Women Thriving with MS
Women Thriving with MS
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My MS Story 13 Years [Since Being Diagnosed]
This is my MS story for year 13. I'm Jen DeTracey. I'm the founder of Women Thriving with MS. You're at the Women Thriving with MS channel. And even though I was diagnosed 13 years ago, give or take a couple of months and have done a couple of MS stories in the past. I was living with MS long before that,13 years.
Take advantage of the sliding scale pricing on course for people who live with MS.
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Online Course - The MS Stress Release Process™ (sliding scale price)
www.womenthrivingwithms.com/Stress-Release-Course
Feeling Understood Masterclass Plus Resource Kit (sliding scale price)
www.womenthrivingwithms.com/offers/FbooZZa3
Three Amazing Tools to Live Better with MS - 2 Bonuses (sliding scale price)
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Blog posts
www.womenthrivingwithms.com/blog/MS-Brain-Health
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Women Thriving with MS Website
www.womenthrivingwithms.com/
🌻 FREE GUIDE: Relaxation Techniques
www.womenthrivingwithms.com/relaxation-guide
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► WATCH
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#MRI #MSStory #ms
Chapters
00:00 My MS Story - 13 Years
00:29 Five years earlier
01:17 Diagnosis - Not Emotionally Equipped
02:21 MRI Report for my 13th year
02:45 Bouts of vertigo
03:04 Going for the MRI
04:48 Knowing information is empowering
05:48 Menopausal woman
06:40 Aging and MS
08:13 Aging and energy levels
09:27 Mavenclad treatment
มุมมอง: 608

