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Hi! Yes, we would be happy to speak with you. Please send an e-mail to nus@polygonhealth.com and we will get back to you as soon as possible.

Because we have many members of our group that have nearly died trying to do that themselves. When it doesn't work, they go to more traditional treatments and do very well in most cases. I promise, I am not missing a thing.

I’m very thankful God is using me to help others. It lifts my spirits to know I am making a difference in the lives of others.

Did you receive a Covid vaccine?

@@frankvitucci5677 No, curiously enough. New Years off 2021 going into 2022. I contracted COVID. Got over it fine,but a cough persisted for about 6 weeks and a lump appeared next to my esophagus. They kept saying it was nothing. I knew something was wrong. July of 23 a large Neoplasm appeared on my clavicle overnight. Well here I am. I know COVID is what got me.

You are very welcome. I’m glad you found it to be helpful.

I am glad that you have found the group to be helpful and I love to see people from outside of the US joining. WE FIGHT TOGETHER!!!!

I’m glad it helped.

I have multiple myeloma and your story most definitely helped me and will help others with MM. Your experience with myeloma is very similar to mine, I have had bone fractures and surgery, it's been a frightening experience to say the least but even through all of this, the Lord Jesus has been merciful. Thank you very much for sharing your story/journey. May the Lord continue to bless you with health 🙏

I’m glad it helped. If you haven’t joined my Multiple Myeloma Warriors Community, please do so

Hi! Yes, I had a bone marrow biopsy to confirm diagnosis and many since then. They’re not the most comfortable procedure, but they’re really not that bad either.

@@kguynupare you igG Kappa? What were your numbers like when you first found out? M protein, FLC ratio, bone marrow%

In 2015, I had a really exhausting summer home from teaching. I had two kiddos - 1 and 4 at the time - and I genuinely thought it was just how motherhood was supposed to be. But in that fall, I started getting illness after illness (colds, eye infections, ear infections, sinus infections, etc.) and that in conjunction with the extreme fatigue I was feeling made me realize something was very wrong. I finally started teaming up with my primary care provider to dig deeper into all these illnesses in January. It was at this time I discovered I was anemic, but we did not yet know why, so we started to dig deeper into that to find a reason. I had two trips to the ER in January/February - one for bone pain in my hips that woke me in the middle of the night and one for a fever + abdominal pain. I could've gone to my PCP for this, but both times it was after hours and I was desperate to tell any medical professionals my story and hope that they could put together all the pieces to the puzzle for me. I was finally seen by oncology and was officially diagnosed 4/4/16. So it was a journey, for sure.

I agree with you on it not being super important to anyone but myself what specific drugs I took. Myeloma is such a strange beast and everyone's case and history is so different. Everyone's journey will look different. I am lucky that by the time I started receiving treatment, it made me feel BETTER than I had been feeling, so I was grateful. I have had very few side effects to drugs along the way. I will try to list them out. The lymphodepleting chemo I took before stem cell transplant, melphalan, was terrible stuff. I was sick for so many days in the hospital and I could not even hold a popsicle down. I remember asking the nurses to just make it so I could sleep through the whole ordeal, and that's pretty much how it went down. My second time on Revlimid, I got an itchy scalp, but it only lasted a few days... possibly a week. Lymphodepleting chemo for both of my CAR Ts was also not that fun. For both I believe it was cytoxan and fludarabine. The advantage here was that I was on my own at the hotel as I was still outpatient so I could lay around, sleep and eat saltines here and there as it worked for me. I felt very nauseous and the memory of it makes me never want to stay at that hotel again! After successfully receiving IVIG twice I think, the third time I experienced excruciating abdominal pain during the appointment. It crept up slowly, so at first, I literally thought I was period cramps and I got up to the bathroom to check. Nope. It continued to worsen, and I asked my nurse for help knowing something was wrong. They wound up halting the IVIG, giving me a couple meds, one for nausea and one called Solu-Medrol. After an hour of things calming down, we restarted the IVIG with no other problems. My specialist said with IVIG to "expect the unexpected" as far as side effects go.

I am lucky to have zero bone involvement at this time. Although I fractured my foot in 2018, finally managed to find time to have it repaired this September and so far it is not healing. :(

Hi Kelly, I am a recently retired RN, I noticed I was seeing more and more patients with this cancer. Now, that I have more time, I thought I would improve my understanding of MM by exploring TH-cam. I came across your story and you are the youngest person I have seen diagnosed with MM. Thank you very much for sharing your story. I hope you can continue to stay on top of this cancer.@@kguynup

In 2015, I had a really exhausting summer home from teaching. I had two kiddos - 1 and 4 at the time - and I genuinely thought it was just how motherhood was supposed to be. But in that fall, I started getting illness after illness (colds, eye infections, ear infections, sinus infections, etc.) and that in conjunction with the extreme fatigue I was feeling made me realize something was very wrong. I finally started teaming up with my primary care provider to dig deeper into all these illnesses in January. I had two trips to the ER in January/February - one for bone pain in my hips that woke me in the middle of the night and one for a fever + abdominal pain. I could've gone to my PCP for this, but both times it was after hours and I was desperate to tell any medical professionals my story and hope that they could put together all the pieces to the puzzle for me. I was finally seen by oncology and was officially diagnosed 4/4/16. So it was a journey, for sure.

Im so sorry Kelly! Thank you for sharing your story. Praying for continual healing, peace, and hope for you and your family. @@kguynup

Why didn't the first cart t work also what was the name of the second cart t ?

God only knows why the first one didn’t work. Similar to why some meds work for one person and not another or how some meds only work for a certain amount of time and then don’t. My second CAR T was Carvykti.

I love you, Evan! Sorry I am just seeing this. <3

Love you too