Shayla’s Voice
Shayla’s Voice
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วีดีโอ

Health Update | Rett Syndrome | Special Needs Journey
มุมมอง 199หลายเดือนก่อน
Hi Ya'll, just sharing Shayla's health update on her journey with Rett Syndrome and Autism. So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much information as possible, and to seek the best help for our daughter. Shayla is now 9 years old a...
Just A Quick Hello
มุมมอง 184หลายเดือนก่อน
Just A Quick Hello
Check-In
มุมมอง 1182 หลายเดือนก่อน
Check-In
My Truth | A Moment of Vulnerability | Special Needs Parenting
มุมมอง 1574 หลายเดือนก่อน
My Truth | A Moment of Vulnerability | Special Needs Parenting
Sleep Study | Sleep Apnea | Special Needs Journey | Rett Syndrome
มุมมอง 5194 หลายเดือนก่อน
So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much information as possible, and to seek the best help for our daughter. Shayla is now 9 years old and is growing beautifully. Join us as we journey with autism and Shayla’s Voice. My goal is ...
Quick Hello With Shayla!
มุมมอง 4005 หลายเดือนก่อน
Quick Hello With Shayla!
Tonic Clonic Seizures | Girl with Seizures | Special Needs Journey | Rett Syndrome
มุมมอง 2125 หลายเดือนก่อน
So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much information as possible, and to seek the best help for our daughter. Shayla is now 9 years old and is growing beautifully. Join us as we journey with autism and Shayla’s Voice. My goal is ...
First Time To Hairstylist | Hair Braided For The First Time | Special Needs Journey | Rett Journey
มุมมอง 2085 หลายเดือนก่อน
Shayla's first time to a hairstylist, she did sooo well. She never sits this well when i do her hair. Watch her get her hair braided for the first time by someone else. Continue to follow our special needs and rett journey. So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2...
New AFO's | Ankle Foot Orthosis | Special Needs Journey | Rett Syndrome
มุมมอง 5516 หลายเดือนก่อน
So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much information as possible, and to seek the best help for our daughter. Shayla is now 9 years old and is growing beautifully. Join us as we journey with autism and Shayla’s Voice. My goal is ...
Seizure Medication | Does Her Meds Work | Seizures | Special Needs Journey
มุมมอง 2486 หลายเดือนก่อน
In this video, i discuss Shaylas seizure medication. Does her seizure medication work? What side effects we have and whether or not we have more seizures since we started her meds. So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much informa...
Leg Tremors | Rett Syndrome Symptom | Special Needs Journey
มุมมอง 4747 หลายเดือนก่อน
