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ERN-EuroBloodNet's EDU
เข้าร่วมเมื่อ 27 พ.ค. 2020
Welcome to ERN-EuroBloodNet’s EDU - Educational TH-cam channel of the European Reference Network on Rare Hematological Diseases (ERN-EuroBloodNet). ERN-EuroBloodNet contributes to innovative, efficient, and sustainable health systems and facilitates access to better and safer healthcare for EU citizens while decreasing the cross-border health barriers currently existing for information, samples and patient mobility. In order to tackle the educational gaps identified for Rare Hematological Disesases, ERN-EuroBloodNet has developed this channel, where you can find webinars, patients’s testimonies and other informative/educational videos developed by the network. For more information on ERN-EuroBloodNet please visit our website eurobloodnet.eu/, subscribe to our newsletter and follow us on Twitter, Facebook and LinkedIn!
Dissemination Pills:"The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients"
The ERN-EuroBloodNet Dissemination webinar program has been created to increase awareness of concrete ERN actions and results.
"The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients", designed to target Members and Affiliated partners experts*, was focused on:
- New strategy for the collection of annual counts of rare hematological disease patients
- Presentation of the developed tool “ENROL Registry Module for the Collection of Annual Counts of RHDs Patients“
- Practical demonstration of the tool
- Information on the 2024 campaign, including information on the deadlines
"The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients", designed to target Members and Affiliated partners experts*, was focused on:
- New strategy for the collection of annual counts of rare hematological disease patients
- Presentation of the developed tool “ENROL Registry Module for the Collection of Annual Counts of RHDs Patients“
- Practical demonstration of the tool
- Information on the 2024 campaign, including information on the deadlines
มุมมอง: 24
วีดีโอ
GenoMed4All & ERN-EuroBloodNet Educational Program - Session #4: Data Integration & Analysis
มุมมอง 13010 หลายเดือนก่อน
Welcome to the first session in the GenoMed4All & ERN-EuroBloodNet Educational program on Artificial Intelligence in hematology for public-at-large. This is an 4-part webinar series on Artificial Intelligence and its applications in hematology targeting the public-at-large and aiming to increase awareness on the cutting-edge advances of Artificial Intelligence for the diagnosis, treatments and ...
GenoMed4All & ERN-EuroBloodNet Educational Program - Session #2: Use Cases Challenges (MDS, SCD, MM)
มุมมอง 9110 หลายเดือนก่อน
Welcome to the first session in the GenoMed4All & ERN-EuroBloodNet Educational program on Artificial Intelligence in hematology for public-at-large. This is an 4-part webinar series on Artificial Intelligence and its applications in hematology targeting the public-at-large and aiming to increase awareness on the cutting-edge advances of Artificial Intelligence for the diagnosis, treatments and ...
GenoMed4All & ERN-EuroBloodNet Educational Program - Session #3: Data Standardization & Linkage
มุมมอง 5610 หลายเดือนก่อน
Welcome to the first session in the GenoMed4All & ERN-EuroBloodNet Educational program on Artificial Intelligence in hematology for public-at-large. This is an 4-part webinar series on Artificial Intelligence and its applications in hematology targeting the public-at-large and aiming to increase awareness on the cutting-edge advances of Artificial Intelligence for the diagnosis, treatments and ...
GenoMed4All & ERN-EuroBloodNet Educational Program - Session #1: Precision Medicine in Hematology
มุมมอง 6810 หลายเดือนก่อน
Welcome to the first session in the GenoMed4All & ERN-EuroBloodNet Educational program on Artificial Intelligence in hematology for public-at-large. This is an 4-part webinar series on Artificial Intelligence and its applications in hematology targeting the public-at-large and aiming to increase awareness on the cutting-edge advances of Artificial Intelligence for the diagnosis, treatments and ...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Pregnancy for AA & PNH
มุมมอง 7710 หลายเดือนก่อน
Webinar: Pregnancy for Aplastic Anemia and PNH provided by Britta Höchsmann (Ulm University Medical Center (UUMC)) and Alex Naylor (PNH Support) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Support (focused on PNH represented by M...
