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CCFHeartKids
United States
เข้าร่วมเมื่อ 15 ก.ย. 2013
The Children's Cardiomyopathy Foundation (CCF) is a national nonprofit dedicated to finding causes and cures for pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease.
The foundation started in 2002 with one family's determination to call attention to a poorly understood disease and to take action on the lack of medical progress and public awareness. CCF has grown into a global community of families, physicians and scientists focused on improving the diagnosis, treatment and quality of life for children with cardiomyopathy.
A Cause for Today... A Cure for Tomorrow
The foundation started in 2002 with one family's determination to call attention to a poorly understood disease and to take action on the lack of medical progress and public awareness. CCF has grown into a global community of families, physicians and scientists focused on improving the diagnosis, treatment and quality of life for children with cardiomyopathy.
A Cause for Today... A Cure for Tomorrow
When Should Genetic Testing be Repeated?
Join Dr. Teresa Lee, Assistant Professor of Pediatric Cardiology at Columbia University Medical Center and CCF Research Grantee, who will present findings from her recent publication in Progress in Pediatric Cardiology titled "Pediatric cardiomyopathy illustrates the importance of reinterpreting the significance of genetic variants."
For more information on the Children's Cardiomyopathy Foundation's (CCF's) Experts in Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the CCF website at: www.childrenscardiomyopathy.org/pages/family-resources/support-services-webinars/
For more information on the Children's Cardiomyopathy Foundation's (CCF's) Experts in Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the CCF website at: www.childrenscardiomyopathy.org/pages/family-resources/support-services-webinars/
มุมมอง: 634
วีดีโอ
Evaluating Children with Hypertrophic Cardiomyopathy: Importance of Cardiac MRI
มุมมอง 3.3K3 หลายเดือนก่อน
Join us for an informative webinar featuring Drs. Sonya Kirmani and Charles Canter as they discuss the importance and role of cardiac MRIs for children with hypertrophic cardiomyopathy. For more information on the Children's Cardiomyopathy Foundation's (CCF's) Experts in Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the CCF website at: www.childrenscardiomyop...
Highlights from the 6th International Conference on Cardiomyopathy in Children
มุมมอง 7855 หลายเดือนก่อน
Join the co-chairs of the 6th International Conference on Cardiomyopathy in Children, Drs. Steven Lipshultz, Teresa Lee, and Thomas Ryan, for a presentation on the latest developments in pediatric cardiomyopathy research and medical care covered at the virtual conference. For more information on the Children's Cardiomyopathy Foundation's (CCF's) Experts in Pediatric Cardiomyopathy webinar serie...
Listening Session: Pediatric Cardiomyopathy Care Considerations
มุมมอง 2229 หลายเดือนก่อน
Join us for a 90-minute listening session on care considerations in pediatric cardiomyopathy, which aims to share the experiences and perspectives of patients and caregivers with the medical community, partners and other stakeholders. Host/Moderator: Steven Lipshultz, MD, Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo; CCF Chief Medical Officer For more informati...
Management and Treatment Strategies for Cardiomyopathies in Children
มุมมอง 42510 หลายเดือนก่อน
Join Dr. Steven Lipshultz, professor of pediatrics at Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo, as he reviews the recently published paper, "Treatment Strategies for Cardiomyopathy in Children: A Scientific Statement from the American Heart Association." Dr. Lipshultz served as chair of the writing group. For more information on CCF’s Experts on Pediatric C...
Overview of Clinical Trials
มุมมอง 217ปีที่แล้ว
Join Dr. Jennifer Su, assistant professor of pediatrics at the University of Southern California, in the division of pediatric cardiology at Children's Hospital Los Angeles, as she provides an introduction of pediatric clinical trials. For more information on CCF’s Experts on Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the Children’s Cardiomyopathy website ...
Genetic Testing and Gene Therapy: Updates and Future Directions in Pediatric Cardiomyopathy
มุมมอง 265ปีที่แล้ว
Join Andrew Landstrom, M.D., Ph.D., pediatric cardiologist at Duke Children's Hospital and associate professor of pediatrics at Duke University School of Medicine, as he provides information on genetic testing and future directions of gene therapy for pediatric patients. For more information on CCF’s Experts on Pediatric Cardiomyopathy webinar series and to view past recordings, please visit th...
