Dinkykts EDS Diaries
Dinkykts EDS Diaries
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Super Katie and the Amazing Stretchy Powers - Story Written By Katie Wearing
Meet Katie, a girl with amazing stretchy powers! Join her and her mischievous cat Pixie, on a fun-filled adventure that teaches the power of teamwork, creativity, and kindness. In this heartwarming story, Katie learns how her unique abilities, called cEDS, make her special - and how everyone has their own kind of superpower!
This uplifting children's story is perfect for kids aged 4-11 and encourages, empathy, resilience, and self-acceptance.
What's your superpower? Share your thoughts in the comments below!
Please check out www.worldofdinky.co.uk for more...
Love DinkyKt
That Kid in Fourth Grade Who Really Liked the Denver Broncos by Chris Zabriskie is licensed under a Creative Commons Attribution 4.0 licence. creativecommons.org/licenses/by/4.0/
มุมมอง: 147

วีดีโอ

My Dinkykts EDS Diaries 2024 Highlights
มุมมอง 22วันที่ผ่านมา
2024 was an incredible year for Dinkykts EDS Diaries! Join me as I reflect on the highlights, milestones, and memorable moments from the past year. From raising awareness about Classical Ehlers-Danlos Syndrome (cEDS) to creating impactful content, growing our amazing community, and making strides in advocacy and support, 2024 was truly special. This video is all about celebrating the progress w...
Scoliosis - What is it?
มุมมอง 48หลายเดือนก่อน
Hi and welcome back to DinkyKts EDS Diaries TH-cam Channel! In today's video, we learn and understand Scoliosis, especially when you have EDS as well. Please check out www.worldofdinky.co.uk where you can find much more and browse through our online store. Love DinkyKt
What To Do Next…?
มุมมอง 903 หลายเดือนก่อน
Hi and welcome back to my channel. In today's video, we chat about what to do next with regard to Dinkykts EDS Diaries. I'd love to hear your thoughts. Please check out our website at www.worldofdinky.co.uk for much more! Love DinkyKt CGI Snake by Chris Zabriskie is licensed under a Creative Commons Attribution 4.0 licence. creativecommons.org/licenses/by/4.0/
My Latest Physio Appointment
มุมมอง 1084 หลายเดือนก่อน
Hi everyone, In today's we are talking about my latest physiotherapy appointment with some lovely footage included. Please check out our website for much more including our online store where we donate a small % from each order at... www.worldofdinky.co.uk Love DinkyKt
My Recent Orthotist Appointment
มุมมอง 1024 หลายเดือนก่อน
Hi everyone, In today's video, we chat about my new Malleo Dynastab BOA splint. It is to help my ankle that sub-luxes and to help it stop from doing it. Thank you for watching and please check out our website at www.worldofdinky.co.uk where you can find much more including our online store. A small percentage from each other goes towards the Ehlers-Danlos Support UK charity. Love DinkyKt
My Rheumatology Physiotherapy Appt
มุมมอง 414 หลายเดือนก่อน
Hi everyone, In today's video, we go to the hospital followed by a chat about how it went. Love DinkyKt Infinite Perspective by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 licence. creativecommons.org/licenses/by/4.0/ Source: incompetech.com/music/royalty-free/index.html?isrc=USUAN1500024 Artist: incompetech.com/
