National Council on Severe Autism
National Council on Severe Autism
  • 95
  • 91 858
Severe Autism - Wisconsin "The police wanted to take him to jail." Urging For Multidisciplinary Care
Jodi Hansen, mother of a 26-year-old profoundly autistic son, shares her lived experience while making a plea for multidisciplinary care access across the United States.
"The ideal change and the biggest change and something I dream big about is that every state would have a multidisciplinary clinic or hospital for our kids. Our kids are human beings. They deserve a neurologist, immunologist, rheumatologist, etc. They need to have a team of doctors. Just like we need a village to raise them, we need a system in the medical system that works."
Share your story: ncsautism.org/voice
Follow us on social media: linktr.ee/ncsautism
National Council on Severe Autism is a 501c3 nonprofit. Our mission is to pursue recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.
Donate at www.ncsautism.org/donate
มุมมอง: 425

วีดีโอ

First Responders & Autism - Linked up with LINKED
มุมมอง 20221 วันที่ผ่านมา
In loving memory of Feda and Mu Almaliti september26.org LINKED- Autism Safety Project is committed to building strong partnerships between the first responder and special needs communities, ensuring that everyone has access to the support and resources they need to stay safe in emergency situations. LINKED offers resources for those with autism and their families on emergency preparedness, com...
Severe Autism - Oregon "Nobody believed me." Awareness on Barriers to Medical Access.
มุมมอง 432หลายเดือนก่อน
Mother Michelle Olson shares her lived experiences with severe autism, raising important concerns for medical access, healthcare equity, and family trauma for this marginalized population. "What I wish people knew more about people who have severe autism is time is of the essence. So once you start seeing an escalation in behavior, that's a form of communication. And so you're supposed to listen."
Why NCSA?
มุมมอง 85หลายเดือนก่อน
Mission Statement: Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders. Vision: Together, we can end systemic policy discrimination against severe and profound autism. Donate here: www.ncsautism.org/donate National Council on Severe Autism PO Box 26853 San Jose, CA 95159-6853 501(c...
Severe Autism: New York - "They just don't care how much help he really needs." Family Crisis Care
มุมมอง 654หลายเดือนก่อน
Mother Tammy Snyder and siblings Grace & Juliet share their lived experiences with severe autism, raising important concerns for medical access, crisis care, and more. "They just give him to my mom and just expect her to figure it out. If they can't figure it out, how can she? It just doesn't make any sense."
Would you Treat a Broken Tooth with Abilify? - Dr. Susanna Mierau - Autism Healthcare Equity
มุมมอง 330หลายเดือนก่อน
September 11, 2024 Topic: Would You Treat a Broken Tooth with Abilify? Speaker: Dr. Susanna Mierau The talk focuses on the challenges limited verbal or non-verbal adults with autism spectrum disorder (ASD) face getting access to medical care and strategies for addressing these needs in our community. A recent study of over 1500 adults with ASD in the Kaiser medical system revealed that nearly a...
Autism Misunderstood: The Viral Spread of Misinformation on Social Media
มุมมอง 926หลายเดือนก่อน
NCSA Webinar: Wednesday, August 28, 2024 Cyndi Wall, autism advocate and mother of a 33 year-old son with Profound Autism, content creator for Autism Speaks, TikTok and Instagram Cyndi shares the dark side of autism social media where money, power, and influence distorts autism information. She discusses the rise of professionals speaking outside of their scopes of practice, the rampant self-di...
Behavior Constellations An Approach to Behavioral Presentations of Medical Issues with Ley Linder
มุมมอง 2542 หลายเดือนก่อน
Speaker: Ley Linder, MA, M.Ed., BCBA Intensive Behavior Interventionist President & CEO, Owner Crescent Behavioral Health 00:00:00 Intro 00:01:51 Part One: Behavior Constellations 00:25:41 Part Two: Case Studies 00:55:04 Rideshare Safety Partition Sponsor Segment 01:05:24 Q&A Topic: As service providers, we have long been told to “think medical first” regarding behavioral issues. What exactly d...
Specialized Schools for Students with Profound Autism
มุมมอง 3904 หลายเดือนก่อน
Webinar hosted by National Council on Severe Autism, June 12, 2024 Specialized School Programs for Severe/Profound Autism: An Overview and the Kennedy Krieger Approach Kennedy Krieger, a Maryland-based children’s specialty hospital has developed highly specialized educational setting for nearly 500 students with complex educational needs, with most identified with autism or multiple disabilitie...