วีดีโอ

MS 13th Anniversary since my diagnosis for Multiple Sclerosis. 💥
มุมมอง 87ปีที่แล้ว
Hi I'm Jen DeTracey and I was diagnosed with Multiple Sclerosis (MS) 13 years ago today. 💥 I'm the founder of Women Thriving with MS.com #ms
Mavenclad Year 2 Month 6 Update
มุมมอง 253ปีที่แล้ว
In this video today, we're going to talk about year two month six leading up to a whole year treatment with Mavenclad. Take advantage of the sliding scale pricing on course for people who live with MS. Online Course - The MS Stress Release Process™ (sliding scale price) www.womenthrivingwithms.com/Stress-Release-Course Feeling Understood Masterclass Plus Resource Kit (sliding scale price) www.w...
Mavenclad Year 2 Week 15 (for MS)
มุมมอง 673ปีที่แล้ว
In this video I'm going to share about year two of Mavenclad. In fact, in fact, okay, I've done both. Just so you know. We're going to talk about when I started year one, then I'm going to talk about year two. I'm going to share with you my conversation with the MS nurse around fatigue and how she expected year two might go as well as the side effects that I had in year two versus year one. Blo...
Mavenclad for MS Year Two Week Six [Short Version]
มุมมอง 143ปีที่แล้ว
Mavenclad for MS Year Two Week Six [Short Version]
Mavenclad Year Two - Week Six
มุมมอง 152ปีที่แล้ว
Mavenclad Year Two - Week Six
Amnesia, Cognitive Problems and Memory Loss for Multiple Sclerosis
มุมมอง 961ปีที่แล้ว
Amnesia, Cognitive Problems and Memory Loss for Multiple Sclerosis
Mavenclad Year Two 10 Days for Multiple Sclerosis
มุมมอง 217ปีที่แล้ว
Mavenclad Year Two 10 Days for Multiple Sclerosis
Mavenclad Year Two Week Two 3 Days Out
มุมมอง 187ปีที่แล้ว
Mavenclad Year Two Week Two 3 Days Out
Mavenclad Year Two - First Dose
มุมมอง 203ปีที่แล้ว
Mavenclad Year Two - First Dose
MS - Treat MS like a friend rather than an enemy. #ms #multiplesclerosis
มุมมอง 46ปีที่แล้ว
MS - Treat MS like a friend rather than an enemy. #ms #multiplesclerosis
MS - Sometimes you need to stay strong, other times it's ok to fall apart #ms #WomenThrivingwithMS
มุมมอง 27ปีที่แล้ว
MS - Sometimes you need to stay strong, other times it's ok to fall apart #ms #WomenThrivingwithMS
MS Gratitude Practice [Multiple Sclerosis]
มุมมอง 37ปีที่แล้ว
MS Gratitude Practice [Multiple Sclerosis]
MS & Anger. Find out how to uncover the feeling underneath Anger. #ms #WomenThrivingwithMS #Anger
มุมมอง 22ปีที่แล้ว
MS & Anger. Find out how to uncover the feeling underneath Anger. #ms #WomenThrivingwithMS #Anger
Feeling Understood Master Class for Women with MS
มุมมอง 58ปีที่แล้ว
Feeling Understood Master Class for Women with MS
What to do before Mavenclad [Year One Checklist]
มุมมอง 500ปีที่แล้ว
What to do before Mavenclad [Year One Checklist]
Multiple Sclerosis: Resilience [MS Mindset]
มุมมอง 722 ปีที่แล้ว
Multiple Sclerosis: Resilience [MS Mindset]
Multiple Sclerosis: Loss of Others [MS Mindset]
มุมมอง 682 ปีที่แล้ว
Multiple Sclerosis: Loss of Others [MS Mindset]
Multiple Sclerosis: Forgive Others [MS Mindset]
มุมมอง 522 ปีที่แล้ว
Multiple Sclerosis: Forgive Others [MS Mindset]
MS - 3 Keys to Take Back Control
มุมมอง 482 ปีที่แล้ว
MS - 3 Keys to Take Back Control
MS Morning Routine What I Do and You Can Too
มุมมอง 1472 ปีที่แล้ว
MS Morning Routine What I Do and You Can Too
How I Deal with MS Fatigue in 7 Ways
มุมมอง 992 ปีที่แล้ว
How I Deal with MS Fatigue in 7 Ways
My MS Simple Meditation Technique
มุมมอง 592 ปีที่แล้ว
My MS Simple Meditation Technique
MS Lumbar Puncture Procedure - Don’ts and Do’s
มุมมอง 3642 ปีที่แล้ว
MS Lumbar Puncture Procedure - Don’ts and Do’s
Manage Heat for MS so You can Sleep - 5 Methods
มุมมอง 952 ปีที่แล้ว
Manage Heat for MS so You can Sleep - 5 Methods
MS Fatigue Medication Pros and Cons - My MS Story
มุมมอง 1.6K2 ปีที่แล้ว
MS Fatigue Medication Pros and Cons - My MS Story
How to Deal with Cold Feet - Multiple Sclerosis
มุมมอง 2832 ปีที่แล้ว
How to Deal with Cold Feet - Multiple Sclerosis
Cure for MS Brings Hope : Waiting Brings Despair
มุมมอง 1112 ปีที่แล้ว
Cure for MS Brings Hope : Waiting Brings Despair
Fresh Start for Multiple Sclerosis [MS]
มุมมอง 1052 ปีที่แล้ว
Fresh Start for Multiple Sclerosis [MS]
Perfection is Overrated - MS Life
มุมมอง 402 ปีที่แล้ว
Perfection is Overrated - MS Life

ความคิดเห็น

  • @MarilynG423
    @MarilynG423 หลายเดือนก่อน

    Thank you!! So informative and real!!! This helped me make my decision with meds! ❤😊

    • @WomenThrivingwithMS
      @WomenThrivingwithMS หลายเดือนก่อน

      Hi Marilyn, I glad that this info was helpful. What was the most helpful to support you in making your decision?

  • @trulysunny3635
    @trulysunny3635 หลายเดือนก่อน

    Saw a video where when you took the New Year's dose in 2023 you brought up more of what you ate. Was listening to hear if anything didn't mix well with those times.