Disability Pride Month - What is it?
มุมมอง 526 หลายเดือนก่อน
Hi, in todays video we talk about what Disability Pride Month is and why I’m proud to be who I am. Please check out our website at www.worldofdinky.co.uk for much more!! Including our online store with lots of great gifts you can buy. Love DinkyKt 🖤👩🏻‍🦽🦓👩🏻‍🦽🦓🖤
My Orthotics Appointment
มุมมอง 656 หลายเดือนก่อน
Hi everyone, In today's video, it's all about my Orthotics appointment to hopefully help me with my ankle issue. Thank you for watching and don't forget to check out our website for much more... www.worldofdinky.co.uk Love DinkyKt
Dazzle Walk May 2024
มุมมอง 706 หลายเดือนก่อน
Hi everyone, today's video we are going back in time but to me for the dazzle walk that we did and you can see what a great time we all had. Thank you to everyone who sponsored both me and my niece Ciara, it is much appreciated by both of us and by the charity. We should be receiving our certificates and medals within the next few weeks. Thank you for watching and don't forget to like, share, a...
International Scoliosis Awareness Day - Wednesday 26th June 2024
มุมมอง 676 หลายเดือนก่อน
Hi, Wednesday 26th June is International Scoliosis Awareness Day and here I am sharing my story about having Scoliosis and what it’s like to live with it. Thank you for watching, Love DinkyKt 🖤🦓👩🏻‍🦽🦓🖤
My Hand Therapy Appt
มุมมอง 3007 หลายเดือนก่อน
My Hand Therapy Appt
My Hand Therapy Appointment
มุมมอง 828 หลายเดือนก่อน
My Hand Therapy Appointment
My OT (Occupational Therapy) Appointment
มุมมอง 919 หลายเดือนก่อน
My OT (Occupational Therapy) Appointment
My New Zimmer Frame
มุมมอง 16410 หลายเดือนก่อน
My New Zimmer Frame
What Happens When Things Change? Rare Disease Day 2024
มุมมอง 6910 หลายเดือนก่อน
What Happens When Things Change? Rare Disease Day 2024
Wanting Your EDS/Rare Disease Stories for Rare Disease Day
มุมมอง 4311 หลายเดือนก่อน
Wanting Your EDS/Rare Disease Stories for Rare Disease Day
Our New Hoodies!!
มุมมอง 3811 หลายเดือนก่อน
Our New Hoodies!!
One Year Anniversary of My Wheelchair
มุมมอง 11Kปีที่แล้ว
One Year Anniversary of My Wheelchair
Our Hopes For Dinkykts EDS Diaries during 2024
มุมมอง 48ปีที่แล้ว
Our Hopes For Dinkykts EDS Diaries during 2024
Do I Have Dislocations and/or Subluxations?
มุมมอง 46ปีที่แล้ว
Do I Have Dislocations and/or Subluxations?
Talking About Dislocations and Subluxations
มุมมอง 46ปีที่แล้ว
Talking About Dislocations and Subluxations
Visiting The Lakeland Motor Museum
มุมมอง 84ปีที่แล้ว
Visiting The Lakeland Motor Museum
New Calendars for 2024!!
มุมมอง 38ปีที่แล้ว
New Calendars for 2024!!
How Do I Get On Trains?
มุมมอง 256ปีที่แล้ว
How Do I Get On Trains?
My Issues With Socks!
มุมมอง 119ปีที่แล้ว
My Issues With Socks!
Vascular Ehlers-Danlos Syndrome (VEDS)
มุมมอง 84ปีที่แล้ว
Vascular Ehlers-Danlos Syndrome (VEDS)
Having My Bone Density Scan
มุมมอง 99ปีที่แล้ว
Having My Bone Density Scan
May’s EDS Awareness Month
มุมมอง 33ปีที่แล้ว
May’s EDS Awareness Month
My CPAP Update - A Week Later
มุมมอง 160ปีที่แล้ว
My CPAP Update - A Week Later