So nice to meet you! I’m Annasha, a mom, foster mom and president of the non profit org. Shayla’s Voice. After our daughter Shayla, was diagnosed with autism at the age of 2, our mission was to gather as much information as possible, and to seek the best help for our daughter. Shayla is now 9 years old and is growing beautifully. Join us as we journey with autism and Shayla’s Voice. My goal is ...
New Ankle Foot Orthosis | AFO Process | Toe Walking | Special Needs Journey
มุมมอง 3938 หลายเดือนก่อน
New Ankle Foot Orthosis for Shayla. She has outgrown her past pair and it's now time to get new AFO's.
We Discovered A Snooze Room | Snoezelen | Snooze Room | Special Needs Journey
มุมมอง 2288 หลายเดือนก่อน
We Discovered A Snooze Room | Snoezelen | Snooze Room | Special Needs Journey
Trike Riding | Accessibility Bike | Special Needs Journey
มุมมอง 4479 หลายเดือนก่อน
Trike Riding | Accessibility Bike | Special Needs Journey
Waking Up | Sleeping In On Sunday | Special Needs Journey
มุมมอง 4109 หลายเดือนก่อน
Waking Up | Sleeping In On Sunday | Special Needs Journey
Tonic Clonic Seizures | First and Second Seizures | Special Needs Journey
มุมมอง 1.9K10 หลายเดือนก่อน
Tonic Clonic Seizures | First and Second Seizures | Special Needs Journey
Hidden Disabilities Sunflower | Special Needs Journey
มุมมอง 14410 หลายเดือนก่อน
Hidden Disabilities Sunflower | Special Needs Journey
Just Saying Hi 👋🏽
มุมมอง 37010 หลายเดือนก่อน
Just Saying Hi 👋🏽
Things That Makes Life Easier | Reusable Fruit Pouches | Special Needs Journey
มุมมอง 12611 หลายเดือนก่อน
Things That Makes Life Easier | Reusable Fruit Pouches | Special Needs Journey
Mexico Trip Sneak Peek | Shayla's Travel Adventures | Special Needs Journey
มุมมอง 22411 หลายเดือนก่อน
Mexico Trip Sneak Peek | Shayla's Travel Adventures | Special Needs Journey
Special Needs Gadgets | Accessibility Equipment | Special Needs Journey
มุมมอง 23411 หลายเดือนก่อน
Special Needs Gadgets | Accessibility Equipment | Special Needs Journey
Ankle Foot Orthotic | AFO Extension | Toe Walking | Special Needs Journey
มุมมอง 787ปีที่แล้ว
Ankle Foot Orthotic | AFO Extension | Toe Walking | Special Needs Journey
RETT Syndrome Diagnosis | Special Needs Journey | Miss Diagnosed
มุมมอง 649ปีที่แล้ว
RETT Syndrome Diagnosis | Special Needs Journey | Miss Diagnosed
HIIIIIII! We Are Still Here | Specialneeds Journey
มุมมอง 792ปีที่แล้ว
HIIIIIII! We Are Still Here | Specialneeds Journey
Winter Boots From Billy Footwear | Winter Boots and AFO's
มุมมอง 601ปีที่แล้ว
Winter Boots From Billy Footwear | Winter Boots and AFO's
Guess Who's Back????
มุมมอง 708ปีที่แล้ว
Guess Who's Back????
Shayla's Trip To Jamaica | Jamaica Adventures | Girl With Autism
มุมมอง 742ปีที่แล้ว
Shayla's Trip To Jamaica | Jamaica Adventures | Girl With Autism
Sneak Peek | Shayla's Trip To Jamaica
มุมมอง 4402 ปีที่แล้ว
Sneak Peek | Shayla's Trip To Jamaica
Autism or Rett Syndrome Diagnosis | Wrong Diagnosis | Special Needs Journey
มุมมอง 6442 ปีที่แล้ว
Autism or Rett Syndrome Diagnosis | Wrong Diagnosis | Special Needs Journey

