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Patient Safety Learning
United Kingdom
เข้าร่วมเมื่อ 13 พ.ค. 2019
Patient Safety Learning is a charity and independent voice for improving patient safety.
Covid-19 Airborne Transmission Alliance (CATA) & the Covid-19 Inquiry: Interview with David Osborn
In this interview, David Osborn, chartered occupational safety and health practitioner and member of the Covid-19 Airborne Transmission Alliance (CATA), speaks to Lotty Tizzard, Digital Content Manager at Patient Safety Learning, about how CATA was established during the pandemic to advocate for adequate respiratory protection for NHS employees.
David explains how CATA advocated for the government and heath service to recognise that Covid-19 is passed on by aerosol transmission (through microscopic particles in the air). He also outlines why surgical masks do not adequately protect people against catching airborne viruses and describes how inadequate respiratory protective equipment (RPE) contributed to thousands of NHS staff catching Covid-19 at work. As a result, many healthcare workers died and a large number still live with the ongoing symptoms of Long Covid. David also describes CATA's involvement as a Core Participant in the Covid-19 Inquiry and outlines what he hopes will be done to ensure the UK is better prepared for future pandemics.
Patient Safety Learning is also a member of CATA.
David wishes to clarify a point raised in the interview:
"When talking about the “IPC Cell” I said that they 'didn’t produce minutes'. In fact, notes or minutes were taken at all IPC Cell meetings. The point I was making is that they were not published ('produced' in the sense of being released into the public domain), when the minutes of most other groups such as SAGE and NERVTAG were published.
The few IPC Cell minutes that have trickled into the public domain have mostly been as a result of Freedom of Information requests by a colleague and a few that I have managed to obtain myself. In some cases, public authorities have taken around 18 months to disclose documents, and it has required the intervention of the Information Commissioner's Office. I anticipate that more minutes will be disclosed for public scrutiny as time goes on."
David explains how CATA advocated for the government and heath service to recognise that Covid-19 is passed on by aerosol transmission (through microscopic particles in the air). He also outlines why surgical masks do not adequately protect people against catching airborne viruses and describes how inadequate respiratory protective equipment (RPE) contributed to thousands of NHS staff catching Covid-19 at work. As a result, many healthcare workers died and a large number still live with the ongoing symptoms of Long Covid. David also describes CATA's involvement as a Core Participant in the Covid-19 Inquiry and outlines what he hopes will be done to ensure the UK is better prepared for future pandemics.
Patient Safety Learning is also a member of CATA.
David wishes to clarify a point raised in the interview:
"When talking about the “IPC Cell” I said that they 'didn’t produce minutes'. In fact, notes or minutes were taken at all IPC Cell meetings. The point I was making is that they were not published ('produced' in the sense of being released into the public domain), when the minutes of most other groups such as SAGE and NERVTAG were published.
The few IPC Cell minutes that have trickled into the public domain have mostly been as a result of Freedom of Information requests by a colleague and a few that I have managed to obtain myself. In some cases, public authorities have taken around 18 months to disclose documents, and it has required the intervention of the Information Commissioner's Office. I anticipate that more minutes will be disclosed for public scrutiny as time goes on."
มุมมอง: 48
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Physician associates: What are the patient safety issues? Interview with Dr Asif Qasim
มุมมอง 114หลายเดือนก่อน
In this interview, Helen Hughes speaks to Asif Qasim, Interventional Cardiologist and founder of MedShr, about the role of physician associates (PAs) in the NHS. They discuss the patient safety issues arising from inappropriate use of PAs in both primary and secondary care and outline concerns about the planned rapid increase in the number of PAs working in the healthcare system. Asif describes...
Developing the Patient Safety Partner role: Presentation by Imperial College Healthcare NHS Trust
มุมมอง 422 หลายเดือนก่อน
Embedding the Patient Safety Partner role has been approached differently by different Trusts and organisations. In this presentation, Patient Safety Engagement Manager, Lea Tiernan talks about how they have worked hard to develop the role at Imperial College Healthcare NHS Trust in a meaningful and strategic way. Lea is joined by Armine Afrikian, a Patient Safety Partner to explain more about:...
