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GAIN Charity
เข้าร่วมเมื่อ 16 ธ.ค. 2014
Maureen Neville & Nancy Di Salvo - GBS/CIDP Foundation International | GAIN's Big Get Together 2024
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London.
Maureen Neville & Nancy Di Salvo from GBS | CIDP Foundation International present a piece on their history, how GAIN and GBS | CIDP Foundation, International began working together, and the resources they have that you may wish to access.
As Rich says at the start of this clip, they funded The Big Get Together, so a huge thank you to them for making all of this possible.
Videos in The Big Get Together series include:
Welcome and Introductions | Carol Hooper, Chair
The Future of GAIN | Rich Collins, Chief Executive
Clinical and Research News | GAIN's Medical Advisory Board
Working Together | GBS/CIDP Foundation International
Emotional Health | Rare Minds
Celebrating the Community | Volunteers & Members
Questions and Closing Remarks | Mixed Panel
You can also watch these in one long supercut.
Maureen Neville & Nancy Di Salvo from GBS | CIDP Foundation International present a piece on their history, how GAIN and GBS | CIDP Foundation, International began working together, and the resources they have that you may wish to access.
As Rich says at the start of this clip, they funded The Big Get Together, so a huge thank you to them for making all of this possible.
Videos in The Big Get Together series include:
Welcome and Introductions | Carol Hooper, Chair
The Future of GAIN | Rich Collins, Chief Executive
Clinical and Research News | GAIN's Medical Advisory Board
Working Together | GBS/CIDP Foundation International
Emotional Health | Rare Minds
Celebrating the Community | Volunteers & Members
Questions and Closing Remarks | Mixed Panel
You can also watch these in one long supercut.
มุมมอง: 5
วีดีโอ
The Future of GAIN - Rich Collins, Chief Executive | GAIN's Big Get Together 2024
มุมมอง 32 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. GAIN's Chief Executive, Rich Collins takes the floor to share our plans and his thoughts on the coming months and years for the charity. Videos in The Big Get Together series include: Welcome and Introductions | Carol Hoop...
Emotional Health - Dr Stephanie Yin, Rare Minds | GAIN's Big Get Together 2024
มุมมอง 102 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. Dr Stephanie Yin from Rare Minds delivers a fascinating piece on the mental and emotional challenges these illnesses can pose, and steps we can take to alleviate some of that pressure. Videos in The Big Get Together series...
Celebrating the Community, panel inc. staff, members & volunteers | GAIN's Big Get Together 2024
มุมมอง 102 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. GAIN Chief Executive, Rich Collins moderates a session in which Claire Sams (GAIN member), and Jon Follows (GAIN volunteer) share their experiences with CIDP and GBS, and detail how you can get involved in local Get Togeth...
Clinical and Research News - GAIN's Medical Advisory Board | GAIN's Big Get Together 2024
มุมมอง 62 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. We're joined by several members of GAIN's Medical Advisory Board: Dr Jane Pritchard (Consultant Neurologist), Dr Rob Hadden (Consultant Neurologist), Dr Amy Davidson (Consultant Neurologist), Dr Tim Lavin (Consultant Neuro...
Questions and Closing Remarks, Panel & Carol Hooper | GAIN's Big Get Together 2024
มุมมอง 62 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. Bringing the day to a close is a brief Q&A session featuring individual members from the Medical Advisory Board, Rareminds, GBS/CIDP Foundation International, GAIN's Trustees, and, GAIN patron Professor Richard Hughes. Thi...
GAIN - The Big Get Together 2024 | All Sessions
มุมมอง 212 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. It was a day to celebrate the GBS and CIDP community in the UK. Attendees in person and online explored what was next for GAIN, heard about the latest medical news, covered international partnerships, focussed on emotional...
Welcome and Introductions - Carol Hooper, Chair | GAIN's Big Get Together 2024
มุมมอง 82 ชั่วโมงที่ผ่านมา
Following a successful AGM, on November 2nd 2024, GAIN (Guillain-Barré & Associated Inflammatory Neuropathies) held their Big Get Together conference in Canary Wharf, London. GAIN's Chair, Carol Hooper, welcomes the 2024 Big Get Together audience. Videos in The Big Get Together series include: Welcome and Introductions | Carol Hooper, Chair The Future of GAIN | Rich Collins, Chief Executive Cli...
Emotional Health and Support
มุมมอง 887 หลายเดือนก่อน
Rich Collins (GAIN CEO) is joined by Claire Shaw (a qualified Person Centred Counsellor) to discuss emotional health and support for people impacted by GBS, CIDP, MMN and other inflammatory neuropathies
Timescales
มุมมอง 1395 ปีที่แล้ว
Lee Clark tells us what it was like while his father was in hospital with Guillain-Barre syndrome. "It was a tough time for us."
Other possible diagnoses
มุมมอง 475 ปีที่แล้ว
Lee Clark tells us about the time before his father’s diagnosis of Guillain-Barre syndrome and what the doctors thought might be causing the symptoms. "It was an emotional rollercoaster."
Not knowing
มุมมอง 375 ปีที่แล้ว
Lee Clark tells us how he felt while the family were waiting for his father’s diagnosis of Guillain-Barre syndrome. "It’s the not knowing that’s worst."
GAIN interviews Lee Clark about GBS
มุมมอง 8095 ปีที่แล้ว
Lee Clark, professional football manager and former player, tells us about his experience of Guillain-Barré syndrome and how the illness took hold of his father.
GAIN Ambassador
มุมมอง 425 ปีที่แล้ว
GAIN introduces Lee Clark, football manager and former player, as the new ambassador for our charity. "I’m delighted and honoured."
Be positive
มุมมอง 425 ปีที่แล้ว
Lee Clark tells us what he learnt from his experience with Guillain-Barre syndrome. "It helps to be positive."
It's so good to have found this charity. My 3 year-old daughter, Libby, was diagnosed with GBS in January after weeks of misdiagnosis. We thought she was steadily improving but has had a real flare-up in recent weeks and is now back on Meds and reduced pre-school hours. Hoping for the best but good to know that we can get advice and info from the GAIN website.
I've just had a phone-call from my brother-in-law to say that his wife - my sister is in Intensive Care with GBS but I can't go and visit her as she is heavily sedated! What's the best thing I can do for her and my brother-in-law?