ERN-EuroBloodnet Topic on Focus on AA&PNH for patients: What effect does AA& PNH have on my life?
มุมมอง 4610 หลายเดือนก่อน
Webinar: What effect does Aplastic Anemia and PNH have on my life? Provided by Jens Peter Panse (University Hospital RWTH Aachen) and Maria Piggin (PNH Support and PNH Global Alliance) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH ...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Treatment of PNH
มุมมอง 5310 หลายเดือนก่อน
Webinar: Treatment of PNH provided by Regis Peffault de la Tour (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Maria Piggin (PNH Support and PNH Global Alliance) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Suppo...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Connection between AA & PNH
มุมมอง 2910 หลายเดือนก่อน
Webinar: Connection between Aplastic Anemia and PNH provided by Carlo Dufour ( IRCCS Istituto Giannina Gaslini, Genoa) and Pascale Burmester (Lichterzellen and PNH Global Alliance) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Supp...
ERN-EuroBloodNet Topic on Focus on AA and PNH for patients: Treatment of Aplastic Anemia
มุมมอง 4110 หลายเดือนก่อน
Webinar: provided by Antonio Risitano (AOU Federico II - Naples) and Jeanne ArenasTreatment of Aplastic Anemia ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Support (focused on PNH represented by Maria Piggin, ePAG of the ERN-EuroB...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Understanding PNH
มุมมอง 4510 หลายเดือนก่อน
Webinar: Understanding PNH provided by Flore Sicre de Fontbrune (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Ulrike Göbel (The Aplastische Anämi & PNH e.V. and PNH Global Alliance) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients as...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Life after BMT for AA & PNH
มุมมอง 3110 หลายเดือนก่อน
Webinar: Life after BMT for Aplastic Anemia and PNH provided by Edgar Jost (University Hospital RWTH Aachen) and Pascale Burmester (Lichterzellen and PNH Global Alliance) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Support (focus...
ERN-EuroBloodnet Topic on Focus on AA & PNH for patients: Understanding Aplastic Anemia
มุมมอง 5610 หลายเดือนก่อน
Webinar: Understanding Aplastic Anemia provided by Beatrice Drexler (University Hospital Basel) and Isabelle Flageul (French Association HPN France Aplastic Anemia) ERN-EuroBloodNet Topic on Focus on aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patients associations: PNH Support (focused on ...
Cosa sono i PROMs e PREMs? Come possono essere collegati ai Registri Ematologici Europei come ENROL?
มุมมอง 4210 หลายเดือนก่อน
Gli ENROL Knowledge Pils sono video didattici rivolti ai pazienti e organizzati dall'ERN-EuroBloodNet nell'ambito dell'ENROL, la Piattaforma Europea per le Malattie Ematologiche Rare. Per ulteriori informazioni su ENROL visitare: eurobloodnet.eu/enrol/what-is-enrol/ I video ENROL Knowledge pills sono scritti e diretti da: Maria del Mar Mañù Pereira (Coordinatore ENROL Coordinator(effacer) & Dir...
Qué son los PROMs y PREMs?se pueden conectar a los Registros europeos de enfermedades hematológicas?
มุมมอง 9810 หลายเดือนก่อน
Las «Píldoras de conocimiento» de ENROL son vídeos educativos creados para los pacientes por la red ERN-EuroBloodNet en el marco de la Plataforma europea de enfermedades hematológicas raras (ENROL). Para más información sobre la plataforma ENROL, visite: eurobloodnet.eu/enrol/what-is-enrol/ Los vídeos de las píldoras de conocimiento de ENROL están escritos y dirigidos por: Maria del Mar Mañú Pe...
Que sont les PROM et PREM? Peuvent-ils être connectés aux registres sanguins européens comme ENROL?
มุมมอง 2710 หลายเดือนก่อน
Que sont les PROM et PREM? Peuvent-ils être connectés aux registres sanguins européens comme ENROL?
Was sind PROMs und PREMs? Wie können sie als ENROL mit europäischen Blutregistern verbunden werden?
มุมมอง 4110 หลายเดือนก่อน
Was sind PROMs und PREMs? Wie können sie als ENROL mit europäischen Blutregistern verbunden werden?