Epistemic exclusion of harmed patients in patient safety: Call to action from Richard von Abendorff
มุมมอง 482 หลายเดือนก่อน
In this interview, Richard von Abendorff explores the concept of epistemic exclusion. Epistemic exclusion can be defined as the continual rejection of a person’s expertise and knowledge because of their lack of power or position. Richard describes his experience of epistemic exclusion both as a family member and during his time in patient involvement roles. He explains how and why he believes e...
Patient Safety Spotlight interview with Rosi Reed, Making Families Count
มุมมอง 276 หลายเดือนก่อน
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Rosi Reed is Development and Training Coordinator at Making Families Count (MFC), a organisation that offers practical training based on lived experience to healthcare professionals. Rosi talks to us about how MFC training benefits patie...
Tackling antibiotic underdosing: Interview with Ruth Dando, Head of Nursing at BHRUHT
มุมมอง 699 หลายเดือนก่อน
Ruth Dando, Head of Nursing, Theatres, Critical Care and Anaesthetics at Barking, Havering and Redbridge University Hospitals NHS Trust (BHRUHT) explains why antibiotic underdosing is a risk to patient safety and describes how she has implemented a change in practice to tackle the issue across BHRUHT. Antibiotic underdosing is a widespread issue in the healthcare system. The use of modern infus...
Patient Safety Spotlight interview with Chidiebere Ibe, medical illustrator and medical student
มุมมอง 16210 หลายเดือนก่อน
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Chidiebere is passionate about increasing representation of Black people in all forms of medical literature. In this interview, he explains how lack of representation at all levels of the healthcare system leads to disparities in healthc...
Patient Safety Spotlight interview with Tracey Hanson, Patient Safety Partner and victims advocate
มุมมอง 107ปีที่แล้ว
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Tracey talks about how her lived experience of navigating the criminal justice and healthcare systems as a victim of serious violent crime has shaped her role as a Patient Safety Partner. Tracey is passionate about speaking up for patien...
GP practices wanted for new VTE quality improvement project
มุมมอง 60ปีที่แล้ว
Thrombosis UK is inviting primary care practices and primary care networks (PCNs), to take part in a Quality Improvement project, focusing on the pathway to venous thromboembolism (VTE) diagnosis. In this 3 minute interview, Patient Safety Learning speaks to Jo Jerrome, CEO of Thrombosis UK, to find out more. We ask: Why VTE? Why primary care? Will taking part be time-consuming? What will you d...
An introduction to the hub, Patient Safety Learning's online platform for patient safety
มุมมอง 456ปีที่แล้ว
This video explains why Patient Safety Learning set up the hub, how you can join for free and the benefits of becoming a member.
Professor Jane Somerville: Supporting doctors who speak up for patient safety
มุมมอง 803ปีที่แล้ว
Professor Jane Somerville, emeritus professor of cardiology at Imperial College, talks about the issues facing doctors who raise concerns about patient safety issues in the NHS. She shares her views on the risks facing doctors who speak up and the ways that healthcare managers treat whistleblowers. She also highlights issues in the employment tribunal system and outlines the need to regulate NH...
Interview with Charlet Crichton, founder of UKCVFamily
มุมมอง 282ปีที่แล้ว
In this video, founder of UKCVFamily Charlet Crichton talks to us about why she established the group and describes the support it offers to patients. She outlines some of the issues people face when trying to access diagnosis and treatment, and discusses the limitations of the MHRA's Yellow Card scheme in collecting data about adverse reactions. She also describes how healthcare professionals ...
Patient Safety Spotlight interview with Jenny Davidson, midwife and Patient Safety Learning trustee
มุมมอง 170ปีที่แล้ว
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Jenny talks about the challenge of keeping up with and prioritising new guidance and the need to streamline recommendations to ensure they are implemented efficiently. She also discusses the importance of getting the basics, like staffin...
Patient Safety Spotlight interview with Ashley Windebank-Brooks, Head of PS, North Bristol NHS Trust
มุมมอง 121ปีที่แล้ว
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Ashley talks to us about the need to professionalise patient safety roles while also upskilling frontline healthcare staff to improve patient safety, describing the role that professional coaching can play. He also discusses the challeng...
