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PD Avengers
Canada
เข้าร่วมเมื่อ 17 ม.ค. 2011
Welcome to the TH-cam channel of PD Avengers - United to End Parkinson’s. Join us at www.pdavengers.com.
We are a global alliance of people with Parkinson’s, their partners, and allies, united in our mission to change the way Parkinson’s is seen and treated. The PD Avengers are not a charity, nor are we tied to any single organization. Our goal is to harness the collective power, influence, and expertise of our community to show that Parkinson’s matters and to create a sense of urgency in the fight to end this disease.
We are a global alliance of people with Parkinson’s, their partners, and allies, united in our mission to change the way Parkinson’s is seen and treated. The PD Avengers are not a charity, nor are we tied to any single organization. Our goal is to harness the collective power, influence, and expertise of our community to show that Parkinson’s matters and to create a sense of urgency in the fight to end this disease.
PD Avengers: What have you learned about yourself since your diagnosis?
PD Avengers co-founders Larry Gifford, Soania Mathur, and Tim Hague Sr. discussed various topics related to Parkinson's disease, including recent news and advancements in Deep Brain Stimulation therapy. They also shared personal experiences and lessons learned since being diagnosed with Parkinson's, emphasizing the importance of self-advocacy, mindfulness, and finding positivity in the face of adversity. The conversation ended with a focus on what they've learned about themselves since their diagnosis.
Ask a question: www.speakpipe.com/pdavengers
Learn more about your ad choices. Visit megaphone.fm/adchoices (megaphone.fm/adchoices)
Ask a question: www.speakpipe.com/pdavengers
Learn more about your ad choices. Visit megaphone.fm/adchoices (megaphone.fm/adchoices)
มุมมอง: 12
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Ep 2 PD Avengers Weekly Chat What Have You Learned About Yourself?
มุมมอง 232 ชั่วโมงที่ผ่านมา
Larry, Soania, and Tim discussed various topics related to Parkinson's disease, including recent news and advancements in Deep Brain Stimulation therapy. They also shared personal experiences and lessons learned since being diagnosed with Parkinson's, emphasizing the importance of self-advocacy, mindfulness, and finding positivity in the face of adversity. Ask a question: www.speakpipe.com/pdav...
World Parkinson's Day 2024 - United Kingdom by John Hinson
มุมมอง 102 ชั่วโมงที่ผ่านมา
Drone footage of #SparktheNight in the UK in 2024 by John Hinson.
PD Avengers: Three things to focus on in the new year
มุมมอง 3414 ชั่วโมงที่ผ่านมา
In the PD Avengers Weekly Chat titled "3 Things to Make 2025 Great!", co-founders Larry Gifford, Soania Mathur, and Tim Hague discuss three key actions to enhance the well-being of individuals with Parkinson's disease in the coming year: 1. Engage in Regular Exercise: Tim emphasizes the importance of consistent physical activity, citing research that shows 30 minutes of intense exercise, five d...
PD Avengers Weekly Chat #1: 3 Ways to Make 2025 Amazing!
มุมมอง 5419 ชั่วโมงที่ผ่านมา
PD Avengers is introducing a weekly chat series to discuss ongoing events, research, and exercise initiatives designed to support and benefit those with Parkinson's. In our first chat, we’ll delve into the benefits of exercise for those with Parkinson's, spotlight the Give4YOPD fundraiser, and explore the vital role of participating in clinical studies to enhance treatments and care. Donations ...
World Parkinson's Congress Update - Jan 2025
มุมมอง 4414 วันที่ผ่านมา
World Parkinson Congress - May 24-26, 2026, in Phoenix, AZ • KEY DATES: o April 7 - Volunteer Application opens o June 2 - Video & Song Competition opens o Aug 1 - Travel grants applications open o Aug 12 - Abstract submissions open o September 4 - Registration opens o September - Registration & Hotel Bookings opens (Note: WPC preferred hotels will be offered at reasonable rates, and their staf...