    • @JenDeTracey
      @JenDeTracey หลายเดือนก่อน

      No there wasn't anything that didn't mix well. Everyone digest and medication responses are different

  • @trulysunny3635
    @trulysunny3635 หลายเดือนก่อน

    Thank you for this video and such good references in your videos. 🎉🌻🩷

  • @trulysunny3635
    @trulysunny3635 หลายเดือนก่อน

    Thank you! Like to hear about what you ate. 🍽️ Hopefully what you remember having eaten since this video can be mentioned also if you ever get time. Thanks for "Information about protein on something is protecting gut." 🩷

    • @JenDeTracey
      @JenDeTracey หลายเดือนก่อน

      You are welcome Trudy. How did it go for you?

  • @chantelvonsolms2157
    @chantelvonsolms2157 หลายเดือนก่อน

    Thank you. You are clear on every thing. I can relate with you.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS หลายเดือนก่อน

      Hi Chantal thank you for watching 👀 the videos. What do you relate to the most?

  • @tamarisktreee
    @tamarisktreee 3 หลายเดือนก่อน

    ThankYou for posting I'm on day 7 of year 2 and fatigue, left leg pain and sneezing 😂😢❤

  • @mrstoscani
    @mrstoscani 3 หลายเดือนก่อน

    This is the most relevant video I have seen covering the psychological part of this disorder. Thank you ❤

    • @JenDeTracey
      @JenDeTracey 3 หลายเดือนก่อน

      Thank you for watching this video and sharing your comment. I've now been living with MS for almost 14 years diagnosed and I'm doing much better mentally.

  • @heidivandenbraak4975
    @heidivandenbraak4975 3 หลายเดือนก่อน

    The world needs more people like BE. She has wonderful beliefs and standards that she clearly lives by ... I am working on balance exercises, which will help me to get seated on the Alinker. I can hardly wait to get mine. I have MS.

    • @JenDeTracey
      @JenDeTracey 3 หลายเดือนก่อน

      Heidi, I am excited for 🎉 that you are preparing for an Alinker. I love the commitment you are to yourself to prepare for this exciting mew way of moving around in the world.

  • @VeronicaV70
    @VeronicaV70 4 หลายเดือนก่อน

    Thanks very much this video.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 4 หลายเดือนก่อน

      Veronica you are most welcome. What has helped the most?

  • @billiejoe413
    @billiejoe413 5 หลายเดือนก่อน

    Thank you for sharing your experience with Mavenclad.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 5 หลายเดือนก่อน

      You're welcome. Do plan to take it?

    • @billiejoe413
      @billiejoe413 4 หลายเดือนก่อน

      @@WomenThrivingwithMS in a few days, I’ll start my 2nd treatment of the first year.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 4 หลายเดือนก่อน

      How do you feel about doing year two?

    • @boyd9919
      @boyd9919 หลายเดือนก่อน

      THANK you so much have been following you since I started MAVENCLAD MOTIVATION THANK YOU MAAM

  • @erica825
    @erica825 7 หลายเดือนก่อน

    I was on modafinil for a couple years before i began to question if it was actually making me more anxious. Ive always wondered if i had a touch adhd or of my inability to concentrate, prioritize, focus, finish tasks, etc was from my MS. About a month ago my nurse practitioner put me on vyvanse and i stopped the modafinil. Wow... It had been a life changer! For once i am not anxious, i can get things done (though i have a lonnng way to go with cleaning and decluttering my house) and theres the nice benefit of losing weight, which also makes me feel physically better! I also was used to taking naps during the day but i am glad that i can power through and not have to nap. Im just praying that this continues to work well for me. Thanks for this video and for sharing your experiences. 😊

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 7 หลายเดือนก่อน

      Hi Erica thank you for watching the video and sharing your story and experience with me and those who read the comments. It sounds like Vyvanse has been life changing for you so far. 🎉

  • @MGE9436
    @MGE9436 7 หลายเดือนก่อน

    This happens to a lot of people. Not just those with MS. Stress, heavy liftng, cold water immersion, and strong coughing are just some of the causes. Michael Mosely has had one after cold water swimming. It can reoccur. I have had 2 in 2 years. It can take a month to recover but no long term issues apart from no memory during the time the TGA lasted.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 7 หลายเดือนก่อน

      Thank you for watching the video and sharing your experience.