Patient Safety Management Network: Presentation from Niall Downey, 29 September 2023
มุมมอง 132ปีที่แล้ว
This is the recording of a presentation given by Niall Downey at a recent Patient Safety Management Network (PSMN) meeting. Niall considered why error is inevitable, how it affects many different industries and areas of society and, most importantly, what we can do about it.
World Patient Safety Day webinar: Engaging patient for patient safety
มุมมอง 210ปีที่แล้ว
World Patient Safety Day webinar: Engaging patient for patient safety
Campaigning for safety as a patient, family member or advocate
มุมมอง 93ปีที่แล้ว
Campaigning for safety as a patient, family member or advocate
Patient Safety Spotlight interview with Kath Sansom, Founder of Sling the Mesh
มุมมอง 128ปีที่แล้ว
Patient Safety Spotlight interview with Kath Sansom, Founder of Sling the Mesh
CATA and the UK Covid-19 Inquiry presentation to SHBN
มุมมอง 407ปีที่แล้ว
CATA and the UK Covid-19 Inquiry presentation to SHBN
Patient Safety Spotlight interview with Martin Hogan, Lead Professional Nurse Advocate at CLCH
มุมมอง 12Kปีที่แล้ว
Patient Safety Spotlight interview with Martin Hogan, Lead Professional Nurse Advocate at CLCH
NatSSIPs 2 webinar 10 July 2023 - Session 2
มุมมอง 476ปีที่แล้ว
NatSSIPs 2 webinar 10 July 2023 - Session 2
NatSSIPs 2 webinar 10 July 2023 - Session 1
มุมมอง 1.2Kปีที่แล้ว
NatSSIPs 2 webinar 10 July 2023 - Session 1
Digital Health Hub Foundation Digital Health Awards 2023 entry
มุมมอง 15Kปีที่แล้ว
Digital Health Hub Foundation Digital Health Awards 2023 entry
Leading for patient safety - an interview with Partha Kar
มุมมอง 821ปีที่แล้ว
Leading for patient safety - an interview with Partha Kar
Interview with Elena Mucci, Consultant Geriatrician at East Sussex Healthcare Trust
มุมมอง 428ปีที่แล้ว
Interview with Elena Mucci, Consultant Geriatrician at East Sussex Healthcare Trust
Patient Safety Spotlight interview with Rob Galloway, Emergency Medicine Consultant at UHSx
มุมมอง 334ปีที่แล้ว
Patient Safety Spotlight interview with Rob Galloway, Emergency Medicine Consultant at UHSx
Patient Safety Spotlight interview with Judy Walker, Senior Business Consultant, iTS Leadership
มุมมอง 1832 ปีที่แล้ว
Patient Safety Spotlight interview with Judy Walker, Senior Business Consultant, iTS Leadership
Patient Safety Spotlight Interview with Jordan Nicholls, Serious Incidents, Governance & QI Lead
มุมมอง 4002 ปีที่แล้ว
Patient Safety Spotlight Interview with Jordan Nicholls, Serious Incidents, Governance & QI Lead
Patient Safety Spotlight Interview with Louise Pye, Head of Family Engagement at HSIB
มุมมอง 1872 ปีที่แล้ว
Patient Safety Spotlight Interview with Louise Pye, Head of Family Engagement at HSIB
Patient Safety Spotlight Interview with Jono Broad, Quality Improvement through Patient Involvement
มุมมอง 982 ปีที่แล้ว
Patient Safety Spotlight Interview with Jono Broad, Quality Improvement through Patient Involvement
More bandwagon... would be lovely to hear a less emotive account. Misleading to state and re-state 2 years training as if it counts for nothing at all (how does this compare with the annual release of house officers entirely reliant on the nurses). PA's will have a 3 year healthcare / biosciences degree on entry to their '2 years of training'. Would you admit to stoking the hysteria? Asserting that non-supervised practice is prevalent is not as clear cut as the absolute terms being thrown around here, especially given the weaknesses of survey methodology. What is your solution to the crisis and shortcomings in workforce. PA's do not walk into band 7 jobs. Their potential for progression through the ranks you have enjoyed are nil. As for the language, Physician associates vs physician assistant is ok, but Medical professional vs practitioner not?! Scope is being so constrained now that the role is unviable and people are losing their minds if not their jobs. You're contributing to breaking the role and eventually you'll have to find a way to mend it. Grossly over-favouring an idealised vision of 'doctors' as a foil for disrespecting PAs. If the hippocratic oath means anything to you, please help stop the bullying umaps.org.uk/an-alarming-crisis-unveiled-physician-associate-and-anaesthesia-associate-students-facing-severe-bullying-and-mental-health-impact/ and umaps.org.uk/final-verified-impact-survey-assessment-data/