ความคิดเห็น

  • @Neville-N
    @Neville-N 6 วันที่ผ่านมา

    Using your creative writing skills to connect with and educate a younger audience about CEDS Katie is most definitely where your talents lie. So simple yet beautifully constructed Katie. Always saw Pixie making it big time 😂😂 But seriously we'll done. 👏👏 All my best, Neville 🙂🙃🙂🌹🍀🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 วันที่ผ่านมา

      I’ve been thinking about doing this all over Christmas and I’m glad I’ve finally done it. Thank you so much. I’m planning on doing it once a month series, following Katie’s adventures; all based around cEDS. Haha Pixie just had to be involved somehow! 😉🐈 But thank you Neville. If you can share it, that would be brilliant. 😀♥️

    • @Neville-N
      @Neville-N 6 วันที่ผ่านมา

      @dinkyktsedsdiaries5018 I just said literally ten minutes ago we are going to see more of 'Super Katie' We will look forward to seeing your creativity. You should be so proud to have finally seen your plans come to fruition. 😍🐯👍 Just so you know Katie I am not on any social media so cannot share sadly. Take care, 😊 😊

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 วันที่ผ่านมา

      Ahh that’s okay, thank you anyway 😉 just by watching it helps. Haha definitely more of Super Katie and possibly Pixie. ♥️

  • @Neville-N
    @Neville-N 10 วันที่ผ่านมา

    You continue to excel Katie in your awareness work and fundraising. It has been a pleasure to support you during 2024 and the very best wishes for 2025. Take care, Neville 🙂🙃🙂🌹🌹🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 วันที่ผ่านมา

      Thank you, I try my best. I’m determined to try and up my game this year though. I appreciate your kindness and support so much ♥️😀😀

    • @Neville-N
      @Neville-N 7 วันที่ผ่านมา

      @@dinkyktsedsdiaries5018 😊🌹😊

  • @Neville-N
    @Neville-N 10 วันที่ผ่านมา

    Hi Katie, I'm behind with posting comments. Please forgive me. As always your awareness videos are extremely interesting and well researched👍 Your contribution is invaluable. Your deserve every credit there is ❤ Take care, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 วันที่ผ่านมา

      Hi Neville, Aww please don’t worry. I still appreciate you and your support whenever you comment. Thank you so much. 😀❤️‍🩹🩻

  • @Neville-N
    @Neville-N 2 หลายเดือนก่อน

    Hi Katie the pictures on your new calendar look fabulous and thank you for ordering one for me.😊 We have enjoyed your 2024 calendar and the wonderful images each month. I will send you payment Katie ASAP Well done for your efforts in raising funds for your charity 😊 You're a star 🌟 Sending all my best, Neville 🙂🙃🙂🌹🍀🌹

  • @BananaMonkeyOat
    @BananaMonkeyOat 2 หลายเดือนก่อน

    I thought you were a ai at first how dumb am I😭💀

  • @BananaMonkeyOat
    @BananaMonkeyOat 2 หลายเดือนก่อน

    TIMMEH TIMMEH AGHHH😭💀

  • @emery1691
    @emery1691 2 หลายเดือนก่อน

    Sexy look with the machine, Takes a little getting used to for everyone.

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 2 หลายเดือนก่อน

      Ha thank you! I ended up not being able to tolerate it.

  • @Neville-N
    @Neville-N 4 หลายเดือนก่อน

    Hi Katie, so pleased your physio appt went well. I think we need to have much patience with excercise. I'm thinking you are very strong willed and put 100% into anything if it's going to have benifits. There is that saying that from small acorns grow giant Oak trees! That is it with excercise we only notice a difference over a period of time! Sending best wishes. Take care, Neville 🙂🙃🙂🌹🍀🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 4 หลายเดือนก่อน

      Hi Neville, I’m sorry for the late reply. I’m looking forward to going back to the gym at FGH again. Oh I am when I can be 💪🏼 that’s a very true saying. Take care and thank you for watching. 🤗👟🏥

  • @Neville-N
    @Neville-N 4 หลายเดือนก่อน

    Keeping everything crossed for the next few weeks Katie! But promising early signs it will help your ankle. 🤞I've had similar supports on one ankle but found them uncomfortable to wear in shoes but hopefully you will do fine with them. 🤞Take care, Neville 🙂🙃🙂🌹🍀🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 4 หลายเดือนก่อน

      I’m getting used to it now thankfully, it’s a little bit bit big on the ankle/foot part but as long as the straps are pulled tight then it’s good. Not often I have to have things pulled tight 😂 aww yeah they’re not all that great are they, always best with a specifically made for the person if possible. 🦶🏼👟😀

  • @Neville-N
    @Neville-N 4 หลายเดือนก่อน

    Hi Katie, I'm sorry you haven't heard from me recently 😢 I had what we're calling a 'blip' and had to go to hospital. It's been a slow recovery since returning home 😢 But as you know it cheers me to see you, especially when things go well on your appointments. I am going to catch up now 😊 Sending my best wishes, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 4 หลายเดือนก่อน

