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PSC Support
United Kingdom
เข้าร่วมเมื่อ 10 มี.ค. 2014
PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support TH-cam channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support TH-cam channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
PSC Support Ask the Expert Prof Tarik Iqbal, What is PSC-IBD
This video was taken from Prof Tarik Iqbal’s Ask the Expert live Q&A, originally broadcast on Zoom.
Prof Tarik Iqbal is a Professor of Clinical Microbiome at the Queen Elizabeth Hospital, Birmingham.
Access NHS Psychological Support by:
• Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/men...
• As for GP Referral to local community mental health service
• Ask local hepatology/transplant team if they have access to health psychology service
Recording date: 23 October 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/
Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Prof Tarik Iqbal is a Professor of Clinical Microbiome at the Queen Elizabeth Hospital, Birmingham.
Access NHS Psychological Support by:
• Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/men...
• As for GP Referral to local community mental health service
• Ask local hepatology/transplant team if they have access to health psychology service
Recording date: 23 October 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/
Key information for healthcare professionals www.pscsupport.org.uk/HCPs
มุมมอง: 164
วีดีโอ
PSC Support Ask the Expert Patient Perspective with Clinical Trials
มุมมอง 193หลายเดือนก่อน
This video was taken from the Patient Perspective Ask the Expert live Q&A, originally broadcast on Zoom. Mark Chatterley is the PSC Support Administration Manager who has participated in clinical trials and had a liver transplant for PSC in 2023. William Williams and Maria Robertson are both PSC patients who have participated in clinical trials and share their experiences. Recording date: 23 Se...
PSC Support Ask the Expert: Dr Lucy Gorvin, Managing the Psychological Impact of PSC
มุมมอง 2302 หลายเดือนก่อน
This video was taken from Dr Lucy Gorvin’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Lucy Gorvin is a Loren Smith is a Clinical Psychologist at the Royal Free Hospital. She specialises in working with liver transplant patients. Access NHS Psychological Support by: • Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/mental-health/find-an-nhs-talking-therap...
PSC Support Ask the Expert with Loren Smith, Top Advice from our Helpline
มุมมอง 2073 หลายเดือนก่อน
This video was taken from Loren Smith’s Ask the Expert live Q&A, originally broadcast on Zoom. Loren Smith is a Hepatology Clinical Nurse Specialist at John Radcliffe Hospital Oxford and the PSC Support Helpline Nurse. She is also in the unique position of being a PSC patient herself. Recording date: 31 July 2024 Check out our completely re-written, comprehensive PSC information, fully referenc...
Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery
มุมมอง 1.6K4 หลายเดือนก่อน
Kieron Dyer, footballing legend and PSC patient, joined Nick Kane and Paula Hanford from PSC Support in between training sessions at Chesterfield FC. This video covers: - Getting a PSC Diagnosis - Living with PSC - Journey to Transplant - Life After a Liver Transplant Trigger Warning: This video contains content that may be distressing for some viewers, including discussion of PSC disease progr...
PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress
มุมมอง 4874 หลายเดือนก่อน
This video was taken from Dr Emma Culver's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Emma Culver is a Consultant Hepatologist & Senior Lecturer, John Radcliffe Hospital Recording date: 25 June 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Paralympian and Parasurfer Hannah Dines shares her experience with PSC
มุมมอง 1.7K4 หลายเดือนก่อน
This video was taken from a conversation with Hannah Dines held via Zoom on 21 March 2024 with Paula Hanford, PSC Support CEO. Hannah is a decorated Paralympian and Parasurfer who was born with cerebral palsy and was later diagnosed with PSC as an adult during the COVID-19 pandemic. She kindly shares her experience with PSC, discussing extreme PSC fatigue and her coping mechanisms. Check out ou...
Oxford Man's Midnight Ride for a Cure for PSC
มุมมอง 845 หลายเดือนก่อน
In the early hours of July 5th, 2024, Oxford resident James Lawton and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the Royal Free Hospital in London, retracing the exact timeline of James’s call for a life-saving liver transplant two years ago. The trio aims to arrive by 11:00 am, coinciding with the time James was tak...
PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care
มุมมอง 8786 หลายเดือนก่อน
This video was taken from Dr Simon Rushbrook’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Simon Rushbrook is a Consultant Hepatologist and Clinical Lead for Hepatology, Norfolk and Norwich University Hospital. Recording date: 16 May 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare pr...
PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it
มุมมอง 7806 หลายเดือนก่อน
This video was taken from Alice Freer’s Ask the Expert live Q&A, originally broadcast on Zoom. Alice Freer is a senior physiotherapist at the QE Hospital, Birmingham Recording date: 10 April 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Quality of Life
มุมมอง 1817 หลายเดือนก่อน
This video was created by PhD fellow Ryan James who is running stage 2 of the PSC Quality of Life Study. pscsupport.org.uk/research-weve-funded/psc-quality-of-life-measure/ This study has been funded by the British Liver Trust and PSC Support. Special thanks to Professor Douglas Thorburn, Professor Shivani Sharma, Professor Keith Laws and Dr Emily Beadle and supporting universities Aston Colleg...
PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial
มุมมอง 5087 หลายเดือนก่อน
This video was taken from Dr Palak Trivedi and Dr Sarah Al-Shakhshir’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Dr Sarah Al-Shakhshir is a Clinical Research Fellow at University Hospitals Birmingham NHS Foundation Trust Recording date: 19 March 2024 Check out ou...
PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work
มุมมอง 2848 หลายเดือนก่อน
This video was taken from Charlene Oke’s Ask the Expert live Q&A, originally broadcast on Zoom. Charlene Oke (BSc Hons, MA Merit FCIPD) is an established global HR practitioner with over 15 years experience across several industries. She is also HR Trustee at PSC Support. Recording date: 19 February 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www...
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
มุมมอง 5249 หลายเดือนก่อน
This video was taken from Dr Joshi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Recording date: 27 January 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare profession...
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
มุมมอง 55211 หลายเดือนก่อน
This video was taken from Dr Ferguson's Ask the Expert live Q&A, originally broadcast on Zoom. Dr James Ferguson is a Transplant Hepatologist, Queen Elizabeth Hospital, Birmingham. Recording date: 6 December 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
มุมมอง 65411 หลายเดือนก่อน
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
มุมมอง 451ปีที่แล้ว
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
Research Update from PSC Support (Martine Walmsley)
มุมมอง 194ปีที่แล้ว
Research Update from PSC Support (Martine Walmsley)
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
มุมมอง 234ปีที่แล้ว
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
มุมมอง 364ปีที่แล้ว
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
มุมมอง 602ปีที่แล้ว
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
มุมมอง 447ปีที่แล้ว
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
มุมมอง 216ปีที่แล้ว
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
มุมมอง 729ปีที่แล้ว
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
มุมมอง 639ปีที่แล้ว
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
มุมมอง 499ปีที่แล้ว
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
มุมมอง 207ปีที่แล้ว
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
มุมมอง 198ปีที่แล้ว
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
มุมมอง 67ปีที่แล้ว
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)
มุมมอง 120ปีที่แล้ว
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)