Having a hysteroscopy under General anaesthetic is not the answer to pain, I woke up in recovery with 10/10 pain, totally overwhelmed and bearing down like childbirth to try and reduce the pressure. All I could say to the nurses was 10,10,10 over and over to get them to do something. They did not give me enough pain relief and I believe that because I was done under GA that the Dr believed I didn’t need much pain relief in the post procedure setting. I have to have this procedure repeated now 12 months later and I will be insisting on a nerve block.
3/4 3/4. the stress and trauma of exclusion is profound-often repeating harm of poor care, exclusion in that process and all experienced as an act of betrayal by health services. Judith Herman discussed the anxiety and denial of systems challenged to their very core ‘Trauma and Recovery The Aftermath of Violence--From Domestic Abuse to Political Terror By Judith Lewis Herman · 2015
Interviewee adds 4 important issues not able to be covered in video: 1/4. The epistemic exclusion of patients, a form of ‘patientism’, is also a mechanism by which all oppressed groups including poor and less educated and those with protected characteristics are excluded. They have multiplied exclusion and trauma on top of that discussed and exemplified by it on tyop other ways the discrimination and oppression occurs . One must also not to forget the dreadful treatment, another form of exclusion, of whistleblowers who dare speak out on issues their employers will not countenance.
I was lucky and the pain was bearable but I had no written information prior to the procedure. Following the procedure it would have been nice to be offered a sanitary towel and I would have preferred to hear the results once I had my knickers back on rather than when my legs were still in the stirrups. There is a long way to go before women trust that the medical profession have their best interests at heart.
I'm watching this in October 2024, knowing not only has nothing improved with this procedure but that Getting It Right First Time (GIRFT) plus financial incentives mean more women are suffering trial by outpatient hysteroscopy. Talking about patient safety is not the same as implementing patient safety and preventing harm to patients.
I agree. Anything that is so painful it leaves thousands with long term trauma needs addressing as a matter of urgency. Women shouldn't need therapy after a routine procedure.
@@SheriGleeson-p9b - it's so worrying that "first do harm" seems to have become the medical norm, at least for gynae procedures.
Why, when the risk if severe pain is so well documented, are women still being denied pain relief? I had one just over 3 months ago. I was not prepared for that level of pain. I felt that my body, mind and trust had been violated and abused! I am still struggling to come to terms with what happened to me. It was brutal. It has affected me in so many ways. It changed who I am: it changed my life. It is simply unacceptable when pain free options are available!
I'm from NZ, I had an out patient hysteroscopy 1 week ago. I have had 3 children born cesarean. I cannot verbalize just how painful it was. It took 2-37 minutes to remove a polyp, all tge time I was using gas and air and it made no impact on the pain. I wasn't told I could have a general anthestic. I am still in a lot of pain and it's been 10 days since the procedure. I strongly advis a GA to anyone thinking of having this procedure done. I know if it was a man going through it they would all be offered a GA
Hi rob just read your piece in the daily mail today , please look up dr Fetke , with reference to T2 diabetes, or sugar diabetes as it was called originally, then please look at low carb and carnivore diets and read all the testimonials from ordinary people who are taking charge of their own health etc Hopefully you have heard of professor Ben Bikman too
Had this two days ago without warning. The words Victorian torture method came to mind. This pain amd bleeding and stomach distension was not explained. In fact very little was explained. Just take paracetamol for cramp. As if this is just cramp
I'm sorry that you had a negative experience and weren't told about the risk of severe pain. You can also share your experience in our hysteroscopy community conversation on the hub, here www.pslhub.org/forums/topic/68-painful-hysteroscopy/#comment-280
I am sure he’s a very good doctor but he needs to learn to ANNUNCIATE!!