  • @AlexByrdfurnsculpt
    @AlexByrdfurnsculpt 8 หลายเดือนก่อน

    Sounds similar to my niece's epileptic panic attacks

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 8 หลายเดือนก่อน

      That's interesting. H9w often does this happen?

  • @lynnebutters6908
    @lynnebutters6908 9 หลายเดือนก่อน

    I had my first baby at 39 yrs of age.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      Wow Lynn. 🎉 That's a big milestone. 😉 Congratulations.

    • @lynnebutters6908
      @lynnebutters6908 9 หลายเดือนก่อน

      @@WomenThrivingwithMS thankyou 😊

  • @jenniferroshto7377
    @jenniferroshto7377 9 หลายเดือนก่อน

    Nine years diagnosed and taking injections; 12 years since my left arm went entirely numb, but not yet diagnosed. Sadly, I've had vertigo since February 2013 and have had it ever since. Ive had chronic fatigue since getting over mono in 1994, but I don't know if that is connected to MS, but definitely annoying! I don't know what I'd do if I had to deal with foot drop or dragging a leg, but at least I know about it from you & others with MS, should it occur. Hoping Mavenclad continues to keep things calm for you. Blessings to you!

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      Hi Jennifer, thank you for sharing your experience and watching this video. I'm hoping you get answers as to a diagnosis. Vertigo sucks. I take meclizine which really helps me.

    • @jenniferroshto7377
      @jenniferroshto7377 9 หลายเดือนก่อน

      I was originally given Meclizine, but it made me dizier. I was told by my neurologist that it's due to the 3-4 black holes in my pons/brain stem. It's worse when I'm super tired and I feel best sitting in a reclining position, talk about becoming a couch potato! Thanks for caring.😊

  • @jenniferroshto7377
    @jenniferroshto7377 9 หลายเดือนก่อน

    Hi there! I've watched all your videos and can't remember if I commented or not, but I really want to go on Mavenclad, although Rebif has kept me "stable" for 8+ years. Keep fighting!

  • @MicahHampton-yh5wj
    @MicahHampton-yh5wj 9 หลายเดือนก่อน

    I'll pray for you! You seem so sweet

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      What is your milestone for the year?

  • @heatheremma3471
    @heatheremma3471 9 หลายเดือนก่อน

    You answered my question 😂 im going to try the water method

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      Let me know how it goes Heather. Thank you for watching the video.

  • @RVIAAN
    @RVIAAN 9 หลายเดือนก่อน

    Mavenclad was ur 1st medicine or U hand any before ?

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      Hello thank you for watching the mavenclad video. I tool tecfidera for two years. I have a video about my experience on this YT channel.

  • @susanmanns5332
    @susanmanns5332 10 หลายเดือนก่อน

    I am just about to start my second year of Mavenclad. Feeling a bit nervous. I too had a few very overwhelming episodes of vertigo with hospital visits and drips. I couldn't walk up even 6 stairs without being exhausted. Its taken a long long time to get a diagnosis. I felt very frustrated all those years, not understanding what was happening to me. Love your videos, revisit them a lot and appreciate them so much. You are my go to when I feel a bit down. You have lifted my spirits a lot with your valuable information and help. Thankyou so much.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 9 หลายเดือนก่อน

      Hi Susan. Sorry for the delay in my reply. I sure appreciate you sharing your experience here in the comments. I'm glad my videos have lifted your spirits. It means a lot to me to read your words and expressions of appreciation. 💜 Keep me posted on your second year of treatment. 🌞

  • @aluna_m888
    @aluna_m888 10 หลายเดือนก่อน

    Very informative video. I was on Tecfidera between 2021 - 2022 and I developed a new lesion and I switched to Mavenclad. The side effects were too hard to bare, and this year I started Ocrevus. So far I am doing better, and my fatigue can still be a burden but nowhere close to what I had to go through when I was on Mavenclad.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 10 หลายเดือนก่อน

      Thank you for watching the video and sharing your experience. I know several women who are on the Ocervus and seem happy with the treatment. I don't have any experience with Ocervus.

