Marfan Warrior
Marfan Warrior
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I'm abandoning the Marfan Warrior Podcast
ABOUT ME
I was born with Marfan Syndrome, a potentially life-threatening, rare genetic connective tissue disorder. In August of 2021, I had a spontaneous aortic rupture and I had to have emergency open-heart surgery to replace the torn section of my aorta with a prosthetic as well as a bypass and stent inserted into my descending aorta. During the operation I had a type of near-death experience, and as a result I went through a spiritual awakening following the operation.
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Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genetic connective tissue disorder by visiting this website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠marfan.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.
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DISCLAIMER
The content presented in this podcast is for informational and educational purposes only and should not be construed as medical advice. While I strive to provide accurate and up-to-date information, the topics discussed should not replace the personalized care and guidance of a licensed healthcare provider. Always consult your doctor or another qualified health professional before making any changes to your diet, exercise routine, or treatment plan. The host and guests of this podcast are not responsible for any adverse effects or consequences resulting from the use of or reliance on the information provided.
The thoughts, ideas, and opinions expressed in this podcast are solely my own and do not reflect the views or positions of my employer. This content is created independently and is not affiliated with, endorsed by, or representative of my employer in any way.
มุมมอง: 8

วีดีโอ

E33: I'm in Pain - Life with chronic headaches
มุมมอง 342 หลายเดือนก่อน
With deep gratitude, I welcome you to episode 33 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. I share with you the most vulnerable side of myself. I show you in real life what it's like for me to experience a severe headache due to dural ectasia. I suffer from chronic headaches, but sometimes they're just so unbearable, as you can see for yourself. #pain #c...
Episode 28: Two Peeps on a Podcast - Interview with Adrian Nelson on Theta Healing
มุมมอง 63 หลายเดือนก่อน
With deep gratitude, I welcome you to episode 28 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode, I had the honor and pleasure of speaking with Theta Healing practitioner (amongst other things), Adrian Nelson. Adrian tells us all about Theta Healing. If you're interested in reaching out to Adrian, you can find him on: TH-cam: www.youtube.com/@U...
Episode 21: Timo, Twenty One Pilots, the Tattoo and Thrombosis Tablets
มุมมอง 123 หลายเดือนก่อน
Welcome to episode 21 of the Marfan Warrior Podcast! Just when you thought you heard all about my aortic dissection...Join me in my conversation with Timo, one of my oldest yet youngest friends in Vienna, and find out how he played an important role in my aortic dissection experience. ABOUT ME AND THE MARFAN WARRIOR PODCAST I was born with Marfan Syndrome, a potentially life-threatening, rare g...
Episode 23: Mourning My Younger, Healthier Self
มุมมอง 84 หลายเดือนก่อน
Welcome to episode 23 of the Marfan Warrior Podcast! Just as the title suggest, in this episode, I talk about how I sometimes mourn my younger (healthier) self, which I believe might be something that many people with chronic illness might do. Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genet...
Episode 19: Interview with Cam Isaac - Two Marfan Warriors on a Pod(cast)
มุมมอง 185 หลายเดือนก่อน
Welcome to episode 19 of the Marfan Warrior Podcast! I had the great honor to have an incredibly inspiring conversation with Cam Isaac, a fellow Marfan Warrior. He’s a two-fold warrior, as he too was not only diagnosed with Marfan Syndrome, but also Lymphoma just days prior to the Marfan diagnosis. Despite the hardships that he has had to face and overcome, he’s been able to use them to fuel hi...
Episode 18: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 3
มุมมอง 95 หลายเดือนก่อน
Welcome to episode 18 of the Marfan Warrior Podcast! In this is the episode I continue my story about experiencing an aortic dissection. I pick up where I left off in episode 17, when I woke up after coming out of an 8-hour open-heart operation to replace the torn section of my descending aorta. If you haven't watched episode 16 yet, I highly recommend you do that so that you'll be able to foll...
Episode 17: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 2
มุมมอง 136 หลายเดือนก่อน
Welcome to episode 16 of the Marfan Warrior Podcast! In this is the episode I continue my story about experiencing an aortic dissection. I pick up where I left off in episode 16, when I was transferred from the AKH (Vienna General Hospital) to the hospital where my husband works. If you haven't watched episode 16 yet, I highly recommend you do that so that you'll be able to follow along properl...
