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Thank you! Very insightful.. just joined your group .. TBI 9 months ago smell and taste have not returned.. hoping to learn from your group how to manage…

help us

This is my first experience with COVID and I completely lost my sense of smell. I’m several days in, and I am now smelling a chemical/rancid/lemony smell that makes me sick. It’s quite horrible

Are you going to waste people's time again with olfactory retraining? That doesn't work. On the other hand, I would like to ask about a Japanese drug called Ensitrelvir (Xocova). Do you think this can help us patients with taste and smell disorders caused by Covid-19?

I got covid in June of 2024 and have been living with parosmia for 4 months. It has definitely been affecting my mental and physical health immensely. I am hoping to be apart of a drug trial for stellate ganglion blockers in post covid patients with parosmia, unfortunately to be eligible i have to wait another 2 months. I'm hoping that people who have commented years ago have improved sending so much love and support!

I’ve only just discovered that my cigarette smoke smelling is only me ! I’ve genuinely thought someone was outside smoking but it’s getting worse, and has only come to light because the last few weeks I keep saying “can you smell someone smoking? “ and literally no one can!! This week I smelt burnt toast for the first time- again, only me ! Husband smelt nothing! Bending forward does make it more obvious eg when I wash up. I had a bad fall and hit the side of my head a few months ago. I also have whiplash type pain as a result. The cigarette smoke smell is now fairly constant . So irritating. It feels silly to go to the gp. I don’t know if it could be associated with the fall. I have no other smell problems.

It works, It took me 9 months i could smell nothing, We had the Gas on and nothing then I started to follow the advice and oils and slowly its come back, nothing like before you know what but at least I can smell some things and taste,

Recovered after a year or two of suffering!

Thank you for helping

I have this. It’s a weird thing. I sort of feel I never get the “entire” picture 😢. I always wished I knew what my Dad smelled like. Smell is so powerful and uncontrollable and instinctive. So primal. I do have FOMO.

Vitamin A drops update: Please note, in this recording Mr Oke Okonkwo shares the advice he gives his patients about vitamin A drops and references the APOLLO trial. Professor Carl Philpott, our Director of Research and Medical Affairs has confirmed that, until the results of the APOLLO trial are out, patients should consult with a doctor before using vitamin A drops. Furthermore, the supplies of the right kind of vitamin A drops are non-existent globally at present. We will update this page on our website when the trial, which is now coming to an end, is complete and the results are out: www.fifthsense.org.uk/the-apollo-vitamin-a-trial/ Best wishes, The Fifth Sense Team.

We forgot to spotlight the speakers for this event, so apologies if this detracts from the presentation. We'll try to remember to do this for our future events for patients and professionals. The Fifth Sense Team.

great. thank you.

4 yrs on from the pandemic and its very clear to the parosmia/dysgeuisia world that ENT know NOTHING about this condition. Common theme in the 40k+ facebook support group is don’t bother seeing an ENT.

Thanks. I have been recently diagnosed with AERD. Any further information would be appreciated 👍

Will the smell test help taste as well ?

I want to thank Dr Sylvester herbal remedies on TH-cam for curing my parosmia with his herbal treatment which hе shipped to me....

This was so helpful. Thanks very much, Fifth Sense, for having organised this!

Thank you for posting this. Can't say if I should be proud or scared to be 1 out of 10 thousands having a congenital anosmia

Thank ypu for making these videos.

I want to thank Dr Sylvester herbal remedies on TH-cam for curing my parosmia his herbal treatment which he shipped to me ::::::😊

It's not so bad at least. Thankfully I can't smell any bad smells either.

Phantosmia. Totally imaginary/mental here. Does not vary in intensity or choice-of-smell. Occurs whether one thinks about the phenomenon or not. Occurring every ten-twelve minutes, and lasting for about 5 seconds each time. Not Covid related. Nothing stressful taking place to trigger it. Another nail.... in the coffin of Life.

You know what i could smell 7 years ago and i know it would be sad to be blind all your life but when you still remember what your missing hits it hits hard

Pura basura, no dicen nada importante

I was born without a sense of smell. This is good information.

I'm here to learn more about this topic for my assignment but, I always been a huge believer scents affect our daily life and can if used wisely it can help in many areas (motivation) in particular is the one I'm researching right now

Any treatment

Thank goodness I found you folks, I smell a strong sweet smell, coffee stinks, my urine smells so bad, pop corn smells like something burning, 8 months with this condition. Thank you for your videos.

