LivingthedreamwithMS
LivingthedreamwithMS
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MS and Covid 19
MS and Covid 19
มุมมอง: 257

วีดีโอ

I'm baaaack...kind of
มุมมอง 3245 ปีที่แล้ว
MS Vlog
Taking a break
มุมมอง 2307 ปีที่แล้ว
ME Blog
Humor and MS
มุมมอง 1827 ปีที่แล้ว
Weekly MS Vlog
Being humbled
มุมมอง 1817 ปีที่แล้ว
Weekly MS Vlog
Muckfest MS
มุมมอง 1107 ปีที่แล้ว
Weekly MS Vlog main.nationalmssociety.org/site/TR/MuckFest/MAMMUCKEvents?team_id=528872&pg=team&fr_id=28834
The most terrifying 4 minutes of my life
มุมมอง 4007 ปีที่แล้ว
Weekly MS Vlog
Why can't I even just be "normal"?!
มุมมอง 3147 ปีที่แล้ว
Weekly MS Vlog
Make the effort
มุมมอง 1127 ปีที่แล้ว
Weekly MS Vlog
Use it or lose it
มุมมอง 1357 ปีที่แล้ว
Weekly MS Vlog
Quick hello
มุมมอง 677 ปีที่แล้ว
Quick hello
Breaking point
มุมมอง 2297 ปีที่แล้ว
Breaking point
Spasticity
มุมมอง 3117 ปีที่แล้ว
Spasticity
MS and the Epstien Barr Virus?
มุมมอง 3007 ปีที่แล้ว
MS and the Epstien Barr Virus?
Left handed
มุมมอง 1537 ปีที่แล้ว
Left handed
MS Awareness Month- Get involved
มุมมอง 877 ปีที่แล้ว
MS Awareness Month- Get involved
Early spring with MS
มุมมอง 1007 ปีที่แล้ว
Early spring with MS
Pain causing pain
มุมมอง 1607 ปีที่แล้ว
Pain causing pain
Tinctures, edibles, and life examples
มุมมอง 1457 ปีที่แล้ว
Tinctures, edibles, and life examples
Vertibro cochlear nerve inflammation
มุมมอง 4087 ปีที่แล้ว
Vertibro cochlear nerve inflammation
Lack of sensation and self care
มุมมอง 2307 ปีที่แล้ว
Lack of sensation and self care
Topic pot pourri
มุมมอง 767 ปีที่แล้ว
Topic pot pourri
Week 52 (yup, that's a year)
มุมมอง 997 ปีที่แล้ว
Week 52 (yup, that's a year)
MS and the dreaded man cold
มุมมอง 1867 ปีที่แล้ว
MS and the dreaded man cold
The chip on my shoulder
มุมมอง 1307 ปีที่แล้ว
The chip on my shoulder
Bells Palsy (and facial nudity)
มุมมอง 1287 ปีที่แล้ว
Bells Palsy (and facial nudity)
Late and over did it
มุมมอง 767 ปีที่แล้ว
Late and over did it
MS support groups
มุมมอง 1887 ปีที่แล้ว
MS support groups
MS and fashion choices
มุมมอง 907 ปีที่แล้ว
MS and fashion choices
Faith and MS
มุมมอง 927 ปีที่แล้ว
Faith and MS

ความคิดเห็น

  • @baronghede2365
    @baronghede2365 3 หลายเดือนก่อน

    Try the Mediterranean diet, try Herb's like turmeric, ginger and Asian ginsing and speak to a chiropractor, Blessed Be.

  • @brigittescott2438
    @brigittescott2438 ปีที่แล้ว

    Does the MS hug feel like a cramp in your legs but it’s around your ribs?

  • @angelathompson3820
    @angelathompson3820 2 ปีที่แล้ว

    I am interested to know how you know that this is like wearing a ladies corset🤔😉

  • @danduran2860
    @danduran2860 2 ปีที่แล้ว

    Love your videos!

  • @danduran2860
    @danduran2860 2 ปีที่แล้ว

    Thank you for the many great videos! They explain our illness very well and show that you are not alone.

  • @SO-te5cl
    @SO-te5cl 2 ปีที่แล้ว

    th-cam.com/video/EHVXJpDBcmU/w-d-xo.html In this video, Alan Macdonald, FCAP, A pathologist from Florida, and a well respected researcher goes over some impressive findings regarding Spinal Fluids of patients with Multiple Sclerosis. In particular, nematode worms observed under Dark Field microscopy, or even with the naked eye.

