วีดีโอ

It would be great if you could improve your production values. The talking text start is very difficult to read. Only one of you uses a minimal stimulus background, #1, #3 is OK. The rest have very stimulation intense backgrounds. Lousy microphones that allow echoes. #2, #5, and #6 have the worst echoes. #1 and #4 have tolerable echoes. Far too much stimulus for many of us. Common comments: I struggle to remember names, too. I have a poor memory, too. or other comments that minimize the impact of my struggles. We need to learn how to better define our limits. Often, we don't even understand our condition and limits. "I just can't do that" is not understandable to most. We also need to not expect others to know what to do to help us or even tolerate us. Filters, visual and audio short term memory, over-stimulation, over-attending, over-reacting/outbursts, visual and auditory processing, attention/focus, My injuries: All closed head impacts with no imageable damage, 1965-hospitalized; 1968; 1970; 1974; 1995; 2001, mild stroke. This is a good start. I have encouraged Gregg Ayotte at BIAA to establish a community forum, similar to the forum on Psych Central NeuroTalk. We can do so much by helping each others. I have never felt hurt by the comments of others. I consider them to be simply ignorant to the issues. But then, my experience started in 1965.

Good to know that I'm not alone. When I've had to describe my issues to others, I get the feeling that I'm being put in a box. I've had my injury since 1978 with subsequent concussions, since my brain tends to "short circuit" and have been blamed for not recognizing the problem and avoiding it before it happens. Also, the state I live in, tends to treat brain injury as if it doesn't exist. Even though Oregon is supposedly progressive, in this respect it's extremely backward and their are no services for this kind of injury.

Thanks to all of you. I really needed to hear this today. Keep doing what you’re doing, you’re making a difference.

Have you heard of the spoon theory? Especially post TBI. We wake with a certain abound of spoons and things like being around people takes up a certain amount of spoons. These spoons can be taken a little or slot as brain fatigue goes on.

Are there any in NJ?-jen gargiulo

I looked at the brain injury association org website which is hard to navigate post TBI. I was unable to find a place in NJ or others in NJ whom are associated w/TBI like myself so I’d like to join, how do I do so?

Nice to put a face to the name Greg! Great work! Well done everyone.

Rock on ladies and gentleman!!! Looking forward to more episodes, tips, and togetherness. We are all individuals, uniquely different yet finding ways to be the same 🙂

Great piece. Very informative. Thanks for sharing.