Two Disabled Dudes
Two Disabled Dudes
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2DD Podcast | Rare Resilience - Nathan Peck
Nathan Peck recently shared a glimpse of his personal journey with #VCPdisease and his work through the patient advocacy organization he co-founded, Cure VCP Disease • Meet Nathan in this week’s Rare Resilience segment (ep252), made in partnership with #RAREis
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The Two Disabled Dudes Podcast is about cultiating the courage to live life beyond circumstances. Available wherever you find podcasts.
twodisableddudes.com
มุมมอง: 42

วีดีโอ

246 - Empowering Accessibility, One Review at a Time
มุมมอง 17หลายเดือนก่อน
In this episode, we discuss the groundbreaking work of Roll Mobility (rollmobility.com) , a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locations. By ranking establishments based on their accessibility features, Roll Mobil...
2DD Podcast | 246 - Empowering Accessibility, One Review at a Time
มุมมอง 62 หลายเดือนก่อน
In this episode, we discuss the groundbreaking work of Roll Mobility, a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locations. By ranking establishments based on their accessibility features, Roll Mobility empowers individ...
245 - Settle or Soar? Embracing Uncertainty
มุมมอง 102 หลายเดือนก่อน
The Dudes talk about life changes and the significance of pursuing growth and opportunities, even in the face of uncertainty. Reflecting on personal anecdotes and advice, they underscore the value of acceptance, adaptation, and gratitude in embracing life's journey. Also in his episode: • Kyle's most recent challenging experience with airline travel • Newsworthy - 'Go On, Be Brave' documentary ...
244 - Change & Consistency with Progressive Disease
มุมมอง 102 หลายเดือนก่อน
In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations, and managing the desire for both fast and slow change. Also in this episode: • Emergency haircuts and curbcut confusion • Newsworthy: FOX 5 Las Veg...
2DD Podcast | 244 - Change & Consistency with Progressive Disease
มุมมอง 432 หลายเดือนก่อน
In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations, and managing the desire for both fast and slow change. Also in this episode: Emergency haircuts and curbcut confusion Newsworthy: FOX 5 Las Vegas S...
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
มุมมอง 52 หลายเดือนก่อน
In this episode, Dr. David Fajgenbaum shares his journey of discovering a drug that saved his own life. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such opportunities. Dr. Fajgenbaum discusses his nonprofit organization, EveryCure, which aims to unlock new uses for existing FDA-approved drugs. The...
Interview from Ep. 243: EveryCure & David Fajgenbaum
มุมมอง 232 หลายเดือนก่อน
David Fajgenbaum shares his journey of discovering a drug, sirolimus, which has been effective in treating Castleman disease, a rare disorder. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such opportunities. Dr. Fajgenbaum discusses his nonprofit organization, EveryCure, which aims to unlock new us...
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment
มุมมอง 842 หลายเดือนก่อน
Dave (Dr. Lynch), a seasoned clinician and researcher specializing in Friedreich’s ataxia (FA), sheds light on his nearly three-decade journey at the forefront of FA care. Throughout the conversation, Dave emphasizes the indispensable role of patient participation in research, underscoring the collaborative spirit driving advancements in FA drug development. Also in this episode: Sean’s sleep-t...
241 - Feeling Helpless? Here Are 4 Ways To Help
มุมมอง 132 หลายเดือนก่อน
For Rare Disease Patients, the drug development process can feel huge and overwhelming. It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What about the patient's role? Listen as The Dudes discuss 4 of the many ways patients can have an impact. Also in this episode: • Ever received a mysterious ...
240 - Adapting to Life's Curveballs
มุมมอง 52 หลายเดือนก่อน
Adapting to changes is a big part of life for everyone. Listen as The Dudes discuss their approach to adapting. In this episode: • Kyle uses a voided ID to get past TSA on his way to North Carolina and back. • Newsworthy from Instagram: Young man paralyzed from the shoulders down after a spinal cord injury in 2020 ( travisgilmoree?next=/sums12/&hl=ms) • The Dudes get into a discus...
239 - Season Premier - Are You a Doer or a Talker?
มุมมอง 162 หลายเดือนก่อน
