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Soleno Therapeutics
United States
เข้าร่วมเมื่อ 21 เม.ย. 2024
Soleno Therapeutics is inspired by patients with Prader-Willi Syndrome and their stories of determination and resilience. To sign up for updates on our work in this important space, visit www.talkaboutpws.com.
C-US-PWS-00066 V1 11/25
C-US-PWS-00066 V1 11/25
Living with Prader-Willi Syndrome | Jim and Elaine's Journey
Meet Jim and his mother Elaine as they share their journey of living with Prader-Willi syndrome (PWS). Through resilience, a strong community, and a positive outlook, Jim has embraced new experiences, finding ways to participate in activities that empower him toward a more independent adult life.
Their story explores the power of family, support, and commitment in overcoming the challenges of PWS. Their journey serves as a reminder of what's possible with a "can-do" spirit and a supportive community.
Visit support4pws.com to learn more.
#PraderWilliSyndrome #PWS #CommunitySupport
C-US-PWS-00050 V1 11/24
Their story explores the power of family, support, and commitment in overcoming the challenges of PWS. Their journey serves as a reminder of what's possible with a "can-do" spirit and a supportive community.
Visit support4pws.com to learn more.
#PraderWilliSyndrome #PWS #CommunitySupport
C-US-PWS-00050 V1 11/24
มุมมอง: 879
วีดีโอ
Jim’s Path towards Independence with Prader-Willi Syndrome
มุมมอง 33หลายเดือนก่อน
Jim and Elaine’s inspiring journey highlights how individuals can overcome the challenges of Prader-Willi syndrome (PWS). For Jim, exploring new interests and engaging in activities that excite him have been crucial to his growth. Their journey demonstrates how determination and a willingness to try new things can lead to meaningful progress. Visit support4pws.com to learn more. #PraderWilliSyn...
Balancing Independence and Support with Prader-Willi Syndrome (PWS)
มุมมอง 51หลายเดือนก่อน
Kristi and Justice believe independent living is possible for those with Prader-Willi syndrome (PWS). Over the years, they’ve worked together to build the skills needed for Justice to manage PWS challenges on her own and recognize when additional support is needed. Through it all, Kristi’s goal has been to help Justice thrive while remaining a steady source of strength. As this new chapter appr...
Transitioning into Adulthood with Prader-Willi Syndrome (PWS)
มุมมอง 98หลายเดือนก่อน
Transitioning to adulthood with Prader-Willi syndrome (PWS) presents unique challenges, particularly when it comes to living independently. Justice and her mom Kristi share her struggle managing the range of symptoms associated with PWS, while sharing how independence is possible with the right support. Subscribe for updates on powerful personal stories for those caring for individuals with Pra...
A Journey into Adulthood with Prader-Willi Syndrome (PWS) | Kristi & Justice's Experience
มุมมอง 1.3Kหลายเดือนก่อน
In this video, Kristi and her 20-year old daughter, Justice, share the journey of transitioning into adulthood with PWS. Justice’s story reflects her desire for independence and the steps she takes to manage PWS while working towards autonomy. This video testimonial captures the balancing act of nurturing independence while providing the support Justice needs to thrive as an adult. #PraderWilli...
Angelica’s Story: Embracing Hope Through Every Chapter
มุมมอง 51หลายเดือนก่อน
Charles and Gennelle are filled with hope for their daughter, Angelica, who was diagnosed with #PraderWilliSyndrome (PWS) before birth. As Angelica grows, her parents remain closely attentive to her evolving needs, understanding that her PWS journey may differ from others. Through their love and care, they believe Angelica can still lead a life full of joy and adventure, instilling in her the h...
Parents Empowering Children Living with Prader-Willi Syndrome
มุมมอง 752 หลายเดือนก่อน
Charles and Gennelle are inspiring examples of dedicated advocacy for their daughter Angelica, who was diagnosed with Prader-Willi syndrome (PWS) before birth. Through their unwavering support, Angelica is growing up with the confidence and opportunities to live life fully-despite the daily challenges PWS brings. From early on, Charles and Gennelle committed to giving Angelica every chance to s...
A Prader-Willi Syndrome Family Journey | Angelica's Story
มุมมอง 3352 หลายเดือนก่อน
Charles and Gennelle share their journey of helping their daughter Angelica navigate life with Prader-Willi syndrome (PWS). Diagnosed before birth, Angelica began early interventions as a baby, including occupational therapy to develop her muscle and motor skills. As she grew, new challenges arose, from managing behavior to navigating a new preoccupation on food. Despite these obstacles, Charle...
Facing Prader-Willi Syndrome with Resilience and Hope
มุมมอง 1382 หลายเดือนก่อน
Receiving a Prader-Willi syndrome (PWS) diagnosis can feel overwhelming, especially when it comes without warning. Clementine is the youngest of four children, and up until her birth, there was no indication that anything could be wrong. Her mom, Kelly, was unprepared for the challenges ahead, but she’s learned so much from Clementine and the PWS community. Kelly and Clementine's story is a rem...
Life as a Prader-Willi Syndrome Caregiver: Challenges, Hope & Triumphs
มุมมอง 883 หลายเดือนก่อน
Prader-Willi syndrome (PWS) affects individuals in various ways, with physical, behavioral, and cognitive symptoms. One of the most common and challenging symptoms is hyperphagia-an insatiable hunger that can manifest differently for each person. Kelly shares her personal journey as a caregiver, providing insight into how hyperphagia impacts her loved one and how she manages this daily challeng...
Navigating Life with Prader-Willi Syndrome | Kelly & Clementine’s Inspiring Journey
มุมมอง 1K3 หลายเดือนก่อน
Kelly shares her heartfelt story and experience as a caregiver for her daughter Clementine, who lives with Prader-Willi syndrome (PWS). Join Kelly as she opens up about the profound impact PWS has had on their family of six, revealing both the daily challenges they face and the incredible triumphs they achieve together. Kelly provides a candid look into the unique ways PWS affects their lives, ...
My Hope Is | Stories of Hope from the Prader-Willi Syndrome Community
มุมมอง 1474 หลายเดือนก่อน
In May 2024, PWSA | USA brought together nearly 150 members of the Prader-Willi syndrome community to connect with each other and advocate for change in Washington, D.C. during its biennial D.C. Fly-In. We asked individuals in the Prader-Willi syndrome community to share their hopes and dreams for the future. Watch this video, and hear what they said. Share your story and give hope for the Prad...
Prader-Willi Syndrome Awareness Month | Times Square Billboard Event
มุมมอง 6807 หลายเดือนก่อน
In May 2024, we honored the incredible Prader-Willi syndrome (PWS) community with a billboard in Times Square! This vibrant community comprises diverse individuals, each with unique dreams, interests, and talents waiting to be shared. Take action! Join us in raising awareness by spreading messages of hope and understanding for those impacted by PWS. Visit www.Support4PWS.com to watch the video,...
Voices of Hope: Stories from the Prader-Willi Syndrome Community
มุมมอง 2247 หลายเดือนก่อน
The Prader-Willi syndrome community is a vibrant community of individuals, each bringing their unique dreams, interests, and talents to the forefront. Help raise awareness and spread messages of hope for this incredible group of people. Get Involved! Visit www.Support4PWS.com to meet inspiring members of the PWS community and share your own message of hope! #praderwillisyndrome #PWSawareness #PWS