Like most parents and caregivers, Laura Castillo had never heard of the rare neurological condition, 5 Minus P, until her daughter, Katie, was diagnosed with it. The news from the doctor overwhelmed her at first, but since then, Laura has gone on to become a fierce advocate for people and families living with the syndrome, serving for many years as the Executive Director of the 5P Minus Society. She joins our hosts to talk about how that diagnosis fundamentally changed not just her life, but her family’s and all of those around her.