Listener Brian lets the Dudes know that Kyle has in fact been driving illegally for 10 years. Does Kyle have a plan to address this dilema? In the Season 11 premiere, Kyle and Sean dive into the challenges and triumphs of pursuing dreams, overcoming fears, and embracing new opportunities. The Dudes also discuss the power of setting goals, the fear of failure, and the importance of discipline in...
238 - Season Finale - The Dynamics of Friendship
มุมมอง 32 หลายเดือนก่อน
In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted and genuine conversation. From childhood influences like movies to bucket list aspirations, The Dudes share personal stories, providing insight i...
237 - The Vital Role of Caregivers in Rare Disease Advocacy
มุมมอง 12 หลายเดือนก่อน
We are thrilled to have Effie Parks and Daniel DeFabio in this powerful episode! Together, we discuss the pivotal role of the caregiver’s voice in the realm of healthcare, particularly in the context of rare disease. Our dialogue revolves around the essential role of caregivers, whether they are parents, aunts, uncles, or other family members, in advocating for those who may not have the abilit...
236 - A Mom's Perspective on Devastation and Gratitude
มุมมอง 42 หลายเดือนก่อน
Sean and Kyle engage in a heartfelt conversation with Caley Caroll, a mother, caregiver, and fierce advocate for her son Whitten John and his health challenges. Whitten John was diagnosed with Diabetes Insipidus and Langerhans Cell Histiocytosis, two rare diseases. Caley shares the emotional journey of receiving the diagnoses, the difficulties of caregiving, and the impact on her family. She re...
235 - Addressing the Epidemic of Wheelchair Damage by Airlines
มุมมอง 52 หลายเดือนก่อน
235 - Addressing the Epidemic of Wheelchair Damage by Airlines
234 - World Duchenne Awareness Day - Jett Foundation
2 หลายเดือนก่อน
234 - World Duchenne Awareness Day - Jett Foundation
233 - Should Disability Heighten Our Sense of Responsibility?
มุมมอง 22 หลายเดือนก่อน
233 - Should Disability Heighten Our Sense of Responsibility?
232 - Can Rare Disease Create Heroes?
มุมมอง 52 หลายเดือนก่อน
232 - Can Rare Disease Create Heroes?
231 - Speak Up, Stand Out: Silence is Not Advocacy
มุมมอง 42 หลายเดือนก่อน
231 - Speak Up, Stand Out: Silence is Not Advocacy
230 - Navigating Mental Illness: Parent Stories
มุมมอง 62 หลายเดือนก่อน
230 - Navigating Mental Illness: Parent Stories
229 - Exercise and Motivation: Challenges of Disability
มุมมอง 22 หลายเดือนก่อน
229 - Exercise and Motivation: Challenges of Disability
228 - Podcasting Insights and Reflections
มุมมอง 12 หลายเดือนก่อน
228 - Podcasting Insights and Reflections
227 - Pushing Boundaries: A Blind Athlete's Story
มุมมอง 12 หลายเดือนก่อน
227 - Pushing Boundaries: A Blind Athlete's Story
226 - Navigating Disability & Long-term Relationships
มุมมอง 22 หลายเดือนก่อน
226 - Navigating Disability & Long-term Relationships
225 - From Preterm to Pediatrician: Tyler's Triumph with CP
มุมมอง 22 หลายเดือนก่อน
225 - From Preterm to Pediatrician: Tyler's Triumph with CP
224 - The Power of the Patient Voice - BIO International
มุมมอง 12 หลายเดือนก่อน
224 - The Power of the Patient Voice - BIO International
223 - Attitudes Can Change - Let's Talk Debra
2 หลายเดือนก่อน
223 - Attitudes Can Change - Let's Talk Debra
222 - Is Technology Good or Bad? Yes.
มุมมอง 52 หลายเดือนก่อน
222 - Is Technology Good or Bad? Yes.
221 -Disability & Fun Can Coexist
มุมมอง 62 หลายเดือนก่อน
221 -Disability & Fun Can Coexist

ความคิดเห็น

  • @rockywanek1358
    @rockywanek1358 หลายเดือนก่อน

    How long ago was this interview? If it's recent then he is sounding so much better!

  • @maewyn01
    @maewyn01 หลายเดือนก่อน

    Great to hear that they are making travel by airplane better. It did make me wonder if public transport is already easily accessible for people with disabilities in the US? I know that Americans fly a lot, but for everyday things, public transport will be more important for many. In my country the UN Convention on Disability must be adhered to. But in practice, not everything is accessible. Hope you both have a great week.

  • @abahe-ataxiashereditarias
    @abahe-ataxiashereditarias 2 หลายเดือนก่อน

    I like these three guys so much that I had to watch their conversation again. It's always a pleasure to hear the three of you.

  • @bansenpy5553
    @bansenpy5553 2 หลายเดือนก่อน

    😂😂😂neither on 2pac or biggie is a first for my ears

  • @connorc-f6785
    @connorc-f6785 3 หลายเดือนก่อน

    👨🏻‍🦽👨🏻‍🦽😎👍

  • @angelahebert4561
    @angelahebert4561 2 ปีที่แล้ว

    Yup, by any means, cane, scooter, wheelchair - wanna keep going! Great podcast.