Nominate Someone for the Scott Newman Rock Steady Boxing Impact Award
มุมมอง 4214 วันที่ผ่านมา
Do you know an individual who goes above and beyond to support those living with Parkinson’s? Nominate them for the Scott Newman Rock Steady Boxing Impact Award! This award honors those making a meaningful difference through leadership, innovation, and unwavering dedication. Submit your nomination by Feb 15, 2025: form.jotform.com/242984365777071 How to Nominate Complete the Nomination Form: Fi...
PD Avengers Partner Meeting - January PD News
มุมมอง 8714 วันที่ผ่านมา
QUICK HITS • Congratulations to Michael J. Fox on being honored with the Presidential Medal of Freedom fore his tireless advocacy and boundless optimism to change the future for millions. • Feb 4: "Let's Keep Moving With APDA: Group Exercise & PD" Register here: www.apdaparkinson.org/events/lets-keep-moving-with-apda-group-exercise-pd/ • Parkinson Voice Project's grant program to train speech-l...
January 2025 Spark the Night Update
มุมมอง 4114 วันที่ผ่านมา
What is Spark the Night and Sparklets? How do people get involved? How's the campaign coming along? details at sparkthenight.org
Fundraiser for YOPD travel grants for WPC 2026 in Phoenix
มุมมอง 4621 วันที่ผ่านมา
Follow this link to donate: www.worldpdcoalition.org/donations/donate.asp?id=24384 Support Travel Grants for Young Onset Parkinson's Disease (YOPD): We believe that everyone should have the opportunity to attend the WPC, regardless of financial constraints. To support this, a group of international YOPD advocates has launched the Give4YOPD fundraiser, aiming to raise at least $25,000 for travel...
Holiday Greetings from PD Avengers cofounder Tim Hague Sr.
มุมมอง 30หลายเดือนก่อน
Wishing you warmth this holiday cheer, Joy and love as the year's end draws near. May 2025 bring blessings anew, Health, happiness, and dreams come true!
A Holiday Message from Larry Gifford
มุมมอง 40หลายเดือนก่อน
The President of PD Avengers Larry Gifford sends Season's Greetings as we all prepare for 2025! Larry also looks back on a few breakthrough moments in 2024. www.pdavengers.com
Introducing ParkiBot
มุมมอง 696หลายเดือนก่อน
Dan Friedman, co-founder of Composium.ai, introduced ParkiBot, an AI tool designed to assist Parkinson's disease patients and caregivers. ParkiBot is trained on over 250,000 Parkinson's disease-related documents and can search the web for relevant information in real-time. It provides detailed responses to questions, sources for claims, and suggestions for further exploration. The tool is free ...
World Parkinson Coalition "Parkinson Ready" Vancouver
มุมมอง 40หลายเดือนก่อน
The World Parkinson Coalition designed the “Parkinson Ready” program to address these challenges for people with Parkinson's. While this program was initially offered only to cities that are selected to host our triennial World Parkinson Congresses, it is now being piloted in Vancouver, Canada and Philadelphia, PA, USA to see how the training can be utilized by any city interested in driving up...
It's the holiday season at the PD Avengers
มุมมอง 94หลายเดือนก่อน
It's the holiday season at the PD Avengers
Sleep's Impact on Parkinson's Care Partners
มุมมอง 1922 หลายเดือนก่อน
Sleep's Impact on Parkinson's Care Partners
Care Partner Awareness Month Larry Gifford
มุมมอง 823 หลายเดือนก่อน
Care Partner Awareness Month Larry Gifford
Care Partner Awareness Month - Tim Hague Sr.
มุมมอง 893 หลายเดือนก่อน
Care Partner Awareness Month - Tim Hague Sr.
Care Partner Awareness Month with Soania Mathur, MD
มุมมอง 2553 หลายเดือนก่อน
Care Partner Awareness Month with Soania Mathur, MD
Bernard Coley discusses his role in the 2025 Spark the Night campaign
มุมมอง 324 หลายเดือนก่อน
Bernard Coley discusses his role in the 2025 Spark the Night campaign
Spinning Wheels Relay 2024 - West Coast Ride Days 2 and 3 from Vancouver to Sunshine Valley
มุมมอง 575 หลายเดือนก่อน
Spinning Wheels Relay 2024 - West Coast Ride Days 2 and 3 from Vancouver to Sunshine Valley
Henry Gifford - Spinning Wheels - Thank You
มุมมอง 366 หลายเดือนก่อน
Henry Gifford - Spinning Wheels - Thank You
WEBINAR SLEEP Survey Results July 8, 2024
มุมมอง 5186 หลายเดือนก่อน
WEBINAR SLEEP Survey Results July 8, 2024
The National Plan to End Parkinson's Bill Has Passed Through the House and Senate, Now What?