Episode 20: Meet Magdalena Steinrück - Type 1 Diabetes Mom Warrior
มุมมอง 166 หลายเดือนก่อน
Welcome to episode 20 of the Marfan Warrior Podcast! In this weeks's episode, I had a long-anticipated talk with my friend and colleague, Magdalena Steinrück, the mother of a child who was abruptly diagnosed with type 1 diabetes (T1D) at the tender age of 8. Magdalena recounts the the shocking diagnosis process, how she together with her daughter have been navigating treatment, and emphasizes t...
Episode 16: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 1
มุมมอง 216 หลายเดือนก่อน
Welcome to episode 16 of the Marfan Warrior Podcast! Finally! This is the episode I've been most excited about posting!!! In this episode, I begin to tell you all about what happened with my aorta dissected (tore - hence the name of the title of the episode "Tear in My Heart"). Timestamps: 00:00 - Arinya's heartbeat 00:15 - Intro 00:59 - Recap of previous episodes 07:58 - A brief word about fut...
Episode 15: Astounded by Abdominal Adhesions
มุมมอง 646 หลายเดือนก่อน
Welcome to episode 15 of the Marfan Warrior Podcast! In this episode I continue where I left off in episode 13, where I to talked about my ailments while dealing with headaches caused by dural ectasia/meningocele and the surgery I had on my spinal cord in an attempt to block the opening to the meningocele with the hopes that it would solve my problems with the horrible headaches. Much to my sur...
Episode 14: Interview with Abigail Kaiser - My Childhood Home and a Sense of Closure
มุมมอง 3496 หลายเดือนก่อน
Welcome to episode 14 of the Marfan Warrior Podcast! In this episode I have a chat with Abigail Kaiser. Since 2015 when my grandmother passed away, my childhood home has been standing vacant. My family lost possession of the house immediately thereafter, but since nobody new had moved in, I had no sense of closure. Abigail bought the house this past March, and she established contact with me to...
Episode 13: My Misadventure with the Meningocele
มุมมอง 127 หลายเดือนก่อน
Welcome to episode 13 of the Marfan Warrior Podcast! In this episode I start out by telling you a little bit about why I started this podcast in the first place. Then I offer you a little surprise with a personal and memorable musical interlude before I venture onto more about my turbulent time going under the knife to try to combat debilitating headaches by blocking the opening to the meningoc...
Episode 12: Kasia Kuzmicz-Kowalska on Her Rheumatoid Arthritis Diagnosis
มุมมอง 497 หลายเดือนก่อน
Welcome to episode 12 of the Marfan Warrior Podcast! I'm so honored to have my friend and former colleague, Kasia Kuzmicz-Kowalska, as my first non-family member guest!!! In this week's episode, Kasia tells us about how she struggled to get her rheumatoid arthritis diagnosis, all while finishing up her PhD in Developmental Biology at the Institute of Science and Technology Austria, as well as h...
Episode 11: Yin, Yang and the Grey Serpentine Path
มุมมอง 277 หลายเดือนก่อน
Episode 11: Yin, Yang and the Grey Serpentine Path
Episode 10: Exploring the Soul and Past Lives
มุมมอง 227 หลายเดือนก่อน
Episode 10: Exploring the Soul and Past Lives
Episode 9: Shamanism and the Labyrinth of the Inner Self
มุมมอง 227 หลายเดือนก่อน
Episode 9: Shamanism and the Labyrinth of the Inner Self
Episode 8: Interview with My Dad!!! - On spirituality
มุมมอง 748 หลายเดือนก่อน
Episode 8: Interview with My Dad!!! - On spirituality
Episode 7: C is for Cancer and All the Crap That Follows
มุมมอง 198 หลายเดือนก่อน
Episode 7: C is for Cancer and All the Crap That Follows
Episode 6: Bloody Frickin' Hell (part 2) - How menstruation made my life a living nightmare
มุมมอง 258 หลายเดือนก่อน
Episode 6: Bloody Frickin' Hell (part 2) - How menstruation made my life a living nightmare
Episode 5: Bloody Frickin' Hell (part 1) - How menstruation made my life a living nightmare
มุมมอง 168 หลายเดือนก่อน
Episode 5: Bloody Frickin' Hell (part 1) - How menstruation made my life a living nightmare
Episode 4: My High-Risk Pregnancy and a Double-Fault Victory
มุมมอง 379 หลายเดือนก่อน
Episode 4: My High-Risk Pregnancy and a Double-Fault Victory
Episode 3: My Open-Heart Surgery & the LAST-SECOND Cancellation
มุมมอง 569 หลายเดือนก่อน
Episode 3: My Open-Heart Surgery & the LAST-SECOND Cancellation
Episode 2: My Marfan Syndrome Diagnosis & Divine Timing
มุมมอง 539 หลายเดือนก่อน
Episode 2: My Marfan Syndrome Diagnosis & Divine Timing
Pilot Episode: My Scoliosis Diagnosis
มุมมอง 589 หลายเดือนก่อน
Pilot Episode: My Scoliosis Diagnosis
Marfan Warrior Podcast Announcement - It's spring - a time for new beginnings!
มุมมอง 2810 หลายเดือนก่อน
Marfan Warrior Podcast Announcement - It's spring - a time for new beginnings!

