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hello. I hope your doing well. this was on my recommended page. and I knew I had to view this because videos like this need recognition since this is a old video with only 2.5k views. it sucks to see a. video get not much views as it should when its been on the platform longer than most users. I hope your doing well

I know you probably don’t come on here anymore, and this video is older than me.. hahaha but hope you’re doing well, your channel was recommended to me a few minutes ago

Delayed response. I have ME. As well as myoclonus, plus other tremors, perhaps dystonia. Being treated as if I have SPS until a final diagnosis. Valium small does was like a miracle first time I tried. 31 years after all this started ive had many misdiagnosis but I think heading in right direction.

Thank you

Just wonder.. any progress?!..🥺💚..👋🏼😌🇸🇪

Hi☺️.. I wonder if I can use, share this video?!..it says it all🙄🥺💚//Thank you❣️.. Keep it up//Linda E 🇸🇪

Nice to see you again☺️👏🏼❣️ For some your vids is brand new you know!🙄.. They are well done and can actually help many people.. also on their journey to find answers🥺💚. All you mentioned in this video still sounds like lyme and co for me..😣💚. If you managed to function ok.. then just to treat the symptoms is all ok.. in my thoughts😌.//Stay safe//much Love/Hope// Linda E 🇸🇪.. and I love your videos😉

I had years of joint and muscle pain,exhaustion and other horrid symptoms. My neck and shoulder were agony and I had to have 2 surgeries for tears in my shoulder. I would have flare ups where the pain was horrid. I got so sick to death of Doctors that I paid privately to see a Rheumatologist. After mri scans of my spine and an hour with the Rheumatologist I was diagnosed with Joint Hypermobility Syndrome and Fibromyalgia. My scans showed I had advanced Degenerate Disc Disease,Osteoarthritis and mild Scoliosis caused by the Hypermobility Syndrome. I am 38 now but it took me 15 years to get diagnosed. My advice would be to go private and see a Rheumatologist. It costs around £200 for a consultation and is worth every penny.

Hi how are you doing now ? I hope all is well :) pls give a update. God bless

Lyme disease and co..🙄💚...🥺

Hi Paul, I found you while looking online for info on Stiff Person Syndrome. Did you ever find out if you were diagnosed with that? I know a researcher who may be looking at the intersection of ME and SPS.

Wow stiff person syndrome i have it's so rare so many in USA that's the twitches I got I'm on clonazepam 3x day it's great

Thank you for this video! I watch a few of yours. Really nice! I am happy you also believe in Jesus. I do also! I have similar issues as you.

Hi I found your video searching about Lyme... you have so many of my symptoms but you seems in some better shape than I at this moment it's crazy how people is been taking for crazy when doctors can't or want to find it out what is going on, as I'm writing this I have no treatment at this time I can't pay out of pocket I feel drunk is crazy you can't find out words, well I have bartonella a coinfection of Lyme and gives all the symptoms that you have.... I'm so glad you are better now ! Please keep making videos as you said in one of your videos people feels alone when they can't find support groups they can feel lost. One question have you ever been treated for MG ? Your eye droop just like one person who has it neurologist miss so many symptoms sometimes. God bless you and please keep making videos ! :)

DWP funded it coz they could then try and get people off benefits if they had MUS- medically unexplained symptoms.

I know these are older videos, but I am thank you uploaded them! it's nice to know others are suffering with the same types of issues. I m from the USA and was diagnosed with pots... postural tachycardia. which means my heart rate often goes up 30 to 40 bpm or more just standing or walking around the house. I've been trying to pace myself... Hopefully it will work a little..

I hope you are still having some good periods of time. I have come down with some thing awful a little over 2 years ago and hearing about anyone improving is at least a bit inspiring

Hi Paul, Joss here, not sure you remember me or will see this comment. Are you still on Clonazepam or any Benzos? I am trying to get off of diazepam. It is utter hell. I have been diagnosed with hypermobility as well as the ME/CFS. I have come to the conclusion that a lot of symptoms might be inter-dose withdrawal from the benzo but don’t think it is going to be possible to get off of it after 20 years.

How are you now?

still never found out ur problem? Neurologists r useless

Lovely Video! Excuse me for chiming in, I would love your initial thoughts. Have you heard about - Dinanlinson Rebooting Health Approach (Have a quick look on google cant remember the place now)? It is an awesome one off guide for getting rid of chronic fatigue syndrome without the normal expense. Ive heard some great things about it and my buddy at very last got cool results with it.

At first I had difficulty believing that a Dr in a position of trust and at the rank of Professor Wessely would discredit himself and his chosen profession with such contorted behaviour. In my opinion this is gross professional misconduct and abuse of his position. He is also deceiving the public and abusing patients. I thought Doctors and especially those in working in psychiatry, would be held to higher standards as they are looking after vulnerable people. On looking at the evidence, It seems Professor Wessely has put his self in a somewhat precarious position. It begs the question how on earth did he get away with his first offence and why was he not repremanded at the time.

Oh my gods. No WONDER! My goldfish died in 7th grade and I found him and it was so traumatic tha-- Oh, pardon me, but the memory has set off a seizure flare! Damn fish!!! Brilliant, you. This was hilarious!