I'm scheduled for tomorrow morning at the doctor's office. I will take a cervix dialating pill tonight. They said I will have a shot in my cervix to numb it as well as one Valium and one or two Vicodin. Any advice please?
Have a look at our Community thread on this for more information. www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I had been told to take painkillers before I left for my outpatient appointment (30/5/24), so I took my usual cocodamol (I live with chronic illnesses and chronic pain) and one Ibuprofen. The team, especially the doctor, were all so lovely and she was very honest with me and said that it would hurt and that if I wanted it, I could suck on gas and air and if I needed them to, they could stop and come back another time to do it knocked out. I think maybe I was a little arrogant about my pain tolerance (because of how severe my usual pain is and also because I have had a lot of gynae procedures) because when they scope went inside of my uterus, I was stunned at the level of pain that happened. I was immediately offered the gas and air again and I said no thank you (I am prone to fainting and I was scared that it might make it more likely of me to faint). I was literally lay there wanting to full on kick the lovely ladies across the room. I was so grateful that my uterus was super healthy inside and clean, so after them turning the screen and giving me a little tour of my uterus, it was over and done with. I won't say that I was traumatised, but I was severely unprepared for just how disturbingly painful that was. It was my own choice not to have the offered pain relief, but the team were happy with me when I told them beforehand that I had already taken painkillers in preparation. I kind of feel like it is painful enough that they should just do it under at least sedation, because if someone with a high tolerance for pain was so stunned with it, I can only imagine how bad it would feel to someone not used to pain.
Thanks for sharing your experience. I'm sorry that you experienced so much pain, although it's positive to hear that staff spoke to you about the possibility beforehand and offered the option of general anaesthetic. You can also share your experience in our hysteroscopy community conversation on the hub, here www.pslhub.org/forums/topic/68-painful-hysteroscopy/#comment-280
I was refered to my local hospital at Bedford Hospital, my letter says if you have any concerns about biopsy and procedures to book an appointment with consultant but regardless of how many times I have tried to make an appointment with a consultant I was just ignored, I emailed PALS and they still ignored me, so I went along to my appointment anyway, I was told that I needed a biopsy and hysterscopy, I asked to speak to a consultant when I was told about the risks involved, like serious damage to the womb but again, they keep ignoring my wishes to speak to a consultant. I have been contacting PALS regularly but I am still ignored by Gynae and the consultants, I have a pre-op coming up and a procedure for biopsy and hysteroscopy but they refuse to offer me an appointment with a consultant to discuss my concerns about hysteroscopy procedures. I had NO information whatsoever from the clinic and even though I requested information they just got someone in the admissions team to speak to me about the procedure, but admissions are NOT qualified to give medical information about procedures, they are not doctors or nurses, they are admin team. I feel severe anxiety about this and my concerns are falling on deaf ears, I was recently told, 'you either want it or you don't' by a lady in pre-op, I explained that I wanted to speak to a consultant to discuss the procedure, she told me to speak to admissions again, communication in regards to these procedures are extremely non-existent. Nothing has changed since this youtube video. I feel that 'patient safety' is still an issue.
Hi @private7668, sorry to hear about the issues you are facing trying to speak to a consultant. If you want to share any further perspectives or ask questions of others who may have faced the same issues, please do contribute to our community discussion on the hub. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
My nurses and and of the drs got so angry I asked for general anesthesia, I felt so humiliated to say NO to general anesthesia. But when I got to the Dr for my procedure I refused to get it done that day and forced Dr to give me an appointment with general anesthesia. She was a different Dr and she was actually happy to do general anesthesia. Kaiser Permanente is a horrible place in the United States that if you dont push things they DO NOT CARE! After having a biopsy and scraped my uterus with a straw on a previous procedure I could not imaging having a big scope with carbon dioxide gas shooting inside of you and then they flush water!! How is that NOT going to be painful?!
