Hyperacusis Central
Hyperacusis Central
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Barbara’s Hyperacusis Story (Captions in English and French)
Hyperacusis Central's latest video features Barbara, whose life changed dramatically overnight. She woke up one day with extreme tinnitus that worsened over time and eventually led to both loudness and pain hyperacusis. Everyday activities became unbearably painful for her-she couldn’t flush a toilet, be in the kitchen, or leave her home unless absolutely necessary. Her life has come to a complete standstill, with no socializing, family gatherings, or dining out. As Barbara puts it, "All the pleasures of my life are undermined by this condition."
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มุมมอง: 687

วีดีโอ

Sound of Tinnitus
มุมมอง 3568 หลายเดือนก่อน
⚠️ Sound Warning ⚠️ If you have hyperacusis, we advise you to turn your volume down when watching this video. Ever wonder what it sounds like to those who suffer from Tinnitus? #TinnitusWeek #TinnitusAwarenessWeek #Tinnitus #ReactiveTinnitus #TinnitusAwareness #Hyperacusis #HyperacusisAwareness Website: hyperacusiscentral.org/ Instragram: hyperacusiscentral Facebook: facebook.com...
Hyperacusis Central | Channel Trailer
มุมมอง 540ปีที่แล้ว
This promotional video places delves into the intricacies and the profound impact of the rare and little-known medical condition known as Hyperacusis. It provides a brief exploration into thisb condition by shedding light on its various aspects and the profound challenges it presents to those who live with it. Eight indiviudals who have been effected by this hyperacusis, share their experiences...
Understanding Pain Hyperacusis: Causes, My Experience, and a Path Forward
มุมมอง 1.9Kปีที่แล้ว
In Hyperacusis Central's latest video, Jon Wallace discusses pain hyperacusis, a condition so rare that it remains unknown to most. Yet, for those who endure its harsh and debilitating effects, it creates a dreadful reality by turning everyday sounds into sensations of stabbing, burning, or aching pain, which often forces sufferers to live reclusive lives. Despite the difficult nature of pain h...
Two Concerts Cost Him Everything- Harrison's Hyperacusis Story
มุมมอง 3Kปีที่แล้ว
Harrison shares his compelling and sorrowful story of how his life was completely altered after experiencing acoustic shock from a concert that resulted in severe pain hyperacusis. This condition has had a profound impact on every aspect of his life. Despite seeking assistance from various professionals, such as audiologists, ENTs, neurologists, and even surgeons, Harrison's relentless pursuit ...
Living in a Noisy Country with Hyperacusis - Lina's Story
มุมมอง 2Kปีที่แล้ว
Today, our new video takes us to Colombia, where another victim of hyperacusis resides - Lina. She developed this condition two years ago and describes what it’s truly like. Her journey - one of sacrifice and profound adjustment-speaks volumes about hyperacusis. The life-altering effects were far-reaching, forcing her to drop a beloved hobby, too: attending dance classes. To compensate for that...
The Sound of Tinnitus
มุมมอง 633ปีที่แล้ว
⚠️ Sound Warning ⚠️ If you have Hyperacusis, we advise you to turn your volume down when watching this video. Ever wonder what it sounds like to those who suffer from Tinnitus? Website: hyperacusiscentral.org/ Instragram: hyperacusiscentral Facebook: hyperacusiscentral/ Twitter: HyperacusisC TikTok: www.tiktok.com/@hyperacusiscentral Donate to Research: h...
Using Ear Protection For Hyperacusis
มุมมอง 935ปีที่แล้ว
Amy and Sebrod discuss their personal choices and explain how each form of protection works for them. Hopefully, this will give you some insight into some of the best choices for ear protection on the market today. Hearing Protection Shown and Mentioned in this video: (Some of these are affiliate links where a portion of the profits will go to Hyperacusis Research) 3M Peltor X5A Earmuffs www.am...
Detecting Tinnitus in the Brain: An Interview with Emilie Cardon, PhD
มุมมอง 3.7Kปีที่แล้ว
Emilie Cardon is a postdoctoral researcher at the University of Antwerp, Belgium. For her PhD, she developed a way to detect Tinnitus in the brain. We asked her if she was interested in doing a written interview with us, and she agreed! In the interview, Emilie talks about her background as a musician, her research, how she came up with the idea to detect Tinnitus, how her research could impact...
Home-bound with Stabbing Pain -Sebrod's Hyperacusis Story
มุมมอง 4.4Kปีที่แล้ว
Sebrod has had Hyperacusis for about two years. At first, he was able to live life fairly normally as long as he wore plugs. However, after a night of clubbing his ears felt like they were on fire. Since that day he has been suffering from ear fullness, burning and especially stabbing pain. “It’s horrendous pain that even when I’m not around any type of noise, it just lingers.” He talks about h...
Whiplash and Concussion from a Roller Coaster- Noelle Foley’s Hyperacusis Story
มุมมอง 6K2 ปีที่แล้ว
Noelle Foley developed hyperacusis and craniocervical instability after getting a concussion and neck injury on a roller coaster in 2019. In her video, she talks about the profound negative effects this injury has had on every aspect of her life, the difficulties finding treatment options for these injuries, and her determination to regain a quality life again. Website: hyperacusiscentral.org/ ...
Brian's Experience with Sound Therapy for Hyperacusis
มุมมอง 5K2 ปีที่แล้ว
Brian discusses his experience with Sound Therapy, also known as Tinnitus Retraining Therapy or TRT, which is often recommended as a treatment for people with Hyperacusis and Tinnitus. He discusses what it is, the theories behind how it works, his personal experiences with it, and when to know if it's causing damage. Effect of Tinnitus Retraining Therapy vs Standard of Care on Tinnitus-Related ...
A Former Musician's Warning: It Could Happen to Anyone- Jon's Hyperacusis Story
มุมมอง 3.8K2 ปีที่แล้ว
A Former Musician's Warning: It Could Happen to Anyone- Jon's Hyperacusis Story
Living with a Person with Hyperacusis
มุมมอง 2.7K2 ปีที่แล้ว
Living with a Person with Hyperacusis
Advice From A Lifelong Sufferer- Amy's Hyperacusis Story
มุมมอง 2.6K2 ปีที่แล้ว
Advice From A Lifelong Sufferer- Amy's Hyperacusis Story
Sound Only Made Things Worse- Brian's Hyperacusis Story
มุมมอง 4.3K2 ปีที่แล้ว
Sound Only Made Things Worse- Brian's Hyperacusis Story