ความคิดเห็น

  • @user-he5vv5th3s
    @user-he5vv5th3s 11 วันที่ผ่านมา

    Hello!! I teach people how to swim and I saw the video you posted of your daughter swimming. I am teaching a young lady how to swim and the young lady I am teaching how to swim looks exactly like your daughter and she wears a swimming costume that looks very similar to the swimming costume your daughter is wearing in the video. The young lady I am teaching how to swim is also autistic but she is very happy to be in the pool with me and seeing that video of your daughter swimming was very nice!!

    • @ShaylasVoice
      @ShaylasVoice วันที่ผ่านมา

      Amazing! Thank you for doing what you do.

    • @user-he5vv5th3s
      @user-he5vv5th3s 9 ชั่วโมงที่ผ่านมา

      @@ShaylasVoice You are very welcome for what I do!! I actually met with the young lady I am teaching how to swim who looks just like your daughter last week. She is slowly making progress in the pool but she is somewhat afraid if I am not holding her. It really is amazing to know that the young lady I am teaching how to swim wears a swimming costume that is nearly identical to the swimming costume your daughter was wearing when she was swimming in the pool and the young lady I am teaching how to swim looks very close to how your daughter looks.

  • @hiwotmolla5614
    @hiwotmolla5614 12 วันที่ผ่านมา

    Mu first time watching your channel. My eyes are filled with tears 😢. I also have 3 year old nonverbal ASD. You are strong mom! She so beautiful 😍!!! Thank you for sharing your stories. ❤❤❤❤❤❤

    • @ShaylasVoice
      @ShaylasVoice 12 วันที่ผ่านมา

      Awwww so nice to meet you and your baby. Thank you for your kind words. We have to be strong mama. We got this! Xo

  • @gorgeouswales9635
    @gorgeouswales9635 13 วันที่ผ่านมา

    Awe! Nice🌟

  • @beata6316
    @beata6316 14 วันที่ผ่านมา

    Very sweet and beautiful girl ❤❤❤

  • @AmitBhardwaj-106
    @AmitBhardwaj-106 29 วันที่ผ่านมา

    Jalandhar artifical limbs center Punjab India

  • @AmitBhardwaj-106
    @AmitBhardwaj-106 29 วันที่ผ่านมา

    Good evening dear sir dear madam This child is foot 85 ' Is not 85 foot a f o This a f o 90 diaries This walinking Is good But she Is 90 . Foot A f o good

  • @VloggingWithErinRenee170
    @VloggingWithErinRenee170 หลายเดือนก่อน

    It’s scoliosis

  • @autismmomjoy
    @autismmomjoy หลายเดือนก่อน

    Hello❤

  • @gorgeouswales9635
    @gorgeouswales9635 หลายเดือนก่อน

    Hi look at Shayla, cutie✨ thanks always for updates it’s helpful. I’m going thru those sleepless nights. Maybe cut out her nap time. Either way my daughter sleep is in/out as well. Have a bless fun rest of the week.😊 her smiles is priceless 🙌🏽

    • @ShaylasVoice
      @ShaylasVoice 28 วันที่ผ่านมา

      Xo thank you and you too. Her sleep was better for the last few days

  • @velasusti
    @velasusti หลายเดือนก่อน

    hiiiiiiiiiiiiiii wow shes all grown up and beautiful

    • @ShaylasVoice
      @ShaylasVoice 28 วันที่ผ่านมา

      Thank you. So grown now...sigh lol

  • @shabanakhilzi786
    @shabanakhilzi786 หลายเดือนก่อน

    after wearing i can't proper standup

  • @judymuturi1263
    @judymuturi1263 หลายเดือนก่อน

    Daym that’s where shayla got her hair from

    • @ShaylasVoice
      @ShaylasVoice หลายเดือนก่อน

      Hahaha lol. Her dad is actually Indian so it's kinda a mix lol

  • @gorgeouswales9635
    @gorgeouswales9635 หลายเดือนก่อน

    Awe how cute, she is growing. Thanks for sharing!😊

  • @tbrigorman
    @tbrigorman หลายเดือนก่อน

    Hey y'all! Keep the faith!

    • @ShaylasVoice
      @ShaylasVoice หลายเดือนก่อน

      Always. Xo

  • @afsahfarooq710
    @afsahfarooq710 หลายเดือนก่อน

    Thanks mama

  • @rabink.5115
    @rabink.5115 2 หลายเดือนก่อน

    Is it ok to give inulin and probiotics both to the child with autism?

    • @ShaylasVoice
      @ShaylasVoice หลายเดือนก่อน

      Unfortunately as we stopped the protocol, I don't feel that I'm the right person to answer this question.

  • @LoveTris
    @LoveTris 2 หลายเดือนก่อน

    Thank you for sharing this ❤

    • @ShaylasVoice
      @ShaylasVoice 2 หลายเดือนก่อน

      You are so welcome

  • @autismmomjoy
    @autismmomjoy 2 หลายเดือนก่อน

    Hey queen , shayla & family

  • @gorgeouswales9635
    @gorgeouswales9635 2 หลายเดือนก่อน

    Hi so good to hear from you all. My life with our little girl is similar. My girl is 11 years old. We use Prune juice for constipation, so far it’s working not a 100% but it works. Thanks for always good information. Take care to you all, as well😊

    • @ShaylasVoice
      @ShaylasVoice 2 หลายเดือนก่อน

      Hey hey, yes Sean mentioned introducing pruners into her smoothies, so we will see. Lol she's always clogging toilets lol

  • @user-rc5kh7ht7w
    @user-rc5kh7ht7w 2 หลายเดือนก่อน

    How does it feel to wear this?

    • @ShaylasVoice
      @ShaylasVoice 2 หลายเดือนก่อน

      She's not the biggest fan of it, but she wears it.