      Hi Neville, aww please don’t apologise, I just hope that you’re okay? I was a bit worried about you. Aw thank you, you are always so kind. Take care 🤗☀️🌳♥️

    • @Neville-N
      @Neville-N 4 หลายเดือนก่อน

      @@dinkyktsedsdiaries5018 And thank you for your kind message Katie. I'm feeling a lot better now thank you. 😊

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 4 หลายเดือนก่อน

      @@Neville-N ♥️

  • @Neville-N
    @Neville-N 5 หลายเดือนก่อน

    That's fascinating Katie. Well done for your contribution to Disability Pride Month! I've learnt so much from your channel.👍 Have a nice Sunday....the sun is coming out! Take care, Neville 👏🦓👏🌹🌹🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 5 หลายเดือนก่อน

      Thank you Neville, I try my best. 🤗 I hope you’re enjoying the lovely weather we’ve been having lately. 🌞😀

  • @kennyguitarallen5662
    @kennyguitarallen5662 6 หลายเดือนก่อน

    Nice one my mate

    • @Neville-N
      @Neville-N 6 หลายเดือนก่อน

      Hi Katie, that was brilliant! You are a shining star 🌟 🤩 ⭐ Take care, Neville 🌹🌹🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      Hi Neville, thank you. 🥰👩🏻‍🦽👩🏻‍🦽👩🏻‍🦽

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      Thank you K 👩🏻‍🦽😀

  • @Neville-N
    @Neville-N 6 หลายเดือนก่อน

    Hi again Katie, I'm pleased your appointment was rearranged without too much delay. As with all orthotics sometimes just a small improvement can make a huge difference to the end user. You came away positive which I'm so pleased to hear. If it is more comfortable then that brings great benifits in wearability and day to day use.. From our own experiences the service provided has been from completely inadequate to excellent. I do hope you receive the latter. Best wishes & take care, Neville 🙂 🙃 🙂🌹🌹🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      Hello Neville, it was great being able to see them quicker than what they thought. I’m hoping it will fit me okay as he didn’t look at my foot properly but I’m sure he knows what he’s doing. 👍🏼 thank you. Let’s hope England bring it home!! 🏴󠁧󠁢󠁥󠁮󠁧󠁿🦁⚽️

    • @Neville-N
      @Neville-N 6 หลายเดือนก่อน

      @@dinkyktsedsdiaries5018 Let's hope so but not looking to good!⌛

  • @Hasan_mahmud50
    @Hasan_mahmud50 6 หลายเดือนก่อน

    What a wonderful trip down memory lane! It's heartwarming to see the joy and camaraderie during the dazzle walk.

  • @Neville-N
    @Neville-N 6 หลายเดือนก่อน

    Hi Katie, what a lovely video! I think you chose the most perfect day of the year to do your walk! It was a great achievement and real team effort! 👏 Take care, Neville 🙂🙃🙂🍀🦓🍀🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      Hey Neville, aww thank you! We ended up being very lucky with the weather. Thank you for your sponsorship too. Take care 🏴󠁧󠁢󠁥󠁮󠁧󠁿👩🏻‍🦽🚶🏻‍♀️🚶🏻‍♂️☀️

  • @mrkphilippines1194
    @mrkphilippines1194 6 หลายเดือนก่อน

    A nice day in the sun.

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      It was a lovely day especially with the weather. 🤩

  • @Neville-N
    @Neville-N 6 หลายเดือนก่อน

    Hi Katie, a very informative video on an important day of the year! Based on your figures there may be around 20,000 children annually in the UK alone born with Scoliosis! As you've said before an early diagnosis is important, so that help can be provided. I believe the outcome can be very good if treated from an early age. 😊 Having the best support at home as you have is vital. Overcoming all the hurdles along the way and learning to focus on your abilities rather than disabilities. Having goals and working towards achieving them. 😊 These have made you the inspiration that you are ❤ I know I've become a better person since I have followed your journey,😊 (I wasn't too bad before😂😂) Always room for improvement. I hope today is a good day for you and your family 👪 Take care, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 6 หลายเดือนก่อน

