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I describe it like a wretched flu and fatigue you cant push through. The pain is constant. Then it keeps you from sleeping. Its debilitating and a vicious cycle. Just taking a shower can be the goal for the day. It takes me a month to do what I did in a day. At least. Ability to function is severely impaired.

I have had fibromyalgia since 2000. NOTHING that Drs will prescribe me works. I do take tramadol or i eouldnt be walking. Im prescribed xanax for my anxiety. Im prescribed ambien to sleep. Ive been on EVERY OTHER DINGLE MEDICINE Gabapentin being the worst, nut what DOES work is oxycodone. However, no one, not one Dr will prescribe it any longer. So i just suffer. Ive lost all of my relstionships and have no life.

I have had it for 30 years. There is no cure. Nobody I know believes that I can't just wish it away.

I’m a 37 year old man. Got fibro when I was 34 shortly after my J and J vaccine during COVID. Not sure if there is a relationship there but my life has been hell ever since. Severe pain, many sick days from work. I used to be so fit and active.

Accurate

In pain for 20 years with fibromyalgia and polymyagia .Also arthritis need knee replacement.Nobody can take my pain away .

😊 fibro sucks 😞 mine started 8 years ago after life changing car accident. Everyday is different. Ty for sharing 😊

I hate feeling stiff, heavy, walking slowing h😢it’s embarrassing like I’m old

I have been living with chronic pain, neuropathy and exhaustion since 2006… finally diagnosed with fibromyalgia this year(!). I have a bunch of red herrings, herniated discs/stenosis/food sensitivity/hormonal changes etc but I think it’s really wild that it’s taken so long for a Dr to actually diagnose fibromyalgia. I know a few things that cause flares now… spicy food (which I love but can no longer eat) will cause gut pain for weeks. Massage (which has always been a favorite indulgence) now causes Massive neuropathy flares which put me in bed for days and linger for weeks. And the heat is really rough for me now…challenging because I live in southern Arizona, where it’s crazy hot 6 months of the year (we are moving as soon as our son finishes school) Thank you for this video- I’m still questioning if this is truly fibromyalgia, but hearing everybody’s stories at least makes me feel like I’m not alone.

Worst thing.....pain and not being able to think to function....

Try B1 supplement. It might work. Educate yourself and study thiamine deficiency. If it won’t work you can stop taking thiamine supplement but it will not hurt you

Ugggg…I hate it 😒

could you talk any slower

Thanks so much for this James, i relate so much, it’s helped me feel less alone, the people in my life just don’t understand, sending love from Ireland 🇮🇪 ❤️

My symptoms started with covid and stress, and I brushed them off because I had so much work to do. One day my lover started one of many arguments with me and suddenly it felt like a 500lb person was sitting on my shoulder and my arm went numb. I thought I was having a heart attack. I’ve had panic attacks and anxiety, but I never had any education on anxiety. So I never knew I had it. My life was always “Get over it and go to school/work.” when I was sick or upset. I never had therapy or validation.

One of the hardest things for me is being unreliable. It's not my fault, I know, but I feel badly when I let people down. So, I tend to avoid making commitments that I might not be able to keep.

Getting back to the gym im sore as. But im gonna take it slow . Im going to try and swim to just to see.

It’s the Chronic Pain and Brain Fog that affects me. Meds don’t help. Appointment coming up in three weeks to see Neurologist.

Im so glad my doctors took me serious and two different ones told me i probably had it. I take lamictal and it helps. I also use medical canabis, gummies, i qualified. It helps some too

I've just been diagnosed with fibromyalgia waiting on an appointment for the pain clinic 👍

It really is a horrible thing to have, I have had it for 20 years, think was after breaking my back in a fall and a divorce. People do not understand it, if tou tell people they think your moaming minnie. I had bad flare up last 6 weeks, tingling all over, went to see doctor,.and said do you think it's fibromyalgia getting worse, she just looked at me like i was an idiot. She was one of those doctors that didnt believe in fibromyalgia. Look after yourselves much love, Catherine

James. I've just found your channel and have subscribed. It's really unusual for guys to have Fibro ( my friend Martyn has it too, and we were both professional musicians, but fibro robbed us of this ability 😢). I'm having a flare today - 'fluey' and knackered.. You know what it's like. Hope you're having a low pain Bank Holiday 😊Best wishes from the Welsh Borders, UK.

You don’t it for life now as there people coming on saying certain they are curing them selfs

How do I get one of these texts pls. Or wham can I get one. Pls.

How do I get one of these texts pls. Or wham can I get one. Pls.

How could they tell if you have fibomalragia. With your test. As there no texts that show up fibomalyagia. ?