  • @autismmomjoy
    @autismmomjoy 3 หลายเดือนก่อน

    Youve got this ❤ are yall on ig

    • @ShaylasVoice
      @ShaylasVoice 3 หลายเดือนก่อน

      As do you. We are- same name

  • @svives1756
    @svives1756 3 หลายเดือนก่อน

    Hi there, I’m a fellow special needs mom of a 5yr old boy on the spectrum. I commend you for your honesty and vulnerability. I can relate to your feelings as I try to navigate daily. Some days I feel on top of the world like “Yes God I was chosen for this!” other days I’m so physically and emotionally exhausted up all night trying to research something…anything…and if I’m not doing that I feel guilty. There have been many times my faith has taken a hit where I’m just so frustrated and sad and then I’m upset at myself for even being sad..so yeah it gets real lol I am also a Christian with not so much support as I would like from friends/family but I understand it’s hard for them to understand our journey. It’s myself and husband and I can only pray for more grace to get us through each day while asking God to give us the strength to trust him more and his plan instead of beating myself up on things I can’t change during this season. I think you and Shayla are so beautiful, glad I found your channel. Shayla is perfectly and wonderfully made! Love & Blessings from NYC

    • @ShaylasVoice
      @ShaylasVoice 3 หลายเดือนก่อน

      So nice to meet you and your family. Thank you for sharing your journey and your kind words. I k ow that with God, we can certainly do this for He has a plan for us and its one that is good. As long as we continue to commit our everything to Him, He will direct us. Our faith will take hits- that's the devil trying to throw us off...But God! Xo

  • @PMCHIM777
    @PMCHIM777 4 หลายเดือนก่อน

    Your daughter is so beautiful. You are an amazing mom and so is dad. There is nothing that God cannot do for her. We will be praying for Shayla's speech and overall breakthrough ad deliverance 😊❤.

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      Thank you so much. We welcome and appreciate all prayers.

  • @Praise_God444
    @Praise_God444 4 หลายเดือนก่อน

    I have invisible disabilitys as well

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      Nice to meet you and I love your name

    • @Praise_God444
      @Praise_God444 4 หลายเดือนก่อน

      @@ShaylasVoice thank you I changed it from praise_god04 to this channel name my name is dia a

  • @quenteznelson
    @quenteznelson 4 หลายเดือนก่อน

    Im a special needs parent, as well. Our son was born with no heartbeat and no oxygen, for 11 minutes, which caused severe brain damage, cerebral palsy, and can't walk or talk among a number of other disabilities. With that, I completely understand your struggle, and I appreciate this video. It allows me to feel like my wife and I aren't the only family that's dealing with this issue. Much Love, be blessed!!!

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      So nice to meet you and thank you for sharing. There are so many of us going through tough times but feel like we need to hide and portray to be strong...but we are human. I will keep your family in my prayers. Xo

  • @april__marie
    @april__marie 4 หลายเดือนก่อน

    👋🏽 so I can relate! I have been trying to find ways to fill up my own cup too. As far as faith, I’ve written a couple of lists in the notes on my phone. I wrote a list of what is bothering me and then whatever scriptures that came to mind to combat that stuff and switch my perspective. I also wrote a list of all the storms and struggles in life that God has brought me through and read them out loud to help build my faith. Anyways, if you find the time maybe the lists can help you too. Thank you for sharing your truth and I pray you give yourself grace and love🙏🏽❤️

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      Ahhhh, thanks mama. It gets so tiring hiding and pretending. I recently got some tools to help me be more Intentional about strengthening my faith and drawing nearer to Christ. I have no doubt that He got us.

  • @gorgeouswales9635
    @gorgeouswales9635 4 หลายเดือนก่อน

    I can totally relate with the struggle is real. My faith, I’m a Christian as well I only put my trust in God. I would say “don’t ever give up on God, keep trusting him. Good thing you got going you have trusted friends I don’t have any. My hubby is with me, that’s about it besides God. Thank you so much for your vulnerability it has helped me already. 😊 by the way, you look fine without makeup.

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      Thank you for your truth. I will never give up on God and I'm learning to slow down and make time for Him. Thank you for sharing and your support.