มุมมอง 1.9K7 หลายเดือนก่อน
The National Plan to End Parkinson's Bill Has Passed Through the House and Senate, Now What?
Spark The Night with replaced Soundtrack "Spark the Night"
มุมมอง 5818 หลายเดือนก่อน
Spark The Night with replaced Soundtrack "Spark the Night"
Illuminating the Night - Night Symptoms of Parkinson's - as first published by Neurology Live
มุมมอง 3.3K8 หลายเดือนก่อน
Illuminating the Night - Night Symptoms of Parkinson's - as first published by Neurology Live
Hello Sir, Do you know the reason why your TH-cam video views and subscribers are not growing as expected? I know! Because I found 3 main problems while browsing your channel. 🤔🤔 Can I show you by marking them?
Thank you for all you do for the Parkinson’s community and drive towards a cure. We wish you all a happy Christmas and New Year. May the New Year bring many more moves towards preventing and an eventual cure for Parkinson’s.
I went and checked this out, I liked that it gives straightforward answers, but then allows you to go a little deeper and expand on that particular topic. So you can go as deep into answers and research as you want to, but you get the basics first so you don't have to go any further.
Agree - much better than any AI I've tried!
Very interesting. Going to try it 😮
Thank you !!
I so agree. My dear husband, Brian is my care partner, and he helps me each and every day. I make sure to let him know how much I appreciate every thing he does.
💟
truth
My father rebuilt transmissions he was always elbow deep in this stuff. Now currently very deep into Parkinson's at 67. Can't really speak can't really do much super tragic. Thank you so much for this information!
Don't forget to like and comment so this is seen by more people. 😎🌴
Great information! Thanks for sharing. I'm surprised at the discussion about nicotine not being effective for Parkinson's. I was at stage 3 Parkinson's 4 years ago. I began using high dose nicotine (in pouch form) and other supplements/diet changes and I have pretty much have no symptoms since.
Hi there....may I contact you regarding the nicotine usage please. My hubby has PD and it's so interesting that it could help with symptoms
@@aquestforrest6978 New channel starting soon to explain what I do for my Parkinson's. No Dopa Parkinson's on rumble.
@@aquestforrest6978 TH-cam won't let me reply. Not sure why.
I was exposed to this by a British powder coating company in the north east of England, Darlington.. I've now been diagnosed with MSA multiple system atrophy parkinsonism Probably gonna die in six years....
The FDA should allow Ambroxol to be approved like Europe and Asia has
Great to get a little background on Brian and his life story- will definitely follow more of his work and the PD Avengers as I advocate for all things that lead to life affirming days with PD!
How long do TCE-treated shirts emanate in dangerous levels from when they are purchased. At any given time I have 2-5 shirts in my closet waiting for pickup, which may take up to 5 months to be worn.
So, aside from spending a lot of time and money... what will be accomplished and how soon?
There is no plan to end PD just like there is no medicine to end PD. It’s just a bunch of hype because the cure comes from within. Don’t get your hopes up folks.
Great exchange guys. Squirrel…!
Afraid this will be like everything the govt jumps in to "solve". More govt, more taxes, less freedom. And the program (isn't there always a program?) will be inefficient, ineffective and enriching to a select group at our expense. Find an example to prove me wrong.
Well done and thank you team MJ Fox and Michael J Fox himself, a great and true pioneer and what an achiever. Kudos to you, sir for not giving up and keeping focus on main task of ultimately eliminating Parkinson and thank you for fighting forefront on behalf of all of us who are living with Parkinson ! Thank you all & god bless !
Let's get this done! 👍
I am so glad to hear you so positive. I recently saw a video from you and it was so dark. It scared me. Now you are so up and I am elated to hear it.
