วีดีโอ

I’ve been on methotrexate injection for about 5 months, once weekly. I’ve never been able to get over the bloated feeling I have for a couple days after. I burp a lot and have a lot of gas that I feel I have trouble expelling ( like trapped gas somewhere in my GI tract). Simethicone helps minimally, but I still have to do methotrexate on Fridays because all the next day I’m in bed. 😞. Anyone else experience this?

I'm just starting my methotrexate injections, not sure how to measure though. I'm hoping to use insulin syringes instead of the 18 gauge needles they sent with the medicine.

So true with autoimmune diseases

i love this, i wish i could have one of those !!!

I have Sjogren's, Small Fiber Neuropathy, Raynaud's, Hashimotos and currently PMR. My first sign was bi-lateral trochleitis of the eye area. A few shots in the eyes did not relieve the pain. They say I have to cure the autoimmune causing it. Well, I don't think that is so simple.

Said a lot and gave nothing

I went to an internal medicine Dr. Did all the testing. At the appointment he just began talking about treatment. I had to make him pause after a while and just say what is my diagnosis you never did say. He looked back to my chart. He seemed uncomfortable. He said I have polymyalgia rheumatica and just kept talking. I had to stop him again to explain it to me. 🤷🏻‍♀️

Hi! Thank you for your content. I take metotrexate and lab results show "normal". recently stopped taking prednisone and pain is coming back. Even so I have tried yoga, weights, biking etc but still i get pain the day after. I told my dr and he said theres not much to do since the lab results show alright? 😢 Any recommendations anyone?

Hi, Cheryl! Just curious, would you know how people can know they have seronegative RA? I had scans with small erosions and mild inflamation, but I don’t know if that means it’s for sure and I’m just denying it or if I need to push to keep looking.

What supplement help?

I love his group!! He’s the inspiration for the start of my Group 💙

Love it!! So happy to see you both talking to each other!

can i use ur video for marketing purpose?

I self diagnosed myself with Sjogrens. Then had a positive lip biopsy. I had emergency GI surgery for an obstruction and rupture of my large intestine. I also had an inpatient admission for interstitial lung disease from Sjögren’s and I am now experiencing cognitive decline. Sjögren’s has been desvastating to my body and mind. I am declining rather quickly.

My ra doctor prescribed methotrexate Nd never did blood work. Always said next time. I dont drink or smoke or do illegal drugs 79. I got to where i didnt eat lost alot of weight. Went to gastric doctor who did liver biopsy etc. I havemeyhotrexate induced cirrhosis. Methtrexate has black box warning for cirrhosis. Told ra doctor and all she said was well get better. U dont get better u die

Technically, gingerbread houses arent meant for eating because the gingerbread is meant to build, so, using hot glue works, but make sure it doesnt heat up the house too much

God help you if you have an hmo ..

Thank you. Wonderful and useful. Newly diagnosed

... some of these Dr.'s are BRUTAL !!! : ( Just Horrible ! I'm so sorry you went through soooo much : ( Anyways, Thank-you ladies, lots of Great info shared here : )

Webinar

good stuff

Thanks

I lost all my teeth to Sjogrens. I had beautiful teeth so it was heartbreaking. I have dentures now but my mouth is always raw due to Sjogrens. So it hurts to wear my teeth. I'm so frustrated.

5 years later and your still helping folks with this video. Did my very first self injection just now with this as my support and had zero issues! Didn't even really feel it either. ❤ thanks, Lady! ❤🎉

I definitely wonder sometimes if women would be down marrying a guy who was just diagnosed with PsA and most likely will need double hip and knee replacements by age 50

My dad was diagnosed at age 7 in 1962. Destroyed his body since they had no treatments back then. Wreaked havoc on his heart and other organs, too, so even though he went into full remission in his 20s, he ended up passing in 2012 from heart disease. My grandfather (his dad) got it 30 years later than my dad in 1992, so I watched it destroy two people close to me. My brother and I were sure we weren't going to get it, since We'd already reached our 30s, but I was diagnosed with psoriatic arthritis last year at age 37. It's already damaged multiple joints and some flares are so bad I can't do physical work Also, I totally relate with most people not understanding or even taking it seriously. Makes you feel alone and unsupported. Growing up, I always wondered why my dad never tried to explain his health conditions to anyone. Now I understand - he must've learned early that most people either don't believe you or don't care.