Crisis Stabilization in Severe/Profound Autism: It Takes a Village
มุมมอง 3774 หลายเดือนก่อน
Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, mental health parity, navigating insurance, types of placements, and the systemwide deficiencies in serving the population with severe and challenging behaviors. Washington Autism Alliance works to ex...
Standing Up for Severe and Profound Autism on Social Media, a Conversation with Eileen Lamb
มุมมอง 6525 หลายเดือนก่อน
National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photographer, podcaster, the director of social media for Autism Speaks, and the mother of three children, one of whom, 11 year-old Charlie, has an extreme form of autism and another, Jude, who is highe...
Overview of Behavioral Treatment for Severe Behaviors in Profound Autism, with Dr. Shaji Haq
มุมมอง 8305 หลายเดือนก่อน
Sponsored by National Council on Severe Autism NCSAutism.org
Sounding Off About Autism Month!
มุมมอง 4056 หลายเดือนก่อน
Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host NCSA president Jill Escher and returning guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom discuss: Biden's signing of a proclamation declaring April "Autism Acceptance Month," historical background about Autism Month, some op-eds offering a dissenting view from t...
Insurance Coverage for Your Child with Severe Autism
มุมมอง 3236 หลายเดือนก่อน
Dr Karen Fessel is the executive director of the Mental Health & Autism Insurance Project. She discusses what you need to know to help navigate what can be a complex system of benefits. Sponsored by National Council on Severe Autism NCSAutism.org
Seizures and Epilepsy in Severe and Profound Autism, with Dr. Stephanie Morris
มุมมอง 6886 หลายเดือนก่อน
Seizures and Epilepsy in Severe and Profound Autism, with Dr. Stephanie Morris
Discrimination by Design: How Policies Threaten the Severely Disabled
มุมมอง 7677 หลายเดือนก่อน
Discrimination by Design: How Policies Threaten the Severely Disabled
Autism's Rising Rates: A Deep Dive into Autism's Increasing Prevalence and 50 Years of Data
มุมมอง 3.9K8 หลายเดือนก่อน
Autism's Rising Rates: A Deep Dive into Autism's Increasing Prevalence and 50 Years of Data
Why you should care about the reauthorization of the Autism CARES Act Reauthorization
มุมมอง 6788 หลายเดือนก่อน
Why you should care about the reauthorization of the Autism CARES Act Reauthorization
Girl Storm: A Stunning New Memoir of Profound Autism, by Peg Kerswell
มุมมอง 86311 หลายเดือนก่อน
Girl Storm: A Stunning New Memoir of Profound Autism, by Peg Kerswell
A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism
มุมมอง 70811 หลายเดือนก่อน
A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism
Autism & Psychiatry: A Guide to Navigating Treatment, with Arthur Westover, MD
มุมมอง 1.4K11 หลายเดือนก่อน
Autism & Psychiatry: A Guide to Navigating Treatment, with Arthur Westover, MD
Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism and I/DD
มุมมอง 62011 หลายเดือนก่อน
Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism and I/DD
Open the Floodgates to More Autism Services! Mary Ogle of A New Leaf in Oklahoma
มุมมอง 407ปีที่แล้ว
Open the Floodgates to More Autism Services! Mary Ogle of A New Leaf in Oklahoma
Autism and I/DD: The Benefits of Residential Communities and the Need for Choice, with Molly Nocon
มุมมอง 326ปีที่แล้ว
Autism and I/DD: The Benefits of Residential Communities and the Need for Choice, with Molly Nocon
Amy Lutz: Chasing the Intact Mind
มุมมอง 892ปีที่แล้ว
Amy Lutz: Chasing the Intact Mind
September 26th Project Video 2023
มุมมอง 2Kปีที่แล้ว
September 26th Project Video 2023
Autism Research Roundup, with Dr. Alycia Halladay
มุมมอง 300ปีที่แล้ว
Autism Research Roundup, with Dr. Alycia Halladay
Autism Advocacy in Your State, and the Federal Level, with Susan Goldstein and Gayle Gerdes
มุมมอง 319ปีที่แล้ว
Autism Advocacy in Your State, and the Federal Level, with Susan Goldstein and Gayle Gerdes
Battling (Again) the Vaccine-Autism Myth, with Paul Offit, MD
มุมมอง 1Kปีที่แล้ว
Battling (Again) the Vaccine-Autism Myth, with Paul Offit, MD
Jackie Ceonzo: A Hero Serving Severe Autism in NYC
มุมมอง 463ปีที่แล้ว
Jackie Ceonzo: A Hero Serving Severe Autism in NYC