ความคิดเห็น

  • @saeedalijanpour8933
    @saeedalijanpour8933 12 วันที่ผ่านมา

    Ari let us to watch your videos again and again and again For me personally it's like a positive drug for my souls too Love you and your videos more than anything 😢😢😢😢😢😢😢❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

    • @MarfanWarrior
      @MarfanWarrior 12 วันที่ผ่านมา

      Saeed I have decided to keep the channel live, but I deleted the videos that aren't related to Marfan. I kept all interviews as well.

    • @MarfanWarrior
      @MarfanWarrior 12 วันที่ผ่านมา

      Oh, and thank you for all your support all this time. It has been really uplifting. 🫂🙏🏽❤️

    • @saeedalijanpour8933
      @saeedalijanpour8933 11 วันที่ผ่านมา

      ari be my besti to the end of the world 🌎 😢love is least to show my respect to you you don't know how much I love you and respect to you be on my side forever and creat yoga channel exercise with eachother 😂❤❤❤❤❤❤❤❤send my best to uncle ross When ever I watch Paris texas Travis reminde me him (ross)❤😢

  • @charlesorevkin7842
    @charlesorevkin7842 2 หลายเดือนก่อน

    I am so saddened by this video and hope you will soon be able to find relief….

    • @MarfanWarrior
      @MarfanWarrior 2 หลายเดือนก่อน

      Thanks so much for your supporting words, Charles.

  • @HeyCraftyLady
    @HeyCraftyLady 2 หลายเดือนก่อน

    Thank you for being so open and vulnerable about your journey with Marfan Syndrome and sharing your real-time emotions. Like the book you found in Switzerland, your channel reaches out to those facing this difficult diagnosis, offering immense comfort and connection. Just knowing someone else is out there, navigating the same challenges (whatever they may be), brings so much comfort. I especially loved hearing how you met your husband-such a beautiful story of Divine Intervention! May God richly bless you with His healing power. Wishing you all the best and praying for your healing and strength. 🙏✨

    • @MarfanWarrior
      @MarfanWarrior 2 หลายเดือนก่อน

      Thank you for your lovely feedback! Your words offer so much encouragement in a time when I've been highly considering giving up the channel. The universe, God, spirit, source... sends us the right messengers at just the right time. Wishing YOU a successful journey in life and with your channel. 🫶🏽✨💖

  • @AorticDissectCT
    @AorticDissectCT 6 หลายเดือนก่อน

    Thank you for sharing your story, Arinya. Your strength and courage in facing aortic dissection and Marfan syndrome are truly inspiring.