  • @SO-te5cl
    @SO-te5cl 2 ปีที่แล้ว

    th-cam.com/video/EHVXJpDBcmU/w-d-xo.html In this video, Alan Macdonald, FCAP, A pathologist from Florida, and a well respected researcher goes over some impressive findings regarding Spinal Fluids of patients with Multiple Sclerosis. In particular, nematode worms observed under Dark Field microscopy, or even with the naked eye.

  • @Oceanxx12
    @Oceanxx12 2 ปีที่แล้ว

    Can I ask I have these symptoms after covid do yours pass ?

  • @Oceanxx12
    @Oceanxx12 2 ปีที่แล้ว

    Can you get this without ms

  • @smmcb647
    @smmcb647 2 ปีที่แล้ว

    Thanks for that report. I really appreciate your honesty. May God bless you and keep you healthy.

  • @adamh7947
    @adamh7947 2 ปีที่แล้ว

    Acupressure

  • @sandynelson918
    @sandynelson918 3 ปีที่แล้ว

    missing you

  • @TrueThingsPrevail
    @TrueThingsPrevail 3 ปีที่แล้ว

    I have this only on one side. Is that typical?

  • @tinam2696
    @tinam2696 3 ปีที่แล้ว

    July 2020 the tightness was so bad I thought I was having a heart attack. Went to ER... Cardiologist, Gastroenterologist ( he found a small gallstone, but DOES NOT think my pain is related). Long story short (too late), I still have this pain almost every night. Like a belt is TIGHTLY wrapped around my bra line. NOTHING HELPS. Doctors & I haven't got a clue 😥

  • @jaimeraya1170
    @jaimeraya1170 3 ปีที่แล้ว

    How are you ?

  • @livingthedreamwithms862
    @livingthedreamwithms862 3 ปีที่แล้ว

    USA

  • @daisiecritch844
    @daisiecritch844 3 ปีที่แล้ว

    What country is this please?

  • @chriswilliams7824
    @chriswilliams7824 3 ปีที่แล้ว

    Thanks for the upload and transparency. You insight brings hope. I was diagnosed October 2019 and entirely taken aback. This condition is mysterious and a blow to the self-confidence. Pain is more than physical. To go from working and active to significantly challenged sucks. I'm curious to know if you've had success with, or heard of the Terry Wahls Protocol/ diet? She's a Dr. who went a wheelchair to walking by eating differently. What works for you besides medicines? Again, thanks for the post. Stay💪and🥗

    • @macclift9956
      @macclift9956 2 ปีที่แล้ว

      Sounds interesting - I'm going to look this up.

  • @janakujawa1629
    @janakujawa1629 3 ปีที่แล้ว

    I use ice to numb it!

  • @thelastjohnwayne
    @thelastjohnwayne 3 ปีที่แล้ว

    That was a beautiful thing that your boys did.

  • @qaisaraslam8196
    @qaisaraslam8196 3 ปีที่แล้ว

    Brave man

  • @babbswallis3120
    @babbswallis3120 4 ปีที่แล้ว

    Great video, humour is what gets me through everyday.

  • @qaisaraslam8196
    @qaisaraslam8196 4 ปีที่แล้ว

    Really a motivational person

  • @zach9930
    @zach9930 4 ปีที่แล้ว

    Can this go away

  • @Boris-xs2eq
    @Boris-xs2eq 4 ปีที่แล้ว

    Your Dad is only 63 ??!!.....Did he have you when he was 12 ?!

  • @demandyourhealth4293
    @demandyourhealth4293 4 ปีที่แล้ว

    I think most people who live with pain understand pain the most/ I 100 percent agree family comes first no matter how bad you hurt

  • @demandyourhealth4293
    @demandyourhealth4293 4 ปีที่แล้ว

    I appreciate you telling this so I want feel crazy when I tell my ms doctor 😃

  • @demandyourhealth4293
    @demandyourhealth4293 4 ปีที่แล้ว

    I have this problem a whole lot like at night or in the mornings

  • @thepersian204
    @thepersian204 4 ปีที่แล้ว

    I can't believe you didn't even lament about the Bruins! Glad the vids are back

  • @Tns85
    @Tns85 4 ปีที่แล้ว

    Hey. How are you doing! Been a long time!

  • @AJHR77
    @AJHR77 4 ปีที่แล้ว

    Good to see you back. Yes,I think some of us MS'ers are not taking this seriously. It can be lethal as they say it is 10 x more lethal than the flu and they are still attempting to figure out if is airborne. Everyone stay safe and healthy.

  • @michaeldial4449
    @michaeldial4449 4 ปีที่แล้ว

    Thank you for posting this. This one helped answer some questions I had. I haven’t seen vids from you in a while, it’s good to see you doing well. .

