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I have two questions: Is there a way to speed up this search? Is there a way for you to test the Neuralink chip to see what happens?

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This is amazing and beautiful and so valuable and so important for me right now. Thank you!

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Hi there. Is there a way for me to download this video to my device ? Thanks

My younger son has Smith-Magenis syndrome. He's 11 right now.

My younger son has SMS. He's in 5th grade in an intensive support 4-6th grade class that has 3 paras and he has a 1:1. His strengths are geography and recognizing different languages. He does get frustrated easily and doesn't like to try new things. He's good at reading. He has speech and hearing problems that make it hard for him to be understood which is a great source of frustration for him. He also has ASD. He has an older half brother with high functioning autism. My younger son will never be as great with computers as my oldest son. My oldest son is in charge of all the technology at my place. My younger son helps make sure that I don't forget about meal times and snack times.

Thank you so much. We found out our daughter has SMS a week ago and no one has told us anything. This video is the first beacon of hope we have had.

My sister has that

Her bed has lock everything has locks and she has a aid I hope you I hope I see you in the summer at the sms meeting

My sister has SMS 😷😭😥😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😷😷😷😷😷😷😷😷😷😷😷😥😥😥😥😥😥

What’s with all these syndromes? Are they trying to find cures or meds for the children Do they have any info about why or where they come from?

The truth I find in this video is amazing, I feel as if no one knows how isolated we truly feel, everyone has an opinion on what I should do with my child, but literally, know one understands. thank you for this video , and we'll for making me cry.

What do we do when they bigger

I still can't watch this without tearing up

Thanks for creating this video. I learned a lot.

I love this. Our kids are absolutely amazing and have so much determination. I am a proud momma to a boy with SMS. <3

I have a 19 month old little girl with Smith Magenis Syndrome. I fought so hard for a diagnosis because I knew my daughter was unique. Doctors ignored me, said I worried to much. Therapists blamed me for my daughter not sleeping. The diagnosis was the safest and best day of my life. I was so happy we had an answer and so sad we had an answer.

My son has SMS, thank you for sharing this video it's great

My bestfriend has smith magenis syndrome and i wouldnt change her for the world. November 17th is Smith Magenis Syndrome awareness day, please spread awareness!

I've had the privilege of speaking to Dr. Sarah, she is an amazing and caring person. She spent over an hour just talking me through my fears and questions. She has a genuine passions for sms and the lives it effects. Thank you for giving her the opportunity to continue her research. My son was diagnosed just 6 months ago at 3 yrs old.

My son has sms, and is the joy of my life. Thank you for all you do for all of our children. Lifting you up in prayer.

Please take a quick few minutes to watch this video for the SMS Research Foundation - thank you!

We are very excited to share this video with all of you - for SMS and Donor communities, our goal is that this video will answer any questions you may have about Smith-Magenis Syndrome, the SMS Research Foundation, our purpose and mission. We hope that you are inspired to join us in this grassroots effort! Thanks for watching:-)

Looking forward to meeting you all at the SMS Fundraiser at the Hard Rock Improv Nov 13, 2013! Your beautiful loving family is an inspiration to us all. Wishes for all the best. God Bless.

Thank you so much, Nikkigirl2820! I am so glad the video had a positive impact on you. Pray that your year turns around and you enter a new season. God bless you!

Thank you for taking the time to comment, Escolas! Always nice to hear from other SMS Families. Are you connected through Facebook? We have a large network of families there. Let me know if you want to connect with others:-)

Hello my daughter has sms and she is 3yrs old now. We felt exactly the way u did when found out about it when she was an year old. She get aggressive therapies every week and is 30% delayed over all. I do worry about her future but also excited to see hiw far she has come.. They are fighters.. Thankyou for your video. Much appreciated.

Thank you, Pam! It is a challenging road and much easier to do with others. Please reach out to us directly if you have any questions or need anything. Best of luck.

Thank you, Jeffeth! Please feel free to contact us directly if you have any questions! We are here to help.

thanks so much , I have a son with SMS and looking for more information , I'm so glad to find you and thanks so much I'll try to involve more with your fundation or community online god Bless You!!!

Thank you, Marnie!:-)

OMG Sienna is beautiful! Thank you for sharing your story. I knew nothing of SMS. With the hard work you have done, hopefully a cure is close. God bless you and your family.

Awesome, Steve!! Thank you for helping us spread awareness!!

Thank you so much, Mary and Kevin! Really appreciate the warm response and the support. We really could not do what we do without people like you who support our cause. Thank you! Lots of love xoxoxo

Thank you, Pam! I hope that your daughter has connected to our SMS community on-line. We are a small group but there is lots of support out there. Best to you.

Wonderful video. My granddaughter is 12 and has SMS. Everyday it is a new experience for my daughter, a single mom. I appreciate the message you are getting out to people. Thank you.

Dear Missy and Dan, We hope to meet Sienna some day. As your dad's first cousin and therefore as cousins to you, your family and Sienna, we are honored to donate to your efforts to bring about a greater understanding and possibly cure to this rare syndrome. God bless you all and your efforts. Lovingly, Mary (Rafferty) and Kevin Wiedel

Thank you for the kind comments, Linda! And thank you for taking the time to watch the video. We appreciate the encouragement.

Very well done video! Congratulations on starting this research organization. I am excited to watch it flourish! Linda Tortorelli