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My journey with Lupus, Medications and Benlysta
United States
เข้าร่วมเมื่อ 6 ก.ค. 2022
I have lived with undiagnosed Lupus for many years. Once diagnosed, I have been on a journey with different medications. All the medications work for a couple of months but then I start to experience continuos Lupus flares and side effects. I am now going to start Benlysta which is the only medication that is targeted to treat Lupus.
I want to share my journey with you and be able to answer any questions you might have.
Please like my videos and subscribe.
I want to share my journey with you and be able to answer any questions you might have.
Please like my videos and subscribe.
Benlysta 1st and 2nd Infusion Pros & Cons
In this video I will discuss my first and second Benlysta Infusion. I will inform you of my experiences and the Pros and Cons of my Benlysta Infusion.
มุมมอง: 450
วีดีโอ
My First Benlysta Infusion, Process, Side Effects and Gateway Program
มุมมอง 6992 ปีที่แล้ว
I will share my first Benlysta Infusion process, side effects and tell you about the Benlysta Gateway program that can help cover the cost the infusion, copayments and Benlysta weekly auto injectors.
My Lupus Journey Before Benlysta
มุมมอง 3032 ปีที่แล้ว
In this video I share being undiagnosed for Lupus for about eight years. My warning signs and side effects of various medications. Today, I finally received my first Benlysta infusion.
Hi mary, i hope you are doing well! I was hoping to hear from you more about how the infusions helped you over last 2 years, if you still on them and in general how you are doing. I hope you can post an update soon. I am 30 years female who got diagnosed with lupus at 26. I am at stage where i am not getting any better and i am given one and only option is this infusion and i am not happy about this option. Your well being will help me to give it a thought! Thank you again for sharing your journey and god bless you!
Love your video. 💜💜💜 hope you make another one done.
Hi, how are you feeling now with infusions? I have the same issue with my feet and so sensitive with the cold weather 🥲
Hi my Name is Rita I myself has Lupus and your Video was very helpful to me because I will soon be starting the infusion a little scared but I’m so sick of just not having a Normal life
Hi Rita I hope all is going well. I'm happy my video was helpful. How are
God don’t like ugly and this is what happens 😂😂
So grateful you are sharing your journey. I watch your other video as well. Keep using lemons to make lemonade. You’re helping others to rationalize the symptoms are life altering. I’m in so much pain from nerve damage, CRPS, & lupus. I too will begin IV infusions. GOD bless you & keep you. May the LORD turn HIS face toward you and be gracious unto you. May the LORD give you peace. Amen! 👑💛🍋
Thank you so much, for appreciating my mission! For me, it's not about how many views I get it's about educating and supporting anyone! I went so long undiagnosed that when it was diagnosed there was some damage. Hopefully, my videos will help others become more knowledgeable, which will help them advocate their health concerns.
Love you Mary!!! Elated for you my friend♥️
This video was very informative, love how you get straight to the point., very thorough and well spoken, looking forward to following your Lupus Health Journey Vídeos. Good Luck . 👍
Thank you!
I am so happy for you comai love you❣️😘😘
Love you too!
Thank you Cindy!
Very informative and helpful , your information will definitely be appreciated thanks 👍
Thank You! I'm glad that you found it informative,
Life is always beautiful when you are in good health I am free from lupus and cancer thanks to #drokosodo TH-cam channel #drokosodo
Congrats! I’m so happy for you. I will definitely check out the drokosodo channel.
You are such and inspiration! Sharing your journey publicly will be gift to another in your shoes one day!
Thank you Rachael. My mission is to help others.
Always an educator, even during a your personal health journey! May you be blessed 100-fold for sharing and helping others with resources❤️ so happy to be able to keep in contact. I hope you have much success with this new meds! God bless you and protect you❌⭕️❌⭕️ how would you know if this medication is working?
Thank You Cindy!
I’m so glad your infusion went well. Mine is tomorrow and hope I have the same experience! I will let you know!
I will keep you in my prayers! Please let me know how it goes.
How did your infusion go?
My Next appointment is tomorrow to 11-1-2022
Sending you all the love and prayers. Thank you for sharing your journey ❤️
Thank you Helen!
I’m glad it went well my comadre, I continue to pray 🙏🏼 for you. Love ya 😘
Love you too!
You are so strong Mary and such a brave women to share your journey with us. How long was the process on your first visit and how are you feeling? Stay strong and we’re here for every moment of this journey, praying for you. We Love you ❤
Thank you! I plan to make a video tomorrow, to share with viewers how my first infusion went. I have felt tired and stiff. Yesterday, I started feeling better.
Hi Ms. Sala! It’s one of your students :)
Hello 😊
Titi, I’m sorry you’ve gone through all this. I can’t imagine how difficult this journey has been for you these past few years. This video is a testament of your strength and courage. I will be praying for you, the family for strength and health. I love you!
Thank you! I love you... I'm a fighter with faith and I will not give up. I decided to make this video to help other Lupus Buddies that might be going through what I have experienced.
Thank you! I love you and am grateful for your prayers.
Mary you are an absolute inspiration! I'm so blessed to call you my friend. Thank you for being courageous and sharing your health journey with others. Praying for you!
Thank you my friend. I promise we will get together before school starts.
Mary can you do a video on the bruising , tiredness, Achiness and boils? Please🥰
Cindy I will... Those were the symptoms that explained to Dr. Anlas and she requested specialized blood work and that how I found out had Lupus. I suggest you tell your doctor your symptoms and request auto immune labs.
I love you mom
Love you too! Thank you fro being there for me.
Mary, you are a strong woman. I will pray you feel better. I miss you my dear friend see you soon.
I miss you too! The Trade Winds is calling us.
Blessings Mary in every way❤️ we worked together 20 years ago, and you are being modest when you said you were active. Let’s just say you were a bouncing fireball. Full time educator and full time student . AND Didn’t skip a beat with your son. I wish you well Mary, and 🗣yes I want to hike the journey with you! ❌⭕️❌⭕️
Thank you Cindy! Wow you put a big smile on my face with the memories of when we worked together in NYC. Your right I never stopped and this illness will not stop me.
bro! how are things?- Thanks! superb upload~all the best-😎
Thank you fro your well wishes.
Praying for my kids godmother who is also my bestfriend for over 20 years. I love you and standing by your side every step of the way. 🙏🏼🙏🏼
Thank you Comai! You have always have been there to support me.