  • @KM_Loves_Books
    @KM_Loves_Books 5 หลายเดือนก่อน

    As an adult who has returned to wearing AFOs, these were my first find. Although the size I ordered were too small. I will be contacting Customer service in hopes of an exchange. Hope my CS experience is as good as yours was.

    • @ShaylasVoice
      @ShaylasVoice 4 หลายเดือนก่อน

      Hopefully. They were excellent when I did

    • @KM_Loves_Books
      @KM_Loves_Books 4 หลายเดือนก่อน

      @@ShaylasVoice The did offer me a shipping label to send them back for a refund. And then I plan on re ordering the right ones.

  • @mackenziehacker7787
    @mackenziehacker7787 5 หลายเดือนก่อน

    Way does she needs afo’s

  • @autismmomjoy
    @autismmomjoy 5 หลายเดือนก่อน

    Hey ❤

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Long time. How are ya?

  • @gorgeouswales9635
    @gorgeouswales9635 5 หลายเดือนก่อน

    Nice!🌟

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Thank you! 😊

  • @gorgeouswales9635
    @gorgeouswales9635 5 หลายเดือนก่อน

    Awe! 13 wow beautiful 🌟 she looks at you with love/happiness💕 Enjoy Shayla, she’s growing tall, looks pretty🎊 Thanks for always sharing. I have an 11 year old daughter, I can relate.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Awww thank you. Xo to you and your daughter

  • @Praise_God444
    @Praise_God444 5 หลายเดือนก่อน

    Love you. HAPPY 13TH BIRTHDAY SHAYLA🎉🎉🎉🎉🎉

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Thank you. Xo

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      @@ShaylasVoice can I get a shout out

  • @crownedneptune
    @crownedneptune 5 หลายเดือนก่อน

    Thank you for this ! I have a 9 year old daughter with autism that still has accidents and struggles with cleaning herself properly … it’s been a struggle especially with her school understanding her struggles … to the degree that someone new at the school called cps on me because of her accidents … smh the case was closed within a week … its been a long road ….but it’s comforting knowing others know and understand this process !

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Trust me, it's been so long since I made this video, and she's still not potty trained. Don't let people bother you! It's hard, it is. But it will get better.

  • @bonds88
    @bonds88 5 หลายเดือนก่อน

    Did the same... ordered the book and followed the protocol with my son using the same supplements (omega oils, inulin, olive oil). Unfortunately didn't notice any results at any point.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Yup, happy for those who are successful but for some of us ...nope

  • @SunshineCami2024
    @SunshineCami2024 5 หลายเดือนก่อน

    I'm so glad that Shayla is doing ok! I am always praying for her and thinking of you all! I have FND and so I have had seizures before, and they are no fun! I always look forward to your videos.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Xoxo. Thanks for your continued support

    • @lachellewade5552
      @lachellewade5552 หลายเดือนก่อน

      I have seizure too my name is lachelle😮😢😢😢😢😢😢😢😢😅😅😊😅😅😊😊😊😊😊😊😊😊😊😊😊😊😊😊😊😊😊

  • @lifeasthesmjs695
    @lifeasthesmjs695 5 หลายเดือนก่อน

    Good video but all the mouth smacking and swallowing….ugh.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Appreciate your feedback 🙏🏾 will do better

  • @Praise_God444
    @Praise_God444 5 หลายเดือนก่อน

    Love that your going live. What does your daughter's seizures look like

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      She has tonic clonic seizures. The last about 35 seconds with a bit of tremors

  • @Praise_God444
    @Praise_God444 5 หลายเดือนก่อน

    I also have tonic clonic seizures

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      It's so scary and new to us. How are you managing?