      Hello Neville, I only wish I had more facts and info in the video but I was on a very tight short schedule for this so did the best I could in the time I had. It’s crazy at how many children have Scoliosis, and I agree. Early detection is brilliant especially with the waiting times for clinics nowadays which could mean the curvatures could get worse. Aww thank you: a lot of it with me is that I’ve not known any different and they monitored me closely growing up. Thank you for your support and lovely comment with the info. You and your family take care too. ☺️🦓♥️

  • @LorraineMccall-lx1vj
    @LorraineMccall-lx1vj 7 หลายเดือนก่อน

    does it have table and chairs on decking

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 หลายเดือนก่อน

      No, it didn’t. You could take the dining chairs out onto it though if you wanted to. It was more of a ramp but there was room to sit out on it.

  • @LorraineMccall-lx1vj
    @LorraineMccall-lx1vj 7 หลายเดือนก่อน

    does it have table and chairs on the decking

  • @Hasan_mahmud50
    @Hasan_mahmud50 7 หลายเดือนก่อน

    Hi Katie, Wow, you make such beautiful videos! What is the goal of your TH-cam channel? Are you thinking about future monetization or something like that? Want to create your own brand. A new message for 2024. I visited your TH-cam channel, Your content is just wow but the main reason the video goes viral is video SEO and promotion of your video targeted audience. Your channel has only 162 subscribers and views are very low. Your SEO score is absolutely Low. 9 May 2021 Created your TH-cam channel. But accordingly not getting enough subscriber views like comments. Your video needs to be on-page SEO and Off-page SEO. Then you can see good results day by day And get lots of subscribers and views. ("As your youtube channel SEO partner, I aim to take your TH-cam channel to new heights and achieve lasting success")

  • @Neville-N
    @Neville-N 7 หลายเดือนก่อน

    It is easy to become isolated Katie. Even with a good support system around you. Talking through issues, sharing the burden. You'll find people will want to help or show where it is available. Being honest with yourself, accepting that you need help and then confiding with someone is the first step to improving mental health. That alone will feel like a great weight has been lifted. Well done Katie. That was quite a challenge. Your a great ambassador for the EDS community. 🦓🦓👏👏 Take care, Neville 🙂🙃🙂🌹🍀🌹

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 หลายเดือนก่อน

      It’s very easy to become isolated especially if you’re struggling mentally. I agree so much. Thank you, I’m proud of doing the challenge but I’m glad it’s over with now. Things will slow back down again now as I recover from it all. 😀🦓👩🏻‍🦽☀️

  • @Neville-N
    @Neville-N 7 หลายเดือนก่อน

    That is a very powerful message Katie conveyed with much emotion. You are so kind and generous in holding a hand out to help others in the EDS community. Take care and enjoy May 31st, your birthday and the end of your challenge.🎉🎁 🍾🎂🍾🎁🎉

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 หลายเดือนก่อน

      Thank you so much Neville!! 😀👩🏻‍🦽🦓🎁🥳☀️😍

  • @Neville-N
    @Neville-N 7 หลายเดือนก่อน

    Never take anything for granted is something I've believed in for many years. Enjoy the moment and the good people you have around you. And it's very true, the best things in life are free. We all have a lot to be grateful for but sometimes lose sight of it. Take care, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 หลายเดือนก่อน

      Very true Neville. Always appreciate every moment whether it’s good or bad but take the bad as a life learning lesson. Thank you 😀☀️🦓

    • @Neville-N
      @Neville-N 7 หลายเดือนก่อน

      ​@@dinkyktsedsdiaries5018Thank you Katie 😊😊

  • @Neville-N
    @Neville-N 7 หลายเดือนก่อน

    Hi Katie, support is everything like you say. You have the very best ❤ Take care, Neville 🙂 🙃 🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 7 หลายเดือนก่อน

      Hi Neville, it really is so important. Thank you, I’m very lucky. Hope you enjoyed your trip away. 😀🏴󠁧󠁢󠁳󠁣󠁴󠁿♥️