    • @livingthedreamwithms862
      @livingthedreamwithms862 4 ปีที่แล้ว

      I'm so glad it helped. I'm trying to come up with some more content. I dont want to film unless there is value. Thanks for subscribing.

  • @wembley_2086
    @wembley_2086 4 ปีที่แล้ว

    Hi! I have been experiencing the exact symptoms for several months. I’ve been waiting to see a neurologist I see him the end of May. Everything you talked about related to me perfectly. I’d like to chat about it!

    • @livingthedreamwithms862
      @livingthedreamwithms862 4 ปีที่แล้ว

      You can dm me on Facebook if youd like. Nathan Bilotta. Thanks for watching.

  • @riddlerthe9547
    @riddlerthe9547 4 ปีที่แล้ว

    Hi, thought Id share my story. It started in Nov 18, I thought bugs were biting me whilst I was watching TV, but when I looked there was nothing there. It really freaked me out, as it only happened when I relaxed on an evening, this happened now and again for a couple of months, I'd have a few weeks off and then the symptoms would return. It was about May 19 that I remember walking around and my t shirt feeling odd, like my skin was sun burnt and I had the intense itching all over, my face, chest, back, legs and feet, groin and lower back. I went to the docs and they prescribed me antihistamine which I took for a month but it didn't help. I started getting the itching more often like something was running across my face, like being tickled with a feather. It was like pin pricks and sharp stabs and electric shocks. These symptoms got worse and worse until it was happening every day. I went to the docs and they said my nerves sounded like they were getting too excited, so I was prescribed Amitriptyline, I took 10mg then 20mg over a few months but got frustrated that they weren't helping and ended up going 30mg, and that seemed to work. It didn't take my symptoms of the itch and pain away completely but it reduced it by about 80% which was great. This lasted about 3 months because I ended up having a random flare up in Dec 19 which went eventual died back down. But I'd say for 3 to 4 months I was symptom free taking the medication. But it wasn't all was good, I started to notice I was getting extremely anxious in situations I normally wouldn't, like I was getting nervous and I couldn't look people in the eye. I realised it must be the meds. I reduced back down to 20mg and immediately I felt back to normal but my symptoms came back bad. I went back to the docs again and they said it was anxiety and prescribed me some anxiety meds but they said I had to get off Amitriptyline first. Over a few weeks I reduced down and experienced some pretty bad withdrawal symptoms as well as having the itchiness come back. After doing some research I knew I didn't have anxiety plus the tablets they wanted me to try would have no effect on my suspected nerve pain, so I went back to the docs. They kind of fobbed me off again and prescribed me Gabapentin. I researched the tablets and read some horror stories, so decided against it but the itchiness was intense. So again I went back to the docs and demanded I see a neurologist. Out of my own research I asked if I could try Nortriptyline which is similar to Amitriptyline but newer and slightly different make up. And that's where I am today, I await my appointment for the neurologist and until then I'll keep on the Nortripyline. I started on 10mg which worked at first but I'm currently going through a bad flare up and not even 20mg seems to be helping. Will be going up to 30mg soon and I hope it helps. I really hope I don't get the nasty paranoia side effect either. I will say this, some days are better than others, sometimes I can get distracted and mostly forget the itching is there but some days it's so intense its all I think about. Other symptoms cold hands and feet, forgetful when talking to people.

    • @AlanWakesPookie
      @AlanWakesPookie 2 ปีที่แล้ว

      I feel the same thing I freaked out bugs were on me too I havnt seen a doctor yet but I’m feeling the exact stuff u are and it’s really bugging tf outta me

    • @junkdnareviews2515
      @junkdnareviews2515 2 ปีที่แล้ว

      @@AlanWakesPookie mri showed us wasn’t ms. Doctors think it’s my brain putting my sensations on high alert. There is medication out there to help. I’m moving on to gabapentin or something similar. Releasing and moisturiser helps.

  • @larryhofer8853
    @larryhofer8853 4 ปีที่แล้ว

    Lawrence here from Dinsmore Colony in Saskatchewan Sir those damn DRUGS I was in same situation my neurologist gave me another drug it's called Lemtrada it helped me

  • @aneia6353
    @aneia6353 4 ปีที่แล้ว

    Never knew this was a symptom I have SPMS and I’ve been suffering from this on my scalp like bugs and my skin. I’m itching all night. I have been vaping CBD tonight and it’s helped. Now I’m itching all over again since I’ve stopped vaping and about to go to bed. Thx for your video!

  • @karrigirl
    @karrigirl 4 ปีที่แล้ว

    Can you help me? Not me but my husband. He’s been diagnosed since 2010, refuses a wheelchair and all of his neurologist have told him he needs to be in a wheelchair. Who am I to say he needs to be in a wheelchair, when my sweet Hubster isn’t ready.

