The Run To Breakthrough
The Run To Breakthrough
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Finding Resources
“Living with mild Cerebral Palsy means I live between two worlds. I live in the disabled world and the non-disabled world. Sometimes it can be tough to figure out exactly where I belong.”
Irene tells her story of growing up in-between two worlds and navigating the challenges that come with that.
She shares how challenging it was to find resources and how if she had to learn to become the best advocate for herself and that’s why inclusion is so important, not only to her, but to our society.
“Inclusion is really important and for me what inclusion means is being seen, heard, valued, and included. I want people to understand that all people with disabilities should have a great deal of help and support.”
Help support INCLUSION by heading to the link in our bio and support by: ➡️ sharing this post ➡️donating ➡️creating a team ➡️getting involved!! All funds go directly back to creating inclusive runs, community events, and grants for families and individuals like Irene 💙
#theruntobreakthrough #inclusion #100miles #bepartofthechange #ultrarun
มุมมอง: 71

วีดีโอ

STOP #9: Employment for Adults with Disabilities
มุมมอง 243 หลายเดือนก่อน
“Over the last couple of years I have went to several interviews that I was either qualified for or over-qualified for and when I went in for interview, they all ended the same… ‘Thank you for coming in we will be in touch soon.’” STOP #9: Employment for Adults with Disabilities DonnaJean (DJ) shares her story as a young adult navigating the world of employment with a disability. She shares how...
STOP #8: Lack of Adult Changing Tables in Public Spaces
มุมมอง 693 หลายเดือนก่อน
“Dino loves to go out anywhere in the community and our daughter, Ella, wants to go and do things and planning those trips is really challenging. When Dino was younger he wasn’t stable medically so it was hard to go out and do things, but then as he is stable and healthy then we realized we want to go out, but if we are going to be at the aquarium for 5 hours, we have nowhere to change him. Thi...
STOP #7: One Parent Having To Stay Home & Care for Their Child
มุมมอง 593 หลายเดือนก่อน
“Getting competent nursing to come in has been a challenge. If we do not feel comfortable we will not send her in with that nurse.” “…Agencies do not put any effort into doing any type of screening. We’ve heard, “Nah, she looks too heavy for me” or “She is probably too much of a burden for me”. STOP #7: One parent having to stay home to care for their child Kathy and Gary share their journey wi...
Navigating The System
มุมมอง 363 หลายเดือนก่อน
“Being in the NICU for that long is, for any parent, traumatic. You don’t know if you’ll get a call in the middle of the night that your daughter has passed away. And dealing with that constantly was a lot...” Listen in to Patrick tell their story with their daughter, Brielle who is 3 years old and diagnosed with Spastic Diplegic Cerebral Palsy. He shares how not only is there the emotional wei...
STOP #5: Grief and Fear
มุมมอง 454 หลายเดือนก่อน
“Nobody takes care of her like we do. She’s nonverbal she has physical limitations and we know her inside and out - what makes her upset, what calms her… …and to think that one day we might not be here to be that support for her is very scary. “ STOP #5: Grief and Fear - “What will happen to my child when I’m gone?” Daina, tells their story with their daughter, Charlotte, who is 17 years old an...
STOP #4: Insurance Denial of Medically Necessary Equipment & Services
มุมมอง 184 หลายเดือนก่อน
“I can’t say that the person who denies my daughter’s medication does not care. But I can say they don’t know much about the condition; They don’t know much about why she needs the medication; They don’t know anything about the seizures that my daughter has at night and everyday…. A person making a decision to approve or deny a medication based on an algorithm or a pattern or just standard oper...
STOP #3: Lack of Accessibility in Public Spaces
มุมมอง 434 หลายเดือนก่อน
“What I’ve always found challenging is that I don’t see a lot of people like me in my day to day. I’ve wondered where are the other people that look more like me? That’s always surprised me.” STOP #3: Lack of Accessibility in Public Spaces Kerry dives into her own story in navigating her life with a diagnosis of Spastic Diplegia. She talks about how statistically you’d think you would see more ...
STOP #2: Having To Find Resources On Your Own
มุมมอง 424 หลายเดือนก่อน
“There’s not a book that we can open and tell us all the opportunities that there are so I don’t think we’ll ever feel like we’re done looking… …She’s an amazing person, but that’s not why she deserves the best from the world. Every child deserves that.” STOP #2: Having To Find Resources On Your Own Kate tells her story with her daughter, Allie, and how challenging it has been throughout her en...
STOP #1: Limiting Beliefs
มุมมอง 385 หลายเดือนก่อน
“[Nathan] was a micro preemie, born at 26 weeks weighing 1 pound 10 ounces. He had necrotizing enterocolitis where part of his intestines died. So his stomach shut down and he also had a grade IV brain bleed. He had a craniotomy at 3 days old. He was in the NICU for 3 months and he finally got to come home after they told us he wouldn’t walk or talk or do any of the things and that we should si...
Driving Change and Building an Inclusive World
มุมมอง 665 หลายเดือนก่อน
If you want to know the WHY behind this organization, how we plan to make a huge impact, and the inside scoop about this year’s Run To Breakthrough 100 mile run, then you won’t regret watching through this clip! ❤️‍🔥 This is only the very start of something REALLY impactful and REALLY beautiful. We are ready to give opportunities to individuals and these families to be part of something MUCH bi...
The Run to Breakthrough 2021
มุมมอง 55 หลายเดือนก่อน
Running for me has always been a journey. Whether it be pushing myself past limits, overcoming mental challenges, or working towards races of my dreams, I have always found peace and learned more about myself on these journeys than I could even describe. Inspired by the stories of Dick Hoyt competing in races with his son Rick, I’ve envisioned myself running while wheeling clients of ours and c...