This is AWESOME ❤❤❤
Outstanding job, Larry! Fantastic storytelling.
Love this, hope to see even more lights next year!! 💙
What makes the cars roll and what kind of cars are they? What do I look for to purchase them?
Wow! This was super well done! Thank you so much for sharing! Beautiful pictures and videos from around the world!
Larry, can you update on how things are going for you? Hope you are doing well.
🤣 Promo sm
Never give up!!!! We have to come together and make ourselves heard!!! We have to love ourselves enough to care about cleaning up the world we live in.❤
From Maurice White to Mohamed Ali. This is a great collection of inspiring characters. I never would have imagined that so many of the people that inspired me throughout my life would contract the same ailment. Astounding. More proof of how PD doesn't discriminate. We are all equally in danger if we do not do something fast to clean up this planet. I have to give it up for the man and his band who taught me to wish upon a star at an early age. Some songs just get better with age. Yes...and having anything in common with someone who performed a favorite song. Is kinda cool. Even if it is PD.
Just let me know what I can do to help. Mother Nature is not pleased with the recent ruling by the EPA. Multiple times those in charge have made this cause sound unworthy of the time and effort required to read. How can this be? UNACCEPTABLE I say! We simply must find a way. 🌎🏔🌱🌳🦋💓 Thanks to both of you for this reality check. Also thanks for the great book Dr. Ray Dorsey. I'm a former long time resident of Upstate NY. I was also born and raised in the Bay Area Ca. So that book really speaks to my story. As well as to the multiple health issues suffered by my family. And other familys we know who still live in NY.
We may have lost the battle. I cultivate hope and determination that we shall not lose the war!
Is this stuff in Australia?
Unfortunately, yes.
Actually the coating and fillers play a small role in the dosing. The FDA allows a 20% difference from the standard dose. That can be 20% lower or 20% higher . So a total of 40% difference is allowed between different batches of the drug.. within its own generic company or its competitors or the brand name. So yes, pay close attention. The patient is the one who may easily notice a difference, not the doctor , or pharmacist or the pharmacy that is more concerned with profit than for your well being.
I found the same info. The FDA allows a 20% deviation in active ingredients. I get my Levodopa from the VA as I am an a 100% disabled Agent Orange victim of the Vietnam war. I have no control over where they get their meds from and often wonder how good they are because I've never been able to try any other brands. I currently take 15 25/100 tabs a day. This is such a terrible disruptive disease. I wonder how Sinemet brand is?
@@invoxicated i was introduce to agent orange in 1969 in a vietnam jungle also. i went on to college after my year in country and graduated as a pharmacist. i owned a large pharmacy for 40 years when finally as my symptoms started to rule my life i sold the store and filed a claim wih VA in 2013. of course was denied back then so i continued as is.. in 2020 i filed another claim that included my updated condition and of course was given 100% P&T... so i got a lawyer and refiled my 2013 claim. was paid back pay from 2013 , not so easily , but successfully.. thats good advice you offer on generic drugs and the importance of not changing brands of levodopa. though often it may not be so important for other drugs and conditions. my motor symptoms are controlled well at current dose and i pick up on the slightest deviation of dose. im not at 15 000 mg a day of levodopa yet, but its coming, you speak and present yourself well, maybe consider a sight to advocate for your VA claims. sincerely j myers
My mil and husband have PD. My Mil recently passed away. They have had genetic testing and it's not genetic. My mil never owned a washing machine,everything was done at the dry cleaners.
Larry - thanks for this information. I’ve been taking the same generic form of carbi/levodopa for 5 years. Due to travel I had to fill my prescription at an unknown to me (but still CVS pharmacy). The pills were a slightly different shape and not scored. I was a little surprised they hadn’t informed me of the switch but I thought (besides the inconvenience of the nonscored pills) that they would be the same. I’ve been having trouble with my “off times” occurring more frequently and their onset is quite abrupt. I go from feeling ok to being in a severe off time zone immediately. I thought it was me. Now I am going to look into this more. Again thank you
1pp
Best wishes!