Are there any updates on this research?

I don't smell at all. Since three week I'm doing what you say. I have four dark color jarr with aromatherapy oil. I'm smelling from the four smells only the Lemon very poor smell. But if I take green fresh lemon pressing by my nail I feel the smell of the lemon more than the oil The other three oil I try two times a day the aromatherapy oil I hope you can help!!!

will this also help me get back the taste , i lost both it has ben now a full month taste is still compleatly gone sent very slight . Great Video

I've always had almost no smell but didn't think about it until some science class in high school where we smelled different chemicals and I had to put it right under my nose for a slight smell of it and everyone could be like 2 persons away and smell it. If stuff is burning I'm far more likely to hear it then smell anything. I still have a very good sense of taste from my dad and I consider myself able to pick up more flavors then the average person despite my smelling issues. So it doesn't seem to affect my taste as much. I do realize though that I don't get hunger as others though because I can't really smell food cooking most of the time.... Which is bad because once I ate some rotten food when I wasn't paying attention and didn't realize until I tasted it. I couldn't smell it at all but boy could I could I taste it. :( This is always tricky too when it comes to spoiled milk, I tend to just throw stuff out early because of that. There are a few rare occusions when I can smell really well (or at least well for me) but it's super rare. It wasn't until my very late 20's I had one memory of a smell I realized I could trigger. I did not realize people could imagine smells or associate them with anything before.

Anyone else have people that just WON'T believe that you can't smell, and shove stuff into your face and get you to try? That's always fun lol

Thank you for posting this important informative video!👍

Thank you for posting this helpful video!🙏…3-4 yrs ago out of know where I developed a very strong smell of car exhaust all day long for up to a week…it continues to come back anywhere from a month to several months…smelling that exhaust smell all day long for 3-5 days is horrible…it’s as if I were standing directly behind a running vehicle!😫🤢

Ive heard not to rinse with tap water because of the chemicals in it.

Any help in the USA ?

I have cacosmia and I don't know what to do and it's been almost a year. I had Covid in Oct of 2022 and I was told that if it doesn't come back in a year to get an MRI by my ENT but that will cost me a lot of money. Is that even worth it?

I've watched a few videos on scent training, this video provided a lot more info than other sites. Thank you! What you stated makes a lot of sense and will surely make a different in my training and possibly success. thank you for taking the time to video and post on you tube.

are there any trials that take place in canada?

what you do in life echoes in eternity

I only smelled something once that wasn’t there. It was in 2015 the night my dad died. I was sobbing and unconsolable bc my dad has died and I wasn’t in the room when he had passed. I smelled a very strong pungent smell of pipe or cigar smell. I dad didn’t smoke. No one I knew smoked a pipe or cigars. A few years later after my uncle died my sister found a corn cob pipe in my uncle’s house. He belonged to my grandfather There was sill a scent in the pipe that smelled the exact same smell as I had the night my dad died. I never met my grandfather. He died when my dad was 4 years old. I know this can be pure coincidence Is it more common to have phantom smells during intense grief ?

I wanted to know how long or how did lost taste n smell ? I started some antidepressants n lost taste n smell can't enjoy anything only sweet things , so tell or share your others stories pls , just feeling lonely , I have 2 ear ringing all mri test normal bciz of that I started antidepressants n no taste m smell but don't know really bcoz of medicine bcoz rvrn before medicine I had low taste of smell

Very helpful

My brother has never had a sense of smell. I only realized that my sense of smell was different in my early 20s. I can't smell a lot of things very well, unfortunately one of these is gas, and other smells I get confused. As far as phantom smells, I don't have many, although I get the litter fresh from the box confused with dirty litter. UGH. Thanks for this and other smell disorder videos, I thought I was just a weirdo who imagined things. It doesn't really bother me except I try to rent only places with electric stoves.

Thank you for sharing. What are thoughts on current stem cell therapies for smell loss?

I smell a gas exhaust mixture. But if I put my shirt over my nose the smell would leave, remove my shirt and smell would resume a little bit later. I also try a little Vicks vapor on my upper lip, seems to work.

My poor daughter had Covid in 2020 and still no smell or taste. My concern is her safely. I’m starting to give up on hope ❤