We're delighted to launch this short animated video, produced for the Fragile X Society by Animation Explainers, to mark Rare Disease Day (28 February 2023), to help raise awareness of Fragile X Syndrome and associated conditions.
Effective coordination of care is essential to help people living with Fragile X Syndrome and their families to minimise the impact of multiple healthcare appointments on their busy lives and help healthcare professionals to work together effectively to provide high-quality and joined-up care. For Rare Disease Day 2023 we are working with Rare Disease UK and a wide range of organisations that support people living with rare conditions to raise awareness of how well-coordinated care can make a real difference to people’s quality of life. You can find out more at Rare Disease UK's Rare Disease Day website.