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Thanks so much. Very informative. We're discussing it in next week's Ovacome book club.

Super presentation, candid and very helpful to a clear cell patient.

Can I ask Jackie....what were your previous lung issues before your diagnosis? I'm wondering as I'm a 34 year old and recently developed 3 pulmonary embolisms. I'm worried it maybe related to ovarian cancer

Thank you for sharing your story. I just want to hug you and say sorry for your experience. You’re amazing. Sending so much love.

Hi, really hoping someone picks this up. I’m a staff nurse in gynaecology and often deal with ovarian cancer we and ascites drainage, I’d be interested in reading the research that Dr Roshan Agarwal produced, we have a 500ml/hr clamp and release protocol and would like to understand more about how the procedure is managed following the research and if this is criteria led in terms of main streaming patients who are suitable for faster drainage etc. Many thanks

A wonderful inspiration to all of us. 👏😘🤗🙏

I mis knowing how to breath when I squish button, or other parts of mig core

Very helpful.

I was diagnosed with ovarian germ cell cancer when I was 19 and had to undergo chemotherapy. Now, at the age of 21, I have been in remission for about a year and a half. I wanted to express my gratitude for the informative video you posted on the topic. It has answered many questions that my doctors couldn't or wouldn't provide me with about my cancer and treatment. Despite being the one undergoing treatment, I was often told that I was too young to understand. Thank you so very much.

My father was in BEVACIZUMAB for about 6 months for every 15 days now he is restarting the drug after 4 months. How's the expected response ❓

So happy for you!

In 2012 at 28 yo I had stage 1c serous BOT. Had salpingo oophorectomy. In 2017 at 33, I had a reoccurrence and at the time of diagnosis found out that I was 6 weeks pregnant. CA125 was also elevated. I decided to wait to deliver my son and had complete hysterectomy in 2018 at 34 years old. I’m curious if there are any cases of a 3rd reoccurrence?

Hope you are doing well now 🙏

I would like to inhibit CDK2 with CVT313 to dephosphorylate the MBYL2/CCL2 axis in EOC…… However, I could not any similar protocol to downregulate this oncogene..?

Ca 125-101 Ca19. 9-199 Cea-103 Borderline overian musions tumer historectomy done... Dr said from ogdscopy and colenoscopy all are normal but my que is why tumer marker then not decreasing

Thankyou for explaining the calcium and muscle connection. I was diagnosed with ovarian cancer stage 4B and had lost alot of weight and muscle mass from 79kg to 45kg. I've been given calcium and vitamin D3 to take daily.

Will trace ascites disappear with the right chemotherapy

very clear presentation and concise and succinct answers to questions, great Doctor! I mean there were hardly any 'may be' / 'it depends' / etc. type answers. thanks Doctor!

Great talk! Can you send me the pdf slides??

I was diagnosed with ovarian cancer 4 months ago and a pigtail catheter was inserted into my abdomen by a interventional radiologist under anesthesia. My husband drains the accites at home. I'm on to my 4th chemo therapy and the accites has greatly reduced. Before chemo 8 litres of accites was usually drained every two to three weeks. Now its 1 litre every 3 weeks. Also my blood pressure is monitored at home during drainage as once it starts to go low the drainage is stopped.

My mom has adenocarcinoma seruos ovarian cancer. ..but i don't know if she has the BRCA mutation ...

(Please note that Tamoxifen does nothing for most ovarian cancers. Only a small minority of ovarian cancers have an estrogen aspect. Tamoxifen, an estrogen-blocker, will only help estrogen-sensitive ovarian cancers.)

Hi, I diagnosed with borderline serous ovarian tumour stage 1A . Cyst was 12cm and it has removed by unilateral ophractomy. Cyst removed intact . Please guide us it serious? For now they put me on 3 month follow up .please guide They suggest me 3 month

Dear Sue, sending you love strength & hope.

Dear Jackie, thank you so much for sharing your story. Hopefully you are doing well still & coping the best you can. You have been through so much & are so brave as well as amazing. It isn't just the cancer, it's so often the highly questionable bedside manner that causes so much unnecessary stress & trauma to the sufferers as well as their families. There needs to be training in place, it's been going on for too long. I send you so much love peace & hope.

Good explanation

Thank you so much for the really helped to understand things

I have Stage 3 Serous Ovarian cancer and my only symptom was frequent urination and an occasional pain by my hips. This cancer is so sneaky!

Thankyou so much for sharing your story. I have searched the internet and not found another story so honest and detailed. Praying you stay in remission.

Ovarian clear cell 1A 1 surgery Refused chemo and 2nd surgery Ca 125 - 799 (before surgery) Ca125 - 32 (after)

I am suffering with ascites wake up with terrible heartburn. Gone through half bottle of gaviscon. Any help. I have had 2 drains. Wish there was a more comfortable way to remove fluid.

She did such a great job explaining everything. So clear and thorough. Thank you Mary!!

Thank u so much for the story Mary , really impressive

Brave lady. Glad your mum was insistent to get you looked at. Quite a traumatic story x

❤️

I hope Sue is still well, and send solidarity from a fellow OC patient.

So beautiful lady ,any follows up🙏

How about endometriosis and pelvic lame ascites?

Thankyou so much for this livestream, as an endometroid ovarian cancer patient it can be dispiriting when every question seems to be answered with “we dont really have any data” or “the trials didn’t break that down”, so it is brilliant to hear about the work that is going on and planned, and the knowledge that is being learned about these rarer cancer types. Thankyou.

Thankyou so much for a fascinating and informative webinar! And nice to hear endometroid ovarian cancer being mentioned as I rarely find any info on it anywhere. If I could ask any questions it would be the following 1. CA125 isnt diagnostic hence screening doesnt work - is that the case at all levels of CA125 or is there a level (eg mine was over 1000!) where actually it pretty much is going to be cancer? 2. Do we know if bowel cancer screening programmes have reduced the incidence of ovarian cancer which has spread to the bowel (or vice versa if that is a possible pathway)? 3. Is there any more definitive work on whether phytoestrogens in food are beneficial for oestrogen receptive ovarian cancer patients (as they seem to be for breast cancer patients I think from research) bc eating them makes the body think “ive got enough oestrogen” or harmful because they might theoretically have an effect on the body as if they were oestrogen. Thinking of the soy, flax type foods. Thankyou!

Thank you for sharing.. Lovely lady..

Thank you

🙏😢😭😭

Is this okay to share on Let's Talk Hope?

Lizzie is excellent. Wish she was my personal trainer. :o)

Please I am Bangladesh help me

ovacome Which country? Is managed from

I just found this video, thank you. Hopefully I can get some guidance. My current doctors here are not helpful in the least.