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Tyty!!

I was diagnosed in 2016.. mine was due to my sexual assault trauma at 14

WE DONT KNOW WHERE YOU'VE BEEN. ONLY 2 VIDEOS TOTAL? WE WOULD LOVE TO HEAR AN UPDATE. COME BACK TO US 😄😆😘

I saw a rheumatologist over 5 yrs ago after test, blood test etc I was diagnosed with fibromyalgia arthralgia n also lupus.

Why don't more men have fibromyalgia?

You sound like me, doctors just kept saying, the tests are negative. You're fine. No I'm not, also I. Look for people like us all the time.

I'm so glad you finally got diagnosed with it. It took me about 6-7 years to get diagnosed by a rheumatologist. I went to so many doctors about my pain and so many dismissed me, told me to lose weight and that it was all in my head. Then one day I went to one of the doctors at my local surgery and I told him that i would still feel pain for minutes after if someone lightly grabbed me or touched me and he suggested fibromyalgia, referred me to a rheumatologist a few months later I was seen and diagnosed there and then. Being diagnosed just gives you a sense of relief that it's not in your head. I'm forever grateful to that man for listening to me when so many others didn't.

You don’t have a disease you have an allergic reaction to glyphosate

I think I might have fibro, I'm not sure but reading about it it would explain a lot and I do have it in my family. I do have other things too tho and trying to get diagnosed and treated for those things I have also experienced getting dismissed, not believed and ignored and it felt like it was bc I was (and still am) a young woman. An overweight young woman at that with depression so I felt like nobody listened to me. I never gave up until I met someone who could give me the answer and treatment that actually did something. It's unfortunate that people get dismissed or forgotten by the medical system in so many countries but the reality is that the more you educate yourself and persist you will find someone who will listen and help you. For me it took a long time bc it wasn't long ago that I was a child, I'm just barely hitting my mid 20's, but it was worth not giving up. I'm sure in the future, with more studies and new developments in treatment these unhappy encounters will disappear and people will get the help they need sooner.

Your symptoms are just like mine, especially the chest pain. I find that so bad as I feel as though I can’t get my breath. I have had heart checks and lung checks and they say everything is ok, but so often I am gasping for breath. Do you have those symptoms? I have been suffering for 25 years, with no real relief from any treatment I have tried. Swimming lengths is the only thing that gives me a little relief for an hour. The water is so gentle on the body. I used to do Aquafit exercises, but I can no longer do that. It just exacerbates my pain. It is just such an overwhelming and debilitating disease. It ruins everyone’s life who has it. Thank you so much for your video. It took me ten years to get diagnosed. My doctor sent me to a psychiatrist who said I as obsessed with my health. I finally found an integrative doctor who diagnosed me within five minutes. It was such a relief to get a diagnosis,never though there is no cure for it. Love and hugs to you and all with this. Give yourself lots of TLC and surround yourself with things that make you happy and only positive people. ❤️🇨🇦❤️🇨🇦❤️🇨🇦

I feel the same way that I wasn’t happy about the diagnosis, but I was relieved that I finally knew what it was. I had to advocate for myself every step of the way and I’m just at the beginning. Thank you for sharing your story.

I had fibromyalgia over five years now. Believed to be triggered by car crash was in. Like you I went back and forward to so many doctors. Eventually in end I was referred to rumerloglist and diagnosed with Fibromyalgia. Can relate you so much. Can hear how raw it is in your voice x

I really empathise with you. I have Fibromyalgia and Sleep Apnea. Can’t do much at all. Hoover one day, dust the next day and conserve the batteries. The GP had said to me that he reckoned it was Fibromyalgia but wasn’t going to diagnose me as didn’t want to label me. Not helpful. Finally diagnosed by Rheumatologist. Be kind to yourself 🙂

Fibro is a misdiagnosed illness. It's most likely Lyme disease

Will you continue this Channel?

You got offered Physiotherapy. They never offered me this. Will be getting on to doctors thanks for sharing x

10 years took me to get diagnosed with fibromyalgia crushing fatigue pain and more

I think we get excited because we think if we know what it is then we can fix it! then you realise it’s a chronic condition you just need to live with. 😳☹️

Thank you for sharing. You are so strong and courageous. I suffer from Fibromyalgia + Spinal Stenosis + Ankylosing spondylitis + asthma + sleep apnea + diabetes. For 13 years or so. So I can relate to your story especially when 12 + more doctors can’t seemed to help me only to tell me it’s in my head and I have to deal with it my own way along with the meds. Not fun! My G.P. has lost faith in me and even now he doesn’t want to see me, so I’d been passed on to see other doctors. I feel alone. Hopefully Christ Jesus will hear my cry for help somehow. I was due for neck surgery back in December 2021 then postponed to March 2022 and still hadn’t had surgery. The Surgeon has ignored my calls. I have no idea what to do now? Any how. Thank you for sharing.

Thanks so much for sharing your story! I've had fibro for 25 years and felt very alone for much of that time because no one had heard of it or believed it was real. It feels so comforting to hear your story and to know there are others out there suffering with the same thing.

Thanks for sharing. I have been battling fibromyalgia for about 15 years and I’ve felt same way. Do what feels best for you. Never give up!

Thank you for sharing your story, my story is the same as yours so I understand your ups and downs and the relief of getting answers to the suffering.

I have fibro I am at the end of my rope

My fibromyalgia started in between my 8 ear surgeries, surgeries 6-7 were back to back and I started getting severe leg and back pain. To the point like you, my arms felt so heavy that days I just couldn’t wash my hair or even brush it. My intense fatigue comes and goes, same with my depression. I’m on meds for depression which have helped huge. Currently on Cymbalta for fibro pain,. I get attacks at least once a month and they last always two weeks. The insomnia is brutal. And I’ve tried swimming which cause my muscles and bones to lock up and then in severe pain. No longer can lift weights as my muscles get tired extremely quickly,. I do have a neurologist and he’s wonderful. My fibro has caused more issues tho the older I’m getting, trouble voiding (peeing) when I’m in so much pain plus I retain fluid in the evenings and have to self cath myself. I wish this disease was more open and talked about. It’s so hard to deal with. Thanks for your story. Sending my love to you, ❤️

Even though it’s not what you want to hear, it is a relief to finally get the diagnosis. I was diagnosed in 2013. Prayers for all of us suffering with this. Find out what helps you feel better. For me it’s heating pads, pain meds and rest!

I think I have this but I don't have the chest pain

As a massage therapist for 24 years, I never had an client who told me they were diagnosed with Fibromyalgia, that did not have "Hyper-mobility". Are you sure you don't have Hyper-mobility?

There must have been something nasty going round in the UK in 2017. I had a chest infection in Jun 17 and never got better after that. I was coughing for 2 years solid and constantly brushed off by GPs. I've had a great career almost destroyed and its taken nearly 5 years to get diagnosed with Fibromyalgia. Also tougher as a bloke because most of these autoimmune conditions are more prevalent in women

Thank you for your story.

New subscribers here from Australia 🇦🇺 Also fibro too

I have that heatpad, and it is so handy to be able to move around whilst wearing it!

They never got a chest x-ray, seriously?

Hello New Subscriber Here From Amman Jordan Middle East Thank you for your honest open information Best wishes to you

aww thank you so much for sharing your story! You were so cute, i could've kissed her! 😅 i'm currently in the uphill battle of trying to get a diagnosis myself. this proves i can't give up