Thanks for sharing your perspective of hysteroscopy in the US. If you want to share any further perspectives on your experiences and the response of healthcare professionals to your request, please do contribute to our community discussion on the hub. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I my self had just had one and I can tell you I will never have that done being awake the pain was unbelievable,I was never told any of this just cramping.that was no cramping it was the worst pain ever,the First Lady that went in before me she was in a right state,I was sweating with the pain.it was vile I was never giving an option to be put out or have numbing injections,and I’m really good at taking pain,and that just did me in.I feel so sorry for us woman that have to go through this barbarity of a procedure:( I cried
@debchaplin7323 sorry to hear about your difficult experience. If you want to share any further perspectives on the procedure, please do contribute to our community discussion on the hub. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I watched this and almost canceled my procedure. I'm in the US and will probably pay $30,000.00 total for the crime of having a uterus this year alone 😔. After watching this I took Marijuana gummies on top of the pain meds given by the doctor. I was ok. Probably have cancer but have to jump through the hoops even to get hospice care.
Hi @qeroses3013, I'm sorry to hear about the issues that you're facing. Glad that you were able to have the procedure and that you were OK. If you want to share any further perspectives on the procedure and the information you were given beforehand about pain relief, please do contribute to our community discussion on the hub. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I had an endometrial biopsy and it was horrible. I can’t imagine having this procedure without anesthesia. 😢
Ive had this procedure done today and the pain was excruciating without anasthetic, it is disgraceful that we are not informed about the level of pain,thank you for this video.
Hi @sharondenn2284 so sorry to hear that you experienced so much pain and weren't given information about what to expect. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
Wow just spotted this video on a group and I have similar problem, and feel like I keep getting fobbed of by my doctors. I have cognitive problems, diagnosed with fibromyalgia and and also Tourette’s (or something) undiagnosed as doctors don’t seem to want to refer me as I have been in numerous times and still no referral! I have have other symptoms that link with Autism, which have been manageable but 100 x worse now.
Absolutely brutal
I've had 4 children including a set of twins. I have a high tolerance for pain. That being said, I wasn't given ANYthing for my hysteroscopy and d&c at my dr. It was easily just as painful as being in labor with my children and I was basically told that I was making a big deal about the pain. I could barely stand on my legs afterward they were shaking so badly. I wish women were taken more serious and not being dismissed as being overdramatic about their pain..
Hi @kkmalfatti we have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
Pray for me doctor told me hysteroscopy im afraiding plzzz pray
I’d heard so many horror stories I opted for a general anesthetic
Brilliant video Judy!
This issue needs far more publicity, as it is damaging careers, services, and patients, whilst bullying managers get away with financial rewards for damaging services, with no risk
I had this experience yesterday wasn't given a choice with general anesthetic.. wasn't informed that there would be 5 people in the room it was so embarrassing and violating . I had a similar scan done that i told them about that was terrible also the pain was bad cramps. After the ultra sound they needed to prepare for the scan and didn't cover me up until a wonderful nurse came in and did just that . On to the scan omg it was the worst pain ever it wasn't so much cramps but severe pain I actually screamed twice and I asked them I can't go through with it .
Hi @juliesullivan2622, so sorry to hear about your experience. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I just had a procedure today and it couldn't be completed due to the intolerable pain. I had my appointment cancelled 6 times so I tried to ignore the pain and continue but it was torture. They describe it as discomfort and like period pain cramps. It was not. I felt the stabbing of the tool. I gritted my teeth, breathed like I was hyperventilating and shook my feet to distract from the stabs. I thought I went in well informed but the ibuprofen and co-codamol I took before and the injection they gave did not help. I was not numb. After stopping several times the procedure was stopped altogether. When I explained the pain, the nurse and Doc were very nice but very dismissive so I came home and did some research.
Hi @bluereign - that sounds really traumatic. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
Thank you for creating this informative video.