ความคิดเห็น

  • @TheTallulaah
    @TheTallulaah 3 วันที่ผ่านมา

    Thanks for sharing this story. I am experiencing the same thing for 3 years now. Still hoping getting better. We need more research on this topic to help us in this living nightmare.

  • @juniorjunior4087
    @juniorjunior4087 7 วันที่ผ่านมา

    I hve T and H and hve struggled mightingly. All i can do is pray. I already gave up but God is holding me from falling. Ò lord Jesus..i commit all sufferers of this illness. Grace us o lord.

  • @yasmineaydin3507
    @yasmineaydin3507 8 วันที่ผ่านมา

    Merci beaucoup pour votre témoignage. Il serait tant que l'on trouve une solution et des traitements pour nos souffrances au lieu de créer des humains artificiels

  • @Jenjoshstars2012
    @Jenjoshstars2012 10 วันที่ผ่านมา

    For anyone who doesn’t understand hyperacusis believe me you wouldn’t want to endure this. Not only does it shatter your life but it also affects everything and everyone around you. Life comes to a complete standstill. Even living with your family is atrocious. They also have to change their way of life and I mean everything. If anyone wants to discuss hyperacusis or needs any help let’s discuss and try to help each other. Unfortunately the medical field doesn’t know much about this. Only those suffering can Speak of it and we might be able to help each other. Because right now there’s no cure or meds one can take to diffuse the pain and suffering.

  • @LANouveau
    @LANouveau 10 วันที่ผ่านมา

    Merci beaucoup pour raconter votre histoire. C'est importante de savoir que je ne suis pas seule avec ce condition, mais bien sur je ne souhaite pas que personne le suffrir. My heart goes out to you and your loved ones. Please keep hope. There *are* people who have had improvement, and I hope that you will soon become one of them.

