestions for PH topics or Questions you want answering then please feel free to contact me! Thanks again, see you all next week! Tess 💜
Good luck from rebecca and tom
Thanks Rebecca and Tom for following my videos! :) x
Thank you so much for watching my video! I hope you enjoyed it! As I said, any suggestions for PH topics or Questions you want answering then please feel free to contact me! Thanks again, see you all next week! Tess 💜
Thank you for sharing your experience.. i am suffering from Ph too. It is tough for us.. But we can still be hopeful. Love from India🙏
Thank you for watching my video. I hope you can continue to follow my PH videos. I hope you are doing well. Take care.