    • @Neville-N
      @Neville-N 7 หลายเดือนก่อน

      We did Katie whilst the sun shined 😊 Thanks

  • @andymcpandy2128
    @andymcpandy2128 8 หลายเดือนก่อน

    Hey random internet person. 😊

  • @johneccles3026
    @johneccles3026 8 หลายเดือนก่อน

    Aww hugs Katie xx

  • @johneccles3026
    @johneccles3026 8 หลายเดือนก่อน

    Aww

  • @johneccles3026
    @johneccles3026 8 หลายเดือนก่อน

    Wow 40? I thought you were same age as me x

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Ha I’ll be 39 this Friday so still got a year to go before I turn 40 xx

  • @johneccles3026
    @johneccles3026 8 หลายเดือนก่อน

    Great song. Walney looks beautiful on a sunny day

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      We’re so lucky to live where we do John ☀️😍

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    It must be very frustrating Katie. It can only improve when people like yourself are raising awareness and raising funds for EDS charities to put forward initiatives to the health authorities. Well done for being part of the effort to improve the care to EDS sufferers. Take care and well done for your wonderful effort with the Dazzle Walk. 🙂🙃🙂🍀🌹🦓

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Thank you, I'm trying. Id like to do more and somehow get involved with training of medical professionals (at least) to raise awareness and understanding of EDS, and how it affects people. :-D

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Well done Katie with your challenge ❤ I hope the Dazzle Walk goes well! The sun is shining! But take care and only do what you can. 5 miles sounds mighty ambitious and I know you will give it your all. Best wishes, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Thanks so much! 😊 It went really well, thank you. Everyone that joined us along the way enjoyed themselves which is a bonus. It took us one hour fifty minutes to do the 5 miles but that was with a few little breathers as we met with others.

  • @tiaroberts7056
    @tiaroberts7056 8 หลายเดือนก่อน

    Well done girl keep going ❤❤❤

  • @darren7469
    @darren7469 8 หลายเดือนก่อน

    It's no wonder your light is here to share with so many who will take the time to honor the example in peace which you so beautifly exemplify - thank you!

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Aww thank you, that’s really very kind of you to say. ☺️

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Hi Katie, greetings from Scotland. We're just having a short break. Love the selfie! You look lovely as you always do. You are very photogenic and a natural infront of the camera ❤ Never ever felt at ease myself 😂 😂 Usually hide if I see one 😂 Saturday is fast approaching and I'll be thinking of you on your 'Dazzle' walk. Please weather, stay dry 🤞 Sending my best wishes, take care, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Hello, and I hope you’re having a great time in Scotland and I hope the weather is good there for you all. Aww thank you, very kind of you to say. ☺️ it took me a long time to get used to being in front of the camera tbh but I always get nervous when other people are taking pictures of me. You’re like my Dad, he hates being in front of it too. Thank you, let’s hope the weather is good for Saturday 🤞🏼 take care. 😀🦓🚶🏻‍♀️👩🏻‍🦽♥️

  • @blackwing97
    @blackwing97 8 หลายเดือนก่อน

    very true

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Well done Katie for catching up on your challenge. I have been watching and learning. Thank you for just being you 😊 Your the best 🥰 Sending best wishes, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      It’s not been easy catching but at least I’m trying, huh?!! 😉 thank you. Aww that’s really nice of you to say. Thank you Neville for always being so kind. 😀☀️🦓♥️

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    Such a cool idea to use lipstick as your red for vEDS xx

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Thank you, it was a last minute resort. I didn’t have a reds 4 VEDS T-shirt and thought the red lipstick would stand out just as much. 💄💋 xx

  • @jimbrody3009
    @jimbrody3009 8 หลายเดือนก่อน

    Might sound silly but have you tried nature? I suffered with depression and anxiety and the only thing that got me feeling normal was going back to nature, being in the green surrounded by trees, wildlife, natural music, beauty beyond belief.

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      It doesn’t sound silly so thank you for thinking about it. I’m lucky that I live near the beach and some stunning places nearby which are nice to visit. Thank you.