Cheers for the Video clip! Forgive me for butting in, I would love your thoughts. Have you researched - Dinanlinson Rebooting Health Approach (do a google search)? It is a good one of a kind product for getting rid of chronic fatigue syndrome minus the headache. Ive heard some amazing things about it and my mate at last got amazing results with it.

Well done Kaazoom on uploading videos describing about M.E. . I think you should keep your videos on TH-cam including even your first videos. I feel it is helpful.

I have diabetes I'm going to jump off a bridge now

Looks similar to Tourette syndrome

This looks like what my walking is starting to look like. Very helpful thanks :)

Hi Paul ! Its so great to hear from you! We spoke online several times in the past as I too was suffering​ without help & we had a lot of similarities in symptoms, thoughts & feelings about our situations. Im sorry to hear you haven't gotten any more tests, that really burns me up! But I'm thankful you still have some times when you are better. I know all too well that it's strange & frustrating. Yes, accepting is something we have to do somewhat. Keep on doing what you can my friend & Im happy for you being able to keep with the bible studies & meetings & that helps! I've had good & bad spells also. I hope your wife & grandkids & daughter are well. Please do updates when you can even if just to say hello & a little of what's going on, because there are people who care & miss you & appreciate your previous videos! Take care :)

I agree, I may not keep making videos myself, as I have spoke of everything I believe. Not many are actually watching my videos either.

Hi Kaazoom. Nice to hear from you! You're looking well I must say! Good for you being able to swim a little. I'd love to myself, but I have rheumatoid arthritis which flares up if I try to swim unfortunately. I have a lot of the same symptoms as you (EDS/ME/RA/POTS), and one of the things that helps suppress my twitches the most is bag breathing/buteyko breathing. Here are some videos on this subject... th-cam.com/video/t30AJ7h_uDw/w-d-xo.html and th-cam.com/video/op4jsxd46vw/w-d-xo.html and th-cam.com/video/150nrgpxUnI/w-d-xo.html . Take care!

Despite the clear flaws and incorrect conclusions drawn by the authors of the PACE trial for ME/CFS, the papers have still not been withdrawn. Virology blog has published an open letter signed by 100 individuals and organizations asking Psychological Medicine to retract the paper they published on the trial, entitled "Recovery from chronic fatigue syndrome after treatments given in the PACE trial." www.virology.ws/2017/03/13/an-open-letter-to-psychological-medicine-about-recovery-and-the-pace-trial/

you should call dr stack in maryland usa to het a mouth appliance

thank you for posting this vid! i recently stumbled over a youtube channel called 'canary in a coal mine' that deals with an upcoming feature-length documentary about m.e. at this point it's due out some time in 2017, and suspect it will be to m.e. what 'under our skin' is to lyme disease. six years on, i hope you are doing ok. thanks again!

my friend these other neurologist lie about functional symptoms have you had any serious fits or blackouts? you may have syncope a cardio condition which causes collapses confusion please let me know what you suffer so I can advice you ok? I am also under neurology for epileptic fits and I suspect I may have myasthenia gravis

Well done, very pleasant.

Very nice, Paul

Beautiful song

Great Paul. I didn't know my brother was so talented!!

Paul I just love this.

Lovely song Paul i look forward to singing it in church with everyone. i know it wil be enjoyed and send the real Christmas message of Christs birth and hope for the future it everyone that hears it. I really enjoyed your Harvest song as well.

Thank you again for the updated info. It is wonderful your doctor will treat you regardless of Lyme testing results. I also thank you for the site post. I'm going to check it out, as I started anti-viral treatment just 3 weeks ago. I too am working with an exceptional doctor that does want he does for all the right reasons. We are blessed ( having been though many ) :) So much time has past... Please let me know how you are doing. God Bless you and your family :)

In 2011 diagnosed with CFS......... Anyway, Thank You again. (My scooter has made a huge difference for me!)

I believe there are an estimated 2 million Americans with ME/CFS. This post is 10/2014. I trace mine back to 2007 if not before as pain began in 12/1996 at which Time I was dagnosed with MS, but then

I realize, as I commented earlier, that your post is several years old, but I am amazed at the similarity in our ME/CFS experiences.... I am very curious to know how you are doing now (10/2014). I pray you are better and not hard-headed as I to learn moderation.

I realize your post is 3+ years old now, but it has been very encouraging to me today :) Thank you. I hope you are feeling more energized and at peace. :) Again, Thank you!

Imagine - an illness that impacts your life so much. It alters your life completely. The person you once were, and the things you once were able to do - is all gone. Everyday it is coping with pain, debility, difficulties, a chore to do just the menial tasks just to care for yourself, headaches, dizziness, awkwardness & fear of falling... a few things to contend with - hope friends, family realise we are not malingerers but truly unwell and trying our best. Imagine if you were like this.

great video mate...Coincidentally I am also experiencing almost a similar situation.My right arm (dominant) is progressively getting weaker and losing mass. My left arm is actually bigger than my right and it also feels the same.I wish you all the best. Get well soon.

see a neurologist who was filling in for mine wanted to prescribe this to me. I'm pretty much having strange things happen to me at night and it was before starting Keppra. I think it may have increased it I don't know. but i can't get to sleep much anymore and when I do I feel like I'm having strange seizures at night. I could be hallucinating I don't know, but it's keeping me from sleeping well at all

Thank you very much for your videos. I'd love to talk to you if you're round London