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As a fellow sufferer i know exactly all the pain you have and are going through. Its so hard to explain our pain to anyone whos not experiencing it. I was fobbed off for over 25-30 years by so many doctors until i collapsed at work and a female locum doctor came out after being carted off in an ambulance. Straight away she said i think you have endometriosis. I literally broke down in tears of relief thinking finally someone has reckonised this isnt normal. For years i told every doctor this wasnt normal. 8 years after i had a removal with a laparoscopy its back and this time even worse than ever before. I wasnt diagnosed until i had that laparoscopy but they never told me what stage im at. Recently saw another gynecologist and was told it cant be endometriosis i was so mad i told them yes it is and its back. So i got sent for a blood test after a 14 month wait because of covid, im now waiting for an mri scan which is a complete waste of time because endometriosis can only be found with surgery. So once they finally get that out of the way i then have to wait for a laparoscopy appointment. I have never been able to have a family of my own because of the endometriosis. I think i must be a high stage of the condition and the doctor said if bloods and mri comes back clear which i have no doubt it will they will examine inside before removal to let me know what stage of endometriosis i am at. Its such an awful illness i wish one day for them to find a cure. Sending you hugs 🫂 from one sufferer to another

The fireworks pain though, spoke right to me

What is the name of the nerve in the shoulder? I am so interested in this connection as I also have both 😢

Thank you for this video Shannon. Its been so helpful to have the validation and to hear that the pain Im having is real and shared by others in a similar way. Thank you for sharing your story and for others for commenting about theirs too.

I've experienced the same stabbing pains in all areas as well. It happens suddenly and unexpectedly. Especially if I coughed or sneezed. Horrible pain

Thank you, I send good vibes, healthy healing and recovery to us all!

Listen to sura Yasin from Quran on laptop or cell phone, expose yourself to sunlight, and see the difference.

Me too! It was HUGELY traumatic having the MC fitted 😢 I didn't have a natural birth with my son, so it was still horrific and having a local anaesthetic made NO difference. You look like youre still in your 20s, and unfortunately once hitting 40+ the challenges we face as Women only get FAR worse. Sorry to have to break that to you lovely 😢😢❤

The ‘flowing up the fallopian tubes’ is just a theory (retrograde menstruation) which I believe is now thought to be not true. I have stage 4, in my case there are dragging and heaviness sensations, serious pain when sitting (not shooting, just intense ache), shoulder and upper back pain from diaphragm Endo, causing migraines. I’ve been “lucky” in that I’ve never had screaming or dropping to the floor. It makes me miserable though and so tired. I had 7 ultrasounds before someone thought they might be seeing an Endometrioma. I’m having excision and total hysterectomy soon.

I have pcos along with endometriosis and i felt all the symptoms in my body as you described them😣

I feel the knife pain after my surgery in my period

I'm feeling your Endometriosis service pain while having endomeioiss cause I have the same symptoms of Endometriosis and painful Endo flair ups physically with endometrium)

👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍 Video about your Endometriosis story)

I cant figure out if it is sciatica or endometriosis i have both. But the pain is like being stabbed in the lower back. I have some joint pain lol. But i am older now. Thanks for sharing

I’ve been to HELL AND BACK WITH THIS WITCHCRAFT. WOULD NOT RECOMMEND TO ANYONE

Thank you for sharing your story. ❤

I have 2 cyst on my only overy left I did get hysterectomy about 8 years ago, they saw I had endometriosis, and 2 years ago pain started again, doctor disregarded it saying it may be because of cyst, and now waiting to see if they will operate and burn the leisures, they are so bad, I am on orilissa now 3 weeks in and not removing the pain I did stop drinking I'm cutting back on smoking as well, it suck

Thank you for this video! You should give yourself more props. I am getting my IUD out today and have been looking for comfort videos and information to help me through this process. I am so happy I discovered yours, because it has been the most real and uplifting one I have watched. Thank you! 🥰

Lovely accent!

I had my first surgery 2 years ago, stage 4. Finally diagnosed after 25 years of suffering. Had a bowel resection and a million other things done too. Surgery number 2 is this month. I have a constant stabbing pain in my left ovary radiates down my leg to about my knee, and into my back. Days where I can’t walk. I completely skip periods because they’re debilitating and I look like I’m having a heart attack when I get them. I lost my right Fallopian tube. May lose my left ovary with this surgery. Did one round of ivf and doing another after this surgery. My pain started with just period pain when I was 10 remember being on the floor puking. Pain is chronic now, some days worse than others and I get nerve blocks every 3 months.