  • @idivas_Tricia
    @idivas_Tricia 10 หลายเดือนก่อน

    Thanks for sharing. I will be starting Mavenclad tomorrow. How long did it take for your immune system to climb back to normal and did you use supplements?

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 10 หลายเดือนก่อน

      Thank you for watching the video. Great question. It will depend on each person. It took about 5 to 6 months in year one for me. What I found out this year is that you want your immune system to stay on the low side as there is less chance that MS will attack. This is what a pharmacist told me for year two. This means keeping your lymphocytes in the low range from 1 to 4.

    • @idivas_Tricia
      @idivas_Tricia 10 หลายเดือนก่อน

      ​@@WomenThrivingwithMS I appreciate the valuable information. I will make a note. Thank you for taking the time to respond.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 10 หลายเดือนก่อน

      You are most welcome. Wishing you the best with your Mavenclad treatment. Feel free to share how it goes. ✨️

  • @matty7758
    @matty7758 10 หลายเดือนก่อน

    Get the highest efficacy medication you possibly can

    • @JenDeTracey
      @JenDeTracey 10 หลายเดือนก่อน

      Say more about this Matty.

  • @plaziesmith9348
    @plaziesmith9348 11 หลายเดือนก่อน

    i started vumerity a few weeks ago and stopped them iyou explained exactly how i felt i think i dont want meds they made me feel worse im glad i saw your vid thanks

    • @JenDeTracey
      @JenDeTracey 11 หลายเดือนก่อน

      It can be a tough decision balancing prevention vs. side effects. Glad the video helped you to find clarity in your choice. I'm not a doctor so my experience is about my choice. ❤

  • @Gigiroo
    @Gigiroo 11 หลายเดือนก่อน

    Just got dx a few weeks ago. Thanks for the video

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 11 หลายเดือนก่อน

      Thanks for watching the video and sharing. How are you doing. It can be shocking. Give yourself permission to have ALL of your feelings. 💜

    • @Gigiroo
      @Gigiroo 11 หลายเดือนก่อน

      @@WomenThrivingwithMS I’m hanging in there. I’m researching everything I can so I can fight this. I’ve got relapsing and remitting and the steroids have helped me a lot. So far that’s all I’ve done for it. I have Lyrica but I’m afraid to take it. I’m so scared of everything

  • @alrightwithms845
    @alrightwithms845 ปีที่แล้ว

    13 years 😊 Best wishes

    • @WomenThrivingwithMS
      @WomenThrivingwithMS 10 หลายเดือนก่อน

      Thank you. I enjoy watch your video too!

  • @vwma74
    @vwma74 ปีที่แล้ว

    22 years

    • @JenDeTracey
      @JenDeTracey ปีที่แล้ว

      Wow. How's it going?

  • @jenniferhart8733
    @jenniferhart8733 ปีที่แล้ว

    Just subscribed. Diognosed few weeks ago, waiting to speak to ms nurse to discuss mavenclad. Thank you for telling us your experiences as it makes it a little less scary.

    • @JenDeTracey
      @JenDeTracey ปีที่แล้ว

      Thanks Jennifer fir watching the video and sharing that yiu are newly diagnosed. It sounds like you are being proactive in exploring what will be best for you to prevent MS progression. I hope you secure a conversation with the MS nurse soon. I had to wait 3 months to meet with my neurologist after leaving the hospital after I was diagnosed.