Wat zijn PROMs en PREMs? Hoe kunnen ze verbonden worden met Europese bloedregisters als ENROL?
มุมมอง 3010 หลายเดือนก่อน
Wat zijn PROMs en PREMs? Hoe kunnen ze verbonden worden met Europese bloedregisters als ENROL?
A czym są PREM i PROM? W jaki sposób są one powiązane z europejskimi rejestrami krwi, jak ENROL?
มุมมอง 1210 หลายเดือนก่อน
A czym są PREM i PROM? W jaki sposób są one powiązane z europejskimi rejestrami krwi, jak ENROL?
What are PROMs and PREMs? How can they be connected to European Blood Registries as ENROL?
มุมมอง 6910 หลายเดือนก่อน
What are PROMs and PREMs? How can they be connected to European Blood Registries as ENROL?
What is ENROL? European Patients Registry on Rare Hematological Disorders
มุมมอง 4610 หลายเดือนก่อน
What is ENROL? European Patients Registry on Rare Hematological Disorders
O que é a Plataforma ENROL? European Patients Registry on Rare Hematological Disorders
มุมมอง 1410 หลายเดือนก่อน
O que é a Plataforma ENROL? European Patients Registry on Rare Hematological Disorders
Czym jest ENROL? Europejski Rejestr Pacjentów z Rzadkimi Zaburzeniami Hematologicznymi .
มุมมอง 2010 หลายเดือนก่อน
Czym jest ENROL? Europejski Rejestr Pacjentów z Rzadkimi Zaburzeniami Hematologicznymi .
Wat is ENROL? Europees patiëntenregister voor zeldzame hematologische ziekten
มุมมอง 1510 หลายเดือนก่อน
Wat is ENROL? Europees patiëntenregister voor zeldzame hematologische ziekten
Was ist ENROL? Europäisches Patientenregister für seltene hämatologische Erkrankungen
มุมมอง 1710 หลายเดือนก่อน
Was ist ENROL? Europäisches Patientenregister für seltene hämatologische Erkrankungen
Che cos’è ENROL? Registro Europeo dei Pazienti con Malattie Ematologiche Rare
มุมมอง 5010 หลายเดือนก่อน
Che cos’è ENROL? Registro Europeo dei Pazienti con Malattie Ematologiche Rare
Qu’est-ce que ENROL ? Registre européen des patients atteints de troubles hématologiques rares
มุมมอง 3810 หลายเดือนก่อน
Qu’est-ce que ENROL ? Registre européen des patients atteints de troubles hématologiques rares
¿Qué es ENROL? Registro europeo de pacientes con enfermedades hematológicas raras
มุมมอง 6410 หลายเดือนก่อน
¿Qué es ENROL? Registro europeo de pacientes con enfermedades hematológicas raras
EuroBloodNet Topic on Focus on SCD for Patients&their families: Genetic Counseling
มุมมอง 97ปีที่แล้ว
EuroBloodNet Topic on Focus on SCD for Patients&their families: Genetic Counseling
Thanks so much
Hol lehet magyar nyelvű leírást találni ?
Sars and Sars drugs awaken KSHV
Could joint pain in arthritic patients be caused by iron binding to Oxalates? Phlebotomy = removal of iron/oxalate complexes, resulting in pain?
This was INCREDIBLY helpful as I await a referral for HH re: ferroportin…
I am from india and my niece dignose CDA TYPE 2. GENE SEC23B. I AM WORRIED AND CONSTANTLY CRYING. I HAVE LOTS OF QUESTION CAN SOMEONE PLS HELP ME.🙏🙏🙏🙏🙏🙏
Bravo pour cette présentation éclairante et "soulageante" tellement elle décrit bien les effets dévastateurs de la fatigue dans les SMD et les astuces pour la surmonter
I have severe pyruvate kinase deficiency, thank you for this video I need to take this to my Dr to educate them and get my treatment changed so I can have my quality of life back.
Illuminating..
This needs to be shared thank you for your time and explanations! God bless you!
Thank you from Saudi Arabia..very informative
At 6:00 it's rate of ICU admission amongst hospitalised patients, NOT rate of hospitalisations...