Hi Larry. So great to hear that you're doing well after your DBS surgery. Prayers for a complete recovery and it being exactly what you need now for a better quality of life. Cheers!
just had my medtronic turned on and its great.
i just had dbs with dr. foote and dr. okun at the university of florida, i saw dr, soania Mathur in orlando at the michael j fox talk, in watch every pd video i can and Kennedy is a ball of laughs, thank you all.
Having suffered from internal tremors for more than two years, I wonder whether I am with Parkinson’s, a simple test like this would make my life simple. I would love to know one way or the other
The doctor is correct. In a tall family in 1930 in Delano CA 93215 used DDT in food and spray over head 500 gallons in a aircraft over 4,000 sq foot , four times bigger than a three bedroom house 1500 SQ ft and all over the United States and Europe or London dropped DDT. And another chemical with DDT methyl bromide in pesticide and restaurants in Boston MA or New York City the tall work or own. Mexican food huevos ranchero and spices were dried DDT. My uncles are FBI agents in 1939 and 1933 and died in 1948 or 1946 or about. I was informed that ebola was military made San Diego CA Marines scientist for bio warefare and HIV Aids for bio warefare and pneumonia for FBI agents in all United States and here they died by murder in 1948. No other FBI agent Kennedy worked as honorable in CIA agency or FBI agency or in the White House and here military New York City has 241 vials of different cancers with medicine and 200 vials of cancer but no medicine and here ebola virus is still obtained for anniversary date to genocide dark tanned in south Africa by tall 9ft tall Chuy Hernandez a Saudi Arabic impersonating a Caucasian or Latin and in 1902 in Delano CA 93215 two hundred persons died of brain tumors and cancer in 1902 all dead. In 1948 all Delano CA residents died or killed by a ebola pandemic or Aids pandemic or pneumonia in 11 months in 1948 or 1949. I was in quarantine 14 days when ebola broke out in Africa and in Ohio two FBI agents died of ebola similar and two FBI agents died in Idaho of ebola similar and AIDS after 11 months was viral microorganism and CDC was notified and six fbi agents on the ebola and AIDS viral were murdered and we have the medicine for HIV Aids since 1938 and 1939 healthy with HIV Aids and medicine only at San Diego CA military base marines who won't release it to the United States, a terrorists act. So most disease is a microorganism made by New York City military base in United States by men 9' and Bob Mueller in the White House his nephews are Chuy Hernandez and Chuy Cortez Gonzalez in military base New York area who use ebola virus every anniversary of first outbreak and use COVID-19 spray and liquid all United States and countries for genocide of Caucasian and all. Bob Mueller FBI agent and Wray at the White House President of the United States office and are military since civil war and WW 1.
I worked with trico it was used to expand the rubber hand grips on golf clubs and other goods that required it, I had to turn the water tower on to help keep the fumes down when the rubber hosing was submerged. I liked the smell and you knew you'd been working near it because you'd be stoned almost.
The US is a corporate fascist dictatorship.
All talk and no resolution. No with the Republicans 😅😅😅😅
Wow! I’m so glad the Levadopa works for you so well!!!
Thank you Larry
I used Teva than Sun and while Sun was noticeably weaker. It's probably been 5+ years since I've allowed any other brand but I 've run into rumors of shortages anyd the quality of my last two 90day supplies has been noticable decreased. I don't have the name with me but it's round with no score but luckily it cuts ok and I think it is stronger. Almost all my meds haVE changed brands recently and I seem to get dyskenesia, headaches or body aches with many of the changes.
💫Thank you for sharing your experience. Something that changed my life overnight and I tell everyone: 😊 I personally switched from generic cd/ld to the brand name, Rytary, last March and I have to say my side effects from severe fatigue, dizziness upon standing, dry mouth, tearfulness, and terrible dyskinesia (for me included terrible racing thoughts and anxiety!) subsided. My life improved 100%. That's just my story. 😊 Also, I must add: I also realized with the generic, I felt as if it was only getting to 70% of my body. Meaning after trying the Rytary, I could feel my shoulders and feet and hands. Sounds strange but again Parkinson's is so weird, is it not!? Thanks for all PD avengers does Larry!! ❤
😮
Fabulous! Thanks so much! I needed that! 😅