  • @gloriaford2221
    @gloriaford2221 ปีที่แล้ว

    Hello...I was diagnosed with rrms 30 yrs ago...I am 70 yrs old!! Fatigue has always been a major part of my ms journey?..I tried Modafinil 2 yrs ago & take it every day. It has made a significant difference in my day. I did not have any side effects at all. The only problem is that the benefit wains over time & I needed increase dosage. Another helpful little tip are cbd gummies.....I understand some might not go for that but I am willing to do everything possible!

    • @JenDeTracey
      @JenDeTracey ปีที่แล้ว

      Hi Gloria thank you watching this video and sharing your own experience. It so important to find the best way to increase our energy. We all have our own preferences. I appreciate you sharing what has and does work best for you. 💜

    • @sofiabanuelos4953
      @sofiabanuelos4953 6 หลายเดือนก่อน

      For me Cbd gummies or smoke drink give me sleeps and it no helps me because I need energy I pour in my arms or legs and help me with my pain I hope it helps.

  • @louisainmotion
    @louisainmotion ปีที่แล้ว

    Thank you so much for the Video, today is my day one with mavenclad and your Video helps me with my fear of taking it❤

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hi Louisa glad the video helped take your fear away. I hope your Mavenclad treatment goes well. I am at month 8 of year two now. I took a 3 year break in between. Feel free to watch other videos to continue to support you. 💜

  • @angelbabycards3595
    @angelbabycards3595 ปีที่แล้ว

    Great video. Currently, I have a problem: Because of the recent problems with MS, and issues with my balance, I no longer feel comfortable attempting to re-enter the workforce. Plus: I was diagnosed while unemployed, unable to find a regular job, and now this; slow, subtle disease progression, but with no therapy, and no money to pay for medication to treat this problem. Question: What can I do?

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      That's a tough situation to be. What country are you currently living in and what are their policies regarding low income and medications?

    • @angelbabycards3595
      @angelbabycards3595 ปีที่แล้ว

      I'm here, in Central California.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      @angelbabycards3558 you might consider calling the MS Society in your city or state and asking if they can give you information.

    • @angelbabycards3595
      @angelbabycards3595 ปีที่แล้ว

      Umm, I used to be the Branch Services Coordinator for National MS, here in my town.. Yes, alot has changed. Treatment is typically handled by ones PCP. Because 'they still do not really know enough. They simply refer you to an ENT, .....and when on Medi-Cal, treatment if possible, is rather slow..

    • @angelbabycards3595
      @angelbabycards3595 ปีที่แล้ว

      Honestly, what I specifically wanted to know, was if you know, exactly what I need to do to begin taking what you are taking, here in California, and if the meds are covered by Med-Cal......??

  • @shawnmcanthony5724
    @shawnmcanthony5724 ปีที่แล้ว

    I view pain( pins and needles under my feet) as my best friend. I try to live my life still work an 8 hr job . I started using a cane which i hate( most times i am embarassed. Have had ms since in my 20s now i am in my 40s. I hear people say ms is an awful disease, my best friend who died of stomach cancer would tell me he wishes he had ms. To me i wish there were no illnesses.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hi Shawn thank you for sharing you thoughts and experience. It's understandable you would rather live without an illness. I hear you. 💚 What if you started to view the cane as your best friend now?

  • @gldiego
    @gldiego ปีที่แล้ว

    Hello, tomorrow I start with the first cycle, I am very nervous but your comments are helping me. Thank you very much. Greetings from Argentina.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hello thank you for the greetings from Argentina. How'd it go with your first day? Glad this video helped you. 🤩

    • @gldiego
      @gldiego ปีที่แล้ว

      @@WomenThrivingwithMS It's only been 1 hour since my first 2 pills. I hope everything turns out well. Thank you!