I had no pain relief they just keep on going omg .🥲
I had my done yesterday omg it was the most brutal thing i ever had done the pain was really bad never wont to go through it again .🥲
Hi @elizabethkelleher267, so sorry to hear about your experience. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
Great topic! Thanks for posting!
Great interview. Thank you!
Thanks for this. I am booked in for a scan plus hysteroscopy next week. Now I will not be going ahead without GA. My notes say they will do GA at my request as I have anxiety. I have had no children and I can't even tolerate smear tests. I have to get a private home test with a tiny instrument. No way do I want to go through this torture. I'd never get over it.
Wish I had seen this video and read these comments yesterday. I Had mine today and it was the WORST pain I’ve ever endured. And I’ve always thought I’ve had a high pain tolerance. Wondering if having children and/or having an retroverted uterus has anything to do with the variance of pain? For those of you who have experienced excruciating pain from this procedure do you have children? I don’t, have never given birth. Wondering if this could be a factor.
Some of the comments say it was like labour pains so they have had children. I'm booked in for this and a scan on Monday. I will have the scan but I am now not going to have the hysteroscopy without GA after reading all this. On my notes they did say I may need a GA as I have huge anxiety over these things and can't even tolerate a smear test. I do the private one with a tiny instrument instead. I've also had no children.
Hi @lmsalgado3, really sorry to hear you experienced so much pain. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I had this procedure done today, and I cannot describe the level of discomfort and pain that I was feeling for 20 minutes whilst they were looking for part of a coil that might have been lost. However they’ve never found anything so I went through all this pain for nothing. Despite having gas and air local numbing injection and pain relief prior to the procedure. I was crying my eyes out for 20 minutes inside that procedure room. The nurses who performed the procedure looked at me like I was an alien. Nowhere in the letter didn’t say that the procedure was going to be this painful. I would have never gone to the hospital if I knew that this is what I was putting myself through today. I’ve been upset and tearful for the remainder of the day and angry at the way I was treated when I communicated that I was in pain. Thank you for posting this video. I will never ever allow for the procedure to be done to me ever again.
I think you should make a formal complaint . They tried me with gas and air, even without the spectrum and their knew it was too much, and put me in for general anaesthetic. Had it today and am grateful for it and quite angry that you had to endure that level of pain
I’m very sorry to hear about your experience. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I had one today a valium and tylenol. I almost passed out. My legs were shaking and I couldnt breathe. Worst pain of my life !!!!!!!!!!
It was the most horrendous and painful experience of my life the Nurse said I was a Drama Queen!!!!!
Really sorry to hear about your experience, no one should be spoken to like that by a healthcare professional. We have a community conversation on the hub where you can share your story with others who have had similar experiences. If you want to post, you’ll need to sign up for free to be a hub member www.pslhub.org/forums/topic/68-painful-hysteroscopy/
I’m from Australia, though worked as a Healthcare Assistant (HCA) for NHS in London in 2003 / 2004. Part of my role was to support women, ‘hold their hands’, during this OPD hysteroscopy procedure. It was explained to me, that OPD appointments assisted long wait lists for this procedure. At the time, I was in my 20’s. I vividly remember, I was horrified this procedure was completed without patients at least having the option to take stronger meditation. I recall the cohort of women being over 65. It was evident to me that the women I supported were extremely uncomfortable, did not feel they had any control or another option of treatment. I have now had the same procedure under general anaesthetic in Australia and can’t fathom it is still being done as OPD patient in UK. I support your efforts 100% to raise awareness about informed consent and consumer rights.
Twilight sedation is much safer than GA - most offices can that for you. Saves, time, money. Another suggestion is to prep the cervix beforehand with borage oil, parsley leaves or tincture.
Saves time, money.....sure! Why don't we do appendectomies without GA as well? It would also "save time and money". Pllleeeeeeaaaase.....
MAC Sedation / twilight sedation is how my mother had all of her children @@silviafarfan2523
I wasn't given the option until the hysteroscopy started, I stopped them from removing polyps and fibroid without GA. I have to go back now for a second time to get GA. I was also told I will have a scan beforehand but never did.
