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i dont have AIH, watching this because someone I know has it. Thank you for sharing and I hope you are doing well, if you still use this yt channel

Bless you darling. Thank you so much for sharing your experience. I was diagnosed with AIH back in April. Started the Prednisone and ALT levels returned to normal until I caught a cold a month ago and ALT levels went up again and now back on a higher dose of prednisone and tapering off again but the Dr. says I need to start Azathioprine in January and stay on it long term. I didn’t know my cold is what triggered it. I was feeling so depressed since my diagnosis but you have given me hope. I need to think positive and keep going.

God bless how are you now ❤

Thanks for the update Kirsty, sorry you have it but glad you are ok. I'm still isolating as we were unsure even with the vaccination how I would be should I contract Covid. LFTs, which were humming along quite nicely have now gone back to square one after two years, we have no idea why. Consultant has doubled Tacrolimus so we shall see. Take care and look forward to hearing from you when you are completely well.

Thank you for the updates. I was diagnosed last year, I like to listen to your videos to keep positive. 😇😇

I just found your channel and have watched almost all your videos. I am in the diagnosis stage. I had antibodies for AIH and PBC come back positive. I’m kind of nervous but trying to remain calm. My next appointment isn’t until July. I hope all is well with you, I enjoy your videos. 🙂

I got diagnosed @ age 58. In 2016 fibrosis score was a 2. Not sure what it is now. I did not realize this disease affected your kidneys. Thank you for doing this video. Would like to have someone to talk to about this

Thankyou Kirsty, glad to see you are looking well and that you have had your vaccination. I had mine on Thursday, strange to be out of the house but all the safety procedures were in place and that was a relief in itself. I was worried about side effects but all good so far. Stay safe, always good to hear from you.

Thank you so much for your videos, I find them so encouraging and helps me deal with a family member's trip down the same road but not following the program/protocol as well as you are. Helps me try to understand what they are doing through and dealing with.

Thank you so much for sharing. It helps o know one is not alone. Great positive attitude!!!!!!

Hi Kirsty, glad you are doing well and thanks for the positive message. I am 8 months “in” and still managing to stay fairly positive myself, been through two lots of strong meds that I couldn’t take and about to try a third lot, so fingers crossed! Good luck in the coming months and look forward to your next vid. X

Thank you for sharing your autoimmune hepatitis story. I am also having elevated liver function test results for many years now and currently seeing a good specialist to figure out an reason and just have done a liver biopsy. Your story educated and couraged me, gave me hope. You're beautiful by the way and please stay positive.

Kirsty, thank you very much for sharing. I really appreciate it. I was diagnosed with celiac disease, PBC, and AIH in one day! I was doing endoscopy & colonoscopy bcs I had some GI problems. So we discovered the liver diseases by a coincidence from blood results. I received my liver biopsy results yesterday, it seems that I have AIH & PBC. I’m yet to meet with my doctor. My feelings are numb so far, however I get terrified every time I think of taking prednisone and steroids.

Hi Iam also sufferening from liver disease plz help me.no biopsy or nothing

Do you remember what your lab work looked like when you first got diagnosed? My liver enzymes have on occasion been very slightly elevated above the normal range, often falling back within normal range. No one's worked it up until recently when I got a stomach ulcer and all of a sudden started developing a ton of symptoms. Mostly lots of widespread muscle aches and fatigue. My doctors decided to look into autoimmune disorders and my Smooth Muscle AB was positive with a ratio of 1:80. Do you know what your autoimmune antibodies were when you were diagnosed and how out of range your AST/ALT were? I have a feeling I'm heading towards a autoimmune hepatitis diagnosis.

Hai 20mg once daily for 3days can I take withdrwl for this

Wow your amazing. I’ve just watched your 3 part video and found it very helpful and informative. I am a 46 y old man and just been diagnosed with AIH , I’ve been on my steroids a week and have noticed my appetite has definitely increased! I was perfectly healthy up until March when I developed jaundice and fatigue. But I couldn’t get treatment or a biopsy because of the Covid pandemic. I don’t know how much my liver is damaged or much about the disease but thanks to you I will now as my consultant more questions. Your outlook on living with AIH is inspiring. Thank you

Thank you for covering this issue. My 20 year old son is finding not being able to have a drink very difficult. He was diagnosed with AIH nine months ago. He is feeling like the odd one out among his friends when it comes to celebrating birthdays, Christmas etc. And going to nightclubs which he would do maybe once a month with his friends. Its not that he would drink a lot but not being able to when his friends are is having an impact on him at such a young age.

Hello Kristy, good to see u back on TH-cam. Stay positive, my prayers and best wishes are always with u.

Would you mind sharing a little about any side effects you might have had from taking the imuran medication and what dose you need to take, my 20 year old son has been recently diagnosed with aih and has developed a bad skin rash on his face since taking the imuran

Hello Kirsty, what is your daily dose of azothiaprine and steroids. I am also suffering from AIH. Stay strong!

Hey ! My name is Shaheen and I’m from Zambia. My mum got diagnosed with autoimmune hepatitis last month and I have a few enquiries to make. Is it possible if I can have you email address ?😊

You're positively gorgeous! Keep smiling :-)

Thank you Kirsty for the positive message. As mentioned previously I am in a similar position, no communication though from Consultant or GP and also unsure about attending for regular blood tests so will have to contact, though loathe to bother them. Glad you are doing so well and keeping busy.

Hi Kirsty and thanks for this. I have the same condition and am in lock down with my husband. When I was first diagnosed I watched your videos and found them to be a great resource and a comfort too. Look after yourself and hopefully we will all get through this and come out the other end in good shape. I'm with you in praising the NHS, they are doing a fantastic job in very difficult circumstances. Take care and will look forward to your next video if you feel up to it. x

THANK YOU FOR YOUR VIDEOS. I have a mild autoimmune hepatitits and your videos give me hope.

