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I 💕 that they have eachother 😊

Please get in touch w/ me or tell me how I can get in touch with you. I would love a child 10 & under & a baby 1- 4. Please help getting me on the right track. Much love & blesses.❤️❤️

🙏🙏🙏😢😢😢🤗😘🇬🇧

Would just like to edit to add. For a few years the part where I say he is not disabled is hard for me to watch. It was my programming coming through, thinking that was bad. He is disabled & it is a beautiful life💛💙

Amazing family.

Here!! 7q31 and his other chromosome has too many duplications to read, so this deletion is what he has.

🤢

Qué Sophia, descanse en paz por la misericordia de Dios y brille para ella la luz perpetua. Amén

My 4th daughter has Chromosome 7Q Deletion (34, 35 & 36)

Rendon Dennis Vlogs sir ohh dagko na gni sila na same case ni amiro❤

Hello. Please reach out to me. I am the Executive Director of the 5p- Society the support group for Cri du Chat syndrome. Would love to reach out to the parents. I have a 36 year old daughter with the syndrome.

Sophie was such a happy girl. Her smile and laughter was contagious. I just started watching the Grow With Sophie episodes. She was adorable. I loved the video of Sophia's YES button. So cute 🥰

Thank you for educating us. ♥️.

Can u share latest updates pls..

Their parents clearly adore them and they are happy women who love each other, too Cri du chat comes with plenty of struggles, but those with it can often live long, happy and fulfilling lives if they are supported and loved

Her other two children are growing up with love understanding compassion and accepting people for who they are regardless of their disability even facial disability and also seeing the beauty they have inside and out.

Sofia was beautiful! I'm so sorry for your loss.

Natalie, I run into your family's story accidentally some days ago: since then I've watched every single video YT kept suggesting to me. My admiration for you is beyond words, you're the best mom ever, your children are lucky and Sophia has had a happy life. You and your husband are raising good human beings, thanks for that. I keep thinking to Sophia everyday, with a smile. Thanks for telling this story.

My 5 year old was born missing 50-75 %of her skin she’s alive though and doing amazing I just found out that she may have autism which explains a lot of the delays that she’s had and little strange behaviors. I also had a daughter with anencephaly and she passed away at 23 days old 4 years ago. I wanted her to live so bad and I would’ve gave up my life to care for her. I finally got pregnant a couple months ago and it ended in a miscarriage . I want another child so bad and it hurts every day but I’m so happy that I do have my daughter EMMA she is so amazing and I have her12 year old big sister, she was my only healthy child out of 4. I am so blessed even though sometimes I feel so cursed.

This is sweet😊

Dad: I get to come home and see these creepy ugly looking things😂😂😂😂

The mom can't even look at them😂😂😂😂

Rock baby be smiling out of nowhere and eyes the same 😮

There smiles are adorable ❤

So can they live a regular life, or are they retard?

Sophia was such sweet, smart girl. She could talk using assistance. She understood every word. She loved her family and wanted to be part of the conversation. She was so much different from the little l cared for who has RETT.S❤he got a lot of physical therapy. She was in a stander for 2 hours a day. She did not want to socialize with anyone. She seemed happiest watching a tv show for toddlers. I tried other shows for older kids and she was not interested. To be honest she mostly had a dour expression on her face and wasn’t interested in socializing. Her mom said she wrote book reports and other things. But I find that hard to believe. She got a couple of new nurses she didn’t like. She couldn’t 🎉communicate why. They got some women who want an expert in the eye gaze, Tobi computer communication. This women couldn’t tell what was up. Her siblings did not pay much attention to her. They had given up. She’s graduated from HS. Her mom has her doing art projects using her eye gaze computer. I hope it’s really her who is enjoying making artistic pictures. She has a voice that speaks for her. They’ve given her a bit of a Russian accent even though no one in her house has an accent. I hope it’s really her who is creating the eye gaze art. And I hope she really does have friends

The parents seem really special really centered and caring ❤ I am glad the girls have them.

What a Loving Family.❤💕

What a beautiful Mom and Dad they are TRULY BLESSED!

So she has the Mosaic form of Trisomy 18? Those are usually the only ones that might survive.

These poor parents.

🤔 There goes the argument of *Quality vs Quantity* of life. I can understand if it's like Christopher Reeve where the mind is intact and you can still understand, communicate, and choose things. It's entirely something else to have little comprehension of everything around you or any choices in the matter, what to do, where to go, how to live, when to die. Just being *subjected to 2-3 operations per yr for 10 yrs* and in constant state of recovery was Torture but to what end? *Sophia's parents oversimplified things* when they told people it's just "facial, hands, and feet deformities." It's so much more including *limited cognition and severe physical limitations.* For instance, *she never progressed mentally, emotionally more than a few months old* and they couldn't even teach her to push buttons like dogs/cats to communicate. *She only lived as long as 10.5 yrs* because of their needs for her to be with them, and *thanks to the 28 surgeries* costing Millions. I admire her parents for their blind faith, tenacity, and words of warmth, acceptance, and love but, in the end, it was still their will and desire overriding hers and Nature every step of the way because *a few minutes of videos here and there showing Sophia "laughing" do NOT translate to emotional depth and sentiments or override her long months and years of tremendous suffering.*

You can tell Dad loves the heck out of them!

So they are blessed! God send angels everywhere. 😇😇 🤗🥰

Not to mention how many of us want our children to be home but they have their own lives. The best of both worlds ❤️🙏

Amazing parents I'm glad I came. So loving

Them smiles make me smile

Remember i playing piano with five fingers and sophia have a four fingers

God is great and can do great things. I know what it's like to be Givin choices during a pregnancy and we like you chose our sons life. After 3 open heart surgeries in his first 3 years he has thrived. Best case scenario as you said. He is now 26 and unless you saw his scars you would never know!! Alot af praying. We put our trust in God!❤

Thank you for sharing .Thank you for saying YES to life and giving this sweet little girl a chance. God bless

Logan and Sydney's story has taught me about Cri Du Chat syndrome. I didn't know about it. They are lovely young women and Terry and Stacy, you are phenomenal parents. Your children are so blessed to have you as mom and dad ♥ ♥ God Bless!

❤❤❤❤❤

rip Sophia 😭

2:52 "Church" is where YOU'RE at ✝️

God didnt make a mistake when they made them a beautiful story love is always the answer🙏♥️♥️💞💞🙂

Who here after chrisean? I’m just tryna educate myself

Drinking alcohol while pregnant can result in fetal alcohol spectrum disorders. The most severe is fetal alcohol syndrome

Im a med student and currently studying different genetic diseases, one of which is Rett sdr. I sometimes get caught up with studying and stressing over grades that i forget to actually look at real life and see the people that i wish to heal one day. I hope she rests peacefully now, free of her earthly chains.

Sidney looks like she keeps a smile on her face. I pray Numbers 6:24-26 over you and your family! Beautiful family 😇🙏🏾❤️

🙏