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PWS Australia
Australia
เข้าร่วมเมื่อ 28 เม.ย. 2015
We are a small not-for-profit support group that provides awareness, education and support to enhance the quality of life of people living with Prader-Willi Syndrome and their families. Our website is www.pws.org.au.
We're on Facebook (PWS Australia) and Instagram @go_orange_for_pws.
We're on Facebook (PWS Australia) and Instagram @go_orange_for_pws.
Prader-Willi Syndrome - What does it all mean?
Prader-Willi Syndrome - What does it all mean?
มุมมอง: 3 199
วีดีโอ
Unique Behavioral Features of Prader-Willi Syndrome.
มุมมอง 1.1K6 ปีที่แล้ว
Unique Behavioral Features of Prader-Willi Syndrome.
Newborn Diagnosis
มุมมอง 8847 ปีที่แล้ว
Informative video for medical and allied health professionals to raise awareness of PWS, outlining common traits to look for when considering a diagnosis. Early diagnosis is critical, enabling therapeutic and medical plans to be put in place.
PWS - Beyond a Diet
มุมมอง 4577 ปีที่แล้ว
This video speaks about the role and relationship of a dietician in supporting a person with Prader-Willi Syndrome. Produced by the PWS Association of Australia, with funding from the National Disability Insurance Scheme (NDIS).
PWS - The Medical Perspective
มุมมอง 2817 ปีที่แล้ว
This video provides advice for doctors who are caring for a patient with Prader-Willi Syndrome. Produced by the PWS Association of Australia, with funding from the National Disability Insurance Scheme (NDIS).
First steps to understanding and managing Prader-Willi Syndrome (PWS)
มุมมอง 5407 ปีที่แล้ว
This video provides an overview of PWS. It outlines the causes and characteristics, plus the many health and wellbeing issues associated with PWS. This resource is designed for those who support people who have PWS. Supporters include medical professionals, allied health professionals, residential and day program support staff and other workers. The information and practical advice will help th...
Learning with Prader-Willi Syndrome
มุมมอง 3.9K8 ปีที่แล้ว
A special education teacher, experienced with Prader-Willi Syndrome (PWS) explains some of the characteristic behaviours relevant to a classroom situation. Useful management techniques are described to help children and young people gain skills for social interactions and greater independence. Funded by the National Disability Insurance Scheme (NDIS), Australia.
Complications of Obesity DR T OMOORE SULLIVAN
มุมมอง 839 ปีที่แล้ว
Complications of Obesity DR T OMOORE SULLIVAN
The Prader-Willi Syndrome Oxytocin Anomaly PROF S EINFELD
มุมมอง 2389 ปีที่แล้ว
The Prader-Willi Syndrome Oxytocin Anomaly PROF S EINFELD
Growth Hormones for infants DR E SCHEERMEYER
มุมมอง 809 ปีที่แล้ว
Growth Hormones for infants DR E SCHEERMEYER
Overview of PWS including Phenotypes J FORD
มุมมอง 909 ปีที่แล้ว
Overview of PWS including Phenotypes J FORD
Bariatric Surgery for People with PWS PROF G WITTERT
มุมมอง 1969 ปีที่แล้ว
Bariatric Surgery for People with PWS PROF G WITTERT
Welcome and Conference Open T PERCEVAL T MAGUIRE
มุมมอง 959 ปีที่แล้ว
Welcome and Conference Open T PERCEVAL T MAGUIRE
Growth Hormones for adults ASSOC PROF C HOYBYE
มุมมอง 299 ปีที่แล้ว
Growth Hormones for adults ASSOC PROF C HOYBYE
Growth Hormones for children ASSOC PROF P HOFMAN
มุมมอง 999 ปีที่แล้ว
Growth Hormones for children ASSOC PROF P HOFMAN
Insulin-mediated signalling pathway is defective in primary fibroblasts DR E FORTUNATI
มุมมอง 299 ปีที่แล้ว
Insulin-mediated signalling pathway is defective in primary fibroblasts DR E FORTUNATI
Paravertebral muscles and scoliosis in PWS DR N MURAKAMI
มุมมอง 1869 ปีที่แล้ว
Paravertebral muscles and scoliosis in PWS DR N MURAKAMI
PWS Genetic Subtypes and Clinical Neuropsychiatric diagnoses DR N WEISENSEL
มุมมอง 839 ปีที่แล้ว
PWS Genetic Subtypes and Clinical Neuropsychiatric diagnoses DR N WEISENSEL
Living with an adult with PWS Part 1 H ANDERSON
มุมมอง 1569 ปีที่แล้ว
Living with an adult with PWS Part 1 H ANDERSON
Inclusion in a mainstream school S HIGGINS
มุมมอง 1349 ปีที่แล้ว
Inclusion in a mainstream school S HIGGINS
Housing and Accomodation 04 C ADAMS VINING 1
มุมมอง 409 ปีที่แล้ว
Housing and Accomodation 04 C ADAMS VINING 1
My sister has PDS and she will turn 40 this year. My sister is blessed to have my parents.
Such a good 'first' video - so well presented! Well done!
I don’t have PWS. But I do have optic nerve hypoplasia associated with panhypopituitarism, which is how I have hypothalamic obesity. I don’t have any lesions are tumors in the hypothalamus. But that my hypothalamus is Ectopic. Have you ever looked at results with the sleeve gastrectomy for patients with PWS?
Has to be sleeve gastrectomy and saxenda or ozempic.
Very informative. Thank you.
I have only just recently heard bout this syndrome .. And was wondering if people gravitate towards the same types of food ?? I mean such as carbs or high sugar or salt ?. Is their bodies craving a particular protein or something ?. I couldn't help but notice on the videos I have seen when the kids did manage to get into a pantry carbs seemed to always be on the list .. Anyways thanks for the information. I learnt a lot .
Fantastic presentation Erin ! Congratulations we're very proud of you. Marj and Schimma
por que todo en ingles avemos latinos solo abla hispana y que no somos importantes ni siquiera se puede subtitular a el español......