    • @babs93160
      @babs93160 10 วันที่ผ่านมา

      Nous sommes nombreux à souffrir seuls, en silence. Parfois, entendre un témoignage similaire apporte un peu de réconfort et de compassion. ❤

    • @Jenjoshstars2012
      @Jenjoshstars2012 10 วันที่ผ่านมา

      It would be great if links were posted here for those suffering from Hyperacusis.

  • @FearIncorporatedBandOfficial
    @FearIncorporatedBandOfficial 10 วันที่ผ่านมา

    Wishing you a swift solution and recovery Barbara from a fellow sufferer-Sending you positive vibes and may healing come to all of us who suffer from this condition

    • @babs93160
      @babs93160 10 วันที่ผ่านมา

      Merci beaucoup ❤ c est très gentil.

  • @juniorjunior4087
    @juniorjunior4087 13 วันที่ผ่านมา

    I got my T and H after covid virus. My world came to a halt. Its a brutal illness. Had to fight off the negativity that sipped into my mind. As a man of faith. I pray for all my fellow partakers of this suffering. ❤❤❤

  • @novadrian
    @novadrian 13 วันที่ผ่านมา

    A comment here mentions "it's been a roller coaster ride" which is an appropriate analogy. The internet has brought it into the open and made me realise zI wasnt the only one.

  • @novadrian
    @novadrian 13 วันที่ผ่านมา

    I've had hyperacusis from the age of 15. I'm 71. Throughout my youth it was never really recognised as something other than imagination. It was 20 years before an article in Modern Drummer magazine gave it a name for me. It was several more decades before I discovered the cause had been firing a machine gun with no protection in the cadet force (obligatory)at boarding school. I'd always assumed it was that nasty thing called Rock. The intolerance to loud sounds has never got better, but intolerance to normal low volume sounds does improve, although setbacks occur, due to loud sound exposure.

  • @sandymcdonald4353
    @sandymcdonald4353 14 วันที่ผ่านมา

    I had successful surgery at the SIlverstein Institute in Sarasota, Florida. I feel your pain! Please take care.

  • @adnanzia9167
    @adnanzia9167 18 วันที่ผ่านมา

    Sorry had to laugh a bit now, the guys talking as if its not cureable...sorry bro but if you need to know how to get rid of it. You dont need research for hyperacvusis, kind of makes me mad

  • @adnanzia9167
    @adnanzia9167 18 วันที่ผ่านมา

    I can totally connect to you the musician. i had tinnitusc😂 and hyperaccusis, and not only that my ears were painful and blocked

  • @adnanzia9167
    @adnanzia9167 18 วันที่ผ่านมา

    Oh by the way you know you can totally cure hyperaccusis, i had it bad, i totally changed my lifestyle, slowly in months started going away. Never knew it even existed.....this video now feels very outdated because its totally cureable but not via your GP

  • @daksh1673
    @daksh1673 19 วันที่ผ่านมา

    Thank you so much for this video. I've also been experiencing this since 2021. And it keeps getting worse.

  • @yasmer9147
    @yasmer9147 24 วันที่ผ่านมา

    I had some thing 😢😢😢😢 ,are you better know?

  • @adnanzia9167
    @adnanzia9167 24 วันที่ผ่านมา

    So glad i came across this, how is it now? Mine hyperaccysis started after tinnitus, it was ao horrible, i never knew what it was. flushing the toilet would sound like smashed glass, noise of ambulance omg was so horrible. no muaic, no mobile phonea, i was ao stuck. It took my a while but mine is totallly gone now. just to let you know audiologists and docors will not help. i had to figure it myself, food was a big big factor, fasted, only ate meat, eggs, fish...lots of water, started getting better, then as soon as i ate any kind of carb, spice, my ears would block, hyperaccuais would worse. im from a science and medical background so went into autophagy mode.....in weeks, slowly started improving, took alot of patience rwfraining from everything, no its gone, tinnitua gone. just thought let everyone know it is very curable indeed..