    • @MarfanWarrior
      @MarfanWarrior 6 หลายเดือนก่อน

      Thank you so much for your kind words! They're very uplifting. Heartfelt greetings from my heart to yours 💞

  • @saeedalijanpour8933
    @saeedalijanpour8933 7 หลายเดือนก่อน

    Woow ari I just received this video It's gonna be interesting conversations After watch share my idea kansas city 😍😘😘😘😘

    • @MarfanWarrior
      @MarfanWarrior 7 หลายเดือนก่อน

      Sure 😊

    • @saeedalijanpour8933
      @saeedalijanpour8933 7 หลายเดือนก่อน

      @@MarfanWarrior hooray 😍😘😘😘😘😘

  • @kenvankirk6730
    @kenvankirk6730 7 หลายเดือนก่อน

    All our best and all our love to you from Ken & Wai...keep on fighting. I can relate to the surgery...had a mitral valve repair & a partial colectomy two summers ago..within 2 months.

    • @MarfanWarrior
      @MarfanWarrior 7 หลายเดือนก่อน

      Thank you, Ken. I hope you have fully recovered by now! I'm glad you wrote. It means a lot. 🙏🏽

  • @ginajew5807
    @ginajew5807 7 หลายเดือนก่อน

    What a beautiful conversation to have with your dad. Thank you for sharing. ❤️

    • @MarfanWarrior
      @MarfanWarrior 7 หลายเดือนก่อน

      Thank you, Gina! 🙏🏽💞

  • @saeedalijanpour8933
    @saeedalijanpour8933 7 หลายเดือนก่อน

    Thank yallllll 🥲❤❤❤❤❤❤🧡

  • @buds197
    @buds197 7 หลายเดือนก่อน

    This was very enlightening and educational for me! Your Dad is a good, honest person just like YOU! Our spiritual journeys are more alike than different, no matter the circumstances in many ways. We're all very blessed, ifin' we can recognize it ✨

    • @MarfanWarrior
      @MarfanWarrior 7 หลายเดือนก่อน

      Thank you for joining us in this episode! 🙏🏽💓💓💓

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Love this man He is a legend Legend of the modern West

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Ari Uncle ross is a clear example of mystic philosopher and introvert person Please send my best and love to him His like the great poet of iran is hafez or saadi

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Look at this 😍 ari and uncle ross again 😍😍😍😍😍😍🥲🥲🥲🥲

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Such amazing purely southern accent,I love that Such a sweet great dad 😘😘😘

    • @MarfanWarrior
      @MarfanWarrior 8 หลายเดือนก่อน

      😊 thank you! 🙏🏽

    • @saeedalijanpour8933
      @saeedalijanpour8933 8 หลายเดือนก่อน

      @@MarfanWarrior your welcome 🙏 I shared my thoughts a bout this episode in your DM ari Thank you and my lovely great uncle ❤️

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Such a gorgeous episode Great honor to meet this special great man (texan hero ❤)

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    I think many things are beyond faith But don't know exactly what should be named? Thanks for your podcasts ari I love them Honestly I feel solidarity with them 🥲🥲❤❤❤❤❤❤

    • @MarfanWarrior
      @MarfanWarrior 8 หลายเดือนก่อน

      Thanks so much for your support! 🙏🏽 It means so much to me!

    • @dhonnanotdonna7465
      @dhonnanotdonna7465 7 หลายเดือนก่อน

      Wow, your voice! Great song, I love the blues!

    • @MarfanWarrior
      @MarfanWarrior 7 หลายเดือนก่อน

      Thank you so much! 🙏🏽

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Wow I listened to 20 minutes I'll listen to the rest when I get home But question is how could you control stress caused by it?