Sudden Cardiac Arrest: Education & Prevention for Pediatric Cardiomyopathy Families
มุมมอง 225ปีที่แล้ว
Join Robert Whitehill, M.D., pediatric cardiologist at Children’s Healthcare of Atlanta and medical director of Project S.A.V.E., as he provides an overview of sudden cardiac arrest education & prevention for families affected by pediatric cardiomyopathy. For more information on CCF’s Experts on Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the Children’s Car...
#GoTheDistance with the Burkhart family
มุมมอง 16ปีที่แล้ว
The Burkhart family with a genetic link to dilated cardiomyopathy (DCM) goes the distance by supporting each other.
#GoTheDistance with Megan Cosby
มุมมอง 37ปีที่แล้ว
Megan Cosby from the EAC Foundation goes the distance through her long-time supporter of CCF raising funds for research.
#GoTheDistance video with Gina Peattie
มุมมอง 52ปีที่แล้ว
Gina Peattie, CCF's executive director, shares how CCF goes the distance with awareness partners during Pediatric Cardiomyopathy Awareness Month.
#GoTheDistance with Emily
มุมมอง 23ปีที่แล้ว
Emily, one of CCF's Bake for a Cure enthusiasts, shares how she goes the distance for kids with cardiomyopathy.
#GoTheDistance with Cytokinetics
มุมมอง 35ปีที่แล้ว
Cytokinetics, one of our industry partners, goes the distance for children with cardiomyopathy.
Pediatric Cardiomyopathy: What Newly Diagnosed Families Need to Know
มุมมอง 498ปีที่แล้ว
Join Dr. Betsy Blume, Chief of Advanced Cardiac Therapies at Boston Children’s Hospital and Professor of Pediatrics at Harvard Medical School, as she provides an introduction of pediatric cardiomyopathy. The session is ideal for families with a newly diagnosed child or teen, or anyone interested in learning more about cardiomyopathy. For more information on CCF’s Experts on Pediatric Cardiomyop...
Exercise, Sports & Cardiac Rehabilitation Considerations for Children with Cardiomyopathy
มุมมอง 559ปีที่แล้ว
Join Dr. Edelelson, attending physician at Children's Hospital of Philadelphia and medical director of the sports cardiology clinic for a presentation on exercise, sports & cardiac rehabilitation considerations for children and teens affected by cardiomyopathy. For more information on CCF’s Experts on Pediatric Cardiomyopathy webinar series and to view past recordings, please visit the Children...
ICD Considerations for Pediatric Cardiomyopathy Patients
มุมมอง 381ปีที่แล้ว
ICD Considerations for Pediatric Cardiomyopathy Patients
Updates in Medical Management for Pediatric Heart Failure Patients
มุมมอง 2.4Kปีที่แล้ว
Updates in Medical Management for Pediatric Heart Failure Patients
Peer Support for Patients Transitioning to Adult Care
มุมมอง 263ปีที่แล้ว
Peer Support for Patients Transitioning to Adult Care
Therapeutic Approach to Pediatric Cardiomyopathy Using Gene Therapy
มุมมอง 3442 ปีที่แล้ว
Therapeutic Approach to Pediatric Cardiomyopathy Using Gene Therapy
Evaluating for ICD Placement & Psychosocial Considerations Related to ICD Placement
มุมมอง 4382 ปีที่แล้ว
Evaluating for ICD Placement & Psychosocial Considerations Related to ICD Placement
Pediatric Cardiomyopathy: Transitioning to Adult Care
มุมมอง 2292 ปีที่แล้ว
Pediatric Cardiomyopathy: Transitioning to Adult Care
Hypertrophic Cardiomyopathy (HCM) and Youth Sports Participation
มุมมอง 1K3 ปีที่แล้ว
Hypertrophic Cardiomyopathy (HCM) and Youth Sports Participation
Emotional Side Effects of Cardiomyopathy in Teens
มุมมอง 2763 ปีที่แล้ว
Emotional Side Effects of Cardiomyopathy in Teens
2021 Virtual Walk for a Cure: Pre-Walk Message
มุมมอง 783 ปีที่แล้ว
2021 Virtual Walk for a Cure: Pre-Walk Message
The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy
มุมมอง 623 ปีที่แล้ว
The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy
Heart Failure and Ventricular Assist Devices
มุมมอง 3K3 ปีที่แล้ว
Heart Failure and Ventricular Assist Devices
Children's Cardiomyopathy Foundation: We Are Here For You
มุมมอง 5343 ปีที่แล้ว
Children's Cardiomyopathy Foundation: We Are Here For You