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      @@ShaylasVoice I have one a month

  • @motionless_horizon
    @motionless_horizon 5 หลายเดือนก่อน

    I’m getting AFOs for ankle instability, and this is super interesting. I’m autistic and worry about new things, so seeing how the fitting is done helps a lot. Thank you

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Amazing. Hope it all goes well for you

  • @Praise_God444
    @Praise_God444 5 หลายเดือนก่อน

    So cool I sent you my youtube link on your last video you posted❤

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      I subscribed

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      @@ShaylasVoice thank you so very much

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      I also have tonic clonic seizures

  • @Singwithyourheart
    @Singwithyourheart 5 หลายเดือนก่อน

    Shayla is so beautiful I'm 32 now but I remember these days with my mom at the doctors office so valuable and you are a great mother don't forget to take care of yourself God bless you your husband and your beautiful daughter.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Thank you so much. This is just what I needed to hear...sigh. xo

  • @Praise_God444
    @Praise_God444 5 หลายเดือนก่อน

    Love your content ❤❤❤❤ Can i get a shout out for my channel. God bless you and your family.

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Of course. Drop your link

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      @@ShaylasVoice youtube.com/@Love_Yourself474?si=AHQgY0EwQWz6i60-

  • @karenb2873
    @karenb2873 5 หลายเดือนก่อน

    She looks like such a Teenager...........A PRETTY/BEAUTIFUL one at that!!!!!!!!!! SMILE BABYGIRL because I AM!!!!!

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      A teenager!!!! Can't believe she's going to be 13!!!

    • @karenb2873
      @karenb2873 5 หลายเดือนก่อน

      @@ShaylasVoice A Beautiful 13 at that!!!!!

  • @babybluepradas1
    @babybluepradas1 5 หลายเดือนก่อน

    Ur hair looks so cute

    • @ShaylasVoice
      @ShaylasVoice 5 หลายเดือนก่อน

      Awww ty.

  • @Praise_God444
    @Praise_God444 6 หลายเดือนก่อน

    Can i get a shout out.please❤❤❤❤

    • @ShaylasVoice
      @ShaylasVoice 6 หลายเดือนก่อน

      Xo

    • @Praise_God444
      @Praise_God444 5 หลายเดือนก่อน

      @@ShaylasVoice so can I please

  • @burakakgoc9346
    @burakakgoc9346 6 หลายเดือนก่อน

    2231111019191919191991111111 0:53 ❤

  • @Praise_God444
    @Praise_God444 6 หลายเดือนก่อน

    Does she have fidgets to play with. How old is shayla. Does she have a communication device

    • @ShaylasVoice
      @ShaylasVoice 6 หลายเดือนก่อน

      She is almost 13, she doing like doing much with her hands because of the hand wringing caused by the Rett Syndrome

  • @Praise_God444
    @Praise_God444 6 หลายเดือนก่อน

    I just developed tonic clonic seizures as well they are definatly not fun

    • @ShaylasVoice
      @ShaylasVoice 6 หลายเดือนก่อน

      Oh no! Are you on anti seizure meds now?

    • @Praise_God444
      @Praise_God444 6 หลายเดือนก่อน

      No but I might need to get on it they are getting a lot worse I have them for a least an hour and a half or more

  • @SacredOwl
    @SacredOwl 6 หลายเดือนก่อน

    Build a shielding room, stops my wifes seizure instantly and prevents them of she goes in on time. Seizures that are triggered by space weather can be stopped immediately. You know its space weather if the seizures occur around the same time (typically 11pm 2am-3am windows) Also there are other times that are random, but you have to know how to check the space weather stack plots because three things need to come together to trigger it.

    • @ShaylasVoice
      @ShaylasVoice 6 หลายเดือนก่อน

      Thank you for this feedback. So far, we haven't identified weather as a trigger for her. That being said, I never knew weather could be a trigger. Definitely something to keep in mind. Thank you

    • @SacredOwl
      @SacredOwl 6 หลายเดือนก่อน

      @ShaylasVoice not weather, but space weather like solar flares. There is electric induction (like a wireless battery charger) which occurs when our magnetosphere moves, this induction effect humans on the ground, so if there is some type of damage, then the brain or other part of the body, can not mitigate the extra electricity fast enough, resulting in a medical episode or in the case of the brain a seizure. I know several people whose seizures are triggered this way, as a matter of fact sometimes they have seizures at the same time. The first thing to do is track the seizures and note the date and time to see if the seizure occirs at the same times as the space weather flux. I can look for you to see if it is a match and then if itnis explain how to continie tracking to see if in fact space weather is triggering the seizures. Once you see that the correlation is there, then you can build a shielded room yourself fairly easy.