They might come back ok but for me there not ok. As proven by taken some bought my own iron what a differane. My nails got whiter. I would just bug all own extra vitamins. Evan if there saying it’s ok.

I struggle daily with my fibromyalgia and chronic pain, I’ve tried everything since the big car accident for years like , green, cbd, matcha, types of vitamins superfoods, going gym, hydrotherapy, physiotherapy, I just feel at a loss because doctors just want to shove me on meds and it just doesn’t work, even yoga is extremely painful for me :/

Many have sensory processing disorder before cfs fybromyalgia diagnosis caused by Autism ADHD hypomobility.

Omg. Not only did he hit the nail on the head with everything we go through, he even has the same eye twitching thing that I do!

Thank you my brother for explaining your fibromyalgia. This disease hurts like hell. I am 72 yrs old. I have suffered with this for nearly 20 yrs. I have gone thru all the humiliation that medical professionals dish out due to their ignorance of the disease. If it weren't for medications, and certainly Jesus Christ I would be found curled in a tight ball on the floor crying my eyes out. I am a 205 lb man. Worked construction all my life. Worked hard all those years, but I am no match for the forces of this horrible thing. I find that all stressful situations only aggravate the pain more. I can tell you 2 to 3 days before a weather front comes in. The awful burning, nawing, pain. Freezing one minute and burning up the next. Body so sore you can't stand to cover with a sheet at night. Can't sleep. Can't think. You never know when a flare will hit. Horrible . I am so compassionate toward any one who suffers with this monster. God love you all.

Thank you for the way you explained this. I've been trying to put Fybro into words for my family but it's so difficult.Support from loved ones makes such a difference. Whishing you well❤

❤❤❤ Thsnk you for making this channel and talking about this. 😓

Could you do a video either in the gym or on the gym. I am 21 and before my fibro started I was in the gym 3 hours over 2 sessions everyday and I was in really good shape. Now in the last 2-3 years I have lost so much muscle and weight since and now if I go to the gym I just come back and wait for the flare up to begin.

Thank you SO much for starting this channel. So many people dont understand it 🫤

Dr lenz has good channel

Reason of the allergy to medication is because of autism adhd hypomobility😊

Soynds you have sleep apnea James

My neurologist says fybromyalgia is migraine in the body

I can’t believe you said about the stairs , I had exact same thing , I was walking some stairs in a hotel and it felt like I was climbing a mountain, when I got to the top I was so exhausted and thought maybe it was a virus or something, the fatigue is awful

I got diagnosed about 12 yrs ago and honestly the worse this is when I was told there was no cure , its deflating , I do also thinks it’s a stress induced illness

Wow so nice to hear others struggle at night. Turning because of pain and pins and needles it’s the worst for me and I fidget sat down in the day and night, it drives my husband mad 😂 🤦🏻‍♀️

If you have a medical prescription you’re allowed to be over the limit if for whatever circumstance you get prosecuted you can appeal and sue them. Just make sure you have all necessary documents of your prescription and everything will be okay they can’t prosecute you for following the law

We fight on. And on. And we MUST. It’s a shit as so few people actually understand or can empathise. How could they? Worst part of it all for me is frustration. I’ve always prided myself on my ability to undertake projects and restorations. Its been my life line and kept me sane in a increasingly stressful and complicated world. The periods where I am unable to function, think or even walk are emotional killers. Even holding a book can be impossible. This is the blackest interpretation of my condition. More funding and research is needed as I predict that our numbers will only increase. Stay strong folks!

I enquired about getting a prescription, but for the cost of the license and the other costs it’s just cheaper and easier to do it the old fashioned way.

Finally you got to explain what fibromyalgia, ive been suffering with it for the last 17yrs, restless legs, back spasms, exhaustion not been able to sleep, legs feel like your carrying weights, flare-ups where you cant eat, depression, anxiety, severe headaches, muscle pains, brain fog, God bless all who suffers from this debilitating disease 🙏🌹❤️☘️

Big dose of B1

I got a prescription for ankylosing spondylitis, fibromyalgia, anxiety and depression. I was super nervous because whenever i smoked weed in the past I'd have a savage panic attack. I got prescribed sunfarms pink kush and honestly it has changed my life. Deals with my pain, helps relieve my depression and it keeps my anxiety at bay. I only use it at night as I don't feel safe driving on it and the chances of me driving at night are slim. It has changed my life for the better.

did u ever get headaches with fibromyalgia? i get headaches after working out is that a symptom and it comes from my neck spreads to head and my feet and body feels weak excpecially when im doing hard work or working out so i dont workout now havent been diagnosed with it yet been to many neurologists

True!!