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      @@gldiego keep us posted. Jen

  • @KR-ie5rg
    @KR-ie5rg ปีที่แล้ว

    Congratulations on being able to stay stable. Attitude and lifestyle are even more important than medications. I am so glad that you are able to partner effectively with your doctors. Sharing your experience is invaluable to others making these types of decisions.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Thank you KR for watching this video and your encouraging comment. 😊

  • @228BCH
    @228BCH ปีที่แล้ว

    I feel like I'm losing it. I'm married and my husband is a wonderful person and caretaker. I have lost countless people. I haven't seen my Mother in five years. I am sorry for taking your time. I used to be so happy and fun.🐽🐽

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      What do you mean you are losing it? I'm glad to hear your husband is a wonderful persona ND caretaker. That is so important to living your best life possible with MS. The grief of losing your own abilities and not feeling able to see others you care about can be heartbreaking. Sending you lots off love as you navigate the ups and downs of your emotions dealing with day to day life. You matter and you are important.

    • @KR-ie5rg
      @KR-ie5rg ปีที่แล้ว

      Thank you for making this content. Very grateful for other's validation of MS experience. It's difficult to explain to friends and family about daily psychological struggles

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      @@KR-ie5rg So true that it is hard to difficult to communicate or explain your experience of living with MS to friends and family. That's why I developed the Feeling Understood Masterclass. www.womenthrivingwithms.com/offers/FbooZZa3

  • @228BCH
    @228BCH ปีที่แล้ว

    I am so sorry for not having enough energy to type. I'm 67 and I'm going through so much pain. but I am being monitored and I take 3 pain pills per day! I'm suffering with MS and Depression

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Thank you for taking the time to type even though you do not have enough energy. Pain makes managing like more challenging. I admire you for your effort. 💜

  • @228BCH
    @228BCH ปีที่แล้ว

    DITTO

  • @florabraswell-nm1re
    @florabraswell-nm1re ปีที่แล้ว

    Number 1 for me would be a partner always makes a big difference in getting around 🙏💜

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Goodbpoinr Flora. Thank you for watching 👀 the video and sharing your perspective.

  • @frosenth7079
    @frosenth7079 ปีที่แล้ว

    You want to consider "smouldering" MS. There may be no new lesions or symptoms, but it is likely progressing anyway. Itll just be a shame to find yourself disabled years later with disability that may have been prevented with medication. There are over 20 disease modifying medications now, so its likely one will be useful without bad side effects.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Thank you for watching the video and sharing your perspective.

  • @gwenjones1913
    @gwenjones1913 ปีที่แล้ว

    Heat is the bane of my existence! I’m basically housebound bc of it, but I do have a UV proof umbrella to provide my own shade!! Really helps just to get to a door from the car and vice versa. I became cold intolerant a few years ago. It’s just painful-esp in winter. Even with the a/c on, I keep my blanky nearby year round! But also sleep with a fan 365/24/7!! Now if I could MAKE myself exercise. I have such good intentions but by the time I’m thru w other things, I’m too exhausted to do anything. Plus, it makes me HOT!!

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hi Gwen sounds like you are managing many things to make your body feel as comfortable as possible. I commend you on your efforts. Exercise can be very empowering and good for mental health. How about starting with just 5 minutes a day. Like any habit for example brushing your teeth, it can become part of your day to day routine. 🌻🎯

  • @ahlamessaadani7975
    @ahlamessaadani7975 ปีที่แล้ว

    Is it normal to show a lot of fatigue during treatment

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Yes it can be. It was for me. I've heard that is not the case for everyone through the Mavenclad for MS Facebook group.

  • @ahlamessaadani7975
    @ahlamessaadani7975 ปีที่แล้ว

    Hello, my father is taking it now, but he appeared to be very tired. Is it normal?

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Yes it is nor mal from my experience and some others I know too.

    • @ahlamessaadani7975
      @ahlamessaadani7975 ปีที่แล้ว

      @@WomenThrivingwithMS Will fatigue continue to persist in it

    • @ahlamessaadani7975
      @ahlamessaadani7975 ปีที่แล้ว

      I mean, the fatigue will be compatible with approximately how long

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      @ahlamessaadani7975 it was 5 to 9 months for me.