I have an appointment with my doctor this week and I’m 100% asking for an ultrasound. I have every single symptom you described including the joint pain, so sorry you had to go through this and for the medical gaslighting you endured. Thank you for this video.

Im so sad this channel isnt active anymore :( I just found you and youre right on! I hope, wherever you are, that youre feeling better!!

Ive been experiencing dull, stinging pain on my lower left side for the past month. It started before my period and I thought maybe it was a cyst that has ruptured? My period was delayed for a week and a half. The dull aching feeling didn't go away after my period. I went to the ER and blood test, urine, and ultrasound found nothing. I even went to a gastroenterologist to see if it was something else, and he told me I should wait for my gyno appointment. Waiting for an answer I'm just so desperate and in so much discomfort.

I got my mirena 2 days ago.. I don't know if it's that but today I been moody and crying most of the day.. any thoughts?...

You should do an update 😊 I know it’s been years, but I wanna know!

I’m having mine removed. I’ve never had intrusive thoughts until now. I hate it. I thought it was just me.

I got my Mirena placed in last May and literally within a couple of weeks I started having anxiety and panic attacks that were constant. I didn't even think it could be the birth control until I started having intrusive thoughts. I legitimately had so many panic attacks that it triggered a depressive episode and made me feel so awful. I got it out two weeks ago and I'm hoping that it helps. Because I usually don't have the intrusive thoughts or any of this nowhere near as bad. I also got myself into some good therapy. As well.

Worth watching 14 minutes of my live. And love all the bits you explain about the pain. I am going through this pain since I got my first period. Took me years to suffer. I am 35 now and came to know about endometriosis. I feel exactly same pains you just described. Boom in my back and rectum.

Clicked on your video because of your thumbnail (hooked fingers) and I just knew instinctively that you were describing the hook like pain I get too! Hope you’re feeling better :)

Thank you! Very helpful.

Just found this channel and feel exactly the same! Thank you so much for sharing!

I put my Mirena a month and a half ago,and 15 days after puting it starts depression, intrusive thouhts,mood changes.I think its about Mirena😢

Wow, so shocking that it took so many years of suffering to finally get a diagnosis! Which makes your video here SOOOO IMPORTANT for other woman who are searching for answers to their symptoms. Thank you for putting this video out there. You will surely save someone else from going through suffering as long as you unfortunately had to... I hope you are feeling a bit better now.

I had mine put in when they took my baby out I had 2 c sections so I did not fell anything but been 4 years and I still have couse they can't remove it but got appointment after next week after waiting 2 years so.i will have its a special clinic to remove it

Hello there, I was wondering if you are still incorporating the seed cycling into your diet and how it’s worked for you. Hope you’re well, blessings 🙏🏼

With and without children it hurts I know

We are the same!! I removed mine cause my intrusive thoughts are debilitating. I’ve never had anxiety before, this isn’t me. The lies!! My brain tells me!!!! I’m still in the thick of it (I got it out yesterday) but your story is so helpful ❤

I'm looking to get my iud out and watched about a dozen of these videos. Thank you for making this! I love all the updates you did as well. Super helpful for someone like me who gets nervous about going to the doctor. But I know that getting this thing out is the right decision for me and will be worth it in the end

lol 😂 I love your video

Look up tenaculum, you will understand WHY it hurt so much when they insert it. I told my boyfriend I found it why it hurt so much, showed him the picture, and he got all queezy and told me to put it away. I emphasised that they don't even sedate you or anything and he just couldn't even deal with hearing about it :')

Thanks for the vid!

looks like gobs of blueberry jelly when it leaves your body.

Love your videos! I had mine removed in September its been a confusing several several weeks for me .... trying for another baby but I have no idea if I'm feeling things cuz of the removal or if it's something else haha 😅 the tiredness is a THING for me I can't wake up and I had a 3 week period 😬 I agree they should tell us those things im just Turing 30 and I'm learning so much about periods and all that comes with it

Thank you for sharing! For the longest time I thought I was crazy thinking that my mental health was being affected by the contraceptive, but it was! More women should know this, it might be their case, too.

Yep! Everything you described especially the up the bottom poker stick pain 😭 I have stage 4 was diagnosed in 2019. Hope you are keeping well x very interesting I get pain in my left shoulder when my endometriosis is in flare and it’s gradually getting worse over the years 🧐

Thanks for sharing ❤️

Thanks

Hey! Shannon we're living the exact same thing at the same time let me tell you, if you wanna talk, here is my number +5411922524295 Hope you feel better! Mirena sucks