I don't know whether your campaign has already caused change but I'm incredibly grateful for all those shining a light on this issue. I had to have an emergency hysteroscopy in the summer and yes, I found it horrific - but - the doctor immediately offered me gas and.air. That didn't help and the doctor quickly made the decision to stop. Because of the emergency situation I really wanted to try to tolerate it to get some answers but it was the professionals who made the decision that it would be wrong to carry on. I'm now waiting to have it done under GA and I'm so very grateful for the amazing care and compassion shown by the Nye Bevan gynae team. Having since read the horror stories of women being forced to carry on even while expressing horrific pain I'm incredibly grateful that wasn't my experience. I hope the general view of hysteroscopy improves and women are believed and listened to - ridiculous to think anybody's voice is ignored.
For what reason. You weren't strong/healthy enough to with stand. Sorry for thoes who struggle, bumer.
I was not prepared at all for the level of pain that I was going to experience. I felt like I was going to pass out. I was told to take 2 Tylenol before I came. It was excruciating.
this is amazing everyone, I used Dr Aluda herbal medicine on TH-cam for one month and all my multiple fibroids, heavy bleeding and bloating were gone, I went for check up 3 days ago and my Dr said they are no more.
In UK there is an MP, L yn Brown who has been working at the issue of hysteroscopies without anaesthesia sinc e 2014. it is well worth a look.
After reading these comments, I am very grateful that I had both my hysteroscopys under GA. It was my choice as there is no way I could have had it done without. I'm in the UK and everyone in the NHS that treated me were absolutely wonderful. My experience was a very positive one. My heart goes out to all the women that have had to endure this very painful procedure without pain relief.
I have just had an hysteroscopy today, I have a very high pain threshhold,I have broken many bones , Including my back and compressed vertebrae in my neck and I can honestly say this was the most painful experience EVER, I was screaming in agony , the nurses were brilliant , I squeezed one’s hand so hard it turned white ! . I feel cramping tonight which I can bare but omg 😳 never again !! ..On a pain out of 10 it was a positive 10 .
after reading all these comments I am appalled at the way this procedure is carried out. I had it done 14 years ago and it was awful and I have been scared ever since of ever having to go through it again. now they want me to have it done again.the leaflet says 1 in 100 women will suffer heavy bleeding, 1 in 100 will get an infection and 1 in 1000 will get a perforation of the womb and this is more likely if done under GA. 1 in 100 sounds like an awful lot to me. and surely perforation would only happen if there was carelessness? I can't believe such a procedure is even contemplated when it causes so many so much pain. intruding into the body that deeply for any other procedure would always be done with anaesthetic
Yes it was fucked up, and no pardon my language. It was traumatic, why on earth didnt they give local anesthesia for this. Equally painful was the one I had after, a Laparoscopy, them trying to pump that dye in an ovary that was closed, omg, I was screaming the whole time uncontrollably and my body was shaking on that table for the few minutes they had to go on for, everyone in the whole wing heard me. The third worse, topping them all was IVF overstimulation of the ovaries that turned into melon size, resulting in four weeks of semi-consciousness from the insane pain of the fluid retained inside the abdominal cavity pushing the organs, no doctor listened until I could no longer walk and was wheeled in on a wheelchair, 5 minute exam and straight to operation for my first of five surgeries where they poked a long steel thing down below and sucked a gallon out at a time whilst pregnant. Seriously the stuff we have to go through, and thats just half of the iceberg of what happened before, during and after pregnancy. My god women are strong. After all that I had a twin pregnancy and I was so used to horrific insane pain I pushed them out after three days of labor vaginally with no pain meds (as it was too late when the epi lady finally arrived). I didnt even notice. I almost passed out after but it turned out I had gotten blood clots in the lounge and peed myself for three months from the nerve snapping that controls that function. Jeez. I am beyond grateful I had two in a go, I would have never gone again now when they are here, BUT in order to have THEM here I WOULD have done it all again. In hindsight, I never knew I was this strong. The torture we still have to endure, that no one tells you about or warns you of, or even talks about even after they happen to you as if it is shameful or a secret. Thank you for shedding light and talking of this. And sorry for my long runt, it pulled up all these experiences that I had buried deep in the past.