  • @Noobita_2211
    @Noobita_2211 25 วันที่ผ่านมา

    horrbile mother who doesnt have an emphathy on her own son

  • @dbreiden83080
    @dbreiden83080 26 วันที่ผ่านมา

    This video is 1 year old and I truly hope you have found your way to a better place my brother.. After 3 months I have taken some time off work and am just trying to get back to things slowly.. I was NOT diagnosed with any ear damage or acoustic trauma by my ENT or audiologist they too feel it is mental and stress related.. I have started some medication for the anxiety. It was NOT 100% clear if they diagnosed you with ear damage.. However 1 thing I can tell you is the mental side of this condition is very real and can NOT be dismissed.. You seem to dismiss this and the idea of therapy, and therapy might be a great thing for you to try brother.. I have found with myself that If i wake up in the morning and feel that sound sensitivity it can 1 of 2 ways for me.. I can get depressed into thinking all sounds will hurt me or I can think as positive about the sound as possible. Simple things like turning up the volume slowly on the TV and telling myself "You got this.. It is NOT going to hurt" or driving with the windows down like I always did.. Don't be afraid of it.... Basically your brain gets wired to negative thoughts and patterns tied to sound and the pain follows.. Now I am NOT saying that's all there is to it as certain high pitch noises still suck and who knows how long I will need to get past it? Decibel is still an issue I have to work through it.. The biggest thing I am finding is thinking about Hyperacusis all day is the worst thing you can do.. The brain needs positive vibes.. Staying as positive about this as possible will help. Good luck brother. You can do this..

  • @N0N4M30
    @N0N4M30 หลายเดือนก่อน

    I have both and tinnitus

  • @macstreamer8943
    @macstreamer8943 หลายเดือนก่อน

    We need more research!

  • @babywah3290
    @babywah3290 หลายเดือนก่อน

    Have you changed your diet? High sodium can cause problems, lack of potassium. Chocolates, caffeine in general. It can be some form of allergy.

  • @lastcall170
    @lastcall170 หลายเดือนก่อน

    Im not doubting his case but...I never believed in living in silence. It breeds the very fear that your brain uses to make it worse. I promise you all...I had the same case of hyperacusis for 6 years and used minimal protection around Normal sounds that were under damaging levels. I needed plugs at first for everyday tasks like showering and driving. I used trt training at first but took things further with music therapy and a wide range of natural sounds. I had many setbacks and painful headaches. I kept pushing my limits to combat the fear. I was angry at this and finally defeated it . Best to all of you.

  • @naelbeno6249
    @naelbeno6249 2 หลายเดือนก่อน

    I have pain and burnin Hyperacusis with Tinnitus 😢

  • @TylerSmith-ph4el
    @TylerSmith-ph4el 2 หลายเดือนก่อน

    This may not work for everyone, but this actually saved my life: Try BPC-157. It completely reversed my pain Hyperacusis. I was suicidal and almost gave up, then I found bpc 157. I havent dealt with it for almost a year now. No earplugs, no tinnitus, no sensitivity, NO PAIN. I have to wear ear plugs at concerts, but I would advise that people do that anyways. Try bpc 157. Do your research and make an informed decision. It could change your life.

  • @OurNotSoSeriousLife
    @OurNotSoSeriousLife 2 หลายเดือนก่อน

    Mine is in the treble range. I wear earplugs at work and when I take them out sounds distorted. My ear pain is like a knife.