Did you get a Hep B vaccine?

Please tell me whats good to eat in AIH

I was diagnosed at 23 but I experience severe itching does anyone else have this problem?

Hi thank you for your story. My bloodwork currently shows very high amounts of liver enzymes and a low titer for lupus. Had an ultrasound done that was normal. I'm currently waiting on genetic testing results and next week i have a biopsy. My doctor believes I either have Wilson's syndrome or autoimmune hepatitis. I'm almost 100 percent sure it's autoimmune hepatitis. I'm scared but also looking forward to finally being cured as this has been going on for years and doctors just kept saying stop taking Tylenol, bc powder, etc. They didn't know what was going on as my enzymes would be high one week, then normal the next. Also, I'm in university studying genomics and molecular genetics and am trying to make a possible link between certain genetics and autoimmune diseases. If you don't mind me asking, are you rh negative maybe O? Possible Celtic ancestry? God bless

hi my name is shaikha and I got diagnosed with autoimmune hepatitis when I was 14 and my symptoms was itchy skin and yellow skin and eyes, now I'm 20 years old and I'm still talking 100mg of azathioprine

I was had autoimmune Hepatitis and I got my liver transplant 9 years ago

You honestly have almost the same story as me, and it's not that I'm happy you had to go through these things too, but I feel much less alone. I've also never reflected on all the past procedures, medications, and mental ups and downs I've had for the last 4 years.. this is making me realize how much this has affected my life, even though my day to day isn't all too crazy. Thank you for sharing 💜

Wow, this is exactly what I am thinking of all the time. I am a German girl and was diagnosed with AIH last year. I have been on prednisolone ever since. In the beginning my levels didn’t improve so I was on 20-50mg/d for quite a while. Now I’m down on 7,5mg but I really feel your “relationship” to these drugs. I know that they saved my life but with these horrible side effects, all I could think of was “I hate you, please leave me alone, I don’t want you in my body, why why why...”. Going to school with everyone asking what’s going on with my face was a really hard time for me and I got quite depressed for a while. Nevertheless I totally agree on some of your points, especially one and three. I feel like this energetic time in the beginning of my treatment was the most productive time I ever had in my entire life. I don’t know many people who have experience with steroids like I do so it’s very cool to see that you have a quite similar relationship to them. (Sometimes I just feel so ungrateful because I can’t just love them for being an amazing drug and a lifesaver). I hope you’re feeling fine now and I want to say that I love your spirit in these videos. Thank you for telling your story.

Great video! I have been thinking about getting Evanna. Love both your colors. Thanks for sharing your story.

Hello! I love your collection. All so very natural. Thank you for having the courage to post and share. You're beautiful!

hi , im 31, i just got diagnosed. i am now on Prednisone for 3 days. i am actually working oversea on a working visa, i came back home for holiday and somehow the doctor found out my liver ALT level is high and I had a liver biopsy. so yeah, it says i have Autoimmune hepatitis. to be honest, i am still not so sure what is it gonna do to me, because I have no symptoms at all. but doesnt seems like my doctor wants me to leave, because I might need regular checkup and blood test. I am so confused now if I should stay in my country for the rest of my life or still work oversea. I am now still at my home country, doing nothing these days, because my doctor wants me to take Prednisone for few weeks and see how it goes first. I feel very sorry for my colleagues to cover my work for me, but I really dont know when can I go back... shall I just quit the job and let them find someone else? this is very hard to decide. sorry, just being confusing these days, want somewhere to express my feeling.. and sorry for my english.. anyway, thank you for ur video

You are very inspirational. Compared to what is going on with my liver, I feel bad for worrying so much. While I have no diagnosis yet, your story gives me hope.

Hey my Name is isabelle i live in Germany and in Germany we don’t have Videos like this I am 16 years old and i have autuimmune Hepatitis Sorry my englisch is Not that good 😂

Thank you . You have such a fabulous attitude and I wish you much improved health in the future . I’ve been on 25 mg for 2weeks now and it has been a godsend but yes there are the side effects. For me , wired at night is annoying but I have too many positives so far so I’m trying to count those instead. Good luck and take care .

You are amazing. Thank you so much for relating your story and updating us. My girlfriend was just diagnosed with auto immune hepatitis. We are reeling from this and trying to find balance again. She is in the early stages of being diagnosed and just started on medication 5 days ago. I'm going to keep your example in my mind and try to be a calming and helpful influence to her. Thank you so much for your video.

I was just diagnosed with Scleroderma early last year, a rare autoimmune disease, the official name that I have is Systemic Limited Scleroderma aka CREST. That's a mouth full! I was also tested for a multitude of other diseases. So along with the scleroderma, I have anticardiolipin antibodies(blood clotting disorder) and asma(anti smooth muscle anitbody) which is a liver test. My doctor wasn't too worried about the asma because it was a weak positive. I was just tested again for the asma and it came back as a strong positive! I am totally heartbroken. I don't really have any symptoms of it, I believe, because I have scleroderma it is hard to tell which disease is causing gi problems at the moment. I go to see a hepatologist next week to see what I need done and what the treatment plan is going to be. I have found your videos most helpful and comforting. My family has been very supportive and I am very grateful because of that. I hope that all stays well with you.

Great story Kirsty, you have such a positive outlook on life xx I too have SLE & AIH. Its hard to live a normal life, but we manage somehow😊

I am 11 and got Diagnosed this year and watching you help me knowing that I am not alone so thank you