  • @ACDuke2489
    @ACDuke2489 8 หลายเดือนก่อน

    Thank you for sharing your story, wishing you health and happiness in the future. ❤

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    You should be so proud of yourself Katie. You have to 'climb mountains' to achieve your goals and your right to remind everyone. ❤ I do hope your efforts to see Blue recently were rewarded. 😊 I know it will have taken alot out of you so take care and slowly build back up again 😊 I love the new top 💙 All my best, Neville 🦓🌹🦓

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Aw thank you 🤗 it was definitely worth the pain and exhaustion seeing them again 🥰 I will try my best, thank you ♥️

    • @Neville-N
      @Neville-N 8 หลายเดือนก่อน

      @@dinkyktsedsdiaries5018 So pleased to hear Katie 💙🌹💙

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    Wow she's 15?! What a loyal companion 😍 xx

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      I know, I can’t believe she’s 15 either. Definitely been through a lot with her and I’d be lost without her. 😻 xx

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    It's definitely a lottery when it comes to who you end up dealing with and whether or not you get the help you need xx

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      That’s very true, some are great and some are not so great… xx

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    Gosh such powerful words. This was really well put together xx

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Hi Katie, i've been watching your videos over the last few days with interest. Marvelled at your ability to put your struggles into poetry. It was very moving ❤ So grateful to your Rheumatology Doctor for being so kind to you ❤ And reassured that you have Pixie to turn to in times of need ❤ "Once a fighter always a fighter" Take care, Neville 🙂🙃🙂🍀🌹🍀

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Hi Neville, aww thank you. People have always said that I’m good at writing and it’s something I enjoy doing… expressing myself through words. ☺️ my Rheumy doctor is fantastic when I do see and speak to her although it’s been other ones who have spoken to me recently instead of her and I’m hoping it’ll be her again next time. Pixie is my feisty little fur baby always there for me 😻 you take care too 🥰🦓🤗♥️ ps thank you so much for the sponsorship on my dazzle walk 👩🏻‍🦽♥️

    • @Neville-N
      @Neville-N 8 หลายเดือนก่อน

      @@dinkyktsedsdiaries5018 Your welcome Katie. 😊🌹😊

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    I can relate to this so much 😥 xx

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      I’m sorry that you can relate to this too, feel free to message me on my page whenever and I’ll reply back asap xxx

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Hi Katie, a great achievement for you. We'll done you and the College 👍It must have boosted your confidence no end. Loved the photos 👍🦓🌹🦓

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      I feel very proud of what I achieved. Especially when I got accepted into two different universities- one for journalism degree, and the other for combined honours degree in criminology, psychology and sociology. Thank you, 🥰🥰🏆🦓👩🏻‍🦽

  • @Neville-N
    @Neville-N 8 หลายเดือนก่อน

    Hi Katie, yes I recall you saying that there was a Hydrotherapy Pool at your local hospital and that was lost! I did read there was something similar at Kendal but that is much further to travel. A great shame! Take care and well done with your challenge 👏 Neville 🙂🍀🙂🦓🌹🦓

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Hello Neville, yeah it’s a great little pool and it was always very hot. I was referred to the pool at Kendal but they couldn’t meet my needs so had to turn it down. For once a month, it would have been worth the trip 😀 could have a made a day out of it 😆 thank you. Got a Dazzle Walk this month which I can’t wait to do. Take care. 👩🏻‍🦽🦓😀♥️

    • @Neville-N
      @Neville-N 8 หลายเดือนก่อน

      @@dinkyktsedsdiaries5018 Oh that was unfortunate regarding the pool but do keep trying incase they could meet your needs at some point in the future. Hope the Dazzle Walk works out well for you Katie, weather etc behaves itself 🤞 Are you being sponsored for it? Count me in if you are! Best regards, Neville 🦓🌹🦓

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    Being online has really helped me too xx

  • @leloulan
    @leloulan 8 หลายเดือนก่อน

    Couldn't live without my heatpad! An essential piece of kit xxx

    • @dinkyktsedsdiaries5018
      @dinkyktsedsdiaries5018 8 หลายเดือนก่อน

      Mine is one of those that goes under your bed sheet. Can’t live without it! But struggle more when I’m away from home without it. Glad you have a heat pad that helps you xxx

  • @habilistalk
    @habilistalk 8 หลายเดือนก่อน

    ขอให้คุณหายดี