  • @rebeccagutierrez1960
    @rebeccagutierrez1960 2 หลายเดือนก่อน

    My heart goes out to the people that suffer from this terrible condition. I suffered from this one Sunday afternoon but only for several minutes around eight years ago. It happened like this. My daughter came to visit and I was in my bedroom watching TV when she came into the bedroom. She sat very close to me almost touching my torso area and I told her you're hogging up all the space let me move so you can have more space on the bed. So we chatted for a little bit. My husband was relaxing in the living room. Now, in all this, I had to sort of twist my body in an uncomfortable way just so my daughter could have more space on the bed to sit. It was actually funny. We talked only for several minutes. Then I said, "I gotta get my body out of this weird position." It was either I move way out to the left side of the bed to give her real sitting position room on my bed, or just sit up myself, so I did that. I proceeded to just sit on my bed as we continued talking. I positioned my back to the wall. (I didn't had a headboard). Suddenly my left ear became...bionic! That's exactly what I could call it. The sound coming from the tv seemed extremely loud, my daughters talking was unbearable. I became so confused I felt my eyes open wide I could see the shock in my daughter's face she knew something was wrong. "please stop talking and turn off the tv." I whispered very slowly to her. I could barely stand the sound of my own voice. She gasped! "Mom, what's wrong?" I quickly put my index finger on my lips to motion to her. Be quiet! It's too loud! I pointed towards my left ear as I was also trying to cover them both and I whispered to her, ever so lightly, "I feel like I have a bionic ear." I pointed to my left ear. "Everything seems so loud, I can't take it. I don't know what's going on. I was crying at this point. My daughter had a terrified look on her face and quietly said, " I'm telling dad." She quickly got up. I stopped her. "No, he's going to be frightened. Let's pray." I began to pray with ALL the faith I had in God!!! Quickly, of course. I'm not kidding! This experience terrified me. A few minutes later it stopped. My hearing was back to normal. I believe with all my heart that what caused it was the weird body position I was in for those few minutes when I was trying to give my daughter a bit more space on the day. My cervical neck and spine area was affected (maybe) in some way and provoked the hyperacusis to appear. I have not had this experience ever since. Thank God! I really mean it, thank God.

  • @vnioneio
    @vnioneio 3 หลายเดือนก่อน

    I don’t know about you guys but have you checked out Dr Liam, his herbal treatment helped removed my tinnitus and vertigo , I also see a lot of other people whom his treatment has helped on TH-cam , his channel is “Dr Liam Ogbebor herbal centre””””000😊””0

  • @ordayan4410
    @ordayan4410 3 หลายเดือนก่อน

    If its not improve being deaf is mach more easy. ..

  • @swapnilbhat2929
    @swapnilbhat2929 3 หลายเดือนก่อน

    Are you cured

  • @btroger
    @btroger 3 หลายเดือนก่อน

    Clomipramine has been very effective in treating my long-term case of pain hyperacusis. Maybe it can help some of you. I know I am not the only one this drug works for.

    • @enescimen
      @enescimen 3 หลายเดือนก่อน

      How many mg and for how long did you use it?

    • @naelbeno6249
      @naelbeno6249 2 หลายเดือนก่อน

      Clomipramine (anafranil) can help if are THE nerv pathways or Nerv! With Cochlear damage or haircell damage it‘s another story. BY THE WAY.. CLOMIPRAMINE HAS SIDE EFFECTS!

    • @vegetossgss1114
      @vegetossgss1114 หลายเดือนก่อน

      do you have to take clomipramine lifelong?

    • @naelbeno6249
      @naelbeno6249 หลายเดือนก่อน

      @@vegetossgss1114 no! 1-2 years must be enough. You should stop taking the medication slowly

    • @btroger
      @btroger หลายเดือนก่อน

      @@vegetossgss1114 I'm not done recovering, so I don't know if I will have to continue the drug. From folks I have read about, they have taken it 6-12 months, and then tapered off. Most said the hyperacusis did not come back, but a few did have problems again. I guess in that case they would re-start treatment.

  • @mariajackelinechorny8254
    @mariajackelinechorny8254 3 หลายเดือนก่อน

    I have hiperacusis too but I have been paying attention to my diet and it has gone down …..you have to eat clean ! Pay attention to Liam stops tinnitus…..the same treatment for tinnitus works for hiperacusis

  • @rohitmodi1038
    @rohitmodi1038 4 หลายเดือนก่อน

    Bro,I am in tears... I have similar phase in my life..

  • @younesszineddine1741
    @younesszineddine1741 4 หลายเดือนก่อน

    I know how difficult it is. Unfortunately no cure for that because of lack of research on it. I hope the best for you and thank you for sharing your story brother

  • @ResultsDefined
    @ResultsDefined 4 หลายเดือนก่อน

    Thank You!!! For making this video at times I feel so misunderstood…

  • @ResultsDefined
    @ResultsDefined 4 หลายเดือนก่อน

    On God I can relate!!! 🤦🏾‍♂️ 🙏🏾🙏🏾🙏🏾

  • @healthiswealth3081
    @healthiswealth3081 4 หลายเดือนก่อน

    Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!

