Sarahfh91
Sarahfh91
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A Day In The Life: HAN Week 2021
Welcome back! This video is an updated version of last year's Home Artficial Nutrition Week vlog to show you a day in my life with HAN. In November 2020 I began home total parenteral nutrition (TPN) which is IV nutrition so my day with artificial nutrition is a little different now, if you want to find out how give it a watch!
มุมมอง: 88

วีดีโอ

How I Set Up My Tube Feeds
มุมมอง 1124 ปีที่แล้ว
Following on from my "A Day In The Life" vogued for Home Artificial Nutrition awareness week here is a video showing in more detail how I set up my tube feeds and administer my medication down my feeding tube.
How I Set Up My IV Fluids
มุมมอง 934 ปีที่แล้ว
Following on from my "A Day In The Life" vlog for Home Artificial Nutrition awareness week here is a video showing in more detail how I set up my IV fluids each night. As I mentioned in the video this is just my hospital's protocol and if you're also on home IV fluids or TPN you should always follow your hospitals protocol as different hospitals have different protocols.
About Me
มุมมอง 1524 ปีที่แล้ว
A little about me, my diagnosis and my journey with artificial nutrition so far.
A Day In The Life With Artificial Nutrition
มุมมอง 6384 ปีที่แล้ว
I've filmed this as part of the PINNT HAN Week celebrations to help raise awareness of Home Artificial Nutrition and what it entails. I am tube fed and receive IV fluids a well. I'm a 29 year old woman living in Derbyshire in the UK and have been artificially fed for around four and a half years. Three of these years have been tube fed, one and a half prior to that were spent on Fortisip drinks...

ความคิดเห็น

  • @clmmin9745
    @clmmin9745 หลายเดือนก่อน

    How are you? 🙏

  • @clmmin9745
    @clmmin9745 5 หลายเดือนก่อน

    How are you? Thank you for sharing big hugs.

  • @ahmedalhsnawe8986
    @ahmedalhsnawe8986 8 หลายเดือนก่อน

    صديقتي صوري رنين مغناطيسي للوعيه والشرايين داخل الدماغ كل ما زادت الحركه الجسم زاد الضغط النخاع الشوكي على الوعيه والشرايين ولا يصتطيع يضخ الدم للوعيه واشرايين يصبح تكلسات في الوعيه والشرايين تتوقف اجهزت الجسم عن الحركه بشكل صحيح😢

  • @GeorginasJourney
    @GeorginasJourney 3 ปีที่แล้ว

    Great video, Sarah! x

  • @ecologist_to_be
    @ecologist_to_be 3 ปีที่แล้ว

    Love Darcy being super helpful like all cats. 🥰 lol

  • @nancyfahmy9056
    @nancyfahmy9056 4 ปีที่แล้ว

    Well done 👍 very informative x

  • @yellow-stand-u8wdn2
    @yellow-stand-u8wdn2 4 ปีที่แล้ว

    I'm really curious about all this. Someone I know is using this but I really do not want to ask questions. The questions I'm looking answers for are more fundamental, like why do you have to take it? How does it compare to other GI treatments? What purpose does the treatment serve? Seeing all the cleaning down of your environment before you can even work is eye opening. It's like a job in and of itself. Thanks for the video, I'd love to see more.

    • @sarahfh9137
      @sarahfh9137 4 ปีที่แล้ว

      Most people with some form of artificial nutrition are happy to answer questions, it's so different to the norm we expect people to be curious. It varies person to person their reason for being fed artificially, for some people it is because they are unable to swallow, others are unable to digest food or absorb the nutrients from food. In terms of comparison to other GI treatments it really depends on the reason for the artificial nutrition, the condition and what other treatments. For some conditions medications will be enough to control them, some can be managed surgically and for others a mixture of medication, surgery and/or artificial nutrition. The purpose of artificial nutrition is to keep the patient nutritionally stable and ultimately alive when normal food can not do that. For me personally I have a condition called gastroparesis, this means my stomach doesn't empty normally so my feeding tube bypasses my stomach and goes straight into my bowel. I also take my medication by the tube, the medication is to manage my symptoms as there is no cure for gastroparesis. For some people with gastroparesis medication controls it, but mine is severe so a feeding tube was needed. It is basically a job in and of itself yes, I spend many hours a day doing all my medical treatments and spend 23 hours a day connected to a machine. But it keeps me alive and for that I'm grateful.

    • @yellow-stand-u8wdn2
      @yellow-stand-u8wdn2 4 ปีที่แล้ว

      @@sarahfh9137 Thanks for your response. I've never seen this in the kind of detail laid out in your video so thanks for making this. We're actually the same age, I was born in 91 too, and when you said you got sick at 13 it made me think about my own life at that age and how you've been dealing with this for all these years. How do you think that has affected your outlook on life versus someone else your age? How stable is your health? The girl I know (who has crohn's disease) has been in and out of hospital every few months for years and it has caused so much disruption in her life. Sorry if I'm asking too many personal questions.

    • @sarahfh9137
      @sarahfh9137 4 ปีที่แล้ว

      @@yellow-stand-u8wdn2 I'm glad you've enjoyed it. Oh cool, how scary is the whole 30 nextyear thing?! I think it has probably made me stronger and I definitely have learnt to appreciate life more as well as the little things. It has meant that in my personal life I'm very behind my peers, I'm still at home after getting too ill a few years ago to manage my own place anymore and I'm yet to find someone who can handle what my health problems mean. I am usually fairly stable, I spent a long time last year in hospital but have only had 2 hospital admissions this year so that's a relief. A few of my friends have Crohn's, it is such a hard disease to live with as it is so unpredictable. I hope your friend gets some stability soon, it is exhausting constantly being in and out of hospital. I'm a pretty open book don't worry :)

    • @yellow-stand-u8wdn2
      @yellow-stand-u8wdn2 4 ปีที่แล้ว

      @@sarahfh9137 Hi, apologies I read your comment and forgot to reply. Don't worry about living at home still - I am your age, without significant health problems, and I still live at home. I think it's normal for our generation to live at home well into our 20's and 30's. Your videos have been really interesting for me to watch and I'd love you to make more. You're looking great by the way.

    • @sarahfh9137
      @sarahfh9137 4 ปีที่แล้ว

      @@yellow-stand-u8wdn2 thank you, that's very true I just forget as most of my friends are living independently with partners. I've got a video in the pipeline I just need to get it done so hopefully in the next week I will have a new video :) no idea what to film next though!

  • @michaelazupa9150
    @michaelazupa9150 4 ปีที่แล้ว

    Love you so much girly! 💖

  • @GeorginasJourney
    @GeorginasJourney 4 ปีที่แล้ว

    Also, I’d love to learn more about the subcut stuff- there doesn’t seem to be too much about it onTH-cam, so that would make for a really interesting video for you to talk about what you &/or nurses do for you to manage it at home x

    • @sarahfh9137
      @sarahfh9137 4 ปีที่แล้ว

      That's a great idea thank you, I will add it to my "to film" list as I am totally independent with it and do it all myself now. Thank you for watching I really appreciate it x

  • @GeorginasJourney
    @GeorginasJourney 4 ปีที่แล้ว

    This was such a great video showing what it’s like to live with a feeding tube & central line!