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Lilliana’s Heart Association
เข้าร่วมเมื่อ 7 มิ.ย. 2021
Congenital Heart Defect and Heterotaxy Awareness Videos, Along with videos pertaining to our developing non-profit activity
Chylothorax & CHD - Lilliana’s Heart Association
Information about Chylothorax associated with Congenital Heart Disease.
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To donate:
(all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes)
Credit/Debit card or PayPal:
www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wqQLFq514bCr_CCMi9M
Cashapp: $LillianasHeart
Venmo: @LillianasHeartAssociation
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For more information, or to contact us for assistance:
Facebook Page: lillianasheart
Facebook Profile: Lilliana’s Heart Asso
Website: Www.lillianasheartassociation.org
Email: contact@LillianasHeartAssociation.org
Instagram: Lillianas.Heart.Association
Twitter: @Lillianas_Heart
Tiktok: @Lillianas.Heart
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To donate:
(all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes)
Credit/Debit card or PayPal:
www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wqQLFq514bCr_CCMi9M
Cashapp: $LillianasHeart
Venmo: @LillianasHeartAssociation
••••••••••••••••••••••••••••••••••••
For more information, or to contact us for assistance:
Facebook Page: lillianasheart
Facebook Profile: Lilliana’s Heart Asso
Website: Www.lillianasheartassociation.org
Email: contact@LillianasHeartAssociation.org
Instagram: Lillianas.Heart.Association
Twitter: @Lillianas_Heart
Tiktok: @Lillianas.Heart
มุมมอง: 162
วีดีโอ
GERD & CHD - Lilliana’s Heart Association.
มุมมอง 532 ปีที่แล้ว
Information about Gastroesophageal Reflux Disease, common in Heterotaxy and CHD patients. ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wq...
What is PCD? - Lilliana’s Heart Association
มุมมอง 2412 ปีที่แล้ว
Information about Primary Ciliary Dyskinesia, often found in Heterotaxy and CHD patients. Find a PCD center: pcdfoundation.org/find-a-center/ ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E...
CHD & Stroke (Pediatric & ACHD) - Lilliana’s Heart Association
มุมมอง 812 ปีที่แล้ว
Information about Congenital Heart Disease and risk of Pediatric Stroke as well as the Adult Congenital Heart Diease community. ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1Z...
What is Asplenia/Polysplenia? - Lilliana’s Heart Association
มุมมอง 6913 ปีที่แล้ว
Information about Congenital Asplenia and Polysplenia as defects of Heterotaxy Syndrome. P.S. Please excuse my lisp and stutter, my new braces are not kind! ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_i...
CHD and Heart/Heart-Lung Transplantation - Lilliana’s Heart Association
มุมมอง 393 ปีที่แล้ว
Facts, risks, indications, and statistics about heart transplantation and bilateral heart-lung transplantation in the treatment of Congenital Heart Disease. ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_i...
Care Package Drive 2021 - Completion - Lilliana’s Heart Association
มุมมอง 173 ปีที่แล้ว
Putting all the care package bags together in preparation for delivery! Care package Drives are run every year from May to June, and delivered to different hospitals each year, to every family in the CICU on Lilliana’s birthday (July 19th) This year (2021) is going to NYU Langone Health Tisch Hospital/Hassenfeld Children’s Hospital in Manhattan, New York. Each Bag includes: Listerine Mouthwash ...
What is TAPVR/PAPVR? - Lilliana’s Heart Association
มุมมอง 1.5K3 ปีที่แล้ว
Total/Partial Anomalous Pulmonary Venous Return facts and information experiences EDIT: please note there was a mistake made in the voice over on one slide. It forms at 27 DAYS (as the slide states) not weeks. Sorry for any confusion! ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax...
What is Heterotaxy Syndrome? - Lilliana’s Heart Association
มุมมอง 2.1K3 ปีที่แล้ว
General Heterotaxy Syndrome Facts and Information ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wqQLFq514bCr_CCMi9M Cashapp: $LillianasHea...
What is CHD? - Lilliana’s Heart Association
มุมมอง 773 ปีที่แล้ว
General CHD facts and information ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wqQLFq514bCr_CCMi9M Cashapp: $LillianasHeart Venmo: @Lilli...
Annual Care Package Drive 2021 - Shopping Day 2 - Lilliana’s Heart Association
มุมมอง 203 ปีที่แล้ว
Every year, in memory of Lilliana, we do a care pacakage drive for her birthday. This year we are delivering to NYU Langone Health-Hassenfeld Children’s Hospital, where she received the majority of her care throughout her life. This is Day 2 of shopping for supplies for the care packages. $210 spent, at Walmart and Dollar Tree. We have 1 or two shopping days left til we complete the shopping fo...
About Us - Lilliana’s Heart Association
มุมมอง 563 ปีที่แล้ว
Who we are and what we do ••••••••••••••••••••••••••••••••••••• To donate: (all donations are tax-deductible to the full extent of the law! Please contact us for a donation receipt for tax purposes) Credit/Debit card or PayPal: www.paypal.com/donate/?hosted_button_id=7TSHKFH57RE7E&fbclid=IwAR1ZsA9wrJ2vW2xjfUg_IPlm3Q8ktCoG7xtbaK95wqQLFq514bCr_CCMi9M Cashapp: $LillianasHeart Venmo: @LillianasHear...
My TAPVR child is 35 now and healthy!
I have pcd
Great presentation