  • @beckydavidson8018
    @beckydavidson8018 ปีที่แล้ว

    Thank you for sharing your experience. I have been experiencing very similar symptoms, my left side of face, left hand and entire left leg are numb with pain. My doctor has sent me for MRI of brain and thoracic and lumbar spine.. but nothing found. I suppose that is a good thing, but it still leaves me with the numbness and pain. When I hear your story and some others I can 💯 percent relate, however no lesions on MRI must rule MS out.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hi Becky wow sounds similar for sure. Maybe another MRI in a year would be a good idea 💡. I've heard of others where nothing shows up but does later. I hope it passes for you or they find out what else it good be. Thank you for sharing your experience. 💜

  • @ericag2233
    @ericag2233 ปีที่แล้ว

    I have had 3 episodes of this. Each episode lasted less than 24 hours. My neurologist confirms that this is part of my MS.

  • @janbarriault4494
    @janbarriault4494 ปีที่แล้ว

    when the medicine is worse than the disease?? i find myself feeling skeptical about big pharma products, when they start giving the drugs away... perhaps i'm a little paranoid, but i will stick to my home grown, balanced-hybrid cannabis... safe and effective! greatest thing Trudeau government ever did for healthcare in Canada!!

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      You know what's best for you and what works best for you. That's what most important. 🤩

  • @danyalrao-dl8lt
    @danyalrao-dl8lt ปีที่แล้ว

    What's about ALS patient?they use medicine or not??

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      I don't know. I'm not a doctor. My videos are about my experience living with MS. 💜

    • @anastasiav626
      @anastasiav626 10 หลายเดือนก่อน

      ALS is sooooooo under researched that doctors does it even know what causes it or what is it. So how can anyone in right mind find medication for something that don't know what is it? Unless you like this 23 year old female I knew where her family just knew that organic diet is better for her that chemo. She died very organically conscious at 23.

  • @MichelleSears
    @MichelleSears ปีที่แล้ว

    Thanks for sharing. I’m talking with my doctor today about this treatment.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Thank you for watching the video, Michelle. Wishing you well with your conversation with the doctor today. 🤩

    • @MichelleSears
      @MichelleSears ปีที่แล้ว

      @@WomenThrivingwithMS I'm going to take Mavenclad.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      @@MichelleSears hiw do you feel about your decision?

    • @MichelleSears
      @MichelleSears ปีที่แล้ว

      @@WomenThrivingwithMS I feel optimistic about it. I’ve been diagnosed for about 13 years now and I’ve only been on Copaxone. I want to be done giving myself shots!

  • @dianefresca6896
    @dianefresca6896 ปีที่แล้ว

    Not doing well. Its kicking my butt So New and frustrating. Walking is not good haven't walked without assistive devices. Hope ampura will work. Just started my 2nd bottle of ampura.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Hi Diane, know that you are doing the best you can while dealing with fatigue. I hope the medication works for you. It's better to be walking with a device than not walking. Keep it up. Moving your body uses energy and gives you energy. It's also so important for your mental health. 🤩

  • @dianefresca6896
    @dianefresca6896 ปีที่แล้ว

    New with MS at age 68. On Kesimpta, bacolfen, naltrexone. Most of my lesions are cervical and thoracic

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Diane how are your doing? Thank you for watching the video.

    • @Gigiroo
      @Gigiroo 11 หลายเดือนก่อน

      You can still get MS in your 60’s???? 😢 or have you lived with it and not known it since you were 20-40 years old?

    • @colleensmith3374
      @colleensmith3374 11 หลายเดือนก่อน

      Diagnosed at 54 on Kesimpta … fog & fatigue are real but feel pretty good overall! Nature & exercise help me most !

  • @marieb9081
    @marieb9081 ปีที่แล้ว

    Thanks so much for sharing your experience. This is happened to me a few times now and now I finally have a name to put to it. My doctor doesn’t seem concerned, or even seem to recognize this as an MS symptom, but it’s a very frightening experience when it does happen.

    • @WomenThrivingwithMS
      @WomenThrivingwithMS ปีที่แล้ว

      Thank you for sharing Marie that you have experienced this too. I appreciate your comment. 💜