Is Sjogrens disease hereditary?

Thank you. This is very helpful.

Thank you for this!! 💜

I also had a double hip replacement at age 41 about 8 months ago...and I am currently starting to run! Good for you!

Good one.❤

Well explained! Thanks!

True Love! This is the first item I ordered because of your recommendation, about two years ago I think. I'm grateful to you every time I take it out of the drawer and plop it on a can. The arthritis in my hands has gotten worse over time, and this one tool has made a huge difference.

Omg! I have a red one. It was one of my first buys when diagnosed with RA in 2019. It is a lifesaver. ❤🙌🏽

I want to listen to this a few more times to harvest all the goodness out of it. Thank you so much for what you do. I listen, I take notes. I learn more with each bump in the road and I come here to find you and learn more tools.

How's your diet? ARE you limiting sugar intake or zero sugar?

Omg I want to make one so badly now! It’s so cuteeeee✨✨✨💅💅💅

MmM ThAt WaS dElISoUs

Good idea it’s more fun though to use the frosting and just have chaos lol

I've inserted the bottom ones over two years ago, and it helped me exactly 0%. Now two years later, i'm putting two upper ones, hoping it will start making a difference. I have chronic dry eyes.

I think I have more internalised ableism ( besides that word doesn't exist outside the AE language so many people may be like "americanisims") in me, than I would like to admit, but I do see, hear and feel it now more than ever. The mere fact, I am may be forced to go to work with Miss Rona, because I can't get sick note, when my colleagues could legit die from this if they get a worse version or are sensitive is pretty ableist to me.

So helpful! Do you take folic acid every day, including your injection day?

I just started this and it feels like hell, i’m losing so much weight as well. I’m glad i found this channel. Do you have any side effects?

I am very much this person! My own husband has refused me and told me I am at fault he does not want me anymore. I have an ileostomy and gtube. Every since I had to have my Colectomy, my husband has refused me "that way". He only wanted me one way. None of my old "friends"want to associate with me now because I am sick. I am completely alone. Plus I am told that it's all my fault, ignore that I am sick, and it's all in my head? My whole family including my children are this way also. I'm starting to think it must be in my head and I am a horrible person because I have this illness. I can't make friends either because they get scared and turn away.

I mostly agree. I do think it's important to make the definition of "disabled" and "normal" clear. Chronically ill is one thing, but if a condition is disabling, it's important to make sure it's not felt as "normal." I totally see where you're coming from, it's just with my experience with chronic illness, it's easy to convince myself I'm not trying hard enough and knowing I'm not "normal" helps me find motivation to fight the aspects of everything that makes it hard to live

I have a life long condition l was told that l would never reach my full potential at work asleep will sometimes be ill and yes with a bowel condition does make you less attractive

❤

I don’t have a health condition, but there are people who have a more full life than I do for other reasons. Isn’t that ok? I think that my life would probably be less full than it is now, if I had an ongoing health condition . I think that would make sense, and also be ok. Just love God everybody, and let God love you.

An interesting view. I wonder what my daughter, who has Rett Syndrome, would think about this - just like I have to wonder about what she thinks about anything. Some disabling conditions are life-limiting, so your definition of "ableism" is exclusionist and hurtful. What would be wrong with loving and accepting someone as they are - even if they aren't able to have a 'full life' experience? And who are you to decide what a "full life" is for other people? You seem very aware and open, so I'm not sure I'm getting the right message from this short clip. I can't imagine you would truly be insisting that everyone can do anything they want. Maybe some more explanation is needed.

Totally agree. Thank you for making this