    • @MarfanWarrior
      @MarfanWarrior 8 หลายเดือนก่อน

      Thank you! 🙏🏽 There was no control over the stress. My body and mind were simply on autopilot.

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    But first i have to finish the previous one cause i was very busy 🥲🥲💞💞💞

  • @saeedalijanpour8933
    @saeedalijanpour8933 8 หลายเดือนก่อน

    Another amazing episode ❤❤❤

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    Thanks ari for this audio file Honestly it would be much better if there was a video certainly with your amazing locations and natures😂😘 but anyway this episode and your perfect sound ❤❤❤❤❤whenever I finished I'll share my question in dm with you Kansas 🙏🙏🙏❤❤

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      Sorry... The next few episodes will be audio only. But thanks so much for listening! 🙏🏽

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    Another shocking episode 😢❤❤❤❤❤❤❤thank you ari ❤️

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      You're welcome, Saeed! Thanks so much, and keep listening. There's still a bit more "shock factor" to come!

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      @@MarfanWarrior ari I couldn't control my emotions 🥲🥲😪it was very tough Tomorrow I'll talk with you about this episode God bless you kansas girl 💞💞💞❤❤❤❤

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      🤗

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    I gotta go to watch that 😘😘💯💯❤

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      Please do!

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      @@MarfanWarrior it's my duty dear ari to watch that Because this disease is big threat against us and people like us need awareness I want to thank you again and again and again for this green positive job I want to thank you for sharing your hard experiences And I want to thank you Because you tolerate my poor English But I bet you my English better than your persian (farsi_iranian language)😂🤣😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘🤠🤠🤠🤠🤠🤠🤠❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤💯💯💯💯💯💯

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      Sorry! I just saw your comment this morning! Thank you for your uplifting comments. They mean a lot.

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      @@MarfanWarrior my honor dear ari (Legendry warrior)❤❤💯💯💯🙏🙏🙏🙏🙏🙏🙏

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    Hip hip hurray another episode released 🎉🎉🎉🎉🎉🎉❤❤❤❤

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      🥳

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      😘😘😘😘😘😘😘🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉​@@MarfanWarrior

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    💯💯💞💞🙏👌👌👌

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    First of all what a wonderful lovestory ❤💯💯and what a amazing view 👌👌👌and I'm still in shock about threats of this diagnosis certainly you mentioned age and I think its very important for ppl who have this signs and they are unaware of the existence of this disease. Thank you alotttttt mam ❤❤❤❤💯💯💯💯

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      Thank you very much! 🙏🏽✨

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      @@MarfanWarrior your welcome dear ari ❤❤❤❤🙌🙌💯💯💯💯

  • @saeedalijanpour8933
    @saeedalijanpour8933 9 หลายเดือนก่อน

    It was awesome thank you ❤💯💯

    • @MarfanWarrior
      @MarfanWarrior 9 หลายเดือนก่อน

      Thank you! Glad you enjoyed it! 🙏🏽✨

    • @saeedalijanpour8933
      @saeedalijanpour8933 9 หลายเดือนก่อน

      @@MarfanWarrior your welcome mam I'll be waiting for next epidods 💞💞❤it was very useful for me personally as a tall person who have this issue a little bit 💗💗

  • @szeniko91
    @szeniko91 10 หลายเดือนก่อน

    Great first episode! Can’t wait to listen to you more! 💕 thank you!!

    • @MarfanWarrior
      @MarfanWarrior 10 หลายเดือนก่อน

      Thank you so much, Dear. Just wait until you see my "magnificent" color grading in episode 2. 🙈 Still so much to learn!

  • @saeedalijanpour8933
    @saeedalijanpour8933 10 หลายเดือนก่อน

    ❤❤❤💯💯

    • @MarfanWarrior
      @MarfanWarrior 10 หลายเดือนก่อน

      Thank you! 🙏🏽

    • @saeedalijanpour8933
      @saeedalijanpour8933 10 หลายเดือนก่อน

      @@MarfanWarrior your welcome mam❤❤