  • @inkdupbagman3697
    @inkdupbagman3697 4 ปีที่แล้ว

    I don't have ms but I do have "nerve itches" and they are very aggravating

    • @thenow5559
      @thenow5559 4 ปีที่แล้ว

      Hi, i get that as well, did ur doctor run tests to clear for MS?

    • @inkdupbagman3697
      @inkdupbagman3697 2 ปีที่แล้ว

      @@thenow5559 I have no other symptoms

  • @masonjohnson2376
    @masonjohnson2376 5 ปีที่แล้ว

    good luck

  • @blubbi2010
    @blubbi2010 5 ปีที่แล้ว

    At what point (if ever) did you have lesions show up on MRI and did you have a lumbar puncture?

  • @annam1905
    @annam1905 5 ปีที่แล้ว

    My nuero opthamologist was talking to me he thinks I have ms I have so many horrible symptoms but so far my mri of head and spine look ok and each day I get worse and worse I just had a spinal tap also after this if this comes out fine then I need to be referred to a neurologist its horrible all my symptoms all my symptoms r in my left side of my body I have dizziness swaying off balance numbness tingling burning pain in leg toes arm fingers I have double vision in my left eye I even have the same thing what they call an ms hug I have alot of back pain I'm so tired I wake up thruout the night with muscle spasms I also have urinary problems constipation I cant even take a shower without feeling off balance swaying tingling and forget that pedicure I got 2 weeks ago horrible I just hope I get the diagnosis its I have been tested for so many other things and they r all fine

    • @noelleplumer1397
      @noelleplumer1397 5 ปีที่แล้ว

      Did you ever geta diagnosis? I am going through all the same symptoms now. MRI results are pending. Prayers you get answers. I know how frustrating it is.

    • @annam1905
      @annam1905 5 ปีที่แล้ว

      @@noelleplumer1397 no no diagnosis yet still having all them bad symptoms and even more now I'm in so much pain everyday too

    • @ShepardfortheLord
      @ShepardfortheLord 4 ปีที่แล้ว

      Just wanted to wish you well being and softening of your symptons. Things will get better, have faith. I will pray for you.

    • @annam1905
      @annam1905 4 ปีที่แล้ว

      @@ShepardfortheLord thank u

    • @southernbelladonna78
      @southernbelladonna78 3 ปีที่แล้ว

      @@annam1905 how are you doing? I'm going through the same thing. Did you ever get a diagnosis?

  • @annam1905
    @annam1905 5 ปีที่แล้ว

    nice job kids helping dad

  • @emeraldcity7942
    @emeraldcity7942 5 ปีที่แล้ว

    are there ways u can quiet your immune system?

  • @manny_mo
    @manny_mo 5 ปีที่แล้ว

    I have a stutter too... Hang in there... You got this

  • @manny_mo
    @manny_mo 5 ปีที่แล้ว

    Me too. I hate it. Any tips? :’( I’m desperate. Any way... how you’re okay. :/

  • @DickRileyTheConquistador
    @DickRileyTheConquistador 5 ปีที่แล้ว

    If youre 65 tho the govt foots most of the bill. If youre elderly or mentally handicapped in a care facility its free. Theres nothing fair about that when alot of us will never see those benefits. You must be VERY well off if you can afford that and still have a roof over your head, but what would happen if u cant provide, is it all free under disability?

  • @danielsuttles1960
    @danielsuttles1960 5 ปีที่แล้ว

    Have you ever tried using a nasal spray? I have ms also and ever since the beginning I have had a problem with inflammation in my ears(so bad that not even a q-tip could fit at all and I become very dizzy when it is at its worst. This inflammation also diminished my ability to swallow efficiently but with the nasal spray it goes away completely(for as long as the medicine is working) I just wanted to give you a head up on that if you haven't tried that before.

  • @prestonfontana8416
    @prestonfontana8416 5 ปีที่แล้ว

    As an amateur stand up comedian with MS, you and Richard Pryor are big inspirations for me. I'm probably one of just a VERY small group of comedians in Canada doing any circuit with MS. Hell, I wouldn't be surprised if I was the only one.

  • @andreawheatley5528
    @andreawheatley5528 5 ปีที่แล้ว

    Welcome back, keep fighting

  • @prestonfontana8416
    @prestonfontana8416 5 ปีที่แล้ว

    Good to see you again! As a fellow male with MS, it is incredible to have another guy's viewpoint on this. Been 10 years symptomatic, 3 years diagnosed, and over 2 years since last relapse. Have you tried Lemtrada? That stuff works WONDERS