  • @grunntalll
    @grunntalll 4 หลายเดือนก่อน

    has anyone tried bioresonance therapy?

  • @Hdshalom
    @Hdshalom 4 หลายเดือนก่อน

    Jon what is your job? Thanks for making this video. I wish I could still work but that’s not happening in a dental office.

  • @paulmiller6336
    @paulmiller6336 4 หลายเดือนก่อน

    Thank you so much for sharing Brian…we need more leading voices such as yours to move this condition up the agenda. Thank you for being bold enough to do so

  • @hanakhan2622
    @hanakhan2622 4 หลายเดือนก่อน

    17 year I. House bound cannot workice in total isolation. Moved to flat now I'm catastrophe lould. Dear x9 catehome. Elders it dosnt HP here ultra lould no staf getit feel death isblesi g it ruind mi life just seem this to reasure me

  • @rosebloom2214
    @rosebloom2214 5 หลายเดือนก่อน

    I have tensor tympani syndrome, this is rare too. Praying for tinnitus cures

  • @rosebloom2214
    @rosebloom2214 5 หลายเดือนก่อน

    Prayers for you. I have tinnitus , pulsatile Tinnitus, tensor tympani syndrome so I understand.

  • @AndJusticeForAll...1985
    @AndJusticeForAll...1985 5 หลายเดือนก่อน

    Dang man why does God do this to his children?

  • @AndJusticeForAll...1985
    @AndJusticeForAll...1985 5 หลายเดือนก่อน

    I just watched your story. I'm here with you bro, I totally understand what you're dealing with and going through. Any hard object touches another hard object and it hurts. Whether that's accidentally dropping something on the floor or sitting a cup on top of a table. I'm here with ya man. We will get through this life. Gods with us. Cry out to him.

  • @jasonstieber2589
    @jasonstieber2589 5 หลายเดือนก่อน

    Thank you for sharing, I am currently experiencing symptoms myself. How is your condition now?

  • @erikcaldwell2913
    @erikcaldwell2913 5 หลายเดือนก่อน

    The Susan Shore device that will be out sometime after approval has shown very promising results in trials for somatic tinnitus, which could potentially help hyperacusis 🤞

  • @erikcaldwell2913
    @erikcaldwell2913 5 หลายเดือนก่อน

    Maybe if you could find a way to contact Dolly Parton, she might be willing to help you financially, since it happened at her theme park?🤔 I really believe she would help you, if you could just find a way to contact her.

  • @vadirajacsvadirajacs1360
    @vadirajacsvadirajacs1360 5 หลายเดือนก่อน

    God bless you ❤

  • @EmmaCarrier
    @EmmaCarrier 5 หลายเดือนก่อน

    Hi, I’m 14 just found out that I have hyperacusis and I’m getting hearing aids for it

  • @wilmamers5728
    @wilmamers5728 5 หลายเดือนก่อน

    Dear Noelle, hyperacusis has different forms. It sounds like you have Pain Hyperacusis. It’s discovered by Bryan Pollard, the founder of the Hyperacusis Research foundation. Google it and you’ll find more info about it. Do not let anyone tell you, you can’t shield yourself from noise because the hyperacusis should get worse (they say). Do not let anyone tell you that you can train it by using pink noise, brown or white noise. Pain Hyperacusis patients cannot train their ears/ brain to get better. And sadly there is until now no cure. The Hyperacusis Research foundation is funding different research to try to find a cure. The best you can do is try to avoid setbacks by using ear protection. For pain hyperacusis patients it’s very important to avoid setbacks. I wish you all the best, because it’s very hard to live with. People who have pain hyperacusis mostly are not depressed, but because it’s so painful to live with it erases their laughter in life. Hopefully for every Pain Hyperacusis sufferer there will be a cure or medicine in the near future 🍀